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Author Topic: excited to be starting treatment tomorrow.  (Read 9249 times)

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Offline hkillinger99

  • Member
  • Posts: 12
excited to be starting treatment tomorrow.
« on: May 03, 2015, 03:14:02 pm »
 ;D I am thrilled, grateful, and blessed to be starting Harvoni treatment tomorrow. Thank you all for being here, as I know there will be highs and lows, as well as questions. Will continue to update.

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: excited to be starting treatment tomorrow.
« Reply #1 on: May 04, 2015, 10:47:14 am »
hkillinger99 Welcome and good luck with this new journey
and please come back and post how you are doing
I am just on my 3rd week and so far no problems at all :)
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

Offline Wood stove

  • Member
  • Posts: 15
Re: excited to be starting treatment tomorrow.
« Reply #2 on: May 04, 2015, 08:32:44 pm »
Hi there hkillinger99 and welcome to the club .I started a week ago tomorrow. So not to far ahead of you. Best of luck on this journey.

Offline hkillinger99

  • Member
  • Posts: 12
Re: excited to be starting treatment tomorrow.
« Reply #3 on: May 04, 2015, 09:45:29 pm »
Harvoni arrived at my job today. Bless my co-workers, they were so excited for me. Took my first pill around 12 noon. Probably a mistake, as I passed out from exhaustion around 5:30 pm.  Will likely take in the evenings before bedtime from here on out.  What works best for you all? Any other suggestions besides keeping hydrated? I am fortunate to only have to take the treatment for 8 weeks...hoping to be undetectable by July. Will continue to update and bless you all for your support.

Offline Wood stove

  • Member
  • Posts: 15
Re: excited to be starting treatment tomorrow.
« Reply #4 on: May 05, 2015, 09:43:14 am »
The first week for me was tiring, that first day for me to I was exhausted.  But it gets  better as the week goes on. Day eight now and feel almost normal again ,well what ever normal is. I must say my head is clearer today than it has been in a long time. Stay positive. Joe

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: excited to be starting treatment tomorrow.
« Reply #5 on: May 05, 2015, 11:25:51 am »
That first day was crazy for me too.  I think it was the stress and excitement of taking the first pill.  Not knowing what to expect even though I read so much about it.  I started taking mine at 12 noon also but quickly switched to 8 AM.  I bring it with me to work and take it at exactly 8 every day.  I thought that taking at 12 was keeping me awake at night
Today is my 20th day and I feel OK.  An occasional headache but that is about it

Good luck to you and all and I hope for everlasting SVR
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

Offline Wood stove

  • Member
  • Posts: 15
Re: excited to be starting treatment tomorrow.
« Reply #6 on: May 05, 2015, 05:33:07 pm »
I take mine at about 5-5:30 am before I leave for work. So far so good.
Today I felt normal ,till about 10:00am then was tired and a little headache, normal till 10 ,so tomorrow maybe normal till 11ish.  Joe

Offline hkillinger99

  • Member
  • Posts: 12
Re: excited to be starting treatment tomorrow.
« Reply #7 on: May 06, 2015, 12:50:09 pm »
Feeling poorly today, body aches, belly ache and headache  :( I am still trying to figure out the right time of day to take the medicine.  Took it at 8pm last night, but was up til after midnight and must get up at 6:30am.  I'm going to try taking it around 5pm after I get home from work.  I know it should be taken at the same time every day, I guess I just need to pick a time and commit to it.  Thanks for any and all support.  Also, what is the best pain reliever for us to take? I thought it was ibuprofen, then I read it's bad for the liver and acetaminophen is better...any ideas?

Offline BubbaT

  • Member
  • Posts: 267
Re: excited to be starting treatment tomorrow.
« Reply #8 on: May 06, 2015, 01:37:32 pm »
Hi Killinger,

I'm at week 9 and have been using lemon water every day, it works, try it, also
Limit red meat, and go low salt, and cut out processed food, go organic if possible,
Your diet, you have control over, it will definitely make you feel better by eating only real foods, avoid high fat foods...

I had a very difficult first 2 weeks, after changing diet, things are good and steady..

I take my pill in the morning with lemon water,  no problems sleeping...
« Last Edit: May 06, 2015, 01:39:05 pm by BubbaT »
Age 57 male
Infected late 70's
Diagnosed 95
1a, 2 prev biopsy 95, 2004
Ct 2007, 2015
Treatment Naive
F4 A3. Fibrosure/ CT 2-5-15. Ammonia 222
VL 2.2 mil.
Started Harvoni  3-3-15. 12weeks, finished 5-26-15
4 week VL undetected
12 week EOT undetected

 


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