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Author Topic: One month after ending treatment with Harvoni --Undetected  (Read 22358 times)

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Offline Mm

  • Member
  • Posts: 10
One month after ending treatment with Harvoni --Undetected
« on: April 28, 2015, 04:31:54 pm »
To all the Warriors,

I am pleased to report that my first test for SVR after finishing Harvoni in March came back undetected.  All the blood tests were normal. 

I was detected in the 1990's and my viral load was 6,900,00 plus when I began Harvoni on January 1st.  I was only treated 1x previously with interferon and it had no effect, except to make me sick.

I wanted to share the news that there really is light at the end of this long, dark, lonely tunnel.

Keep on fighting!  We will win this battle.
Mm
Logged

Offline Long_Haul

  • Member
  • Posts: 161
  • Slayed the Dragon
Re: One month after ending treatment with Harvoni --Undetected
« Reply #1 on: April 28, 2015, 08:19:08 pm »
MM, Congratulations on your great news. I too just found out about 15 minutes ago that my 4 weeks post treatment results were Undetected as well. Looks like we will make it to SVR12 and like you, I am puling for all of or warrior friends to make it to the finish and slay the dragon!

Best wishes,

AL
Logged
Genotype 1A

Diagnosed 1989
Biopsy-cirrhosis stage 4 2000, no starting VL this round

3 rounds of Int+Rib
(Combo/48wks,Peg/26 Wks,Triple with Incivek/16wks)
UND with Incivek, Relapsed
Started 12 weeks Harvoni and Rib Jan 2nd,2015
4 weeks Undetected
8 weeks Undetected!
EOT at 12 weeks Undetected
EOT at 24 weeks STILL UNDETECTED
Completed TX Mar 26th,2015

EOT plus 4 weeks UNDETECTED
EOT plus 12 weeks UNDETECTED !!!!!!!!!!! I am DONE!

NO LONGER a member of the "WAITING GANG"

Offline Karen3717

  • Member
  • Posts: 28
Re: One month after ending treatment with Harvoni --Undetected
« Reply #2 on: April 28, 2015, 09:31:51 pm »
That's amazing news, guys.  Thanks for sharing....it gives me so much hope.  I'm about to finish week 6 of 12.  Was still detected at week 4 but <15. Im hopeful for undetected at 8 weeks.  I am so happy for you.  Keep us posted on your progress.
Karen.
Logged
Transfusion 1982; Multiple accidental needlesticks; healthcare worker
(+) HCV antibody 1991
Genotype 1a
2001-Pegintron/Ribavirin 48 wks. Relapse 2mo post tx
2015-VL 316,000
Fibrosure-F2
Started Harvoni 3/13/15
2 weeks:  HCV PCR <15-DETECTED
4 weeks: HCV PCR <15-DETECTED
8 weeks: HCV PCR <15-DETECTED
12 weeks:  HCV PCR: NOT DETECTED!
4 Weeks EOT: HCV PCR:  NOT DETECTED!
12 Week post TX:  HCV PCR NOT DETECTED!

Offline Mm

  • Member
  • Posts: 10
Re: One month after ending treatment with Harvoni --Undetected
« Reply #3 on: April 28, 2015, 10:36:28 pm »
Yeah AL!
I'm so happy to hear your excellent news. We are all in this together.
MM
Logged

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: One month after ending treatment with Harvoni --Undetected
« Reply #4 on: April 29, 2015, 02:30:04 am »
Congrats long haul and Mm and welcome to the forum Mm by the way.

6 more Harvoni pills to end my 24 weeks of treatment so I'm right behind you guys!
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Long_Haul

  • Member
  • Posts: 161
  • Slayed the Dragon
Re: One month after ending treatment with Harvoni --Undetected
« Reply #5 on: April 29, 2015, 07:56:56 am »
Thanks MM, Karen, and Lynn. This was a big milestone for us and I can now really start to adjust to what my future might be without HCV influencing my life everyday. I am now working to establish a new NORMAL for my body and mind. I'm sure it will take some time to get used to.

Thanks so much,

AL
Logged
Genotype 1A

Diagnosed 1989
Biopsy-cirrhosis stage 4 2000, no starting VL this round

3 rounds of Int+Rib
(Combo/48wks,Peg/26 Wks,Triple with Incivek/16wks)
UND with Incivek, Relapsed
Started 12 weeks Harvoni and Rib Jan 2nd,2015
4 weeks Undetected
8 weeks Undetected!
EOT at 12 weeks Undetected
EOT at 24 weeks STILL UNDETECTED
Completed TX Mar 26th,2015

EOT plus 4 weeks UNDETECTED
EOT plus 12 weeks UNDETECTED !!!!!!!!!!! I am DONE!

NO LONGER a member of the "WAITING GANG"

Offline charly8

  • Member
  • Posts: 113
Re: One month after ending treatment with Harvoni --Undetected
« Reply #6 on: April 29, 2015, 10:01:21 am »
This 4 week test is definitely the big hurdle.  Waiting as well now.
Logged
1a, VL  1.05 Mil, ALT 47
Fibrosure F3 December 2014
Fibroscan F0-F1 March 2015
1995 INT & RYB -non-responder
2007 PEGIN & RYB 72 weeks tx - partial responder relapsed
1/23/15 Started Harvoni 12 weeks, EOT 4/17
2 week blood work -  <15 Und. (ALT 25)
4 week blood work - <15 Und. (ALT 29)
2/20/15 added RYB (4 weeks into 12 of tx)
8 week blood work - <15 Und. (ALT 23)
(EOT) 12 week blood work - <15 Und.
4wk POST tx VL - Und. (ALT16, AST 17)

Offline Mm

  • Member
  • Posts: 10
Re: One month after ending treatment with Harvoni --Undetected
« Reply #7 on: April 29, 2015, 12:02:11 pm »
Thanks Karen, Lynn,  Charly and AL,

It's so good to have a place to share our progress as we end treatment and wait to be declared CURED!

Is anyone experiencing any post medication issues?  I feel more fatigued now than when I was on the Harvoni, sort of a brain fog feeling a lot of the time. I assume it's the adjustment to no meds and it will pass.

Staying positive,
Mm
Logged

Offline charly8

  • Member
  • Posts: 113
Re: One month after ending treatment with Harvoni --Undetected
« Reply #8 on: April 29, 2015, 12:30:38 pm »
Quote from: Mm on April 29, 2015, 12:02:11 pm
Is anyone experiencing any post medication issues?  I feel more fatigued now than when I was on the Harvoni, sort of a brain fog feeling a lot of the time. I assume it's the adjustment to no meds and it will pass.

YES!!  It seems typical. 
Logged
1a, VL  1.05 Mil, ALT 47
Fibrosure F3 December 2014
Fibroscan F0-F1 March 2015
1995 INT & RYB -non-responder
2007 PEGIN & RYB 72 weeks tx - partial responder relapsed
1/23/15 Started Harvoni 12 weeks, EOT 4/17
2 week blood work -  <15 Und. (ALT 25)
4 week blood work - <15 Und. (ALT 29)
2/20/15 added RYB (4 weeks into 12 of tx)
8 week blood work - <15 Und. (ALT 23)
(EOT) 12 week blood work - <15 Und.
4wk POST tx VL - Und. (ALT16, AST 17)

Offline kate0b1

  • Member
  • Posts: 293
Re: One month after ending treatment with Harvoni --Undetected
« Reply #9 on: April 29, 2015, 06:01:38 pm »
agh Al and MN i am just seeing this  8) 8) 8) 8) 8) 8) 8), we are so done with this.
@lynn, i am starting to count for you lol, almost there

kate
Logged

Offline Long_Haul

  • Member
  • Posts: 161
  • Slayed the Dragon
Re: One month after ending treatment with Harvoni --Undetected
« Reply #10 on: April 29, 2015, 06:36:00 pm »
Thanks Kate, I am so ready to say good bye to the dragon(I believe I already have!)

I was reading some of the posts that were about Post EOT side effects and the reactions from some of the posters worried about whether they have permanent damage from treatment. I started a topic in the "On Treatment" forum about my thoughts regarding my HCV Journey and the effects of treatment. I would be interested in what you think in comparison to your travel though the HCV experience.
How is your post treatment recovery going?

Best wishes,

AL
Logged
Genotype 1A

Diagnosed 1989
Biopsy-cirrhosis stage 4 2000, no starting VL this round

3 rounds of Int+Rib
(Combo/48wks,Peg/26 Wks,Triple with Incivek/16wks)
UND with Incivek, Relapsed
Started 12 weeks Harvoni and Rib Jan 2nd,2015
4 weeks Undetected
8 weeks Undetected!
EOT at 12 weeks Undetected
EOT at 24 weeks STILL UNDETECTED
Completed TX Mar 26th,2015

EOT plus 4 weeks UNDETECTED
EOT plus 12 weeks UNDETECTED !!!!!!!!!!! I am DONE!

NO LONGER a member of the "WAITING GANG"

Offline terih

  • Member
  • Posts: 74
Re: One month after ending treatment with Harvoni --Undetected
« Reply #11 on: April 29, 2015, 07:59:29 pm »
I just want to wish all of the Waiting Gang here the best of luck! I'm rooting for all of you and so happy for all of you!

And as for how long the side effects lasted, my last pill was on Feb. 3rd and I'm just now starting to feel like myself and have some energy. So there's hope! And I'm not gonna say I was at all patient while I waited!  ;D
Logged
64 yrs. on this fine planet!
diagnosed 1993
Stage 1 cirrhosis
Genotype 1a
12 wks. Harvoni  Relapse late Feb. 2015
Currently treating with Solvaldi/Olysio
The light at the end of the tunnel, is often not a train!

Offline Mm

  • Member
  • Posts: 10
Re: One month after ending treatment with Harvoni --Undetected
« Reply #12 on: April 29, 2015, 08:06:23 pm »
Thanks Terih, Charly and Kate,

It's such a relief to hear that the fog will lift.

Mm
Logged

Offline kate0b1

  • Member
  • Posts: 293
Re: One month after ending treatment with Harvoni --Undetected
« Reply #13 on: April 30, 2015, 06:03:32 am »
morning guys, @Al, I am feeling well, i guess I'm about 6 weeks out now, labs are due in june, i feel pretty good, the last two weeks of tx were not great and the first two weeks out were also not great but i feel like i am slowly getting back to me (who ever that is lol). i am still tired in the afternoon, but am sleeping great and weirdly i am still very thirsty (can't seem to stop drinking water now). I also feel like my anxiety is pretty much gone, so over all I'm feeling pretty chill just waiting for the warm weather cause I'm sure the sun will fix everything.

stay well everyone
kate
Logged

Offline charly8

  • Member
  • Posts: 113
Re: One month after ending treatment with Harvoni --Undetected
« Reply #14 on: April 30, 2015, 08:55:48 am »
Quote from: terih on April 29, 2015, 07:59:29 pm
I just want to wish all of the Waiting Gang here the best of luck! I'm rooting for all of you and so happy for all of you!

And as for how long the side effects lasted, my last pill was on Feb. 3rd and I'm just now starting to feel like myself and have some energy. So there's hope! And I'm not gonna say I was at all patient while I waited!  ;D

So sorry about your relapse terih. I am rather surprised you relapsed, you information would expect the meds to work being tx naive, low VL, no cirrhosis, & 12 weeks of tx.  You actually would have qualified for 8 weeks of tx. 

But keep your hopes up, there are still lots of drugs coming on line.  Please let us know what your doctor says when you go to him.  It sounds like he is knowledgeable. 
« Last Edit: April 30, 2015, 09:11:58 am by charly8 »
Logged
1a, VL  1.05 Mil, ALT 47
Fibrosure F3 December 2014
Fibroscan F0-F1 March 2015
1995 INT & RYB -non-responder
2007 PEGIN & RYB 72 weeks tx - partial responder relapsed
1/23/15 Started Harvoni 12 weeks, EOT 4/17
2 week blood work -  <15 Und. (ALT 25)
4 week blood work - <15 Und. (ALT 29)
2/20/15 added RYB (4 weeks into 12 of tx)
8 week blood work - <15 Und. (ALT 23)
(EOT) 12 week blood work - <15 Und.
4wk POST tx VL - Und. (ALT16, AST 17)

Offline terih

  • Member
  • Posts: 74
Re: One month after ending treatment with Harvoni --Undetected
« Reply #15 on: April 30, 2015, 12:39:45 pm »
Thanks so much Charly! I was pretty stunned too, as was my Doc! He finally acted human when he had to give me the news (he was pretty much a putz up until then) It took some time for me to work through the disappointment, but here I am on the other side of it, looking forward! I'm pretty excited to see the new Doc at the Tx. Liver Institute and will report back!
I did everything as was instructed, the only thing I wonder is if people with a fatty liver need to be treated longer! I will be asking this question and will let everyone know! Any questions anyone can think of that I should ask, please feel free to post them!
Logged
64 yrs. on this fine planet!
diagnosed 1993
Stage 1 cirrhosis
Genotype 1a
12 wks. Harvoni  Relapse late Feb. 2015
Currently treating with Solvaldi/Olysio
The light at the end of the tunnel, is often not a train!

Offline charly8

  • Member
  • Posts: 113
Re: One month after ending treatment with Harvoni --Undetected
« Reply #16 on: April 30, 2015, 01:55:45 pm »
terih,

You say that you did everything as instructed.  Just curious did you miss any doses or did you take them at different times of the day??
Logged
1a, VL  1.05 Mil, ALT 47
Fibrosure F3 December 2014
Fibroscan F0-F1 March 2015
1995 INT & RYB -non-responder
2007 PEGIN & RYB 72 weeks tx - partial responder relapsed
1/23/15 Started Harvoni 12 weeks, EOT 4/17
2 week blood work -  <15 Und. (ALT 25)
4 week blood work - <15 Und. (ALT 29)
2/20/15 added RYB (4 weeks into 12 of tx)
8 week blood work - <15 Und. (ALT 23)
(EOT) 12 week blood work - <15 Und.
4wk POST tx VL - Und. (ALT16, AST 17)

Offline terih

  • Member
  • Posts: 74
Re: One month after ending treatment with Harvoni --Undetected
« Reply #17 on: April 30, 2015, 02:03:14 pm »
No I didn't miss any doses and strictly took my pill at 12:30 each day! No antacids, tons of water and on and on... I just think I may have fallen into the small percentage, that it might not work on! I may just need to be a guinea pig for the next round of miracles!
Logged
64 yrs. on this fine planet!
diagnosed 1993
Stage 1 cirrhosis
Genotype 1a
12 wks. Harvoni  Relapse late Feb. 2015
Currently treating with Solvaldi/Olysio
The light at the end of the tunnel, is often not a train!

Offline terih

  • Member
  • Posts: 74
Re: One month after ending treatment with Harvoni --Undetected
« Reply #18 on: April 30, 2015, 02:05:25 pm »
And so sorry, did not mean to thread jack!!!!!!!
Logged
64 yrs. on this fine planet!
diagnosed 1993
Stage 1 cirrhosis
Genotype 1a
12 wks. Harvoni  Relapse late Feb. 2015
Currently treating with Solvaldi/Olysio
The light at the end of the tunnel, is often not a train!

Offline Long_Haul

  • Member
  • Posts: 161
  • Slayed the Dragon
Re: One month after ending treatment with Harvoni --Undetected
« Reply #19 on: April 30, 2015, 06:39:39 pm »
@Terih, so sorry to hear your news. We are here to celebrate each others success, but we are also here to support our fellow warriors. Stay strong. I have a fatty liver, but my GI added Ribavirin to help keep me on track. It was harder to do and will take longer to recover from the side effects of TX. I knew this coming in as this is my fourth trip. For once "I brought a gun to a knife fight". I hope your next TX works, hang in there and don't worry from my perspective about talking (posting) when you have something to say.

I wish you luck in the future, stay strong! Please know we are all pulling for you.

AL
Logged
Genotype 1A

Diagnosed 1989
Biopsy-cirrhosis stage 4 2000, no starting VL this round

3 rounds of Int+Rib
(Combo/48wks,Peg/26 Wks,Triple with Incivek/16wks)
UND with Incivek, Relapsed
Started 12 weeks Harvoni and Rib Jan 2nd,2015
4 weeks Undetected
8 weeks Undetected!
EOT at 12 weeks Undetected
EOT at 24 weeks STILL UNDETECTED
Completed TX Mar 26th,2015

EOT plus 4 weeks UNDETECTED
EOT plus 12 weeks UNDETECTED !!!!!!!!!!! I am DONE!

NO LONGER a member of the "WAITING GANG"

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: One month after ending treatment with Harvoni --Undetected
« Reply #20 on: April 30, 2015, 08:56:07 pm »
Oh dang it terih

That really is a bummer so sorry to hear. Sounds like you have a fighting spirit hope they find something that works for you soon. I am very interested to hear what you learn from your doctor

Good luck and hugs too you
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline terih

  • Member
  • Posts: 74
Re: One month after ending treatment with Harvoni --Undetected
« Reply #21 on: April 30, 2015, 09:09:22 pm »
@ Al thanks for all the kind words! And wow 4 treatments, I bet this was a whole lots easier than the other 3! Thanks for doing all the warrior work ahead of time!  I have my fingers crossed for you that this is your last battle with this horrid monster! I love the gun analogy, guess I better get to polishing my 38!  ;)

@Lynn thank you also, I know you've had quite the battle yourself! I'm not down, charging forward! I'll certainly let everyone know what the new Doc says!
Good luck to you too, got my fingers crossed for your SVR and hugs right back to you!
Logged
64 yrs. on this fine planet!
diagnosed 1993
Stage 1 cirrhosis
Genotype 1a
12 wks. Harvoni  Relapse late Feb. 2015
Currently treating with Solvaldi/Olysio
The light at the end of the tunnel, is often not a train!
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