Author Topic: After tx (POST) 4wk or 12 wk SVR results (Harvoni only) - CHECK IN HERE PLEASE! (Read 755921 times)

Bob V · « **Reply #300 on:** June 11, 2015, 11:22:44 pm »

John
Sending good vibes your way.

Junkyard · « **Reply #301 on:** June 11, 2015, 11:25:50 pm »

Lynn,
4wk vl und. That's the great news

Mugwump · « **Reply #302 on:** June 12, 2015, 12:00:12 am »

Kate it is time to attack a chocolate cake. Well at least a small one! I know when my 12 week comes in I will do something special for every single person who has helped me through this nightmare. THIS MAKES ME HAPPY HEARING SOMEONE WHO relapsed with 1a has made the 12 week UND!

Cheers and tears
Eric

Bob V · « **Reply #303 on:** June 12, 2015, 12:16:03 am »

Quote from: Mugwump on June 12, 2015, 12:00:12 am

Kate it is time to attack a chocolate cake. Well at least a small one! I know when my 12 week comes in I will do something special for every single person who has helped me through this nightmare. THIS MAKES ME HAPPY HEARING SOMEONE WHO relapsed with 1a has made the 12 week UND!

Cheers and tears
Eric

-----------
Eric
Chocolate cake sounds SO good

kate0b1 · « **Reply #304 on:** June 12, 2015, 08:36:48 pm »

thanks guys, it feels so great and a little surreal to finally say it "i HAD hepc". @Eric, if i gain any more weight from this i will need a whole new wardrobe. I am actually hoping that i can see a piece of chocolate and not eat it finally.

stay well everyone, and thanks for holding my hand through this

kate

Long_Haul · « **Reply #305 on:** June 13, 2015, 10:44:37 pm »

AWESOME Kate! You made it and I hope I'm right behind you. So happy to hear you got through. Take care of yourself and enjoy the victory and have a long enjoyable life with your family. 12WK SVR test for me next Friday.

John, so sorry to hear your news, hang in there! They are getting the better of HCV with new treatment approaches. You will get there soon, keep plugging away at beating the virus. Best wishes.

AL

DeeDee · « **Reply #306 on:** June 14, 2015, 09:29:37 am »

59 yr female genotype 1B
probably contracted blood transfusion in 1980
started Harvoni treatment 01/10/15 and completed the 8 weeks on 03/06/15
My test showed I had 15 out of 2,017,239 after treatment
Recent test: 05/15/15
Component Latest Ref Rng 5/15/2015
ALBUMIN 3.8 - 5.0 g/dL 4.1
AST 10 - 35 U/L 17
ALKALINE PHOSPHATASE 0 - 153 U/L 89
ALT 10 - 35 U/L 14
BILIRUBIN 0.3 - 1.3 mg/dL 0.3
BILIRUBIN, DIRECT 0 - 0.3 mg/dL <0.2
PROTEIN 6.0 - 8.3 g/dL 7.2
HCV RNA HCVXD IU/mL HCV RNA NOT DETECTED
HCV RNA COMMENTS ::::::::::::::::::::::::::::::::::::::::

Bob V · « **Reply #307 on:** June 14, 2015, 01:31:14 pm »

DeeDee
Congrats!

Hepcbgone · « **Reply #308 on:** June 14, 2015, 03:05:47 pm »

1. 4wk - 12 wk EOT VL status-4 Week-Undetected
2. Treatment duration-24-Weeks 3. tx naive or experienced-Naive
4. Genotype (1a or 1b)-1a
5. F1-F4 fibrosis status (date)-F2-1/1/2014
6. Initial VL (date)-6 Million +

Bob V · « **Reply #309 on:** June 14, 2015, 04:49:28 pm »

Hepcbgone

Congrats to you too.

DeeDee · « **Reply #310 on:** June 15, 2015, 07:57:29 am »

Congrats Bob V & Hepcbgone

I forgot to mention:

My FibroSpect was F0-F1 index 9

Sonogram Impression- Normal liver in size/shape and positioned with no space-occupying lesions or dilatation of the biliary tree.

Bob V · « **Reply #311 on:** June 15, 2015, 11:02:53 am »

Hi Guys

My brother was also on Harvoni, his HepC profile was almost identical to mine EXCEPT he had GT-1B.

He also reached SVR 12, so another successful Harvoni patient.

MEG · « **Reply #312 on:** June 15, 2015, 08:41:07 pm »

Hi all,

I'm just getting the opportunity to check in with everyone---it's been too long....

So wonderful---beyond words actually---to see all of you who are achieving SVR....I'll be testing 12 weeks POST EOT in July.

But for our friends here who have relapsed---I am so sorry. We hurt with you. Huge hugs and know that as hard as this is right now that you will rise again to fight this virus. For now, let yourself feel what you're feeling and come over here any time. There are lots of wonderfully broad shoulders here...Meg.

MYCACHE · « **Reply #313 on:** June 16, 2015, 10:31:27 pm »

1. UD 4wk during treatment. 12wk EOT Relapse VL 100,000
2. 8 weeks
3. tx naive
4. Genotype (1a)
5. F1 01/01/2014
6. Initial VL 100,000 12/1/2013

Trying to decide if I should retreat for 24 weeks or wait for new treatment.

Katie · « **Reply #314 on:** June 16, 2015, 10:56:58 pm »

Mycache...so sorry to hear that. The research has made this great breakthrough and they are constantly improving with new treatments on the horizon. Good luck to you in the future and you will go forward and be cured.

We all ache inside every time someone's treatment fails. You aren't alone.

Katie

dragonslayer · « **Reply #315 on:** June 16, 2015, 11:15:25 pm »

MyCache.... Really sorry about your results.. Like Katie said, it effects us all when this happens. Did you have any on-treatment or post-treatment viral loads drawn other than 4 wks into treatment, and 12 wks post treatment?

I think studies show an 80% svr rate when 8 wk Harvoni treatment failures get retreated with 24 wks of Harvoni. Or, you might wait for the next treatments to come online which will have somewhat better odds.

Keep us apprised.

Bob V · « **Reply #316 on:** June 17, 2015, 12:14:43 am »

Mycache
So sorry to hear this, it really sucks. Like Katie and Paul posted there's some new meds coming. As for retreating with Harvoni if Paul is correct at 80% not sure I would do it.

Best of luck moving forward.

**Just to be clear this lab is 12wks post tx ?

MYCACHE · « **Reply #317 on:** June 17, 2015, 06:32:06 am »

Yes.. I completed treatment 1/31/2015 and had post treatment labs on 6/5/2015. VL was back to where it was pretreatment along with AST and ALT levels. Thanks for all the kind encouragement..

Linda

TerryLF · « **Reply #318 on:** June 17, 2015, 08:09:10 am »

Unfortunately, I know how it feels to have the treatment not work. I was VL 120 two weeks post-treatment. My doctor just said to start coming in every six months to check my liver function, he said that is all, no other way to go. I have no option for longer treatment, I am having other problems that prevent me form working full-time so I get Illinois Medicaid and you only get one chance in a lifetime for treatment. I may have a chance if I am approved for disability and I get Medicare, I don't know. My problem is that I have known for two years now that I have cirrhosis, and I have some problems associated with that. I am going to try and get my doctor to do another RNA test in a few months to make sure, but I don't know if I will be allowed to do that. I think Harvoni should up the treatment to 24 weeks for all people who have cirrhosis, treatment naive or not. I guess we'll see.

Katie · « **Reply #319 on:** June 17, 2015, 11:30:39 am »

Hi Terry, Please encourage your doctor to check your VL again at 12 weeks post tx. There have been several of us who cleared after being detected at EOT and another who appeared to relapse and cleared. Even if you didn't succeed, at least you'd know for sure.

It is a hard blow to receive that news, and I send you a big {{{HUGS}}}!

Katie

hope4cure · « **Reply #320 on:** June 18, 2015, 10:17:47 am »

8 week treatment
naive
post 12 weeks as of 6/11/15
Cured!

mario555 · « **Reply #321 on:** June 18, 2015, 10:20:33 am »

Hope4cure. Super! Happy for you! Enjoy the rest of your life without this dreaded disease...

hope4cure · « **Reply #322 on:** June 18, 2015, 10:22:31 am »

Thank you and seeing how I have had it since birth (32 years) it is truly awesome.

Bob V · « **Reply #323 on:** June 18, 2015, 11:11:15 am »

Hope4cure
Like I posted on the other thread congrats!

mdj · « **Reply #324 on:** June 18, 2015, 12:32:27 pm »

The latest data I see is from April 29--is there an update or is this all there is at the moment?

TerryLF · « **Reply #325 on:** June 18, 2015, 12:54:57 pm »

Thanks for the replies everyone. I know this is for people 12 weeks , but I guess that is not how my doctor is handling this. He gave me a RNA test two weeks post-treatment and I guess that's it. I was UD 4 weeks into treatment and VL 120 two weeks post treatment. I will take the advice given here and push for a test at 12 weeks, hopefully I will be one of the ones who clear. I'll drop in in the future and let everybody know how it went. Thanks.

Long_Haul · « **Reply #326 on:** June 18, 2015, 10:00:58 pm »

Best of luck Terry, push hard for the follow-up test and hang in there.

I just got notified by my PCP, 12 week SVR results are UNDETECTED. The DRAGON is dead, the DRAGON is DEAD........... I know 24 week SVR is the real clincher, but I will take this as it is. I brought my gun to this knife fight and won! Thanks for all of the encouragement and advice along the way. I hope all those that are waiting get this wonderful news and those still treating, hang in there, you will make it.

Best wishes,

AL

Bob V · « **Reply #327 on:** June 18, 2015, 10:28:56 pm »

Al

Wonderful news, congrats!

Katie · « **Reply #328 on:** June 18, 2015, 11:32:43 pm »

Al, What WONDERFUL NEWS !!! You definitely get a High Steppin Happy Dance!
Have a wonderful life!

Katie

kate0b1 · « **Reply #329 on:** June 19, 2015, 06:50:23 am »

agh @Al, I have been waiting for this post

I hope its sunny there today for you

kate

Barbs · « **Reply #330 on:** June 19, 2015, 03:04:47 pm »

Just received results

1 12 week EOT status - undetectable
2. Treatment duration - 12 weeks Harvoni + Ribavirin
3. tx naive or experienced - tx experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F2
6. Initial VL (date) - Nov 2014 - 1.8 million

Bob V · « **Reply #331 on:** June 19, 2015, 03:18:16 pm »

Barbs

Congrats!

anniemybaby · « **Reply #332 on:** June 19, 2015, 09:12:56 pm »

Harvoni for 8 wks just had my results for 3 month eot undetected will have one more test at the 6 month mark

Bob V · « **Reply #333 on:** June 19, 2015, 09:59:06 pm »

Annie
I was hoping you'd post. Wonderful news, congrats!!!!

Long_Haul · « **Reply #334 on:** June 20, 2015, 10:45:22 am »

Congratulations to Annie and Barb. Thanks to Bob V, Katie, and Kate. I am already feeling a ton lighter. I'm not sure if it has really sunk in yet. Getting stronger every day and the respiratory depression is getting a bit better. I can now ride the bicycle without getting too winded. tinnitus is less, so I guess I am on the mend.

To everyone that has given me advice and support through treatment thank you so muck. The support on here is like no other. Those of you in treatment hang in there, there is hope and light at the end of the tunnel. I waited 40+ years to defeat the Dragon. It can and will be done!

Best wishes,

Al

amy1662 · « **Reply #335 on:** June 22, 2015, 04:35:05 pm »

Hello Everyone, I posted this in another forum and am reposting here, I just want to let everyone know I went to Doctors today to go over my post treatment blood work. I am genotype 1a. Stage one to stage two liver damage. I started Harvoni in December and was prescribed twelve weeks worth of the medication. My experience with Harvoni was not bad at all. I finished my last pill Febuary 22nd and had blood drawn June 9th. I was told by my doctor today that I am undetected and cured. My doctor told me that I know longer have the virus in my blood. He said I will always test positive because of the antibodies but I no longer have the virus. Whooohooo so happy. This was my second try at treatment the first was back in 2002 interferon and ribavirin for one year. I relapsed and decided to wait for something better. I believe I have been infected for over twenty years. I am glad to be done with this and can now move on with my life. My doctor told me the damage that was done to my liver is reversable and I should go back to stage zero over time. He wants to see me back in one year to see how my liver has healed now that I am cured. I want to wish everyone luck and hope all are cured from this terrible disease. Harvoni has gave me a new lease on life I know longer feel drained with brain fog. I can truly feel the difference between the old me and new. Have more energy. Thank you everyone, I hope my post gives others hope, there is a light at the end of the tunnel.

Bob V · « **Reply #336 on:** June 22, 2015, 04:40:00 pm »

Yay Amy, congrats!

Mike · « **Reply #337 on:** June 22, 2015, 04:48:35 pm »

Congrats, Amy!

Time to celebrate your new life!

Best, best wishes, Mike

amy1662 · « **Reply #338 on:** June 22, 2015, 10:20:11 pm »

Thank you everyone, I am grateful for this forum and all its support. Going to give back and help others.

EleanorB · « **Reply #339 on:** June 23, 2015, 03:26:44 pm »

One more for the tally - UND 4weeks POT after 8 week Harvoni!

Bob V · « **Reply #340 on:** June 23, 2015, 04:28:33 pm »

Eleanor
Congrats! Are you doing 12wk post labs too?

Katie · « **Reply #341 on:** June 25, 2015, 06:50:36 pm »

I just got my recent results and I am Hep C FREE! Totally delighted to no longer be a bio-hazard, and was one of the few who cleared AFTER being detected at EOT. I am still not feeling well and would love to have my Harvoni energy back but I am sure I will improve with time. I actually feel worse in some ways than I did prior to treatment, only very different, and many things I had for over a decade are totally gone. Good luck to all on this journey and keep the faith!

1. 16 week Post EOT UNDETECTED
2. 8 wk Post EOT VL status - Undetected
3. Treatment duration - 12 wks
4. tx naive or experienced - tx naive
5. Genotype (1a or 1b) - 1a
6. F1-F4 fibrosis status (date) - no cirrhosis
7. Initial VL (date) - 2.6 mil

Bob V · « **Reply #342 on:** June 25, 2015, 08:54:45 pm »

Katie
Wonderful news, congrats!

Katie · « **Reply #343 on:** June 25, 2015, 11:44:23 pm »

Thanks Bob. You are always so supportive. Best of luck to you and everyone on this forum. We are the fortunate ones and we will be here for those still fighting the battle! Onward Warriors!

Katie

Long_Haul · « **Reply #344 on:** June 26, 2015, 10:03:14 pm »

WOOOOHHHHHOOOOOOOO!, Awesome news Katie, you rock! Now you can move on from this and start getting a lot more energy.

Best wishes,

AL

nicole_1234 · « **Reply #345 on:** June 26, 2015, 10:43:11 pm »

KATIE!!!!!!! CONGRATS sister!!!!!!!!! So happy for you, that news made my day xo

nicole

dragonslayer · « **Reply #346 on:** June 26, 2015, 10:46:39 pm »

Katie, I knew you would do it! You must be elated. I saw your announcement in another thread and commented there, but wanted to make sure youd see it! CONTRATULATIONS!!!!!!!!!!!!!!!!

I go for my 24 wk test in a couple of weeks. Hope its just a formality!!

Katie · « **Reply #347 on:** June 26, 2015, 11:15:55 pm »

You guys are all so great. Thank you for all of your support these past 6 months. You all made my journey so much easier and I'll stay on this forum for awhile as I am addicted to it

and need to follow all of my friends and how their journey is going!

Have a fabulous weekend and enjoy each and every day!

Katie

kate0b1 · « **Reply #348 on:** June 27, 2015, 01:14:37 pm »

hey katie, i am just seeing this, such a great day

I hope this finds you well, i am moving forward and starting to feel like I'm getting a handle on felling really well lol.

its so cool to see everyone getting to the finish line

kate

ma snart · « **Reply #349 on:** July 02, 2015, 06:07:08 pm »

Just got Helen's 8 week post viral load, UNDETECTED!!!!!!!!!!
will be back with 12 weeks post results very soon and feeling very confident that she will now be cured...
Thanks to all here.

Bob V · « **Reply #350 on:** July 02, 2015, 07:42:25 pm »

ma snart
Great news!

GLCII · « **Reply #351 on:** July 04, 2015, 11:13:01 am »

Quote from: Junkyard on June 09, 2015, 07:58:35 pm

Is it unusual for the AST and ALT to somewhat spike after tx?
I just got all the info on my 4wk EOT labs. My Ast has risen to 46 and ALT to 29. The last labs I did was before EOT about 1 week. My Ast was 38 and ALT was 25.
I hope this is not a precursor to something bad.
My vl was und and everything else seems to be coming back after 12 wks of riba and harvoni.
I plan to ask my dr about this as well. This may be a long 7 weeks to wait

I'm glad you asked this question. I had some concerns after my 4 week post EOT came back with an elevated AST of 35 up from 19 4 weeks ago. After reading some of the resonses and searching online, I feel better. My ALT only went up to 23 from 21 so that's good. When the main test comes in, i'll come back and post the results to add to Charly8's stats.

Karen3717 · « **Reply #352 on:** July 04, 2015, 11:33:15 am »

Congrats to all of you out there who are Hep C Free now!!! I just got my 4 week EOT results back.....UNDETECTED!!! This feels so amazing. I know I still have one more hurdle at 12 weeks, so I am cautiously optimistic. I haven't been this happy about anything in years. Talk about cause for celebration on this wonderful July 4th. Happy holiday to all of you!

Bob V · « **Reply #353 on:** July 04, 2015, 12:16:50 pm »

Karen2717 and GLCII

Great News! Enjoy the 4th.

DeeDee · « **Reply #354 on:** July 04, 2015, 03:01:15 pm »

Hello Everyone

12 week check in - UNDETECTED

ALBUMIN   3.8 - 5.0 g/dL   4.2
AST   10 - 35 U/L   23
ALKALINE PHOSPHATASE   0 - 153 U/L   90
ALT   10 - 35 U/L   14
BILIRUBIN   0.3 - 1.3 mg/dL   0.6
BILIRUBIN, DIRECT   0 - 0.3 mg/dL   <0.2
PROTEIN   6.0 - 8.3 g/dL   7.2

Bob V · « **Reply #355 on:** July 04, 2015, 03:02:56 pm »

DeeDee
CONGRATS!

DeeDee · « **Reply #356 on:** July 04, 2015, 03:10:35 pm »

Thanks Bob V

Doctor said 3 months if undetected he will consider it "Cured"

I am very happy at seeing others good reports

coloradogirl · « **Reply #357 on:** July 04, 2015, 06:26:34 pm »

I was skeptical about my status, and cryed a lot after the last pill and the half-life of the drug wore off at about 72 hours after last dose. I woke up with those old familiar night sweats! I thought for sure the beast had returned, like it did the last time I came off treatment. Well, just pinch me ! My test 4 weeks post treatment are Undetected! And the swollen feeling in my abs are gone and now I am sleeping through the last 3 days in a row. I'm so happy I was wrong about those night sweats. Amen!

KimInTheForest · « **Reply #358 on:** July 04, 2015, 06:58:31 pm »

Congrats Coloradogirl! Way to go!

kim

Katie · « **Reply #359 on:** July 04, 2015, 07:33:53 pm »

All this good news is a way to celebrate our Independence from Hep C; the alien parasitic virus. Congratulations to all undetected warriors, and for those who didn't make the grade this time around, we are all here for you! There is something just around the corner and you too will be free!

So happy for you DeeDee and Colorado Girl!

The fireworks has new meaning for many of us tonight!

Katie

GLCII · « **Reply #360 on:** July 04, 2015, 08:14:59 pm »

Thanks Bob V

But no congrats yet. I have all the tests back except the main test. I'll know that one monday. But after looking at my other labs, it's looking pretty good.

And Congratulations to DeeDee, Karen3717 & Coloradogir!!!

It has to be a Great feeling knowing that after 4 weeks the virus is still gone. DeeDee It has to be an Amazing feeling after 12 weeks and being Undetected.

I never put much thought in to these EOT tests while treating but waiting for these EOT tests to come to back sure does come with a certain amount of anxiousness. Time is just dragging.

Bob V · « **Reply #361 on:** July 04, 2015, 10:56:18 pm »

Congrats Coloradogirl!

GLCII · « **Reply #362 on:** July 06, 2015, 08:57:01 am »

Finally undetected for more then 2 weeks after 3 previously failed treatments which included 3 liver biopsies, 4 ultrasounds, God only knows how many blood draws, 7530 Riba pills, 492 shots of interferon & 14 Procrit injections.

After all that, it was 84 pills that has had the most success so far.

1. 4wk - 12 wk EOT VL status / 4 Week Post EOT (Undetected)
2. Treatment duration / 12 Week
3. tx naive or experienced / 3x Experienced
4. Genotype (1a or 1b) / 1a
5. F1-F4 fibrosis status (date)/ F2-F3
6. Initial VL / 2/17/14 VL 12043488

Karen1124 · « **Reply #363 on:** July 06, 2015, 09:37:32 am »

12 week post treatment Relapse! VL 424,000
8 wks Harvoni
Moderate fibrosis
Geno 1a

Bob V · « **Reply #364 on:** July 06, 2015, 10:22:59 am »

Karen1124
So sorry to hear this

I know nothing we can say at this point will make the disappointment less, hugs.

Bob V · « **Reply #365 on:** July 06, 2015, 10:24:00 am »

GLCII
Congrats!

GLCII · « **Reply #366 on:** July 06, 2015, 10:44:44 am »

Quote from: Bob V on July 06, 2015, 10:24:00 am

GLCII
Congrats!

Thank You Bob V

I was pretty excited till I read karen1124's post.

Pete · « **Reply #367 on:** July 06, 2015, 12:24:11 pm »

Failed 12 weeks Harvoni Treatment

Post 4 weeks lab results 06/29/2015 - HCV RNA Quantitative (PCR) 3,661 IU/mL

I recall reading of patients who tested positive at 4 weeks, but end then ended up clearing the virus. but this is not even close by the looks of my recent VL, so I've no expectation that will happen here.

Thought I was in after testing undetected at 8 and 12 weeks. Kinda sucks when you can't make the cut at a 97% cure rate...

Not certain of next steps at this time.

Regards,
Pete

Bob V · « **Reply #368 on:** July 06, 2015, 12:40:32 pm »

I was pretty excited till I read karen1124's post.
--------
I agree, this thread has lots of up's and down's.

Bob V · « **Reply #369 on:** July 06, 2015, 12:44:08 pm »

Pete
Sorry but I would wait until the 12wk post lab before losing hope.
Sending good vibes, Bob

GLCII · « **Reply #370 on:** July 06, 2015, 01:31:23 pm »

Quote from: Pete on July 06, 2015, 12:24:11 pm

Failed 12 weeks Harvoni Treatment

Post 4 weeks lab results 06/29/2015 - HCV RNA Quantitative (PCR) 3,661 IU/mL

I recall reading of patients who tested positive at 4 weeks, but end then ended up clearing the virus. but this is not even close by the looks of my recent VL, so I've no expectation that will happen here.

Thought I was in after testing undetected at 8 and 12 weeks. Kinda sucks when you can't make the cut at a 97% cure rate...

Not certain of next steps at this time.

Regards,
Pete

God Damn, I hate seeing these positive results. I had a hard time cracking my RNA results open this morning. My heart races everytime for some weird reason. Believe me when I say it's hard to enjoy and negative when people are showing a positive. This is twice since 8:30 this morning I've read bad news.

Pete

That's still a pretty low number considering that some of the positive results after weeks 4, 8 & 12 are coming back in the 6 & 7 figure range and your's is just in the 4 area. I know there's nothing anyone can say to make you feel better and I know how shitty I would feel if I saw that myself but there's still might be hope. I hope! You should still do an 8 week test. 6 week if you can talk your doc in to it. What are your other labs saying? How's your ALT & AST looking?

Pete · « **Reply #371 on:** July 06, 2015, 11:15:57 pm »

I really appreciate the replies.. it does help.

I'm not sure why, but LFT's were not performed on this 4 week post tx lab test, only V/L. I'm still scheduled for more lab tests in 8 weeks according to my nurse, along with another MRI to monitor a liver cyst.

I too started feeling crumby at some point post tx. Moody, bitchy, intolerant ... seemed to have lost my appetite as well. Now that I know why, I need to chill it and be more sensitive to those around me.

Best,
pete

Katie · « **Reply #372 on:** July 06, 2015, 11:28:32 pm »

I am really sorry to here that for both of you, Karen and Pete. It is so strange how the cards fall, but know we are all here to support you and you will be successful as they are moving forward with understanding and continuous research. There are still variables out there that need to be dealt with for 100% cure!

Sending you guys big {{{{HUGS}}}}

Katie

coloradogirl · « **Reply #373 on:** July 07, 2015, 05:48:42 am »

Karen and Pete,
My heart goes out to you. I hope that an absolute cure will come about. They are getting really close. I think Giliad knows this, and that's why they are advertising their product like crazy. You just hang in there a little bit longer.
Hugs and prayers!
Colorado Girl

Mm · « **Reply #374 on:** July 07, 2015, 06:56:00 am »

12 weeks Post Harvoni, I have achieved SVR and continued to maintain it. I an hopeful that undetected remains UND in to the future

Detected in 1990
Treated with Interferon, got sick from tx and not at all better.
Began Harvoni Jan1,2015
UND after month 1 and continued UND for the full 12 weeks.
All blood tests in normal range
Began with viral load of 5.9 million
Fibrosis score 2/3

Bob V · « **Reply #375 on:** July 07, 2015, 10:12:12 am »

Mm
Congrats!

GLCII · « **Reply #376 on:** July 08, 2015, 12:13:01 pm »

Yes! Congratulations Mm

Anyone have any idea when the next set of stats is coming out? Charly8?!

GLCII · « **Reply #377 on:** July 08, 2015, 12:21:44 pm »

I noticed a few people had questions about spikes in their ALT & AST levels on here. Since ALT & AST are possible indicators of a problem and since these tests usually come back before the Quantative test, can we start adding our ALT & AST levels in to the stats?

dragonslayer · « **Reply #378 on:** July 08, 2015, 02:07:36 pm »

I dont think Charly8 has posted in over a month.. Hope everything is ok!

Lynn K · « **Reply #379 on:** July 09, 2015, 12:09:42 am »

Saw this on the Harvoni web site

Seems they want to start "The HARVONI Wall"

http://www.harvoni.com/taking-harvoni/harvoni-wall

Katie · « **Reply #380 on:** July 09, 2015, 12:24:17 am »

I checked it out and find it strange they don't want information on those who failed. Also it would be beneficial if they'd list other side effects since so many had additional problems not listed. Seems it is just a "Wall" to help sell their product without giving all the information. I'll check on it again after it has been up for awhile but will pass on signing up now.

Thanks for posting it Lynn. I always appreciate your information.

Katie

terih · « **Reply #381 on:** July 09, 2015, 02:31:44 pm »

Katie, I'm with you on the wondering! It does sort of run true to form from my experience of calling Gilead after my relapse, "Oh sorry bout that." I asked if there was anything they could do for me, nope sorry, bye! I don't mean to sound bitter, but it was a stark contrast to all of the hand holding they provided during treatment! I was truly shocked!

I mean at least let me sign in invisible ink!

MEG · « **Reply #382 on:** July 09, 2015, 03:44:58 pm »

Hi all,

I've missed you. I've been on vacation for a few weeks along with vacationing from the internet ;-)

It's so heartening to hear about so many reaching SVR and painful to hear of others of us who have relapsed....."Hang in there" seem like cold comfort for people like Karen, Pete, terih---but i have no other words. Stay here and get the support and information that this wonderful site provides...hugs.

I was undetectable at 8 weeks post. and will be getting my 12 EOT next week.

We managed to somehow create lives despite HCV, created moments that make life worth living, and so no matter what results show let's not let this hcv parasite take them and future ones from us....Many hugs

MEG · « **Reply #383 on:** July 09, 2015, 03:45:53 pm »

Hi all,

I've missed you. I've been on vacation for a few weeks along with vacationing from the internet ;-)

It's so heartening to hear about so many reaching SVR and painful to hear of others of us who have relapsed....."Hang in there" seem like cold comfort for people like Karen, Pete, terih---but i have no other words. Stay here and get the support and information that this wonderful site provides...hugs.

I was undetectable at 8 weeks post. and will be getting my 12 EOT next week.

We managed to somehow create lives despite HCV, created moments that make life worth living, and so no matter what results show let's not let this hcv parasite take them and future ones from us....Many hugs

GLCII · « **Reply #384 on:** July 11, 2015, 12:34:29 pm »

Quote from: dragonslayer on July 08, 2015, 02:07:36 pm

I dont think Charly8 has posted in over a month.. Hope everything is ok!

On May 29th he posted his 4 week EOT results. His last post was on June 5th. He seemed to be pretty in to doing the stats. I'm hoping nothing has changed since his last test. Has anyone heard from him?

Quote from: charly8 on May 29, 2015, 10:30:20 am

Finally got my 4 week SVR results!

Charly8
1. 4 wk post EOT VL status - Undetected
2. Treatment duration - 12 wks
3. tx naive or experienced - Tx Experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - Fibrosure- F3 (Dec 2014), Fibroscan F0-F1 (Mar 2015)
6. Initial VL (date) - 1.05 Mil (Dec 2014)

nicole_1234 · « **Reply #385 on:** July 11, 2015, 01:26:53 pm »

I don't know if I'm the only one who was cautiously optimistic about my 12 wk SVR status. I guess because my doctor is still testing me every 6 weeks. I'll be happy when its over. Just did my 18 week test and still UND. Just wanted to post that in case any other 12 weekers are also worried that their "cure" status is premature. l will post again for my 24.

OO7GUY · « **Reply #386 on:** July 13, 2015, 02:52:52 pm »

post 4 RNA "Negative" not detected!!! post 12 RNA "Negative" not detected!!! SVR

Momof3 · « **Reply #387 on:** July 13, 2015, 03:05:00 pm »

12 weeks post harvoni... UNDETECTED

Katie · « **Reply #388 on:** July 13, 2015, 03:44:45 pm »

More GREAT news from 007 and Momo!

YAY! Way to GO!!!

dragonslayer · « **Reply #389 on:** July 13, 2015, 04:06:43 pm »

'What a long strange trip its been'.. .Indeed. Recap of vl test progression:

End of 8 wk treatment: Detected 29
7.5 wks post treatment: Detected < 12(LLOQ)
11 wks post treatment: Undetected

wait for it
wait for it
.
.
.
This just in:
.
24 wks post treatment: UNDETECTED!

Momof3 · « **Reply #390 on:** July 13, 2015, 04:10:31 pm »

Congrats dragonslayer!!! You are free! Through all the ups and downs, you are cured!

Katie · « **Reply #391 on:** July 13, 2015, 04:29:32 pm »

Quote from: dragonslayer on July 13, 2015, 04:06:43 pm

'What a long strange trip its been'.. .Indeed. Recap of vl test progression:

This just in:

24 wks post treatment: UNDETECTED!

You got that right buddy!
{{{{{HUGS TO YOU}}}} & CONGRATULATIONS!

ENJOY!

Katie

PS I'm going to miss you. You helped me through my journey SO much. Thank you!

dragonslayer · « **Reply #392 on:** July 13, 2015, 05:00:56 pm »

Thank you guys... But Im not going anywhere! Ill still be around, correcting the myths and imparting my own brand of scientific reasoning backed up by data. Im so glad my case has given confidence to others who wound up detected at EOT... Its the post treatment progression which seems to be more important than an UND at EOT. So long as the next few tests show a diminishing viral load, then this is inconsistent with a replicating and vital virus.. So long as that load decreases, even if detectable after treatment, odds seem to strongly favor eventual SVR by 12 wks post. If nothing else, this was a game changer for a lot of us. Thanks to all for their invaluable support. But this isnt goodbye.. Believe me, Ive gotten too used to things around here to just up and walk away

Good luck to those on treatment and those awaiting post treatment results. All I can say is Harvoni, I bow down to you!!!!!

Lynn K · « **Reply #393 on:** July 13, 2015, 06:22:13 pm »

Quote from: dragonslayer on July 13, 2015, 04:06:43 pm

'
wait for it
wait for it
.
.
.
This just in:
.
24 wks post treatment: UNDETECTED!

FANTASTIC NEWS PAUL!!!! CONGRATS! Congrats to our other recent dragon slayers 007 and Mom!

JoeK9999 · « **Reply #394 on:** July 13, 2015, 07:59:58 pm »

24 weeks post treatment test results back last week.
UNDETECTED
ALT/AST 24/24

It worked!!!!! I feel great. It took about 5 months after EOT on Harvoni before
side affects wore off. (dizziness mainly).

Karen1124 · « **Reply #395 on:** July 13, 2015, 08:05:20 pm »

Hey Joe!! CONGRATS to YOU!!! Life is good!! Karen

JoeK9999 · « **Reply #396 on:** July 13, 2015, 08:12:43 pm »

Thanks Karen. I am sure you will beat it out soon.
If they gave you the 12 week program instead of the 8 week it probably would have done it. It's a battle in itself just fighting with the doctors and insurance companies.

Katie · « **Reply #397 on:** July 13, 2015, 08:30:31 pm »

Quote from: JoeK9999 on July 13, 2015, 08:12:43 pm

Thanks Karen. I am sure you will beat it out soon.
If they gave you the 12 week program instead of the 8 week it probably would have done it. It's a battle in itself just fighting with the doctors and insurance companies.

Great news Joe! Congratulations! Wooo Hooo!!!

Thanks for adding the 5 month wait to feel good. I am 4 months out and still have incredible weakness. All blood work is perfect so how can I be so healthy and feel like crap? Glad to hear there's a chance to get me back to normal! Thanks!

Enjoy your Hep Free Life, Joe!

Katie

tm · « **Reply #398 on:** July 13, 2015, 09:09:33 pm »

I received my 4wk post tx labs today "undetected". Was geno type 1b, 12 wk tx. First post, although I have been reading for sometime. I was able to get treatment, get the coupon for Harvoni, and only pay $5 total because of all the info on this forum. Thank you. I hope we all get cured!

JoeK9999 · « **Reply #399 on:** July 14, 2015, 06:52:29 am »

Katie,
Sorry you are still feeling bad. Before I started feeling better I went to my Internist
and had the full load of blood tests run including Vitamin B12 and Vitamin D levels
and all was fine too. If you haven't check yet, see if you have low B12 or are anemic.
That could be causing the loss of energy. Just a thought.
I was tired a lot and had the weird dizzy feeling worse when I lied down flat.
Actually it took about 5 1/2 months before it all subsided. All I can think is it was my body taking it's time to heal up after years of hepc.
Good luck with it and hopefully you will be ready to climb a mountain in a few months.
Joe

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