Author Topic: After tx (POST) 4wk or 12 wk SVR results (Harvoni only) - CHECK IN HERE PLEASE! (Read 757242 times)

dragonslayer · « **Reply #700 on:** September 27, 2015, 09:59:12 pm »

Damn, Katie, thats not a story you hear every day; 'a bear ate my apples!' .. Maybe some barbed wire at the base of the trees? There must be Something to do.... We mere mortals contend with rabbits and raccoons, but you get it all up there!!

slats1056 · « **Reply #701 on:** September 27, 2015, 11:19:29 pm »

And to think I had a problem with 'coons , 'possums , ringtail cats , and armadillos!!!!!!!

Katie · « **Reply #702 on:** September 28, 2015, 12:32:37 am »

Hahahaha...I just take bears in stride and became quite fond of them when I did field research...cautious but fond. They are eating machines this time of year and I am sure the ripe apples fragrance brings them in for the treat. The apples were so flavorful this year. Had some close bear encounters in the field and respect their strength and agility. For a couple years in a row I didn't get a single apple because of an old black bear that camps out above me.Then no one has bothered them for the past 2 years so I figured he died. I don't want barbed wire or an electric fence so I just don't worry about it. They come and go and now my trees are tall enough where the bears can't reach some of the fruit. I'll share with them and not complain much. At least he didn't break up the branches which irritates me, and I still got a bucket full.

Sorry to post this unrelated stuff, but sometimes it is nice just to read a story other than one of Hep C. We seem to get to know one another here and that's part of building trust and being open with such personal information, so it's fun to share part of my life.

Have a good week, everyone!

Katie

Cute · « **Reply #703 on:** September 28, 2015, 02:09:35 am »

Hi,
Bixter you have forgotten my mother.

12 week treatment - SVR 10 Undetected.

Lynn K · « **Reply #704 on:** September 28, 2015, 02:23:12 am »

Hi Cute

I copied this from the beginning of the thread. Could you enter your moms info in this format as much information as you have and are willing to share?

Please list the following: (copy and paste into your post as I have done below to keep this thread clean)
1. 4wk - 12 wk EOT VL status
2. Treatment duration
3. tx naive or experienced
4. Genotype (1a or 1b)
5. F1-F4 fibrosis status (date)
6. Initial VL (date)

What you have so far is

1. 4wk - 12 wk EOT VL status - SVR 10
2. Treatment duration - 12 Weeks
3. tx naive or experienced
4. Genotype (1a or 1b)
5. F1-F4 fibrosis status (date)
6. Initial VL (date)

The SVR 10 that is 10 weeks after she completed her treatment correct?

Congrats to you both!
Lynn

Cute · « **Reply #705 on:** September 28, 2015, 05:44:02 am »

1. EOT VL status - SVR 10 - Undetected
2. Treatment duration - 12 Weeks
3. tx naive
4. Genotype 1b
5. F3 fibrosis (february, 2015)
6. Initial VL - 381 000 IU/ml (march,2015)

Cute · « **Reply #706 on:** September 28, 2015, 05:45:29 am »

Quote from: Lynn K on September 28, 2015, 02:23:12 am

Hi Cute

I copied this from the beginning of the thread. Could you enter your moms info in this format as much information as you have and are willing to share?

Please list the following: (copy and paste into your post as I have done below to keep this thread clean)
1. 4wk - 12 wk EOT VL status
2. Treatment duration
3. tx naive or experienced
4. Genotype (1a or 1b)
5. F1-F4 fibrosis status (date)
6. Initial VL (date)

What you have so far is

1. 4wk - 12 wk EOT VL status - SVR 10
2. Treatment duration - 12 Weeks
3. tx naive or experienced
4. Genotype (1a or 1b)
5. F1-F4 fibrosis status (date)
6. Initial VL (date)

The SVR 10 that is 10 weeks after she completed her treatment correct?

Congrats to you both!
Lynn

Lynn,
Yes, you are correct. SVR 10 means that she completed the treatment 10 weeks ago.

Redbird29 · « **Reply #707 on:** September 28, 2015, 02:39:57 pm »

THANK YOU BIXTER!!!

I know I am one who also appreciates "seeing" the results posted and I feel blessed to be included. SVR4 on my 8 week tx and looking forward to the day we all post SVR12!

Bixter · « **Reply #708 on:** September 28, 2015, 04:06:15 pm »

Thanks to everyone for your response, it feels good to share with you all.

Cute: I'll add your mums result, thank you for letting me know.

Dragonslayer: I'm sure you are right about jacattac. Just didn't know what to write, that's why I marked it red and added a question mark. I guess I could just as well have written SVR?
Unfortunately we might never know...

dragonslayer · « **Reply #709 on:** September 28, 2015, 06:06:46 pm »

Quote from: Bixter on September 28, 2015, 04:06:15 pm

Thanks to everyone for your response, it feels good to share with you all.

Cute: I'll add your mums result, thank you for letting me know.

Dragonslayer: I'm sure you are right about jacattac. Just didn't know what to write, that's why I marked it red and added a question mark. I guess I could just as well have written SVR?
Unfortunately we might never know...

Bix, I think you posted it correctly. Its impossible to know anything for sure unless the info is provided to us. .I was just commenting on it because I felt it very unlikely that youd have a viral load < LLOQ at 12 wks post treatment that was any kind of relapse. I think it just doesnt work that way. At any rate, your amalagamation of the data is very useful, and no small undertaking, since the data on this board is all over the place.

Thanks again!!!

Rosie13 · « **Reply #710 on:** September 28, 2015, 10:25:50 pm »

Can you explain LLOQ?

Lynn K · « **Reply #711 on:** September 28, 2015, 11:09:44 pm »

technical definition:

The LLOQ refers to the lowest HCV RNA concentration that is within the validated quantitative range of an assay. An undetectable result indicates that HCV RNA was not detected in the sample. The limit of detection and the limit of quantification vary according to the assay used.

Basically the test has the ability to "count" number of virus in a blood sample down to a point the LLOQ. Below that number of virus particles (IU/mL) international units per milliliter of blood the test can still detect the presence of the virus DNA but can't determine how many there are per mL.

So a LLOQ of say 15 for example the test can detect there is virus DNA present in the sample but only knows there are less than 15 IU/mL in the test sample.

And whether those are actual virus cells or just remnants of broken virus cell is hard to say

Hope that helps

gnatcatcher · « **Reply #712 on:** September 29, 2015, 02:09:28 am »

Lynn supplied the definition. Here is what the acronym LLOQ stands for:
Lower Limit of Quantification

Rosie13 · « **Reply #713 on:** September 29, 2015, 12:42:52 pm »

Thanks Lynn & Gnatty for the explanation. I had not seen that on any of my labs yet so it's good to know.

gnatcatcher · « **Reply #714 on:** September 29, 2015, 01:22:19 pm »

Rosie, different labs have different ways of expressing these things. Following the test result there may be a paragraph or more of explanation which may or may not use the LLOQ acronym.

Rosie13 · « **Reply #715 on:** September 29, 2015, 02:11:51 pm »

Good to know,Gnatty. 4 wk. .labs are Friday!

baffled5555 · « **Reply #716 on:** September 30, 2015, 10:19:13 am »

I have a question..Does <12 Not Detected mean the same as undetected??

gnatcatcher · « **Reply #717 on:** September 30, 2015, 11:05:13 am »

It almost certainly does mean undetected. It is telling you that that particular assay can't COUNT fewer than 12 international units per mL, but it can still detect some if it is there. Your assay is more sensitive (better) than most assays, which can't count fewer than 15.

Quest Diagnostics, for example, says "<15 Not Detected." The result is followed by some text which includes "For more information on this test, go to <link>" which includes the following:
A "<15 Detected" means the assay was able to detect HCV RNA but was not able to accurately quantitate the viral load. A "<15 Not Detected" means the assay did not detect HCV RNA . . . .

Congratulations!

Gnatty

baffled5555 · « **Reply #718 on:** September 30, 2015, 11:18:35 am »

Thank you, that's what I got on my SVR4..I go today to have my 12 wk post treatment blood work done. Wish me luck, I'm nervous!!!

concerned father · « **Reply #719 on:** September 30, 2015, 11:27:13 am »

Best of luck. I know how you are feeling, my daughter just had her blood drawn after her first 4 weeks of treatment.

KimInTheForest · « **Reply #720 on:** September 30, 2015, 11:54:11 am »

Quote from: baffled5555 on September 30, 2015, 11:18:35 am

Thank you, that's what I got on my SVR4..I go today to have my 12 wk post treatment blood work done. Wish me luck, I'm nervous!!!

Good luck on today's labs, baffled! I'm sure you'll do great!!

kim

Lynn K · « **Reply #721 on:** September 30, 2015, 03:34:42 pm »

I have seen that SVR 4 correlates about 98.5% with SVR 12 so odds are definately in your favor you are in the home stretch!

Good luck
Lynn

sabre · « **Reply #722 on:** October 01, 2015, 09:11:56 am »

Hello all,

1. 12 week post EOT VL status - Undetected
2. Treatment duration - 12 weeks
3. tx naive or experienced - Treatment naive
4. Genotype (1a or 1b) - 1 (just plain old 1)
5. F1-F4 fibrosis status (03/2015) - F2
6. Initial VL (03/2015) - 190,000

Feels incredible.

Wishing the best for all of those who are in treatment or on the wait list, and for those who've relapsed, I hope the new meds in the pipeline are your ticket to SVR.

Rosie13 · « **Reply #723 on:** October 01, 2015, 12:00:05 pm »

So incredible Sabre!! You are on your way! I feel like @ 63 my world is getting so full of possibilities that I had for so long given up on. Just yesterday ( day 26) I trapped a possum who had moved into the garage. I was hiking into the woods to place him in a pristine location for the rest of his life (hopefully)

. I never would have done that before. Harvoni high or Harvoni just do it! The UPS driver just deliverd bottle #2 . Labs tomorrow...not even worried!

Redbird29 · « **Reply #724 on:** October 01, 2015, 12:17:39 pm »

Quote from: sabre on October 01, 2015, 09:11:56 am

Hello all,

1. 12 week post EOT VL status - Undetected
2. Treatment duration - 12 weeks
3. tx naive or experienced - Treatment naive
4. Genotype (1a or 1b) - 1 (just plain old 1)
5. F1-F4 fibrosis status (03/2015) - F2
6. Initial VL (03/2015) - 190,000

Feels incredible.

Wishing the best for all of those who are in treatment or on the wait list, and for those who've relapsed, I hope the new meds in the pipeline are your ticket to SVR.

YAAAAHHHOOEEEYYYYY FOR YOU SABRE!!!!

What wonderful news to hear!!! I hope you enjoy your "new" lease on life and wish you all the very best!!!!

gnatcatcher · « **Reply #725 on:** October 01, 2015, 12:19:45 pm »

Quote from: sabre on October 01, 2015, 09:11:56 am

Wishing the best for all of those who are in treatment or on the wait list, and for those who've relapsed, I hope the new meds in the pipeline are your ticket to SVR.

Congratulations, Sabre, and thanks for such a beautifully expressed wish.

sabre · « **Reply #726 on:** October 01, 2015, 11:29:01 pm »

Thanks all!

Cute · « **Reply #727 on:** October 02, 2015, 03:25:00 am »

Hi all,

As you know, I managed to cure mother from Hepatitis C (according to the results she achieved SVR10 - undetected, next step is SVR24).
But something wrong happens with her. Her liver is worst condition now. She has ascites and fever. Moreover, she had the surgery. Her uterus was removed.
Seems her F3 fibrosis developed to F4 stage. It is very sad to me. All of them happened after successful treatment with Harvoni. I was happy that we killed virus and finally her liver would start its healing process. But now we have totally different picture.

I respect the opinion of the community. Is it possible that her liver will start healing process? How long does it take time? Is anybody here who has already been observing the healing of his/her liver?
All your recommendations are brilliant.
I am so hopeful that her liver will regenerate itself, even there are not so many chances

Lynn K · « **Reply #728 on:** October 02, 2015, 03:49:29 am »

If she has just gone from F3 to F4 she still should be ok I have been F4 for almost 8 years now.

However a fever is a problem and she should see her doctor many things cause fever often infection but cirrhosis does not cause fever.

It is said about 50% of patients with cirrhosis may have imrovemebt with the co diction of their liver but with cure of hep c her liver should not get any worse from this point forwards however we with cirrhosis are at increased risk of liver cancer although that risk is also reduced with cure.

If the ascities is significant the fever could be caused by an infection in the fluid in her abdomin which is very serious. But in any event she should be seen by her doctor soon to find out the reason for her fever.

She can have a long and full live with early cirrhosis as long as she takes care of her liver and flows her doctors recommendations

Good luck to you both
Lynn

Momof3 · « **Reply #729 on:** October 02, 2015, 04:29:56 pm »

Just received my 24 weeks SVR test.... Not detected!! Cured cured cured!!! I feel amazing, it doesn't even seem real! After having this my entire life it is strange to say I am free from hep c! The best thing is I don't have to worry am I going to be around for my kids, I can now kiss their owes without panic! I thank everyone for the support!!

Bree · « **Reply #730 on:** October 02, 2015, 04:58:32 pm »

It's so inspiring to hear all those cured from this disease! Congratulations and thank you for sharing with us and holding the space for us to follow! Bree

Redbird29 · « **Reply #731 on:** October 02, 2015, 06:52:24 pm »

Congrats to you Momo and wishing you all the very best in your future life!!

pl1952 · « **Reply #732 on:** October 02, 2015, 06:54:15 pm »

1. 12 weeks Undetected SVR
2. Treatment duration: 12 weeks
3. tx naive
4. Genotype 1b
5. F1
6. Initial VL 625,000

Rosie13 · « **Reply #733 on:** October 02, 2015, 08:35:52 pm »

Momof3, you are an inspiration to all!So happy for you!Thanks so much for posting your super results..

mario555 · « **Reply #734 on:** October 03, 2015, 05:36:52 am »

BIXTER. I just wanted to add my thanks also for your outstanding work! I'm an accountant and I can appreciate the time it takes to tabulate through all the infos. You produce results that help large number of people in their quest for a cure!
I'm always amazed when thinking about the easy ride we have with Harvoni compared to the previous treatments available. Interferon makes me think of our great old days medicine like Leaches and Blood letting!!!
Although I suffered during my 24 weeks treatment, my sides following the end of treatment are slowly abating. It will be 24 weeks post in 3 weeks and I'll make sure to post my results as soon as I get them. Don't hold your breath! I live in Eastern Canada and I think they carry liver test results by mules! It takes upward of 8 weeks to get results here and even if I'd be willing to pay let say $10,000, there is nowhere to buy tests here! I am allowed to buy things that pollute as much as I want but I can't buy health services!
Anyway, please continue and yes, I'm curious to know what happened with Charly8. Maybe Lynn K could send a friendly personal message to let him know we all miss him! Good luck to everyone!

sabre · « **Reply #735 on:** October 03, 2015, 11:07:53 am »

Congrats, Momof3! You've been given a new lease. Enjoy your HCV-free life!

Bixter · « **Reply #736 on:** October 03, 2015, 02:36:29 pm »

Hello Mario, thank you so much for your kind words. And believe me, I know what you mean by not being able to buy health service, it can be very frustrating. But 8 weeks is an incredible long time to wait. If you have to wait 8 weeks this time too you will have the results at Christmas Eve. Best Christmas gift ever!

mario555 · « **Reply #737 on:** October 04, 2015, 04:32:32 am »

Hi Bixter. This is exactly what I am counting on, a Christmas gift! I also kept my first bottle to frame it IF I'm still und. We might bitch and holler about sides but, it seems to do the job! Harvoni is our key to a healthier life!

juan81 · « **Reply #738 on:** October 07, 2015, 10:20:56 am »

Hello Everyone. I just wanted to report my status. I just tested, and I am Negative. It is about 1 year since the beginning of my treatment, in reality SVR 40.

I give all the glory to my Lord, and savior Jesus Christ. Through him, nothing is impossible.

I will continually pray for everyone.
Have a great afternoon and God Bless!

HCV+ 2010 - Born 1981 ~ Geno 1a
Tx Harvoni - 8 weeks ~ 11/1/2014
Treatment naïve
Pre Tx : ALT & AST slightly elevated ~ VL : 47,000 10/21/2014
3 Wk on Harvoni: ALT & AST - Normal ~ VL : Undetected
SVR12: ALT & AST - Normal ~ VL : Undetected ~ 3/19/2015
SVR40: ALT & AST - Normal ~ VL: Undetected ~ 10/03/2015

Rosie13 · « **Reply #739 on:** October 07, 2015, 12:58:25 pm »

Juan!!!!! Great news & an 8 weeker to boot! You give me renewed hope that 8 weeks will be enough. Thanks for letting us know...& the prayers !

juan81 · « **Reply #740 on:** October 07, 2015, 03:39:19 pm »

You are welcome Rosie! 8 weeks is enough... I didn't do anything special. I drank lots of water. And took my pill everyday at the same time... and thank you!

concerned father · « **Reply #741 on:** October 08, 2015, 11:52:51 am »

Great news, after four weeks on Harvoni, my daughter is undetected. I realize that she still has a way to go for SVR 12 but it's a great start. For 20 years I've been praying for a miracle cure and I think my prayers have been answered.

KimInTheForest · « **Reply #742 on:** October 08, 2015, 12:04:33 pm »

Quote from: concerned father on October 08, 2015, 11:52:51 am

Great news, after four weeks on Harvoni, my daughter is undetected. I realize that she still has a way to go for SVR 12 but it's a great start. For 20 years I've been praying for a miracle cure and I think my prayers have been answered.

Phenomenal news! Congratulations to both of you!!!

kim

byebyeC · « **Reply #743 on:** October 08, 2015, 12:40:09 pm »

Congratulations All!!!

And Amen Juan!

So GREAT Concerned Father!

These are WONDERFUL stories of hope, courage and delivery!!! <3 <3 <3

Rosie13 · « **Reply #744 on:** October 08, 2015, 12:51:08 pm »

Whoo hoooo Concerned DAD! Your daughter is free!

Cute · « **Reply #745 on:** October 09, 2015, 09:08:51 am »

MY CONGRATULATIONS CONCERNED FATHER!!!

GREAT NEWS

Mugwump · « **Reply #746 on:** October 09, 2015, 09:52:22 pm »

Quote from: concerned father on October 08, 2015, 11:52:51 am

Great news, after four weeks on Harvoni, my daughter is undetected. I realize that she still has a way to go for SVR 12 but it's a great start. For 20 years I've been praying for a miracle cure and I think my prayers have been answered.

The first time you hear the words virus undetected the joy of knowing that you have the best chance possible to forget about HCV and how it effects you in everyday life is wonderful!

HCV infection becomes a burden no one should shoulder.

I am so happy that your daughter will have a life without HCV, it is a miracle few thought could happen and your faith in her helped greatly, of this I am certain.

All the best to you and your daughter.

Eric

lakelady · « **Reply #747 on:** October 15, 2015, 09:11:51 am »

genotype 1a
fibroscan 1
Treatment Naive
vl 1.5 mil
8 week Harvoni
4 wk in tx - undetected
EOT - undetected
4 wk SVR - undetected - Feeling Hopeful

KimInTheForest · « **Reply #748 on:** October 15, 2015, 11:01:37 am »

Quote from: lakelady on October 15, 2015, 09:11:51 am

genotype 1a
fibroscan 1
Treatment Naive
vl 1.5 mil
8 week Harvoni
4 wk in tx - undetected
EOT - undetected
4 wk SVR - undetected - Feeling Hopeful

Congrats on your SVR4 Lakelady! And welcome to the forums.

kim

Mike · « **Reply #749 on:** October 15, 2015, 12:59:34 pm »

Congrats Lakelady!

Looks like another dragon is heading to the bone yard!

Best wishes, Mike

Rosie13 · « **Reply #750 on:** October 15, 2015, 03:27:03 pm »

Lakelady! You are rockin' the numbers & so happy for you! Hopeful is right & by new years eve you will turning the page.2016 should be an epic year for most of us!

grodeestok · « **Reply #751 on:** October 15, 2015, 07:40:13 pm »

Hey all, posted all my details when this thread first started. Just got my 24 weeks /6 months post tx results. Still undetected!

Rosie13 · « **Reply #752 on:** October 15, 2015, 08:28:13 pm »

Grodeestok,it doesn't get an better than that! Congrats on your milestone!

KimInTheForest · « **Reply #753 on:** October 15, 2015, 09:40:14 pm »

Quote from: grodeestok on October 15, 2015, 07:40:13 pm

Hey all, posted all my details when this thread first started. Just got my 24 weeks /6 months post tx results. Still undetected!

Way to go, grodeestok!! Congrats on your SVR24!

kim

grodeestok · « **Reply #754 on:** October 15, 2015, 10:06:06 pm »

Thanks friends. Best of luck to everyone! It will happen!

grodeestok · « **Reply #755 on:** October 15, 2015, 10:11:45 pm »

Tiger you still on here? How are your numbers?

lakelady · « **Reply #756 on:** October 16, 2015, 07:51:55 am »

Thanks for the nice replies, new to posting but during treatment I have been a stalker. Hopefully I may be one of those that helps up the percentage of 8 weekers that make it.

Rosie13 · « **Reply #757 on:** October 16, 2015, 11:14:16 am »

Lakelady, I am an 8wker too & do hope that we up those #'s. supposed to hear from my Dr. today about appeal for 1 more month. I am not having a hard time so she wants to push due to my fibroscan. She said the viral load pretreatment should not determine the lengh of tx. Have a great day today!

waitingforrain · « **Reply #758 on:** October 16, 2015, 03:47:24 pm »

SVR 12

12 week Harvoni
1a
Mild to No Fibrosis
Treatment experienced x2

Thanks to everyone here for sharing your stories. It helped to get me through it all.

beto · « **Reply #759 on:** October 16, 2015, 04:05:37 pm »

Well a yahoo and a yipeee are in order for waitingforrain and grodeestok!!!
Wonderful news. I await my 4 week eot and that gives me the heeby Jeebies. Keep posting you two. Don't leave all us waiters in the lurch.

peace

grodeestok · « **Reply #760 on:** October 16, 2015, 07:23:00 pm »

Thanks beto! I was undetected after 4 weeks in tx and I'm sure you will be too. My hats off to the Warriors who braved the earlier treatments. They are some serious fighters.

Bituman · « **Reply #761 on:** October 17, 2015, 09:05:36 am »

Well by all indications, I think the news is good. After 12 weeks Harvoni and 24 weeks waiting for it, I did my last lab visit yesterday morning and the results just posted: HCV RNA UNDETECTED. My signature is now updated and complete. By happenstance I visit my IM doc on Tuesday for annual physical. I'm hoping the term "cured" comes up in our conversation.

I have been extremely lucky through treatment. I've had absolutely zero side effects. I was able to handle a rough patch at work and train for and race several bike events during and after treatment. Maybe things will change tomorrow, but for now life is good and I hope for the same for all of you.

Bob (86)

GLCII · « **Reply #762 on:** October 17, 2015, 09:21:20 am »

Congratulations an that Great News Bituman.

beto · « **Reply #763 on:** October 17, 2015, 11:38:29 am »

Congrats Bob!!! thank you for the post...inspiring. Good luck to all no matter where you are on the trail to SVR

Rosie13 · « **Reply #764 on:** October 17, 2015, 11:45:08 am »

Way to go, Bob! You are my Saturday inspiration!

waitingforrain · « **Reply #765 on:** October 17, 2015, 08:23:06 pm »

Thanks, Beto. I'll be around. Wishing the best for you and everyone!

Anita13 · « **Reply #766 on:** October 22, 2015, 07:45:11 am »

Husband Roger 4 weeks EOT UD. Geno 1A treated twice before. Once Riba Interferon, second Incivek Riba Interferon.

scott · « **Reply #767 on:** October 22, 2015, 12:01:15 pm »

Hi all, I haven't posted or even been here in quite a while but, I am now 12 weeks EOT and just got the result ---- Undetectable YAY!

I started with Harvoni and one month in I was undetectable hence fast responder. But my insurance co. was threatening to allow me only three months. so My good doctor got me going on Ribavarin. INS. co. finally covered me with insistence from my nurse and a lot of hassle for the second three months so in total I received 6 months of Harvoni and 5 months combined treatment with Ribavarin.

I am very pleased with this however I am guessing based oninformation gathered that the definitive test will be three months from now!
Cheers all and good luck,
Scott

beto · « **Reply #768 on:** October 22, 2015, 12:20:43 pm »

Way o go Scott!! Nice! I was cut to 12 weeks so, you are a lucky man. Good luck to you my friend. Happy Hep free life.

byebyeC · « **Reply #769 on:** October 22, 2015, 12:43:50 pm »

Congratulations to all on your SVR!

Let's keep up the good thoughts and prayers for those still going through

Morphin · « **Reply #770 on:** October 22, 2015, 03:51:14 pm »

Jumping the gun a bit, went in for my lab work this am, but do have some preliminary results:

1. 4wk - 12 wk EOT VL status - 7 1/2 weeks Still waiting on results
The early results, and why I'm so HOPEFUL is ALT is 30 and AST is 41. Still below the highs before treatment and within normal range.
2. Treatment duration - 8 weeks
3. tx naive or experienced - tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - Possible F1 based on lab work, but never diagnosed/verified by scan
6. Initial VL (date) - 2362235 (4/13/2015)

Will be able to confirm status (undetectable?

) in a few more days - maybe tomorrow, probably next Monday. My intuition is telling me Hep C is eradicated because every day just feels better and better.

For those still waiting, going through, or thinking about treatment - hang in there and keep fighting - the light is coming and it's SO GOOD!

Peace,
Morphin

P.S. Next item on the action list is to fight/advocate for those unable to obtain treatment due to denials/cost.

Camper · « **Reply #771 on:** October 22, 2015, 04:23:55 pm »

My doctor called me today it's official I am undetected 13 weeks SVR. My viral count in the beginning was 1.5 million and geno type 1A. I had to ask my doctor I did not know. I can't help but think of the ones who still have the virus who failed the treatment and how they must feel. But I strongly feel there will be a cure for everyone soon, the light is at the end of the tunnel. No more medicine no more blood tests its all slowly sinking in to my thinking that I am cured. Hurray!

Rosie13 · « **Reply #772 on:** October 22, 2015, 09:39:11 pm »

So happy for you camper & morphin!!!! Such great people free to go ahead & dream BIG! Good luck ...we are right behind you looking forward to our day in the sun

Lisa Lisa · « **Reply #773 on:** October 25, 2015, 09:22:25 pm »

1. 12 wk-<15
2. tx duration-8 weeks started harvoni 3/31/15
3. tx naive
4. Genotype 1b
5. F1-F4 fibrosis status-none or mild
6. Initial VL 294,000 2/2014

will test again mid November to see if undetected.

Lynn K · « **Reply #774 on:** October 26, 2015, 01:26:02 am »

Hi Lisa

Was that test 12 weeks after your treatment ended?

And the mid November will that test be 24 weeks after your treatment ended?

Good luck to you

Lynn

Lisa Lisa · « **Reply #775 on:** October 26, 2015, 07:53:35 am »

Yes after tx, 12 weeks. Disappointed it didn't show undetected. Mid November will be 24 weeks after tx ended. My ALT and AST are in the 20s and have been since 4 weeks (mid-tx). Hoping undetected in November. Thank you.

concerned father · « **Reply #776 on:** October 26, 2015, 08:30:52 am »

After 8 weeks of treatment, my daughter is taking her last pill this morning . I hope her undetected status will stay.

gnatcatcher · « **Reply #777 on:** October 26, 2015, 09:00:38 am »

Quote from: Lisa Lisa on October 26, 2015, 07:53:35 am

Yes after tx, 12 weeks. Disappointed it didn't show undetected. Mid November will be 24 weeks after tx ended. My ALT and AST are in the 20s and have been since 4 weeks (mid-tx). Hoping undetected in November. Thank you.

Lisa Lisa, things are still looking very good for you. Moderator Lucinda Porter, R.N. wrote a helpful article:
http://www.hepmag.com/articles/hepatitis_c_questions_2502_27873.shtml
The relevant portions:
If you are concerned that you may have some residual HCV swimming around in your body, that will someday become a full-blown infection, rest assured, as this is quite unlikely. Hep C replicates a trillion times a day, so “not detected” might as well be zero. It is extremely unlikely that a small amount of HCV will remain alive in your body without having replicated to much higher amounts. In fact, viral load tends to replicate at much higher numbers when treatment fails.
. . .
I just finished HCV treatment, but my viral load was detectable at week 8 and 12. Does this mean my chances of being cured are low?

No. In the old days, back when treatment was long and used interferon, there were clear milestones that helped us know what our chances were of permanently clearing hepatitis C. Now with new direct-acting antivirals (DAAs), things have changed. Research by the NIH Clinical Center showed that low levels of HCV RNA at the end of treatment are not predictive of treatment response among patients with hepatitis C virus treated with interferon-free regimens. (Clinical Infectious Diseases, March 2, 2015) Harvoni was used in this study, but the trend is likely to apply to all treatments using HCV DAAs.

Gnatty

Lisa Lisa · « **Reply #778 on:** October 26, 2015, 11:53:45 am »

Thank you for the article. I will post my November results.

Katie · « **Reply #779 on:** October 26, 2015, 04:29:04 pm »

We are all keeping our fingers crossed for you but being a strong supporter without replication at post 12 weeks, I think you have knocked the virus out. Positive thoughts sent your way!

Katie

Lynn K · « **Reply #780 on:** October 27, 2015, 12:13:48 am »

When I relapsed last year after treating with Sovaldi and Olysio for 12 weeks when I was tested 12 weeks after I finished my viral load was 2.4 million even though I was not detected at week 4 and at EOT 12 weeks.

Hep c doesn't sneek back it comes roaring back if it is coming back.

Fingers crossed for your 24 week test
Lynn

Morphin · « **Reply #781 on:** October 27, 2015, 04:04:15 pm »

Quote from: Morphin on October 22, 2015, 03:51:14 pm

Jumping the gun a bit, went in for my lab work this am, but do have some preliminary results:

1. 4wk - 12 wk EOT VL status - 7 1/2 weeks Still waiting on results
The early results, and why I'm so HOPEFUL is ALT is 30 and AST is 41. Still below the highs before treatment and within normal range.

UGH - after a LONG 5 days, my 8 week test finally came in.

UNDETECTED

Going to go cry tears of joy now.

slats1056 · « **Reply #782 on:** October 27, 2015, 09:30:50 pm »

Morphin, Excellent News

. Classic happy dance You posted there! Charlie & Snoopy are iconic. The waiting is the hardest part. Good luck & good health to You!

beto · « **Reply #783 on:** October 27, 2015, 09:33:18 pm »

Morphin...Sweet!

Lynn K · « **Reply #784 on:** October 28, 2015, 01:15:29 am »

Great news Morphin

May I join your happy dance? I just got my 24 week post results today.

SVR 24! No more hep c for me!

beto · « **Reply #785 on:** October 28, 2015, 01:41:46 am »

Lynn...I am absolutely thrilled for you...your 24...wow...touchet

Patience · « **Reply #786 on:** October 28, 2015, 07:48:38 am »

Lynn,

Fantastic! Such wonderful news! You've been so helpful and supportive on this forum. Thank you!

Philadelphia · « **Reply #787 on:** October 28, 2015, 08:25:58 am »

Wonderful news Lynn. So very happy for you.

KimInTheForest · « **Reply #788 on:** October 28, 2015, 02:07:06 pm »

Got my latest results: I reached SVR12. No virus remaining in this ole bod after 40+ years of co-existing with the dang thing!!!

For the data compilation on this thread, I am Genotype 3a, and I got my 12 weeks of Harvoni+ribavirin through a clinical trial:

1. 12 week EOT: undetected (SVR12)
2. Treatment duration: 12 weeks (Harvoni+ribavirin), starting May 5, 2015
3. tx naive or experienced: tx naive
4. Genotype (1a or 1b): Genotype 3a
5. F1-F4 fibrosis status: F2 (April 2015)
6. Initial VL: 4 million (May 5, 2015)

And huge congrats to Lynn K & Morphin on your recent SVR-24's !

best to all,
kim

gnatcatcher · « **Reply #789 on:** October 28, 2015, 02:18:18 pm »

Kim, I'm glad there's a happy ending, especially after all that you have endured.

concerned father · « **Reply #790 on:** October 28, 2015, 02:29:52 pm »

Congrats to Lynn K, Kim & Morphin

dearprudence · « **Reply #791 on:** October 28, 2015, 03:03:10 pm »

Quote from: KimInTheForest on October 28, 2015, 02:07:06 pm

Got my latest results: I reached SVR12. No virus remaining in this ole bod after 40+ years of co-existing with the dang thing!!!

For the data compilation on this thread, I am Genotype 3a, and I got my 12 weeks of Harvoni+ribavirin through a clinical trial:

1. 12 week EOT: undetected (SVR12)
2. Treatment duration: 12 weeks (Harvoni+ribavirin), starting May 5, 2015
3. tx naive or experienced: tx naive
4. Genotype (1a or 1b): Genotype 3a
5. F1-F4 fibrosis status: F2 (April 2015)
6. Initial VL: 4 million (May 5, 2015)

And huge congrats to Lynn K & Morphin on your recent SVR-24's !

best to all,
kim

Hi Kim,
A HUGE WOO HOO for reaching 12week SVR! SVR 24 weeks hooray for Lynn and Morphin!
I have been feeling great and taking care of things that got backed up during treatment.
Found out Tuesday that my anemia is gone! 12 week blood will be done next week and dr. visit with ultrasound on Nov. 9th. I will keep you posted. Even though I'm a VPak & Riba girl, I hope to join you in 12 week undetected status!
All my best, Prudence

dragonslayer · « **Reply #792 on:** October 28, 2015, 08:19:48 pm »

Congrats Kim!!!

KimInTheForest · « **Reply #793 on:** October 28, 2015, 09:40:26 pm »

Thank you gnatty, concerned father, prudence, paul & all others on other threads for your good wishes!! It's pretty amazing. How many of us ever thought the cure for Hep C would be developed in our lifetimes? Not me. I'm still getting used to the New Reality of my New Life.

kim

beto · « **Reply #794 on:** October 28, 2015, 10:54:02 pm »

congrats kim who lives in a forest and not in Hawaii...you da bomb

rt2cup · « **Reply #795 on:** October 29, 2015, 12:28:12 am »

Been looking for information on post treatment with Harvoni, 12 weeks. Unable to find any real studies. This forum has provided some good information, thanks.
In a week I will do my 12 wk. blood work and on November 11th, I should find out if the virus is cleared. I will post my results than.

A little background, found out I had non-A non-B Hep back in the early 80's. Around 2002, I decided to try the (excuse spelling, to lazy to look up correct spelling), Sher-Plough, peg-Interferon and ribivian treatment for 48 weeks. I cleared the virus but relapsed. Decided to try Harvoni, finish treatment mid-August.

1b, IL28B, CT genotype

AST and ALT markers normally slightly high, for example in 2002, 42 and 45, this was before first treatment. AST and ALT markers vary over the years.

VL: 05/22/02 220 IU/ml
VL: 08/26/02 <10 this was the beginning of treatment.
VL: 12/10/02 <10
VL: 04/09/03 22500000
VL: 05/10/04 58900000

AST 161 ALT 269 11/15/2005 continue to be high but decreasing for example, 02/14/2008: AST 80 and ALT 120
Fast forward to 03/24/2015: AST 46 and ALT 72
VL: 124610 IU/ml
The fibrosis stage: could not be calculated for this patient. Testing revealed an unusually high or low value for one or more of the biochemical analytes.

Anyway over the years I have had a few needle biopsy and now a few ultrasounds, results increasing fibrosis. Latest ultrasound: "Slightly coarsened hepatic echotexture compatible with cirrhosis is again noted. No focal hepatic mass is demonstrated. Hepatic length 15cm."

Found my VL results for 6/24/2015 while on Harvoni: Undetected test limit <15 IU/mL

Let you know results when I get them.

Lynn K · « **Reply #796 on:** October 29, 2015, 01:07:44 am »

Hi rt2cup

Here is a link to the ION-2 clinical trial results which was 12 or 24 weeks for treatment experienced with about 20 % who have cirrhosis.

http://depts.washington.edu/hepstudy/presentations/uploads/121/ion2ledipasvirsofosbuvir.pdf

Good luck with your post treatment results

Lynn

And congrats to you too Kim!

2rivers · « **Reply #797 on:** October 29, 2015, 01:11:47 am »

I have just receive my 12 week EOT results and am happy to report no detected HCV. After 45 years of living with the virus (1B) I did 8 weeks of Harvoni. I was undetected at 4 and 8 weeks (EOT), and now at 20 weeks. All my liver enzymes are well within normal ranges as well. I hope this information will provide hope for those currently undergoing treatment.

slats1056 · « **Reply #798 on:** October 29, 2015, 10:05:20 am »

Man, out of pocket for a day and look at all the good news flowing in!

Lynn, Happy, Happy, Happy for You

You are one of the most derserving of SVR after all You have been through! Excellent and CONGRATULATION

Happy Dance until You drop!!!!

Kim, Most excellent for You also!

Hope all is well in the forest once again!

Be careful not to step on the little critters when Your dancing Your Happy Dance!

Tip Toe Through The Tulips Anyone??

2rivers , Yet another big win chalked up in the battle against evil forces!

I feel the Earth shaking with all the Happy Dances going on around the World. Glad to hear all of this good news!!!

Waiting for the day that all posts here will be good news and SVR! Let's do it Guys!

KimInTheForest · « **Reply #799 on:** October 29, 2015, 12:13:09 pm »

Quote from: slats1056 on October 29, 2015, 10:05:20 am

Kim, Most excellent for You also! Hope all is well in the forest once again! Be careful not to step on the little critters when Your dancing Your Happy Dance! Tip Toe Through The Tulips Anyone??

Haha! Will do Tommy. The little critters around here are mainly banana slugs and black bears. But I will watch out for both!

kim

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