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Author Topic: Restless leg syndrome on Harvoni  (Read 6879 times)

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Offline Perca05

  • Member
  • Posts: 12
Restless leg syndrome on Harvoni
« on: April 01, 2015, 01:40:10 pm »
Hi all...I have been on Harvoni now for 4 weeks.  Just waiting for my labs now.  However, I wanted to see if anyone is have this issue.  I have RLS, but it is now happening almost every night, and it's bad.  Usually if it happens I can walk it off, but since being on harvoni, it hits around midnight and lasts for hours.   Is anyone else facing this?  Have you found a way to make it stop?

Thanks!

Offline Barbara Marin

  • Member
  • Posts: 12
Re: Restless leg syndrome on Harvoni
« Reply #1 on: April 05, 2015, 08:39:03 pm »
I have RLS which had been practically in remission before beginning Harvoni 9 weeks ago. The past 5-6 weeks it's been the worst ever. I'm on sleeping meds, so eventually I get to sleep. Another quasi fix is getting up and eating a half english muffin. Somehow I think a good dose of carbs calms it down. Hope this helps!
Geno: Mixed 1a/1b
Contracted disease 1970
Biopsy 1994 chronic active
Biopsy 1996 mild chronic
Biopsy 2013 stage 2/3
Prior to TX fatigue, joint pain, skin rash
Began Harvoni 1/31/15
Undetectable at 8 weeks
Spring 2015 CT scan showed cirrhosis
Last pill 4/24/15
No prior treatments

Offline crazycanuck

  • Member
  • Posts: 17
Re: Restless leg syndrome on Harvoni
« Reply #2 on: April 07, 2015, 06:43:49 pm »
I have RLS which had been practically in remission before beginning Harvoni 9 weeks ago. The past 5-6 weeks it's been the worst ever. I'm on sleeping meds, so eventually I get to sleep. Another quasi fix is getting up and eating a half english muffin. Somehow I think a good dose of carbs calms it down. Hope this helps!
I am on day 12 of Harvoni and I am experiencing RLS and it drives me crazy on top of a whole bunch of other symptoms my Dr. never told me about. What personally works for me is rubbing my calves with peppermint oil at night and the menthol works magic!!! I hope this helps.

Offline DougW

  • Newbie
  • Posts: 1
Re: Restless leg syndrome on Harvoni
« Reply #3 on: May 11, 2015, 09:35:48 am »
I am just now finishing my 5th week on Harvoni and have been treated for RLS now since 2008. I'm now taking 4mg of Requip and 300mg of Gabapentin and I'm going insane. I feel like chewing my feet off on a daily basis, mostly late afternoon or early evening. Been walking about 3 miles a day and that is a short term help. Many times I think I would give up the Hep C treatment for relief of the RLS. I think my RLS got considerably worse before I started the Harvoni.

 


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