Welcome, Guest. Please login or register.
March 01, 2024, 03:39:17 am

Login with username, password and session length


Members
  • Total Members: 6307
  • Latest: golfer
Stats
  • Total Posts: 55120
  • Total Topics: 4850
  • Online Today: 62
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 46
Total: 46

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Sofosbuvir Generic in India My experience  (Read 28116 times)

0 Members and 1 Guest are viewing this topic.

Offline gregj

  • Member
  • Posts: 7
Sofosbuvir Generic in India My experience
« on: May 14, 2015, 09:11:32 am »
Hi Folks I tested positive for Hep C last year. After deciding not to use the Interferon treatment I am now on my way to India to find out what the process is for buying the generic Sofosbuvir being manufactured there. I am recording my experiences in a diary published at

www.hepatitisctreatment.homestead.com

 I hope by sharing this experience with you it may help some of you get Sofosbuvir at a much cheaper price than is possible in most western countries (I'm from Australia where the price for a three month treatment is $90,000)

Offline Francis60

  • Member
  • Posts: 61
Re: Sofosbuvir Generic in India My experience
« Reply #1 on: May 14, 2015, 10:22:27 am »
Good luck...keep us updated

Offline dragonslayer

  • Member
  • Posts: 873
Re: Sofosbuvir Generic in India My experience
« Reply #2 on: May 15, 2015, 02:35:54 pm »
Gregj,

Isnt it generic Harvoni you want?
Paul

DX 2008
Started Harvoni 11/26/14 for 8 wks
Completed 8 wks Harvoni 01/20/15
EOT RNA Quant result:  Detected 29
7.5 wk post tx: Detected < LLOQ(12)
11 wk post tx: UNDETECTED SVR12
24 wk post tx: UNDETECTED SVR24; AST 26; ALT 22; ALP 73
48 wk post tx: UNDETECTED SVR48; AST 18; ALT 18; ALP 70
GT 1a
vl 2.4mil
2008 bpx: Stage&Grade 0
2013 bpx: Stage&Grade: 0-1
IL28B: TT
likely infected early '70s

Offline gregj

  • Member
  • Posts: 7
Re: Sofosbuvir Generic in India My experience
« Reply #3 on: May 15, 2015, 08:09:29 pm »
Hi Dragon slayer
Harvoni would probably be better but it is not available in India as far as I know

Offline dragonslayer

  • Member
  • Posts: 873
Re: Sofosbuvir Generic in India My experience
« Reply #4 on: May 16, 2015, 09:10:44 am »
Hi Dragon slayer
Harvoni would probably be better but it is not available in India as far as I know

Hi Greg.. has Sofosbuvir  even been proven to work by itself, or are you combining it with something else?
Paul

DX 2008
Started Harvoni 11/26/14 for 8 wks
Completed 8 wks Harvoni 01/20/15
EOT RNA Quant result:  Detected 29
7.5 wk post tx: Detected < LLOQ(12)
11 wk post tx: UNDETECTED SVR12
24 wk post tx: UNDETECTED SVR24; AST 26; ALT 22; ALP 73
48 wk post tx: UNDETECTED SVR48; AST 18; ALT 18; ALP 70
GT 1a
vl 2.4mil
2008 bpx: Stage&Grade 0
2013 bpx: Stage&Grade: 0-1
IL28B: TT
likely infected early '70s

Offline gregj

  • Member
  • Posts: 7
Re: Sofosbuvir Generic in India My experience
« Reply #5 on: May 16, 2015, 09:43:59 am »
I am combining it with Ribavirin 3 tablets twice daily

Offline dragonslayer

  • Member
  • Posts: 873
Re: Sofosbuvir Generic in India My experience
« Reply #6 on: May 16, 2015, 10:38:04 am »
I am combining it with Ribavirin 3 tablets twice daily

Excellent!  Good luck to you!!
Paul

DX 2008
Started Harvoni 11/26/14 for 8 wks
Completed 8 wks Harvoni 01/20/15
EOT RNA Quant result:  Detected 29
7.5 wk post tx: Detected < LLOQ(12)
11 wk post tx: UNDETECTED SVR12
24 wk post tx: UNDETECTED SVR24; AST 26; ALT 22; ALP 73
48 wk post tx: UNDETECTED SVR48; AST 18; ALT 18; ALP 70
GT 1a
vl 2.4mil
2008 bpx: Stage&Grade 0
2013 bpx: Stage&Grade: 0-1
IL28B: TT
likely infected early '70s

Offline Francis60

  • Member
  • Posts: 61
Re: Sofosbuvir Generic in India My experience
« Reply #7 on: May 16, 2015, 09:19:32 pm »
Hi Greg,
I have just finished 6 months sofosbuvir/  RIBA I am a geno 3 and was fortunate to get on a trial in Melbourne. Unfortunately some friends were not an are looking to go overseas to purchase sovladi, would you have and suggestions where to start?
Cheers and good luck with your treatment ( drink plenty of water)

Offline gregj

  • Member
  • Posts: 7
Re: Sofosbuvir Generic in India My experience
« Reply #8 on: May 16, 2015, 11:10:59 pm »
Hi Francis60
If they read my blog on   

http://hepatitisctreatment.homestead.com/

  I am posting a daily diary of the processes I have gone through in India. I expect to have a three month course of Sofosbuvir in my hands tomorrow. Not certain of the cost yet but it looks like between $900 and $1,200 for the full course (3 bottles of 28 pills). I will know more tomorrow. Hope that helps
« Last Edit: May 16, 2015, 11:13:58 pm by gregj »

Offline Francis60

  • Member
  • Posts: 61
Re: Sofosbuvir Generic in India My experience
« Reply #9 on: May 16, 2015, 11:22:58 pm »
Thanks Greg and good luck !!!

Offline gregj

  • Member
  • Posts: 7
Re: Sofosbuvir Generic in India My experience
« Reply #10 on: May 16, 2015, 11:31:12 pm »
 :)

Offline angelina

  • Member
  • Posts: 20
Re: Sofosbuvir Generic in India My experience
« Reply #11 on: May 29, 2015, 01:04:28 am »
Hi all who is looking for cheaper Sovaldi/sofosbuvir. It is easily available in egypt, cairo. U can buy it in the pharmacy for 2000$ the original from gilead or for 900$ per bottle for generic version. Hope that helps. Wishing everyone a speedy recovery.

Offline dragonslayer

  • Member
  • Posts: 873
Re: Sofosbuvir Generic in India My experience
« Reply #12 on: May 29, 2015, 09:26:03 am »
Greg,

Your blog is fascinating!  Just read through most of it, and it reads like a novel.. Beautifully written and packed with information..

Best of luck in arriving at a successful conclusion.
Paul

DX 2008
Started Harvoni 11/26/14 for 8 wks
Completed 8 wks Harvoni 01/20/15
EOT RNA Quant result:  Detected 29
7.5 wk post tx: Detected < LLOQ(12)
11 wk post tx: UNDETECTED SVR12
24 wk post tx: UNDETECTED SVR24; AST 26; ALT 22; ALP 73
48 wk post tx: UNDETECTED SVR48; AST 18; ALT 18; ALP 70
GT 1a
vl 2.4mil
2008 bpx: Stage&Grade 0
2013 bpx: Stage&Grade: 0-1
IL28B: TT
likely infected early '70s

Offline Maxlaw

  • Member
  • Posts: 20
Re: Sofosbuvir Generic in India My experience
« Reply #13 on: May 29, 2015, 06:10:51 pm »
Hi Greg, I just finished reading your blog, and it is fascinating!  I wish you the best for a successful treatment and SVR. You mentioned more than once in your blog about how crazy it is that there are very effective drugs available but that either the cost of the drugs or the lack of being "sick enough" are preventing so many people from receiving treatment. I, too, find that quite insane!

I was very lucky and blessed to have been treated in a clinical trial for GT's 2 and 3 with AbbVie's next generation NS3/4A protease inhibitor, ABT-493, and next gen NS5A inhibitor, ABT-530 (these are the next gen drugs of two of the drugs in the recently approved Viekera Pak for GT 1). I just took my 12-week post treatment blood tests this week and should get the results next week. I have been undetected since week 3 and have remained undetected through week 8 post-treatment. However, in this particular trial, even though you are considered "cured" with an UND result at week 12 post-treatment, I will not receive my "cure letter" until after the 24-week results.

After reading your blog of what you have had to go through to get treatment, I cried. I feel even more blessed for the opportunity I was given in light of your struggle (and the struggles of others on this forum and everywhere), but I am so sad that so many people can't get treatment. It's just not fair.

Again, I wish you the best, and thank you for putting you story out there for everyone to benefit from. 

--Max
GT 3a, dx 07/2014, baseline VL <400K, Fibrosis stage F2 prior to treatment; Completed AbbVie trial drugs ABT-493 & ABT-530 03/01/2015; achieved SVR 12 on 5/27/15...CURED!!

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: Sofosbuvir Generic in India My experience
« Reply #14 on: May 29, 2015, 11:46:37 pm »
Hi Greg
I just finished reading your facinating blog posts.  What a story!
It was so well written and very interesting.  It made me remember my experience in Indiia many years ago.  Patience takes on a whole new meaning. :)
I am glad you were able to get the meds and am cheering for you.
I can't wait to hear what your VL and enzyme levels are.
Fortunately I was one of the "sicker" ones here in the U.S. so I was able to get
Harvoni through my insurance.  (The irony!)
I wish you all the best and I am sure a lot of people will benefit from your experience and blog diary
Good luck
Deb
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: Sofosbuvir Generic in India My experience
« Reply #15 on: June 12, 2015, 10:31:37 am »
For those of you who are following this
Here is a snippet from his last entry found here http://hepatitisctreatment.homestead.com/Buying-Sofosbuvir-On-line.html


"8 pm 12th June
I went to get my liver enzyme and viral load results today. First the bad news. There was a letter from Pathology saying that they had not done my viral load because the request had not been written by a specialist. Oh well if I had known I would have gone to the specialist! Anyway I will organise that next week. Now the GOOD NEWS!!!
My liver enzyme results were better than I had hoped (warning: only people with an ailing liver will get excited by these figures).
These tests were taken on the 3rd June 2015, 11 days into my treatment using Indian generic Sofosbuvir (Myhep) with generic Ribavirin. The results are compared with a test from 4th of May 2015 a week before I left for India.

ALP...............down from 98 to 68
Gamma GT....down from 222 to 109
ALT...............down from 464 to 32

All other enzymes in normal ranges. So for those of you who are worried about the Indian generic Sofosbuvir give up the fear and grab hold of hope!"


I am really glad to see these numbers and have enjoyed reading your diary blog so much!!  Anxiously awaiting for your viral load now Greg!  Good luck!! and thanks for all the hard work you have put into this!!  I am sure you have given so many people a real chance and a lot of hope
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

Offline Francis60

  • Member
  • Posts: 61
Re: Sofosbuvir Generic in India My experience
« Reply #16 on: June 12, 2015, 10:37:02 am »
Great to hear Greg !!!!! Keep us informed on viral load. I am sure it will be undetected.

Offline elizabethfaraone

  • Member
  • Posts: 56
  • happy and in love with Michael Sofia
Re: Sofosbuvir Generic in India My experience
« Reply #17 on: June 21, 2015, 11:45:05 am »
WOW!  That was a great journal.  Thank you for sharing!  I've posted the link on my support group.

Hi Folks I tested positive for Hep C last year. After deciding not to use the Interferon treatment I am now on my way to India to find out what the process is for buying the generic Sofosbuvir being manufactured there. I am recording my experiences in a diary published at

www.hepatitisctreatment.homestead.com

 I hope by sharing this experience with you it may help some of you get Sofosbuvir at a much cheaper price than is possible in most western countries (I'm from Australia where the price for a three month treatment is $90,000)
Infected in 1987 in China when MD administered acupuncture with reused needle
Diagnosed 2001
Genotype 1a w/ Q80K polymorphism
Attempted treatment with Interferon/Ribavirin 2003 and stopped immediately
2014 fibroscan no fibrosis
2014 abdominal ultrasound normal
Found gastroenterologist to advocate for me upon Harvoni approval by FDA
Began treatment w/ Harvoni December 2014
Undetected at four weeks
Completed 12 week treatment February 2015
Blood tests normal
ElizabethFaraone@yahoo.com

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: Sofosbuvir Generic in India My experience
« Reply #18 on: July 01, 2015, 10:44:18 am »
I have been anxiously following Greg's blog diary
and here is some goods and an excerpt

  "26th June 2015 V Day
"First he pulled out my liver function results: ALT down from 464 two months ago to 20 last week. Gamma GT down from 222 to 67 and ALP down from 98 to 68. He shook his head and smiled. "These are fantastic result!"
Next: the viral loads.
I held my breath as he read through the results on the computer screen then turned to me with a really big smile and said, "No detectable virus load." He smiled and shook his head again.
I almost cried. I could feel tears welling in my eyes...."
Read the full blog story here -->  http://hepatitisctreatment.homestead.com/Buying-Sofosbuvir-On-line.html

Very happy for you Greg
Keep up the good work!!

Deb
« Last Edit: July 01, 2015, 10:47:20 am by Debula »
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

 


© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.