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Author Topic: new to this  (Read 13806 times)

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Offline mrjloc

  • Member
  • Posts: 15
new to this
« on: February 11, 2015, 01:39:50 pm »
im really freaking out i hand an CT of my abdomen for liver cancer and it showed no cancer cells but now my Fibrosure show advance activity and F4 Cirrhosis my alt 146 im tring to get on treatment .....any advice?

Offline rainbowray

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  • Posts: 263
  • Gen 1B
Re: new to this
« Reply #1 on: February 11, 2015, 02:21:24 pm »
Alpha-Fetoprotein Tumor Marker blood test is specific for cancer in the liver.
 
AFP-L3% is the test, 0.0-8.0 is normal range.

If you have not had this done, ask your Doctor.  Probably has done it but you did not have information. Ask as good to know to relieve your mind, and since you are F-4 needs to be done probably twice a year. It is just a blood draw.

Offline mrjloc

  • Member
  • Posts: 15
Re: new to this
« Reply #2 on: February 11, 2015, 02:27:11 pm »
i did have it done it was at 87 i believe... thats why my GI dr sent me for a CT
that came back normal .....its just scarry to know i have Cirrhosis if inded i have it im just really freaking out

Offline rainbowray

  • Member
  • Posts: 263
  • Gen 1B
Re: new to this
« Reply #3 on: February 11, 2015, 02:33:31 pm »
Get treatment going as soon as possible, thats the best way to approach this.
Good treatment are now around, and you should qualify with no issues being F-4 and if you have insurance.

Offline mrjloc

  • Member
  • Posts: 15
Re: new to this
« Reply #4 on: February 11, 2015, 02:49:49 pm »
im hoping that will happen after my appt. on monday and my ins. accepts it .....but im really emotional and freaked out about the whol F4 deal

Offline rainbowray

  • Member
  • Posts: 263
  • Gen 1B
Re: new to this
« Reply #5 on: February 11, 2015, 03:39:52 pm »
Well, Stress is not good for the liver.
Abstain from Alcohol and other things that harm.
Also f-4 can be in early stage and if treated successfully may reverse.
It's good your going foward.

Offline mrjloc

  • Member
  • Posts: 15
Re: new to this
« Reply #6 on: February 11, 2015, 03:42:13 pm »
Thank you

Offline lporterrn

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  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: new to this
« Reply #7 on: February 11, 2015, 06:42:12 pm »
The CT scan is much more accurate than the AFP - AFP is a marker, but it is frequently elevated in hep C pts, esp with cirrhosis. Now is a great time for treatment.

Freaking out is a reasonable response at this point - it takes time to come to terms with this. You will see amazing stories here of how people came to live with their cirrhosis, and in some cases cancer.

It will get better. Bring your fears here, and hopefully, you will leave with courage and hope.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline mrjloc

  • Member
  • Posts: 15
Re: new to this
« Reply #8 on: February 11, 2015, 06:47:14 pm »
Thank yoU IPORTERM ive heard to that the fibrosure sometimes is not accurate but still i need to be around for my wife and children ive always  seen cirrhosis as the end of the road and that scares me

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: new to this
« Reply #9 on: February 11, 2015, 11:12:58 pm »
The road is surprisingly long, even when you think you are at the end.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline TonyDMyLuv

  • Member
  • Posts: 4
Re: new to this
« Reply #10 on: May 29, 2015, 12:49:16 am »
My fiancee' was diagnosed with Hep in 1994.  He has been taking H2o2 IV Therapy treatments for years and his count went down.  He was going 2 times a week.  Well, the past 2 years he kinda slacked.  He started feeling bad again to where his joints in his hands where in pain.  He couldn't even make a fist.  He went back for treatment with same Dr.  His blood test came back :  HCV RNA, PCR QUANT 8451764, HCV VIRAL LOG 6.927, BUN 6, SGOT(AST) 51,PLATELET COUNT 74, & T4 15.3.  Can you explain this to me?

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: new to this
« Reply #11 on: May 29, 2015, 05:33:26 am »
He has hep c and needs to be treated with the new medicines

Hydrogen peroxide treatment cannot cure hep c of have any effect on the virus and the progression of liver disease.

Viral load in hep c varies all the time for everyone.

See a hepatologist or gastroenterologist, get treated with the newly FDA approved medicines, get cured
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline TonyDMyLuv

  • Member
  • Posts: 4
Re: new to this
« Reply #12 on: May 29, 2015, 08:19:57 am »
Thanks for the info.  I keep telling him about NEW treatments due to my research.  He's OLE SCHOOL.  Will research more.  Again, thanks!!

 


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