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Author Topic: Is Anyone Losing Their Hair??  (Read 6171 times)

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Offline vbirmin

  • Member
  • Posts: 5
Is Anyone Losing Their Hair??
« on: June 06, 2015, 04:45:12 pm »
I am 8 weeks into my 12 week treatment.  So far, sides have been minimal.  But, the last few weeks, my hair has been coming out quite a bit.  I have a ton of hair, so it is not that noticeable yet, but hairdresser is getting concerned.  Wanted to know if anyone else was experiencing hair loss.

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Is Anyone Losing Their Hair??
« Reply #1 on: June 06, 2015, 05:26:58 pm »
I lost my hair, and since hair loss usually occurs about 8 to 12 weeks after the precipitating incident (in this case, medication), it will continue until 8 to 12 weeks after stopping the meds. Then it will come back.

However, since hundreds of things can cause hair loss, be sure you aren't overlooking another cause, esp if your hair loss continues past 12 weeks post treatment. 
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Lynn K

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  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: Is Anyone Losing Their Hair??
« Reply #2 on: June 06, 2015, 07:24:39 pm »
I have had some hair loss but that has been over the last couple of years and in my case I suspect it is a symptom of cirrhosis.

On a side note after treating with Harvoni and now at 4 weeks post being not detected I have noticed my hair seems to be starting to come back a bit.

Just in time for summer shorts season ;)
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline sabre

  • Member
  • Posts: 77
Re: Is Anyone Losing Their Hair??
« Reply #3 on: June 08, 2015, 04:38:54 pm »
I've noticed some pronounced hair loss in the last couple of weeks. I wasn't sure if it was just 'my time' to be losing it, being a 54 year old guy that has been slightly thinning for years, or if it was related to Harvoni.

Hopefully, if it is the latter, it will come back after treating, as Lynn has mentioned. The former...It's over, Johnny.

(just in time for shorts season...too funny)
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

 


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