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Author Topic: 6-15-2015 8pm first dose of. Harvoni  (Read 17263 times)

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Offline Jeffry1970

  • Member
  • Posts: 18
6-15-2015 8pm first dose of. Harvoni
« on: June 15, 2015, 08:26:09 pm »
Hello All, I just started my treatment tonight. Been doing a lot of reading about everyone's experiences and I plan to be a active forum user through my 12 week treatment.
Wish me luck!

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #1 on: June 15, 2015, 08:57:29 pm »
Welcome Jeffry, and good luck! :)

I hit my halfway point today - end of Week 6 out of 12. No significant problems so far.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Jeffry1970

  • Member
  • Posts: 18
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #2 on: June 15, 2015, 09:04:54 pm »
Thank you kim no significant problems is encouraging  :)

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #3 on: June 15, 2015, 09:10:01 pm »
Most of the time I am not even aware I am taking any drugs - and I've got Ribavirin in the mix with Harvoni. The Riba-anemia is starting to reduce my stamina. But I can't say I feel badly in any way. Without the Riba, your journey will likely be a good one. Hope you have similarly smooth sailing, Jeffry. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline sabre

  • Member
  • Posts: 77
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #4 on: June 15, 2015, 09:24:47 pm »
4 doses remaining out of 84 total and haven't had any notable side effects outside of elevated blood pressure and a little fatigue. I actually feel better than I have in years.

Best wishes on the ride.
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline Morphin

  • Member
  • Posts: 10
  • Just another survivor
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #5 on: June 16, 2015, 09:36:24 am »
Hi all and Jeffry!

Congrats on starting treatment. Best of luck and I hope you have a smooth easy ride with a fantastic outcome.  Remember to enjoy the journey!

Bit of a long time lurker/first time poster - Jeffry's post brought me out of the shadows. As Jeffry's mentioned - been reading others experiences and this forum has been a wonderful resource!!

Personally, still waiting on insurance for final approval and pharmacy setup - but hope to begin treatment soon.  (Will save my story for another post)

Peace!
Age 48
Infected 2001
GT 1a
VL 2.36m 
Tx naive
Started Harvoni 7/7/2015 (8 wks)
W4 - Undetected
W4 AST 33 (66 before TX)
W4 ALT 26 (41 before TX)

Offline lolacme

  • Member
  • Posts: 55
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #6 on: June 16, 2015, 11:21:36 am »
Hello Jeffery and welcome to the forum. I took first dose on June 13th and so far I really do not feel like I am taking any meds. I am sure we all react differently. Best of luck to you. Feel free to PM me as we will be going through this just 2 days apart.
diagnosed-early 2000's
F3 grade 2-as of Dec. 2012 genotype 1a
2 attempts at Inteferon based tx stopped after 7 weeksX2
Started Harvoni for 12 weeks monotherapy-June 13, 2015 Added Ribavirin June 24th
Beginning AST 117 ALT 261 VL 932876

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #7 on: June 16, 2015, 01:09:29 pm »
Bit of a long time lurker/first time poster - Jeffry's post brought me out of the shadows. As Jeffry's mentioned - been reading others experiences and this forum has been a wonderful resource!!

Welcome to the forums, Morphin! Good luck on getting swift approval for treatment.

best,
kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Jeffry1970

  • Member
  • Posts: 18
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #8 on: June 16, 2015, 09:56:53 pm »
Thank you all for the encouragement.
Day one is in the bag! Slept fine and felt good today.  some slight foggy feeling or almost like fever symptoms but nothing I can't deal with.

Offline Jeffry1970

  • Member
  • Posts: 18
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #9 on: June 17, 2015, 06:14:20 pm »
Day two and I feels perfectly normal, no side effects at all. Feeling very optimistic about this and hope it works!

Offline Jeffry1970

  • Member
  • Posts: 18
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #10 on: June 19, 2015, 07:29:01 am »
NNTR feel fine with no side effects to speak of. had leg cramps during the nght the first couple of days but that seems to be over. either way i can deal with it.

Offline Corey

  • Member
  • Posts: 31
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #11 on: June 19, 2015, 07:41:58 am »
Good Luck and good health!  Drink lots of water.  Just when you think that's enough,  have another glass perhaps with a squeeze of lemon!  It will definitely help you with any sides.  Tea counts too!

I have 10 wks left.

Offline Jeffry1970

  • Member
  • Posts: 18
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #12 on: June 19, 2015, 08:03:15 am »
Corey thanks for the response. I'm going to start drinking tea today. I'm drinking over a gallon of H2o with lemon every day

Offline Corey

  • Member
  • Posts: 31
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #13 on: June 19, 2015, 08:15:24 am »
Water - That sounds good.  When I tried the Incivek treatment that had a good rule of thumb.  Take half your weight in ounces and drink that much water.  If you weigh 120 lbs, for instance, drink 60 ounces of water over the day. 

This might be a little overboard for Harvoni but it is a good answer to the question "How much is a lot of water?"

If you ever run into a nausea issue, I like lemon ginger tea....or mint tea
 

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #14 on: June 19, 2015, 12:39:51 pm »
Corey thanks for the response. I'm going to start drinking tea today. I'm drinking over a gallon of H2o with lemon every day

Jeffry, if you find yourself experiencing muscle cramps (particularly foot and leg), that could easily be from washing out (peeing out) too much potassium and magnesium from all the water-drinking (and tea drinking). I upped my dietary intake of magnesium and potassium foods, and my foot cramps that I had for 2 days disappeared immediately and have not returned. Dark leafy greens, brown rice, pumpkin seeds, brazil nuts, bananas, avocados - all good sources.

Best to you,
kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Jeffry1970

  • Member
  • Posts: 18
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #15 on: June 19, 2015, 07:40:05 pm »
KiminTheForest do you take supplements?

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #16 on: June 19, 2015, 07:57:04 pm »
KiminTheForest do you take supplements?

Hi Jeffry. No I don't. I am not a supplement person. But I know some people here are taking various supplements, including magnesium during treatment specifically because they are drinking so much water and (potentially) washing out magnesium.

kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Jeffry1970

  • Member
  • Posts: 18
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #17 on: June 22, 2015, 08:07:13 pm »
day seven and i have a massive headache...i had one yesterday but it didt last, today is much worse and it wont go away :(

Offline Corey

  • Member
  • Posts: 31
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #18 on: June 23, 2015, 07:30:33 am »
Oh no.  Hang in there.  Hoping for a better day 8!

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #19 on: June 23, 2015, 10:15:45 am »
Hi Jeffrey and Welcome!
Hi everybody ;D

Jeffrey, best wishes and  good luck with your treatment!
I have had a few of the headaches that just come and go
Drink lots of water and hoping you feel better.

 Hang in there

Deb
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

Offline Jeffry1970

  • Member
  • Posts: 18
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #20 on: June 23, 2015, 11:23:14 am »
im ok just not used to getting headaches. feel fine today

Offline rebeccq

  • Newbie
  • Posts: 1
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #21 on: July 09, 2015, 02:02:57 am »
This may be off the subject but I have psoriasis. I have been on Harvoni for 4 wks and my psoriasis has cleared. Was just wondering if anyone else has experienced this.

Offline Faye

  • Member
  • Posts: 4
Re: 6-15-2015 Harvoni
« Reply #22 on: July 11, 2015, 03:26:03 pm »
Hi all I'm Faye new to your posts. I have the med. in hand just trying to decide when to start the treatment. I'm worried about the headaches as I suffer from chronic migraines. I keep telling my self it's only 12 weeks but I could have a headache for 12 weeks! Any thoughts???

Offline lolacme

  • Member
  • Posts: 55
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #23 on: July 11, 2015, 05:34:41 pm »
Drink lots of water. I learned this from this forum before I started treatment and it really helps. lots of folks on here swear by it. When you think you have had enough- drink some more. Best wishes.
diagnosed-early 2000's
F3 grade 2-as of Dec. 2012 genotype 1a
2 attempts at Inteferon based tx stopped after 7 weeksX2
Started Harvoni for 12 weeks monotherapy-June 13, 2015 Added Ribavirin June 24th
Beginning AST 117 ALT 261 VL 932876

Offline Faye

  • Member
  • Posts: 4
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #24 on: July 12, 2015, 10:17:32 am »
Thanks for the reply. Will start on the water today. Meeting with my Dr. Next week and want to have a list of questions ready so I'm prepared to get all the info I need to start this treatment. Just apprehensive about starting I have so much going on in my life right now. Worry about being fatigued and headaches. I don't have much time to be down. I hope that doesn't sound petty but it's my life.

Offline sabre

  • Member
  • Posts: 77
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #25 on: July 12, 2015, 10:27:20 am »
Hi Faye,

The majority of people on Harvoni are not experiencing significant side effects. I'd try not to ruminate too much as the anxiety will bring on a whole set of other issues.

I carried on with my life during 12 weeks just fine with no noticeable side effects. Actually felt great while on treatment.

Just take that first pill with confidence and have a positive frame of mind. You'll be fine and you'll wonder why you were so apprehensive to begin.

Best wishes!
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline Faye

  • Member
  • Posts: 4
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #26 on: July 12, 2015, 11:17:20 am »
Thanks that's what I needed to hear.

Offline Jeffry1970

  • Member
  • Posts: 18
Re: 6-15-2015 8pm first dose of. Harvoni
« Reply #27 on: July 30, 2015, 07:08:15 pm »
Monday was the start of week 7'of 12. Had blood work last week and saw Dr. Today. Virus is undetectable! Im feeling very optimistic!
No side effects to speak of

 


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