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Author Topic: Last day of Harvoni  (Read 10707 times)

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Offline Cute

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  • Posts: 34
Last day of Harvoni
« on: June 21, 2015, 08:57:57 am »
Hello all,
 
Today mother has taken her last Harvoni pill. So she has already finished 12 week TX. Tomorrow we are going to take virus load test and other blood works.  I wish her EOT test results will be OK.
Will update you with results. Thanks to all for support and priceless advices! I wish successful treatment the forum folk. May GOD bless all of you and grant you health!

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Last day of Harvoni
« Reply #1 on: June 24, 2015, 02:03:38 pm »
Hooray! Yes, let us know.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Cute

  • Member
  • Posts: 34
Re: Last day of Harvoni
« Reply #2 on: June 29, 2015, 06:07:00 am »
Hi all,

Today I have received mother's EOT results.
I AM HAPPY.

EOT - Hep C Virus RNA - Negative

She is also very happy. Very good news. Great day.

So we are on the waiting list SVR 12 and SVR 24.
 :)

Offline lporterrn

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  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Last day of Harvoni
« Reply #3 on: June 29, 2015, 03:57:27 pm »
Yay!!!!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline debbi

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  • Posts: 8
Re: Last day of Harvoni
« Reply #4 on: June 29, 2015, 10:08:15 pm »
Hello, always thought that I wasn't really lucky, with the exception of my family I love so dearly, anyway....I do now know that I'm so Lucky along with all who have  been given this ace of the diamonds medicine Harvoni I have completed and my last blood test is August and so far showing hepc Free,  shazam,  people, It's like is this really really true? Thank the scientists in the labs that worked hard for us to become hepc free, whew, I am really living alive now, yahoo, and Lucinda, thank you for all your supporting posts and books and forums and college degrees, I could go on, but thanks, and When I was scrolling for different hepc groups it was your pic that caught my interest, so realistic, again everyone stay as happy as possible and enjoy the freedom of being hepc,, ;) :D hugzzzzzzzz

Offline Cute

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  • Posts: 34
Re: Last day of Harvoni
« Reply #5 on: June 30, 2015, 03:30:51 am »
Thank you Lucinda!!!

Congrats debbi

Offline suec

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  • Posts: 14
Re: Last day of Harvoni
« Reply #6 on: June 30, 2015, 04:09:33 pm »
when is it recommended for blood test after 12 wks treatment with Harvoni? virus was non detected at 8wks and 12wks. When should doc test again and when is it ok to say really gone??12wks after finished drug or 24wks? Thanks

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Last day of Harvoni
« Reply #7 on: June 30, 2015, 05:42:44 pm »
Many docs do the test at 4 weeks post-treatment and then 12 weeks after treatment  completion. However, here is what the experts say:
Quote
Quantitative HCV viral load testing is recommended after 4 weeks of therapy and at 12 weeks following completion of therapy. Antiviral drug therapy should NOT be interrupted or discontinued if HCV RNA levels are not performed or available during treatment.
Quantitative HCV viral load testing can be considered at the end of treatment and 24 weeks or longer following the completion of therapy.

In other words, the only viral load tests that are truly recommended are at week 4 of treatment and week 12 post-treatment. The AASLD also says, "
Quote
Some may choose to forego end-of-treatment viral load testing, given the high rates of viral response with the newer regimens, and to focus on the week 12 post-treatment viral load. Virologic relapse is rare at 12 or more weeks after completing treatment. Nevertheless, repeat quantitative HCV RNA testing can be considered at 24 or more weeks after discontinuing treatment for selected patients.

I have found that doctors are just as anxious as we are to know what is going on, so viral loads are ordered more frequently - few of us refuse this extra info. That 24 post-treatment lab is largely for reassurance, but I think reassurance is part of being cured.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline suec

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  • Posts: 14
Re: Last day of Harvoni
« Reply #8 on: June 30, 2015, 06:10:22 pm »
thanks, my doc wants to just wait till 24 wks after treatment. Is there insurance issues with earlier check at 12 wks? wouldn't I want to know asap if it came back.

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Last day of Harvoni
« Reply #9 on: June 30, 2015, 07:26:50 pm »
I don't know about insurance issues. I am not sure what difference it would make to know earlier, other than you would know. You can't do anything if it comes back early, and we should all (hep C or no hep C) act as if our blood is infectious.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Cute

  • Member
  • Posts: 34
Re: Last day of Harvoni
« Reply #10 on: July 02, 2015, 02:07:32 pm »
Yesterday, my mother had fever during whole day. Her body degree was 37.9-38 C. Today she is better.
Now I am little bit confused. We finished her 12 week treatment 10 days ago. EOT is negative.
I hope it has nothing to do with hepatitis c and just chill.  Does anyone had the same after finishing Harvoni treatment?

 


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