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Author Topic: Started Harnoni a week ago  (Read 7885 times)

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Offline Bobby T

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  • Posts: 7
Started Harnoni a week ago
« on: June 22, 2015, 10:28:17 am »
After 4 treatments from mixing the interferon, to Pegaferon/Ribavarin/protease Inhihibators, which almost killed me, 2years after still not recovering from the treatment it self, in March I went to Dartmouth Hitchcock, from Burlington VT to adress 'not managed ascites. They pulled 18 lbs of fluid out of me and set treatment plan. Due to muscle waste, lack of ability to eat anything besides tuna and egg salad for over a year, chronic cough due to fluid in my lungs, I developed three separate hernias. One from chest cavity to my belly button, then belly button hernia and finally every thing ruptured in the normal male hernia spot. Due to my condition, platelets at 300, 30 lbs underweight, G.I. doctor got a transplant surgeon to do the repair. Very successful, now have gained 10 lbs, eating normal low sodium diet, and started Harvoni with no side effects one week ago! Icing on the cake, walking two miles a day now, muscle tone coming back, and then my buddy long time friend got a ticket for me to the Gratefull Dead concert on the 4th of July! Been sober for 32 years, so's that not an issue, just keeping hydrated and being able to get to a bathroom quickly due to the diuretics!! Long path, but I truely believe I'm gonna make it work. Out of the cloud, and prepared to take it the 24 weeks
Bobby t

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Started Harnoni a week ago
« Reply #1 on: June 22, 2015, 12:43:11 pm »
I appreciate your attitude! Glad you are on the path and hoping for a good outcome for you.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Corey

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  • Posts: 31
Re: Started Harnoni a week ago
« Reply #2 on: June 22, 2015, 03:38:37 pm »
Wow good for you!  Give it hell!!

Offline Bobby T

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  • Posts: 7
Re: Started Harnoni a week ago
« Reply #3 on: July 22, 2015, 07:51:58 am »
Two months into it now, awaiting Pcr/viral load counts, but feeling better than the last 8 years, gaining some weight back, walking two miles a day, not to mention making the Grateful Dead concert and a Cubs game on the the 3rd and 4th of July. Labs I have been taking for last 4 years continue to be 80 percent out of normal range. Don't know if the Harvoni will repair some of that, but the ascites has not returned, concerned mostly about platelets and bleed time. Keeping positive, effects of Grateful Dead concert adding on to my emotional attitude..."BE KIND".   4 more months to go, then moving from VT to Fla, and hopefully a lot less doctors!...Bobby

Offline S.Belle

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  • Posts: 17
Re: Started Harnoni a week ago
« Reply #4 on: July 23, 2015, 05:58:38 am »
Congrats !  You are on the right road.
Just a tip about Florida though. When I moved here four years ago, I saw a gynecologist once a year and an internist twice a year. Now I have an internist, a gynecologist, a gastroenterologist, an orthopedist and an endocrinologist. There's also a Labcorp on every corner ! 
Life is very different here, but I love it. It's Hot and Humid in the summer, but the winter is the best. Last January during a cold snap, I had to wear closed toe shoes and a sweater for three days !  Lol !  I'm in SW FLA and a typical winter day is 75-80.  You will adjust and not miss those boots. Good luck !
Genotype 1
Infected in early 1990's Diagnosed in 2008
No previous treatment
Fibrosure score F3   Viral Load 94,000
ALT 117  AST 115
Started Harvoni on July 14, 2015



Two weeks into Harvoni blood test results:
ALT 13  AST 21
Viral Load  =  UNDETECTED  !!!


Four weeks into Harvoni blood test results:
ALT 14  AST 20
Viral Load  =  UNDETECTED

Five months post Harvoni treatment and still virus free !

ONE YEAR post Harvoni treatment and still virus free !!!

Offline Bobby T

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  • Posts: 7
Re: Started Harnoni a week ago
« Reply #5 on: July 23, 2015, 07:20:21 am »
Thank you for the info. Planning on "Ormond Beach, hep -c free! My doctor at Dartmouth has already given me D.I.'s for referral, follow up, and if the time comes, transplant connection. Damage to liver very bad, but hope has returned and enjoying every day! Your 'winter days" sounds like our best summer days! Won't miss the boots at all! Also here in VT, docs were not managing  the ascites right, and I saw every 'specialist' in their system, except Gyno! All they had to do was perform a "tap", give me twice the meds to prevent return, and now the doc at Dartmouth has done that, my main ingredient to ward off the sides of the diuretic is bananas!! Eating low sodium meals and fish also help a lot. Can't wait to 'catch dinner", tan, swim, and as the old saying goes, "Go to Disney World" I feel so good being alive again! Bobby

Offline Bobby T

  • Member
  • Posts: 7
Re: Started Harnoni a week ago
« Reply #6 on: August 01, 2015, 01:25:36 pm »
Pcr....Non Detectable hep c!!!

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Started Harnoni a week ago
« Reply #7 on: August 01, 2015, 04:02:35 pm »
Fabulous!!!!!!!!!!!!!!!!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Started Harnoni a week ago
« Reply #8 on: August 02, 2015, 05:51:11 pm »
Congratulations Bobby :)
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

 


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