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Author Topic: 20 days left of Harvoni....  (Read 12358 times)

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Offline bassman55

  • Member
  • Posts: 45
20 days left of Harvoni....
« on: July 01, 2015, 10:00:59 pm »
Well,I'm on the backstretch rounding the turn to the finish line! 20 pills left July 21 last pill of a 12 week treatment, at week 6  my ALT & AST  NORMAL, I was not given any numbers, was just told normal. This Harvoni has been cake as far as any side FX.  I've been seeing that what matters most is bloodwork  6 months after treatment. So I'm hoping for the best. I still itch,I have been hoping that would go away,I've had that a few years,so it's not a symptom from Harvoni,I turn 60 in Aug. and have read aging causes itching, a LOT of things cause itching, has anyone gotten any little hard bumps about like the size of a pimple on your skin? I had a few on my legs and arms, and at one point my chest, and again,this has been before Harvoni and still going on,they come and go after a while.  I wish everyone the best! Hang in there if you're just starting to treat,time has been flying by for me,still playing gigs,riding my motorcycle...Stay positive!!!
Alt 215
Fibrosis score 0.88
GGT 137
necroinflammat activity grade A3 severe activity
necroinflammat activity score 0.92

Offline Redbird29

  • Member
  • Posts: 73
  • I've seen the needle and the damage done.....
Re: 20 days left of Harvoni....
« Reply #1 on: July 01, 2015, 11:42:51 pm »
Good for you Bassman! You are on the home stretch it sounds like as far as TX goes and that is great that your AST/ALT's are good.

I too have had a "cake walk" so far with side effects but I am only at day 7 of an 8 week treatment so I'll have to see how that goes.

Hopefully someone can answer your question about the bumps and itching. I have had itching too over the years and really dry skin but don't want to speculate on the cause and be wrong here.

Best to you on your next 20 days and in your tests! Keep us posted!
~Robin
Infected - late 70's /early 80's
GT - 1a

Fibrosure 1/2015 - F1-2
TX Naive - Harvoni 8 wks

SOT 6/25/15  VL - 468,000        AST-44  ALT-56       
EOT  8/19/15  VL-  Not Detected AST-21  ALT-30
1 YEAR POST TX - UNDETECTED AST 20 ALT 22
2 YEAR POST TX - UNDETECTED AST 15 ALT 18

Offline KAL

  • Member
  • Posts: 35
Re: 20 days left of Harvoni....
« Reply #2 on: July 02, 2015, 01:23:03 am »
hey bassman , 20 laps to go and you take the checkered flag ! and the trophy is priceless !
i've also had itching the last couple years, mostly in the winter when it's cold and dry but this year more so , ..after 2nd week tx it became much better which surprised me as im on riba....but sensitive to the sun , i get sunburn quick if i don't apply sunblock when im out.
the motorcycles are important !.....it's my therapy as well !

hang in there and win this race !

K
age 57 male
diagnosed 1980
geno type 2b
f4 cirrhosis(early/compensated)
sovaldi / riba 16 weeks
1st. day tx may 4th. 2015
4 week test Undeteced !

Offline KAL

  • Member
  • Posts: 35
Re: 20 days left of Harvoni....
« Reply #3 on: July 02, 2015, 01:28:34 am »
Redbird , so glad to hear it's goin well for you , we will beat this devil !

K
age 57 male
diagnosed 1980
geno type 2b
f4 cirrhosis(early/compensated)
sovaldi / riba 16 weeks
1st. day tx may 4th. 2015
4 week test Undeteced !

Offline bassman55

  • Member
  • Posts: 45
Re: 20 days left of Harvoni....
« Reply #4 on: July 02, 2015, 08:39:19 am »
KAL....."Cycletherapy"    8)
Alt 215
Fibrosis score 0.88
GGT 137
necroinflammat activity grade A3 severe activity
necroinflammat activity score 0.92

Offline sabre

  • Member
  • Posts: 77
Re: 20 days left of Harvoni....
« Reply #5 on: July 02, 2015, 09:09:05 am »
bassman,

I hear you about time flying. It's almost scary how quickly 12 weeks went for me.

I've had itching prior to Harvoni on a specific point on my back, but more so under my arms with a few small hard bumps. The itching is pretty intense as well. It's kind of embarrassing scratching the underarms in public!

I keep threatening to go to a dermatologist...

Anyhow, best wishes on the last leg of the race.
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline bassman55

  • Member
  • Posts: 45
Re: 20 days left of Harvoni....
« Reply #6 on: July 02, 2015, 09:38:45 am »
Sabre...you had the itching before treating? or after?  I only found out I had HCV about 1 1/2 years ago and have been itching since 2011,didn't know what was going on,and then I saw itching comes from a liver in distress(among MANY other ailments) s o when I found out I was HVC positive I figured it was from the hep. My back was driving me crazy! and crotch. Now my back has eased up a bit. This itching has been like a curse .... >:(
Alt 215
Fibrosis score 0.88
GGT 137
necroinflammat activity grade A3 severe activity
necroinflammat activity score 0.92

Offline sabre

  • Member
  • Posts: 77
Re: 20 days left of Harvoni....
« Reply #7 on: July 03, 2015, 08:47:45 am »
bassman,

I've had itching prior to treatment. The spot on my mid-back does not have any bumps and is a deep itch. Always in the exact same spot. It doesn't really bother me, I just find it odd.

I thought scratching my armpits was embarrassing, but you've got it much worse with the crotch...my sympathies, brother. Hope that eases up for you!
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline bassman55

  • Member
  • Posts: 45
Re: 20 days left of Harvoni....
« Reply #8 on: July 03, 2015, 09:59:27 am »
Same place on my back too,but it has subsided . NOW....I have an itchy rash on my thigh?  I'm thinking WTF??? It's either from the Harvoni,or something going on elsewhere. I've read Gall bladder,thyroid,kidneys,liver... all kinds of things can cause itching,it's a curse!
Alt 215
Fibrosis score 0.88
GGT 137
necroinflammat activity grade A3 severe activity
necroinflammat activity score 0.92

Offline sabre

  • Member
  • Posts: 77
Re: 20 days left of Harvoni....
« Reply #9 on: July 03, 2015, 10:50:30 am »
That SUCKS!

I have stage 3 kidney disease, so maybe there is a link there.

Since you're itching/rash seems to be migrating, you may want to mention it to your hep or gastro doc.
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline bassman55

  • Member
  • Posts: 45
Re: 20 days left of Harvoni....
« Reply #10 on: July 03, 2015, 01:58:49 pm »
You know,I've mentioned my itching to a few doctors before and they just say "dry skin"  This I believe is HCV related! Doctor's have even said HCV doesn't cause itching!!!  I tell them,go look at some HCV FORUMS!!!  I even read that when your liver is in bad shape,it can't clean your blood of toxins,and toxins are what is in your blood making you itch!  I read that a few places. My Fibrosure test has me at A3 severe,meaning my liver has been getting pretty well beat down by the HCV,although I never turned yellow or anything? So right now, I have an itchy spot on my right  calf and left thigh ,on the outside.SUX!
Alt 215
Fibrosis score 0.88
GGT 137
necroinflammat activity grade A3 severe activity
necroinflammat activity score 0.92

Offline jiff

  • Member
  • Posts: 17
Re: 20 days left of Harvoni....
« Reply #11 on: July 04, 2015, 01:02:06 am »
Yay!!!excited for you!!! It really does fly by (the time)...I don't know about itching ,however,I'm hoping & praying this insomnia takes a hike ASAP now that I swallowed my last pill yesterday morning!!! I'm relieved that the religious pill popping is over,but anxious about the whole "hurry up & wait" game...it is what is but I still can't help the feelings accompanied by waiting to see...wish you the very best!!!!

Offline mcphe66

  • Member
  • Posts: 5
Re: 20 days left of Harvoni....
« Reply #12 on: July 04, 2015, 07:43:16 am »
I am excited for your finish line being in site Bassman. I am going on 2 weeks now for my treatment. I was originally scheduled for 12 weeks but now it has been bumped to 24 weeks do to my body rejecting Interferon in 1998. They explained at that time that African Americans did not respond to the drug. But there is great success with the Harvoni. Please keep me in your prayers that it will work this time. I have been infected for over 35 years and hoping and praying this will work. God bless you all on your journey. 

Offline bassman55

  • Member
  • Posts: 45
Re: 20 days left of Harvoni....
« Reply #13 on: July 04, 2015, 09:21:33 am »
My prayers are with Mcfee....Stay strong....think positive....and drink lots of water!  I've heard about how hard the treatments were years ago,Thank God there are drugs out now that are much easier to deal with!  Hang tough!!!! :)
Alt 215
Fibrosis score 0.88
GGT 137
necroinflammat activity grade A3 severe activity
necroinflammat activity score 0.92

Offline bassman55

  • Member
  • Posts: 45
Re: 20 days left of Harvoni....
« Reply #14 on: July 04, 2015, 09:26:57 am »
Wow!  Last pill Jiff ???  GREAT!!!  I wish you all the very best with the all important test 6 months from now...I'm staying positive and let the cards fall where they fall,does anyone even know what happens next if Harvoni doesn't do the trick? Is there a Plan B ???  Celebrate your last pill with a BIG GLASS OF WATER!!!!  LOL  Cheers...To health and happiness! :)
Alt 215
Fibrosis score 0.88
GGT 137
necroinflammat activity grade A3 severe activity
necroinflammat activity score 0.92

Offline nolacs22

  • Member
  • Posts: 12
Re: 20 days left of Harvoni....
« Reply #15 on: July 04, 2015, 04:06:06 pm »
Yea! there is a creator out there somewhere he/she is with you! :-* Good luck! :)

 


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