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Author Topic: Started Harvoni Yesterday (7/22/2015)  (Read 12255 times)

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Offline Abspop

  • Member
  • Posts: 4
Started Harvoni Yesterday (7/22/2015)
« on: July 23, 2015, 10:02:16 am »
Hello. I'm an old man (65) who has had HCV most of my adult life. I was able to start Harvoni yesterday and, naturally, I'm hoping for a positive outcome. I would love to see my beautiful 3 year old granddaughter get married someday.
Medic U.S. Army (1971-1972)
1971-1972 Contracted HCV
Genotype: 1a
Viral Load: 1.55 million (has been as high as 5.5 mil)
AST: 40, ALT: 41
Fibrosis Stage: F4
Diagnosed: 1995
1995 Interferon - Non Responder
2002 PEG - Non Responder
2009 PEG + Ribavirin - Extreme cough. Had to Quit
7-22-2015 - Started Harvoni

Offline KimInTheForest

  • Member
  • Posts: 1,970
  • Believe in yourself
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #1 on: July 23, 2015, 10:11:56 am »
Welcome to the forums, Abspop. And congrats on starting treatment! What length of harvoni treatment are you on? 12 weeks or 24? I see you have both cirrhosis (F4) and previous treatments.

Best of luck to you, and keep us all posted :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Abspop

  • Member
  • Posts: 4
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #2 on: July 23, 2015, 08:29:22 pm »
Hi Kim, thank you. I'm on for 24 weeks providing the first couple of months goes well.
Medic U.S. Army (1971-1972)
1971-1972 Contracted HCV
Genotype: 1a
Viral Load: 1.55 million (has been as high as 5.5 mil)
AST: 40, ALT: 41
Fibrosis Stage: F4
Diagnosed: 1995
1995 Interferon - Non Responder
2002 PEG - Non Responder
2009 PEG + Ribavirin - Extreme cough. Had to Quit
7-22-2015 - Started Harvoni

Offline KimInTheForest

  • Member
  • Posts: 1,970
  • Believe in yourself
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #3 on: July 24, 2015, 12:06:54 am »
Hi Kim, thank you. I'm on for 24 weeks providing the first couple of months goes well.

Excellent! I'm glad to hear you get set up with 24 weeks. That should do the trick for you.

best,
kim

Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline sabre

  • Member
  • Posts: 77
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #4 on: July 24, 2015, 02:47:38 pm »
Welcome aboard, Pops! Best wishes on the journey.
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline ricpark

  • Member
  • Posts: 87
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #5 on: July 25, 2015, 07:19:22 am »
Welcome Abspop, 24 weeks is the recommended treatment for F4. I hope since you are taking Harvoni by it self you should have very little side effects (everyone is different).
I'm 67 and have had HepC 1a since the 60's. 1 more day of my 12 wks with Harvoni + Ribavirin. In the big picture it's been a cakewalk.
Rich
Chronic 50 years
Geo 1A Stage 3
VL 17.5 mill
non-Hopkins lymphoma cancer
after 4 weeks
AST 87 now 29
ALT 128 now 27
VL now undetected
after 12 wks
VL  undetected

Offline straycat

  • Member
  • Posts: 24
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #6 on: July 25, 2015, 06:26:20 pm »
Hi there Abspop - I started Harvoni today (7/25) and as you can see by my sig line I'll be on the 24 week train  :) 

Best wishes - it's all going to be good for us from now on  :D



GT 1b Fibrosis Stage 4
NAG Significant activity (inflammation score)
VL  2,880,000 IU/ml pre-tx
1970ish nonA-nonB hep, dx HCV 1994
IFN failed - autoimmune response
Started Harvoni (24 wks) 7/25/2015
VL 8/25/15  zero virus detected
AST/ALT 27/24
VL zero 1/2016 post-tx

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #7 on: July 25, 2015, 06:46:59 pm »
Good luck on your journey abspop. Hang in there. It's going to be worth it.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline april

  • Member
  • Posts: 23
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #8 on: July 29, 2015, 05:59:04 pm »
Best of luck to you Abspop, I am 56, started treatment on July 1st with Harvoni only for 12 weeks. Its been a walk in the park. I too was on Interferon/riba-non responder, then on peg/riba- non responder, I keep waiting for the side effects to start. I keep feeling like I am going to feel like I did on past treatments. So far no side effects. Occasional headache, very mild and some heart burn also very mild. Drink ALOT of water. I try to drink 100oz a day. I work 6 days a week and have not missed one day. Good Luck!
Hep C
Geno type 1a
VL  1,800,000
f2
1999 Interferone/riba- non responder
2002 peg/riba- non responder
2006 peg/riba/study drug NM283-relapsed
July 1, 2015 started harvoni (12 weeks)
5th week labs undetected
EOT 9/23/15
90 days after treatment SVR
180 days after treatment SVR
considered cured

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #9 on: July 30, 2015, 12:43:27 am »
I stated Harvoni on Monday July 27..I had a slight headache the first two days but today I felt great.  I can't wait to see if this treatment works.
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline april

  • Member
  • Posts: 23
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #10 on: July 30, 2015, 10:11:54 am »
Good luck Scoutdoy, are you on the 12 week course or 24 week? I am on my 5th week of the 12 week course, I too have very little side effects. I am starting to get an annoying case of heart burn and they dont recommend we take antacids 4 hours before or 4 hours after taking the Harvoni. So I am staying clear of antacids all together.
Hep C
Geno type 1a
VL  1,800,000
f2
1999 Interferone/riba- non responder
2002 peg/riba- non responder
2006 peg/riba/study drug NM283-relapsed
July 1, 2015 started harvoni (12 weeks)
5th week labs undetected
EOT 9/23/15
90 days after treatment SVR
180 days after treatment SVR
considered cured

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #11 on: July 30, 2015, 12:56:49 pm »
I am taking the 12 week with Harvoni only. I adjusted my time a little. I found that taking it first thing when I woke up gave me a slight headache so the last couple of days I wait a few hours until I have had some coffee and a glass of water and then take it.
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline april

  • Member
  • Posts: 23
yayyyyyyyy
« Reply #12 on: August 12, 2015, 05:24:44 pm »
Just got my results back from my first set of labs. I am undetectable after 5 weeks on treatment!!!!!!!!!!!!!!!!!
Hep C
Geno type 1a
VL  1,800,000
f2
1999 Interferone/riba- non responder
2002 peg/riba- non responder
2006 peg/riba/study drug NM283-relapsed
July 1, 2015 started harvoni (12 weeks)
5th week labs undetected
EOT 9/23/15
90 days after treatment SVR
180 days after treatment SVR
considered cured

Offline KimInTheForest

  • Member
  • Posts: 1,970
  • Believe in yourself
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #13 on: August 12, 2015, 05:41:00 pm »
congrats april! You are on your way! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #14 on: August 13, 2015, 11:01:39 am »
Congrats April....change your toothbrush
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline april

  • Member
  • Posts: 23
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #15 on: August 13, 2015, 11:46:11 am »
I did scoutdoy, hows treatment going for you so far?
Hep C
Geno type 1a
VL  1,800,000
f2
1999 Interferone/riba- non responder
2002 peg/riba- non responder
2006 peg/riba/study drug NM283-relapsed
July 1, 2015 started harvoni (12 weeks)
5th week labs undetected
EOT 9/23/15
90 days after treatment SVR
180 days after treatment SVR
considered cured

Offline april

  • Member
  • Posts: 23
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #16 on: August 13, 2015, 11:47:30 am »
Thanks Kim
Hep C
Geno type 1a
VL  1,800,000
f2
1999 Interferone/riba- non responder
2002 peg/riba- non responder
2006 peg/riba/study drug NM283-relapsed
July 1, 2015 started harvoni (12 weeks)
5th week labs undetected
EOT 9/23/15
90 days after treatment SVR
180 days after treatment SVR
considered cured

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #17 on: August 13, 2015, 10:40:10 pm »
Hey April, my treatment is going absolutely fantastic. Honestly I feel better than I have in 10 years. I had a slight headache the first couple of days but then figured out if I drink a full glass of water and then wait 15 to 20 minutes I stopped getting the headaches. My joints feel a hell of a lot better for sure.  It could be psychological I suppose...I don't care...I feel better that is all I know. My best friend has this disease also, but she can't seem to get approved for the medicine. It really pisses me off that I got it and she didn't. 
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #18 on: August 13, 2015, 10:42:47 pm »
How is your treatment going April?


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Ledoc01

  • Member
  • Posts: 37
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #19 on: August 14, 2015, 03:13:19 am »
@ Abspop

I hope things are going well for you and that your Harvoni "ride" is uneventful.

I hear ya on seeing that 3 year old get married. I'll be 60 in a couple months...I have a 3 year old daughter as well as a 5 month old who was born a few days after I started Harvoni. FWIW, my wife's grandmother was told at an early age that she shouldn't have children because it was unlikely she'd live that long; she recently turned 98!!


Stay positive and enjoy each day.  I had a bit of a bumpy ride and this board was a real help to me.It really helped me to stay sane. Remember, the odds are in your favor. If I could offer any suggestion Id just say don't obsess on this. I decided I wasn't going to let the virus "own" me. SO far, so good. I got my 12 week post treatment test results today which indicate I'm clear.

As Spock would say; "Live long and prosper"

Now go hug that grandchild :-)

Offline april

  • Member
  • Posts: 23
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #20 on: August 14, 2015, 07:03:40 am »
How is your treatment going April?


Scout
Hi Scout, treatment is going well, I have no side effects at all. I have more energy and am sleeping just fine. I had my first set of labs done 5 weeks into treatment and I am UD. I am hoping it sticks. Thanks for asking, hows your treatment going?
Hep C
Geno type 1a
VL  1,800,000
f2
1999 Interferone/riba- non responder
2002 peg/riba- non responder
2006 peg/riba/study drug NM283-relapsed
July 1, 2015 started harvoni (12 weeks)
5th week labs undetected
EOT 9/23/15
90 days after treatment SVR
180 days after treatment SVR
considered cured

Offline april

  • Member
  • Posts: 23
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #21 on: August 14, 2015, 07:06:21 am »
Congrats April....change your toothbrush
I changed it, my problem is I use an electric tooth brush. Replacement heads are $31 for 2. I guess its a small price to pay compared to the cost of treatment.
Hep C
Geno type 1a
VL  1,800,000
f2
1999 Interferone/riba- non responder
2002 peg/riba- non responder
2006 peg/riba/study drug NM283-relapsed
July 1, 2015 started harvoni (12 weeks)
5th week labs undetected
EOT 9/23/15
90 days after treatment SVR
180 days after treatment SVR
considered cured

Offline Rosie13

  • Member
  • Posts: 297
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #22 on: August 14, 2015, 10:50:29 pm »
Could someone explain the toothbrush thing? Hopefully I will be posting next week if I was approved. Trying to take all the great advise on staying calm & ditching the worry. I have not told anyone in my family & dread the conversations.It's nice to enter the no judgment forums 7 learn how to cope. Thanks again.
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline KimInTheForest

  • Member
  • Posts: 1,970
  • Believe in yourself
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #23 on: August 14, 2015, 10:59:28 pm »
Could someone explain the toothbrush thing?

Hi Rosie. Here is one thread on these forums where the toothbrush thing is being discussed:
http://forums.hepmag.com/index.php?topic=2725.0

Basically there are 3 camps of people:

1. Those who don't believe you could reinfect yourself with your toothbrush (which could have trace amounts of blood on it) after being cured, or after reaching "undetected".

2. Those who do believe it's possible and change toothbrushes periodically during and post-treatment until reaching SVR12. (Some change daily.)

3. Those who don't know if re-infection from one's toothbrush is possible or not, but don't want to take any chances.

I changed at Week 2, Week 4 (when I became undetected), and Week 6. Then I stopped because the cheap dollar store toothbrushes I bought for this purpose were making my gums bleed, thus increasing risk (maybe) of reinfection. I decided it was a sign from the universe that I don't need to change my toothbrush. But, you know, why not change your toothbrush somewhere in that process…

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #24 on: August 15, 2015, 12:28:31 am »
Hi Rosie,
     my doctor recmended i change my toothbrush every 4 to 5 days until I become undetected.  Just to be on the safe side,,,,just in case there was some old blood or something in the bristles.  Chances are you wont reinfect yourself, but better to err on the side of the what if's.  I was also told to change razors every 4 or 5 days too.  After having this nightmare disease for 30 years, changing my toothbrush and razor is no big deal, for me anyway.  I just hope that with a skyrocked viral load of 14 million that i somehow become undetected.  I hope so anyway...

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Started Harvoni Yesterday (7/22/2015)
« Reply #25 on: August 15, 2015, 12:39:02 am »
I agree. Throw em out & replace them. Better safe than sorry. Beside it's relatively cheap and will give You a little peace of mind. No sense in stressing over the unknowns. (or unproven?) Why sweat the small stuff?
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

 


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