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Author Topic: Rounding the bend for the final lap!  (Read 15896 times)

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Offline Redbird29

  • Member
  • Posts: 73
  • I've seen the needle and the damage done.....
Rounding the bend for the final lap!
« on: August 03, 2015, 05:55:31 pm »
Well, I am almost to 6 weeks (two days away) of an 8 week treatment and just checking in to share how I am doing.

Again I had a very full and physical weekend with no ill effects! Saturday loaded trailer and hauled big load of palm fronds to dump. On the way back stopped along the side of the road and dug up a lot of sand to use as fill in my front courtyard. Got home and spread all over yard, went out and got another load and spread it out too! Worked from 7 am till 2 pm and it was about 107 out with my 13 yr old grandson.

Sunday I got up and cleared the side yard which resulted in another really full trailer load, cleaned the front patio and washed the front walls of the house. Through it all I drank gallons of water and took short breaks every hour (a bit more often as it got later). For a 54 yr old woman that was pretty good!!

I just LOVE how I am feeling! Six weeks ago this would have been impossible for me to do and I so hope this lasts after tx.  Oh, and I get my four week lab results on Tuesday!!

Peace, love and above all healing to all!
~Robin
Logged
Infected - late 70's /early 80's
GT - 1a

Fibrosure 1/2015 - F1-2
TX Naive - Harvoni 8 wks

SOT 6/25/15  VL - 468,000        AST-44  ALT-56       
EOT  8/19/15  VL-  Not Detected AST-21  ALT-30
1 YEAR POST TX - UNDETECTED AST 20 ALT 22
2 YEAR POST TX - UNDETECTED AST 15 ALT 18

Offline Mike

  • Member
  • Posts: 999
Re: Rounding the bend for the final lap!
« Reply #1 on: August 03, 2015, 06:20:11 pm »
Hi Robin,

Glad to hear you're doing well! I got tuckered out just reading about the landscape job you did and the temperature!  :)

Looks like you're going to slay the dragon!

Best wishes, Mike
Logged
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Rounding the bend for the final lap!
« Reply #2 on: August 03, 2015, 10:46:35 pm »
Wow Robin! I'm exhausted just reading that! Way to go :)
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Rounding the bend for the final lap!
« Reply #3 on: August 03, 2015, 10:50:08 pm »
That's awesome!  And I thought I was doing good going to gentle yin yoga and the farmer's market :)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline chino1969

  • Member
  • Posts: 117
Re: Rounding the bend for the final lap!
« Reply #4 on: August 06, 2015, 10:49:54 am »
On my very last week of a 24 week course of Harvoni.  The side effects did not bother me but I'll be curious to see how I feel after I complete the therapy.
Logged

Offline chino1969

  • Member
  • Posts: 117
Re: Rounding the bend for the final lap!
« Reply #5 on: August 10, 2015, 09:39:42 am »
I took my last Harvoni tab yesterday morning which completes a full 24 weeks.  I did not miss a dose, took my meds. everyday at same time +/-  1/2 hour.  Was SVR 4, 12 & 16 weeks.  Get blood work done next week, see my Hepatolgist on Sept. 1st and carry on from there.  Wow! 
Logged

Offline Redbird29

  • Member
  • Posts: 73
  • I've seen the needle and the damage done.....
Re: Rounding the bend for the final lap!
« Reply #6 on: August 10, 2015, 11:50:36 am »
Wonderful news to hear Chino!!! I am still waiting to hear the results on my 4 wk tx labs and I am down to 9 days left of my 8 wk tx. I too am hoping for undetected results and looking forward to hearing SVR! In the meantime I am still rolling along at full steam though with no side fx and lots of energy. I did alot of loading and hauling again this past weekend - 5 loads to dump and though I was tired and kind of sore after 2 days of it I found it manageable. Sadly, because I was ill for so long my yard and property were severely neglected and I still have many loads to do but fortunately I feel like if I pace myself I will be able to do it!
Logged
Infected - late 70's /early 80's
GT - 1a

Fibrosure 1/2015 - F1-2
TX Naive - Harvoni 8 wks

SOT 6/25/15  VL - 468,000        AST-44  ALT-56       
EOT  8/19/15  VL-  Not Detected AST-21  ALT-30
1 YEAR POST TX - UNDETECTED AST 20 ALT 22
2 YEAR POST TX - UNDETECTED AST 15 ALT 18

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Rounding the bend for the final lap!
« Reply #7 on: August 10, 2015, 12:51:54 pm »
That's great to hear that you have so much energy now, Robin, and just have 9 days left! And Chino, congrats on finishing treatment. Good luck to all awaiting final results.

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Redbird29

  • Member
  • Posts: 73
  • I've seen the needle and the damage done.....
Re: Rounding the bend for the final lap!
« Reply #8 on: August 11, 2015, 07:50:04 pm »
WHOOO HOOOO! Just got back from my doctors office and received my 4 wk tx lab results!

HCV RNA, QUANTITATIVE REAL TIME PCR <15 NOT DETECTED 
HCV RNA, QUANTITATIVE REAL TIME PCR <1.18 NOT DETECTED

That combined with the drops in my ALT from 56 to 26 and my AST from 44 to 16 makes me so very hopeful that I will achieve SVR12.
« Last Edit: August 11, 2015, 11:20:17 pm by Redbird29 »
Logged
Infected - late 70's /early 80's
GT - 1a

Fibrosure 1/2015 - F1-2
TX Naive - Harvoni 8 wks

SOT 6/25/15  VL - 468,000        AST-44  ALT-56       
EOT  8/19/15  VL-  Not Detected AST-21  ALT-30
1 YEAR POST TX - UNDETECTED AST 20 ALT 22
2 YEAR POST TX - UNDETECTED AST 15 ALT 18

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Rounding the bend for the final lap!
« Reply #9 on: August 11, 2015, 08:12:23 pm »
Terrific -- congratulations, Robin! Am I understanding correctly that your lab can detect HCV if there's as little as 1.18 IU/mL? That's amazing -- and very reassuring that none was detected in your blood at that sensitivity. (The lab I went to can only "quantitate 15 to 100,000,000 IU/mL of HCV RNA.")
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Rounding the bend for the final lap!
« Reply #10 on: August 11, 2015, 08:53:44 pm »
My uneducated guess is that the 1.18 number is a log.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Rounding the bend for the final lap!
« Reply #11 on: August 11, 2015, 09:20:29 pm »
Ah, yes, of course: 1.17609125906....  Philadelphia, your response is very tactful -- thanks! (and thanks to Google for the quick calculation.)
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Redbird29

  • Member
  • Posts: 73
  • I've seen the needle and the damage done.....
Re: Rounding the bend for the final lap!
« Reply #12 on: August 11, 2015, 11:26:01 pm »
You are absolutely correct Philadelphia! The 1.18 is a log UI/ml. I was so excited at seeing the "Not Detected" I didn't get that far in the writing!!!!

My doctor was pretty tickled that I responded so fast and we have hopes that I will be able to slay this dragon soon if it isn't already on its last legs!!!
Logged
Infected - late 70's /early 80's
GT - 1a

Fibrosure 1/2015 - F1-2
TX Naive - Harvoni 8 wks

SOT 6/25/15  VL - 468,000        AST-44  ALT-56       
EOT  8/19/15  VL-  Not Detected AST-21  ALT-30
1 YEAR POST TX - UNDETECTED AST 20 ALT 22
2 YEAR POST TX - UNDETECTED AST 15 ALT 18

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: Rounding the bend for the final lap!
« Reply #13 on: August 12, 2015, 12:59:54 am »
Hey Robin Redbird,
I just chimed in to say best wishes on the good news to my avatar twin!
Logged
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Rounding the bend for the final lap!
« Reply #14 on: August 12, 2015, 11:16:05 am »
Congrats on reaching undetected, Robin! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline sabre

  • Member
  • Posts: 77
Re: Rounding the bend for the final lap!
« Reply #15 on: August 13, 2015, 04:07:31 pm »
Great news, Robin! I'm happy for you and pushing positive thoughts your way on the road to SVR.
Logged
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Rounding the bend for the final lap!
« Reply #16 on: August 13, 2015, 09:32:35 pm »
Fantastic news Robin! You deserve it, sounds like Your happy dance is going to be an all nighter!! Boy, after reading about the yard work I think I need a nap!!!!! Wish everybody had that much energy.
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Redbird29

  • Member
  • Posts: 73
  • I've seen the needle and the damage done.....
Re: Rounding the bend for the final lap!
« Reply #17 on: August 26, 2015, 12:28:54 am »
Hello Everyone!!!
   Got my EOT lab results today and my AST 21 ALT 30 and VL - UNDETECTED!!! Doing a little happy dance here! I honestly expected that as I have felt so good for my entire 8 wk treatment.
    I was a little worried that maybe I would start to "lag" after stopping Harvoni however it has not slowed me down at all. Still doing my yard work thing, working full time and everything else that goes with having a house full of kids and animals. (are they interchangeable?) ::)  If anything I have noticed my head is just a bit clearer than it was so that is good.
    Now the real waiting game starts - already have my lab orders for the next twelve weeks and follow up doctor appts too! Onward to SVR12!
    Peace, light and happiness~ Robin
Logged
Infected - late 70's /early 80's
GT - 1a

Fibrosure 1/2015 - F1-2
TX Naive - Harvoni 8 wks

SOT 6/25/15  VL - 468,000        AST-44  ALT-56       
EOT  8/19/15  VL-  Not Detected AST-21  ALT-30
1 YEAR POST TX - UNDETECTED AST 20 ALT 22
2 YEAR POST TX - UNDETECTED AST 15 ALT 18

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Rounding the bend for the final lap!
« Reply #18 on: August 26, 2015, 12:42:49 am »
Great news Robin! I'm coming along behind you - EOT 7 Sept. All the best for SRV12! :)
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Rounding the bend for the final lap!
« Reply #19 on: August 26, 2015, 12:47:04 am »
Congrats Robin on a job well done...you made it. I hope to be joining you soon in that happy dance.

Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Rounding the bend for the final lap!
« Reply #20 on: August 26, 2015, 03:21:00 am »
It's so very cool to see all these great results!!!

Robin your energy is amazing!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Trish1

  • Member
  • Posts: 19
Re: Rounding the bend for the final lap!
« Reply #21 on: August 26, 2015, 07:00:53 am »
Awesome news!  I'm doing a happy danc with you!!! 
Logged
Age 51
Infected 1983
GT 1a
VL 5.1m 
Bx 2004 - Grd 1 Stg 1 
Tx naive
Metavir Score 5/26/15 - F0-F1
Started Harvoni 6/23/2015 (8 wks)
4wk (during tx) - detected <15
8 wk EOT - undetected
4 wk after tx - undetected - SVR4
12 wk after tx - undetected - SVR12

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Rounding the bend for the final lap!
« Reply #22 on: August 26, 2015, 12:33:51 pm »
Congrats, Robin! That's great news that you are undetected at EOT!!  :D

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Redbird29

  • Member
  • Posts: 73
  • I've seen the needle and the damage done.....
Re: Rounding the bend for the final lap!
« Reply #23 on: August 26, 2015, 05:26:53 pm »
Thank you everyone for all the support!! I sure need it, especially right now.
   Monday my 87 yr old mama fell and broke her hip. She had emergency surgery Monday afternoon for a partial hip replacement and now has a long road of rehabilitation ahead of her. So glad I did tx and have more energy than I did before to help care for her and my dad who is 85.
  In fact, when I wrote my letter to Gilead's Support Path that was the main reason I told them I wanted treatment. I was not so much afraid of dying from HCV (though I know it is not nice as I was with my husband when he passed) as I was of leaving my elderly parents, disabled son and 13 yr old grandson with no one to care for them. Am praying so hard for SVR and to know that my family will have me here for as long as they need me......
   
Logged
Infected - late 70's /early 80's
GT - 1a

Fibrosure 1/2015 - F1-2
TX Naive - Harvoni 8 wks

SOT 6/25/15  VL - 468,000        AST-44  ALT-56       
EOT  8/19/15  VL-  Not Detected AST-21  ALT-30
1 YEAR POST TX - UNDETECTED AST 20 ALT 22
2 YEAR POST TX - UNDETECTED AST 15 ALT 18

Offline sabre

  • Member
  • Posts: 77
Re: Rounding the bend for the final lap!
« Reply #24 on: August 26, 2015, 11:30:01 pm »
Hey Robin! That's excellent news about your EOT labs. I'm really happy for you as you're bridging the gap to your eventual SVR. Positive thinking, baby!

Wishing the best for your mom as well. It sounds like you're a wonderful caregiver with a lot of love and support. That is admirable.

Take care, and HAPPY thoughts from me to you!
Logged
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)

Offline Redbird29

  • Member
  • Posts: 73
  • I've seen the needle and the damage done.....
Re: Rounding the bend for the final lap!
« Reply #25 on: August 26, 2015, 11:44:08 pm »
Aww - thank you Sabre! Your happy wishes means a lot to me..  :)  Things will get better I know. They moved my mom to a skilled nursing facility today and she starts rehab tomorrow. She actually walked about 15 ft with her walker yesterday and today we had her get out of bed for a bit, sit in a chair and she walked about 12-15 ft with her walker. She did tell me I was bossy and lucky she didn't have a stick or she'd smack me with it!  ;D So glad she has a fighting spirit!

You should be coming up on your 12 wk EOT labs pretty soon too shouldn't you? Sometime in the next few weeks? Have you had any post tx labs yet?  I sure am praying for you too my friend and am looking forward to walking the Happy Trail of SVR with you!!!
Peace, love and happiness my friend ~ Robin
Logged
Infected - late 70's /early 80's
GT - 1a

Fibrosure 1/2015 - F1-2
TX Naive - Harvoni 8 wks

SOT 6/25/15  VL - 468,000        AST-44  ALT-56       
EOT  8/19/15  VL-  Not Detected AST-21  ALT-30
1 YEAR POST TX - UNDETECTED AST 20 ALT 22
2 YEAR POST TX - UNDETECTED AST 15 ALT 18

Offline sabre

  • Member
  • Posts: 77
Re: Rounding the bend for the final lap!
« Reply #26 on: August 27, 2015, 10:23:29 am »
That's great that your mom is on the mend and will begin the rehab process. But for your own safety, you may want to keep a good stick's distance away for while!

That is correct, my 12 week EOT labs are fast approaching. Where did the summer go? I'll get the blood draw a week before my 9/25 appointment with my hepatologist.

I have not had any post-treatment labs aside from those for my kidney function. Surprisingly, my kidneys are picking up a little since EOT. Maybe that is a sign that HCV was a main factor in their decline.

Take care and I'll hope to be waiting for you on the SVR Happy Trail!
Logged
Infected 1980 / Diagnosed 2008
GT 1 / Treatment naive / VL 190,000
Biopsy 2008: stage 0 grade 1
Fibroscan 2015: F2 mild fibrosis
Chronic kidney disease (due to HCV) / Proteinuria

12 weeks Harvoni began on 03/28/2015
End of treatment: 06/19/2015
Labs on 06/17/2015: Undetected
Labs on 09/21/2015: Undetected (SVR12)
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