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Author Topic: Cal on Vierkira Pak & Ribas  (Read 262737 times)

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Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #100 on: September 13, 2015, 06:58:37 pm »
Hi Scout,
Mmmmm sounds the same as here in Oz. We are treated as scumbags. I was giving birth to my second child and was giving irth and the anaesthetist pull up by oxygen mask and said “How did you get Hep C?” I went into shock, what was a momentous occasion was ruined by this idiot. It was a reminder that no matter what I’m doing, I’m an HCV patient before anything else. It’s how I am defined as a person. I could tell you more stories too and that’s just mine. I know others in the same situation. It’s so unfair and cruel.
It made me smile when I read about you complaining officially about the nurse, good on you. I agree it doesn’t matter how you got this virus, it’s about now not what people did once upon a time. Yet I was asked again when being admitted to hospital last week how I got it. I said is that relevant to this situation now? He was a bit flustered but I hope the next person who comes along will not be asked.
Yes Greg is the guy sourcing from India. It was on TV here but no one was interested. Australia is a generally intolerant nation, sad because of its rich multicultural heritage. But intolerant of IV drug users hence the stigma and no access across the board to drugs. I do hope you can source the India drugs for your friend. I understand China is another source as well. I don’t know the laws in the U.S. about bring drugs into the country though. Better check that.
Gillead have made some huge profit of billions and have well covered the research costs. It is just pure greed on their part. Your friend really needs those compassionate drugs.
Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #101 on: September 14, 2015, 12:34:46 pm »
Hey Cal,,,,I couldn't wait to get home from work today...my GP called me....viral load UNDETECTED!!! AST 17 ALT 10.....woo woo...


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #102 on: September 14, 2015, 04:23:13 pm »
Scout,
Brilliant work! How exciting you are slaying this demon. Good on you. Cal :) :) :)  :) :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #103 on: September 14, 2015, 04:38:40 pm »
I have a terrible RIBA rash in my private areas, hands and thighs. It is not responding to cortisone cream. I am seeing my GP today. Hopefully there's a stronger cream. I can't sit down :-[ cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #104 on: September 15, 2015, 06:37:07 am »
Oh dear my RIBA rash has ulcerated. I am having a time of it.  GP has taken  swab for the labs. I have to continue with cortisone cream until, I see specialist on Thursday. I've never heard of this before. Oh well never mind. Got some cool results today

AST 20
ALT 22
GGT 17

Dropping....... Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #105 on: September 15, 2015, 09:48:19 am »
Cal, those results are fantastic. It's working. Hope the rash goes away, I read on a thread a few weeks ago about someone else and rashes but can't remember where. The person on here names gnatty seems to be real good with threads and issues people have, maybe she knows. I am so grateful on my last set of test results and that the anemia has gone away. The protein drinks made a huge difference with me I believe.

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: Cal on Vierkira Pak & Ribas
« Reply #106 on: September 15, 2015, 05:23:57 pm »
Dear all,
Stay out of the sun.
This advice maybe elsewhere on this forum, but it bears repeating.
My doc did not mention this important information until I was two weeks into treatment. Sun = rash and once you get it (sorry Cal) it can be very hard to shake. Sometimes the rash hangs around until end of treatment.
Like the virus though...it will be defeated eventually!
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #107 on: September 15, 2015, 05:39:30 pm »
I'm so sorry to hear about the rash and it ulcerating! :( Praying it'll go away soon.

Very happy to hear your numbers! So glad there are silver linings abounding :)
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #108 on: September 15, 2015, 05:41:25 pm »
Dear all,
Stay out of the sun.
This advice maybe elsewhere on this forum, but it bears repeating.
My doc did not mention this important information until I was two weeks into treatment. Sun = rash and once you get it (sorry Cal) it can be very hard to shake. Sometimes the rash hangs around until end of treatment.
Like the virus though...it will be defeated eventually!

Good info. Thank you for sharing. I would've probably risked Sun exposure figuring if I got the rash, it'd go away.
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #109 on: September 15, 2015, 06:57:53 pm »
Quick drive by posting before I take the dogs to the vet for their monthly cartrophen shot.

Scout, great news! Congrats!!
Cal, how much riba are you on? I'm wondering if your specialist is contemplating dropping the dose a bit? It feels never ending but it wil end and everything will slowly return to normal. Stay the course.  It'll be worth it.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #110 on: September 15, 2015, 07:31:48 pm »
Hi Scout,
Yes rashes are a sxs but I didn't have it this bad last tx. I swear the ribas effects are amplified with this tx.
Scout what are in your protein drinks? Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #111 on: September 15, 2015, 07:38:41 pm »
Hi Saphire,
I have HCV related vitiligo as well as auto immune anti bodies to just about everything! So I don't go in the sun. I wear a rash suit in the sun a full body. I take Vit D. I just have to endure the rash pain. I might get an anaesthetic cream if I'm allowed to use that. Thanks for your words of encouragement, I am 4 weeks tomorrow!

Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #112 on: September 15, 2015, 07:47:27 pm »
Hi Byebyec,

Stay out of the sun, you burn easier too. Always wear sunblock. Don't risk the rash. Are you washing in a non soap wash? Moisturising after with Aveeno or something similar. Ribas are very drying.
Yes there are silver linings and getting rid of the virus this time is my goal and dealing withe the fallout if post tx will organically evolve.  Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #113 on: September 15, 2015, 07:53:02 pm »
Hi Phily,
I've been on a reduced dose of 3 a day from 5 sine week two. He intends to keep me there. I know it's the ribas, but we daren't drop it any more. I wish we could drop it completely I hate it. It causes so many problems. Especially auto immune. My ras may be auto immune. Will let you know.

Phily do you have B12 shots? I have heard they are helpful. I am going to ask my specialist tomorrow about them. Cal[img] :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #114 on: September 15, 2015, 09:48:15 pm »
Hey cal, the protein drink I am using is called Boost...vanilla. I tried chocholate and strawberry but they were way too sweet. It is not as protein and vitamin packed as things like Ensure, because I wanted to be careful of too much iron and a few other suppliments. Generally it has 25% of the  recommended daily stuff you need instead of a lot of drinks that have 100%. It tastes pretty good too


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #115 on: September 15, 2015, 09:58:59 pm »
Hi Scoutdoy,
Thanks for that. I think I'll get some as well. Reminded me it must be low iron thanks, I had forgot the impact of iron on the virus. Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #116 on: September 16, 2015, 01:02:14 am »
Amen Scout on the stigma stuff!
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #117 on: September 16, 2015, 01:08:13 am »
Hi Byebyec,

Stay out of the sun, you burn easier too. Always wear sunblock. Don't risk the rash. Are you washing in a non soap wash? Moisturising after with Aveeno or something similar. Ribas are very drying.
Yes there are silver linings and getting rid of the virus this time is my goal and dealing withe the fallout if post tx will organically evolve.  Cal

I am using pure organic coconut oil on my skin. So far just minor itches. Plus, I live in Alaska. So the Sun is running away from us right now and heading to Oz! There still are 13 hours of Sun, when it's not raining, so I will be very careful now that I've read what happens.

Thanks again for the info. Wishing you the best and quickest healing possible :)
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #118 on: September 16, 2015, 02:34:09 am »
Hey Byebyec,
That coconut oil sounds good. I think it's about perfumes and additives which could irritate. Itches are normal, if they get bad ask your nurse about an anti histamine. I take one called Phenergan for when they are too bad. They were bad for me in first week then subsided.

Don't use soap to wash also.

So I'm stealing the sun from you! Sorry about that! I'm going to look at Alaska on the map. I find it so amazing that we are all so far apart but joined together by our commonality hep C. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #119 on: September 17, 2015, 01:02:25 am »
Hi all,
Saw my Gastro today and he says we're definitely winning the fight! Music to my ears. I asked about my next V/L test and he said it would be at EOT. Rats, that's a long time to wait. Then 3 months after that for final V/L. I was hoping for one at 8 weeks.

I asked if my resistance test was back and it wasn''t, but he said, you don't have resistance, or we just don't know enough about it's mutations (he's a researcher too). He said if it comes back positive for resistance and I SVR. Then I'm a statistic for the researchers. Also Viekira Pak, it could be the drugs that we use for resistant positive people. Who knows? It's a game of roulette after all. I seem to be backing the winner! 8) 8) 8) 8) Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #120 on: September 17, 2015, 09:07:09 am »
That's great Cal...I know that anticipation can be a killer on tests. That's why I am glad I was able to get my regular GP to give me my yearly physical...and did a huge round of tests for me. I go see my hep dr. on sept 3. He is gonna do tests too. My insurance company has got to be saying to themselves "what the heck" but as long as they keep paying for it I don't care I like seeing the numbers. My hep doctor is a researcher also...


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #121 on: September 17, 2015, 06:23:28 pm »
Hi Scout,
Is your hep Doc doing a V/L? What week would that be? I was v/l 54 at 2 weeks. I just want to see that UND on paper, even though Gastro assures me I would be because of LFTS.  I want a viral load test! ( stomp feet, pout sookily)  :-\. Because we can only have 4 per year. Or we can pay for one, and that's not in the budget.

I'm going to the hospital today for physio on three bulging discs in my neck, and I've decided to catch the bus. Sounds sad, but I'm a bit excited to be walking again a month of taking it easy, mostly lying.

I went to what you Americans call the mall. I bought a celebratory handbag and wallet. Ahh the healing power of retail therapy. Now I have a fab new bag to stare st when I'm exiled to the couch arena again. Don't worry will not over do it. Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #122 on: September 17, 2015, 08:48:43 pm »
Hey Byebyec,
That coconut oil sounds good. I think it's about perfumes and additives which could irritate. Itches are normal, if they get bad ask your nurse about an anti histamine. I take one called Phenergan for when they are too bad. They were bad for me in first week then subsided.

Don't use soap to wash also.

So I'm stealing the sun from you! Sorry about that! I'm going to look at Alaska on the map. I find it so amazing that we are all so far apart but joined together by our commonality hep C. Cal :)

Hi there Cal!

My GP just gave me Triamcinolone for the itches because they were turning into a rash. Powerful stuff cause it's already working. Wondering if it would help you??? It's a steroid cream... I've been taking phenergan too. One of a few pre-treatment hepc sx's I had was almost daily moderate nausea, bouts of month or longer "flu" and the peripheral neuropathy. Maybe that's been keeping it from going full on (?) Glad it's in the toolbox ;)

As for the Sun, it's only fair. We've had a most glorious Summer here in the Great North! Back to my igloo! :D It is straight up wonderful to have y'all here. INTERNET (((HUG)))

Tried to insert some pics of my magical 2015 garden and front porch containers... couldn't figure it out, thud!

Anyone know how to insert a photo on a thread?...
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #123 on: September 17, 2015, 09:46:28 pm »
Hey Cal, my hep doctor is going to check viral load at 4,8, 12, 12 post tx and 1 yr post tx.... My hep doctor also does research and asked if they could use my blood...sure...what the hell. Anyway, the 4 week test the nurse called and said it was detected but under 12, but when I got the actual paperwork from lab it said negative, I was confused. So when I had my annual physical ( which happened on week 6) I told my GP what happened and she said "well, let's just find out for ourselves just to make sure "and ran it again. I just love her. It came back undetected and my liver numbers were fantastic. Very happy camper here....LOL.

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #124 on: September 18, 2015, 12:20:11 am »
Awesome Scout!
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #125 on: September 18, 2015, 12:52:38 am »
Thanks by bye


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #126 on: September 18, 2015, 03:10:47 am »
Hi ByebyeC,
I've often thought that I wasn't as sick because it attacked just about every other organ instead! Hehe.

I have no idea how to insert a picture  of and igloo with a garden...sorry friend.

My rash is doing really well with the new cream, can't remember the name. Isn't the Phenergan great for sleep? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #127 on: September 18, 2015, 03:13:43 am »
HI Scout,
You've got a great GP there. So its down to the Insurance Company to pay for them? Love you work Scout! Cal ;)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #128 on: September 18, 2015, 09:14:04 am »
Cal, I discussed that with her, and she said its all about how it's coded. She is a pro at getting tests done.  If she retires anytime soon I am screwed!  LOL



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #129 on: September 18, 2015, 09:30:11 am »
Cal, your not gonna believe this but I have been feeling pretty good so I thought I would take on my yard.  It's pretty overgrown and I thought I would trim it up and plant some pretty flowers. Wow, it looks great...but I am pretty sure that I now have poison ivy!!! All over! I gotta laugh though, because I don't even care! Life is good right now, and I am grabbing it by the balls, it's my turn to have fun and feel good, I have waited 30 years for this, and not letting anything throw me into that funk again. My kids are laughing at me because I usually yell at them every year when they get poison ivy from playing out by our creek, and now I have done it to myself.

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #130 on: September 18, 2015, 05:28:10 pm »
Hi Scout,
My GP went on maternity leave during my first tx and I told her how selfish she was ..joking! Yes good GP's are rare.

Poison Ivy, I've heard of it. Is it painful? It sounds like you couldn't care anyway. Good on you Scout, Live in the moment, the best of life is ahead of all of us. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #131 on: September 18, 2015, 05:52:04 pm »
Cal, do you not have poison ivy in australia? Luck you. It looks like bubbles on your skin that spreads in patches. It has like an oil in it so every time you itch it ...it spreads....uggggg the itching is the worst. I walked around with oven mitts on today so I wouldn't itch it....LOL


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline byebyeC

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  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #132 on: September 18, 2015, 06:50:32 pm »
Hi ByebyeC,
I've often thought that I wasn't as sick because it attacked just about every other organ instead! Hehe.

I have no idea how to insert a picture  of and igloo with a garden...sorry friend.

My rash is doing really well with the new cream, can't remember the name. Isn't the Phenergan great for sleep? Cal :)

You're too funny Cal! :D

I'm so glad to hear it's getting better for you!!! Yay! I haven't noticed the phenergan making me sleepy. Maybe I've just adjusted to it since I've been taking it for about 6 months now (?) Does help with the nausea to be certain :)

So sad, no pics of my igloo garden... very very sad  :P
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #133 on: September 18, 2015, 07:22:04 pm »
Oh Scout,
That sounds terrible. I couldn't say for sure that we don't have it. But I've never known anyone with it. Poor you,, on top of riba rash! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #134 on: September 18, 2015, 07:26:34 pm »
Hi BeybyeC,
Gosh Phenergan doesn't make you sleepy? Boy it knocks me out! I've never taken it for nausea.
I want to see the igloo ice flowers! There must be a way! Drats!

How's the headaches?

I have the shakes today after my expedition into the hospital by bus and thenmy son telling me he wants to drop out of uni! Farout man how much can a koala bear?
Cal :P
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #135 on: September 18, 2015, 08:04:25 pm »
Hey cal, I don't have a rash nor am I taking riba..and I am really glad for that. How are you doing?  I know you have been having some side effects from the beginning. Although your having the side effects, I am glad you are getting the chance to get cured.  How are your numbers doing?


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #136 on: September 18, 2015, 08:25:52 pm »
Hi Cal,

No headaches today. Yay! Just feel like I've got the flu. Typical for me. Trying not to get freaked by my new alt #... Chime in with choruses of it's all fine please? No crickets.

Children! Why DO we keep feeding them for crying out loud?!!!  ???
« Last Edit: September 18, 2015, 08:27:50 pm by byebyeC »
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #137 on: September 18, 2015, 09:19:30 pm »
Raised ALT is recognised sx of VPak and riba. Don't panic.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline byebyeC

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  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #139 on: September 19, 2015, 05:19:12 am »
Raised ALT is recognised sx of VPak and riba. Don't panic.

Thank you Philly :)

I did read through the link below this post. 5x higher than normal range being "normal during tx" is around 250. So... calming down :) Just don't want anything to interfere with me finishing this tx!  PHEW!  ::)
« Last Edit: September 19, 2015, 05:44:48 am by byebyeC »
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #140 on: September 19, 2015, 05:34:17 am »
Hey Scout,
Sorry I forgot you were on Harvoni. No riba you lucky girl! Yukky bitter sweet drug.
My numbers are great and falling all the time.
AST 20
ALT 22
GGT 17
Don't know my VL at 2 weeks was 54. So Doc reckons would be und now. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #141 on: September 19, 2015, 09:24:46 pm »
Hi all,
Today my vision is so blurred I can hardly see the letters on the screen? Has anyone else had this sxs? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #142 on: September 19, 2015, 09:32:17 pm »
Hi all,
Today my vision is so blurred I can hardly see the letters on the screen? Has anyone else had this sxs? Cal :)

haven't heard that as a side...although it did happen to me.. turned out I needed a new contact prescription.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #143 on: September 19, 2015, 09:42:24 pm »
Looking around I found that  viekira can cause blurred vision if used with drugs that are inducers or drugs that are inhibitors of CYP3A4.

Are you on any other prescriptions??  If so , you need to call abbvie first thing tomorrow, talk to one of their pharmacists and let them know what other meds you are taking.

abbvie = 847-283-8901


dm
« Last Edit: September 19, 2015, 09:44:54 pm by drummerman »
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #144 on: September 19, 2015, 09:47:07 pm »
Hi all,
Today my vision is so blurred I can hardly see the letters on the screen? Has anyone else had this sxs? Cal :)

http://www.webmd.com/drugs/2/drug-167494/viekira-pak-oral/details/list-interaction-details/dmid-1074/dmtitle-strong-cyp3a4-inhibitors-slt-low-strength-antimuscarinics/intrtype-drug

I also saw (can't find it now,) that viekira can cause blurred vision with inducers of cyp3a4.  These are listed in the literature that came with your viekira.  check it carefully.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #145 on: September 19, 2015, 10:00:27 pm »
Hi all,
Today my vision is so blurred I can hardly see the letters on the screen? Has anyone else had this sxs? Cal :)

From what I'm reading inducers of cy34a are  a big no no with viekira,

inhibitors of the enzyme can cause problems too.

both can cause blurred vision.

http://www.pharmacytimes.com/publications/issue/2008/2008-09/2008-09-8687
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #146 on: September 19, 2015, 10:06:38 pm »
Hi all,
Today my vision is so blurred I can hardly see the letters on the screen? Has anyone else had this sxs? Cal :)

Hey Cal,

Most definitely have had this sx. Every day a couple of hours after taking VP and ribas... From about day 4 on. I read it is a sx and told my GP. She's just advising me to report any worsening...

Here's to hoping this too passes, as I've read on others post's/blog's, the sx can dissipate around mid treatment! (?)
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #147 on: September 20, 2015, 03:07:44 am »
HI DM,
Thanks for doing all the research for me. I have checked the lists and I am not taking anything on them. my specialist knows exactly what I am on, especially after my recent hospitalisation they went through every drug for interactions and cut me down on one which I take for a rare disorder I have, Bilateral Primary Aldosteronism for which I take Spractin. I took a double dose of Phenergan (Promethazine) last night I wonder if that is interacting? I was itchy as all hell last night. It makes me dopey, maybe it's causing the blurred vision? Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #148 on: September 20, 2015, 03:13:53 am »
Hey Byebye,
Thanks for that reassurance. My last tx, shot my sight and I had to get stronger glasses. It shot my hearing too. It's so horrible not being able to read anything. I wonder if I still have a magnifying glass somewhere mmm that could help. It is a bit better this afternoon, but this morning I thought I was legally blind! (and blonde) hehe. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #149 on: September 20, 2015, 03:49:16 am »
Hey Cal,

I'm hoping since it comes and goes that this isn't permanent. It is a really disturbing sx. My doc doesn't seem bothered by it at all. Rather churlish I say! ;D

Lol Cal :D Reese Witherspoon's starring in that movie in 2025 bahaa :D
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #150 on: September 20, 2015, 07:24:45 am »
HI DM,
Thanks for doing all the research for me. I have checked the lists and I am not taking anything on them. my specialist knows exactly what I am on, especially after my recent hospitalisation they went through every drug for interactions and cut me down on one which I take for a rare disorder I have, Bilateral Primary Aldosteronism for which I take Spractin. I took a double dose of Phenergan (Promethazine) last night I wonder if that is interacting? I was itchy as all hell last night. It makes me dopey, maybe it's causing the blurred vision? Cal

Good to know!  Guess as long as it goes away or doesn't get worse.. you're good.

I had the itching bad for weeks 2-8.  Always on may face.  It was weird.   No more itching now though.

dm

Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #151 on: September 20, 2015, 08:32:40 pm »
DM,
Good to know it goes away. I moisturise my w hole  body with QV and still have my scaley bits. But I also have the prickly heat type itch yukarma! Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #152 on: September 20, 2015, 08:34:23 pm »
Hi Byebyec,
It's not as bad today. I think I'm back to normal. I didn't have phebergan last night. That might be it. Who knows? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #153 on: September 20, 2015, 09:05:47 pm »
That's really really good Cal :)

We're all so different when it comes to how meds affect us huh? But, so many of us are having the same... Weird, but that's life. So glad it's gotten better today. We need to see, so we can stay together in this!

<3 bye
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #154 on: September 20, 2015, 10:09:04 pm »
Yes I need my forum friends!!!! :'( Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #155 on: September 21, 2015, 05:06:45 pm »
Hi all,
I got a call from the Hep C Council Queensland and I am invited to represent heppers or consumers as they call us in a Q and A session with all the big movers and shakers in HCV land, Doctors, a Researchers, consumers, Government officials, HCV workers etc. they are going to call me to let me know what they want me to talk about, but as one if the first on Viekira Pak and indeed the orals in our country, I am to represent the HCV community. I am so excited. I have done a TV interview 6 months back and had my story published and handed to the Government with other stories published by the Australian Hep Council. I hope I can do it justice. We have to get the drugs here. My brothers and sisters are dying and or getting past tx in some cases. Others just need go tx ASAP. Exciting. Cal day 33,  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #156 on: September 21, 2015, 05:48:21 pm »
That's very cool Cal


Cal
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #157 on: September 21, 2015, 06:54:58 pm »
Wonderful Cal! You'll totally rock it.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #158 on: September 21, 2015, 07:17:20 pm »
Thanks Gals, I hope I don't start crying????? :'(
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

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  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #159 on: September 21, 2015, 07:21:10 pm »
Fantastic Cal!

Very excited for you! Give us the details and maybe a link so we can hear how it goes :)

Cheers! 8)
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #160 on: September 21, 2015, 07:21:53 pm »
Hi all,
I got a call from the Hep C Council Queensland and I am invited to represent heppers or consumers as they call us in a Q and A session with all the big movers and shakers in HCV land, Doctors, a Researchers, consumers, Government officials, HCV workers etc. they are going to call me to let me know what they want me to talk about, but as one if the first on Viekira Pak and indeed the orals in our country, I am to represent the HCV community. I am so excited. I have done a TV interview 6 months back and had my story published and handed to the Government with other stories published by the Australian Hep Council. I hope I can do it justice. We have to get the drugs here. My brothers and sisters are dying and or getting past tx in some cases. Others just need go tx ASAP. Exciting. Cal day 33,  :)

Way to go!   Proud of you!  Representin!

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #161 on: September 21, 2015, 07:44:07 pm »
Hi Byebye,
I am unsure if it is being televised but hopefully they will get a radio station to cover it. I'll find out more in the next few days and let you know. So hopefully a podcast..  If not maybe a transcript. I hadn't  thought about coverage. Cal  ::)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #162 on: September 21, 2015, 08:07:37 pm »
Hi DM,
Well thanks very much, but it  is nothing any of us wouldn't do for our HCV community who are waiting desperately for these orals. You may have read we have yet another Prime Minister here. The other one was s**t. He had no interest in spending money on our drugs, and Gilead weren't coming down in price. Though AbbVie came in cheaper. The new PM is not of my personal political persuasion but he is actually a good leader, or so it seems now, give him a few weeks. ::) But we have a better chance of being heard under the new PM. I think?
I might have said already that a lot of people are going to India for the generics and also China. They are telling us not to but not giving us any options. I figure if they were willing to poison us with ifn then I'd take my chance on generics if I had to. Some Doctors here are writing prescriptions for Chinese Doctors. Our Doctors are desperate too. We are a rich country in the midst of economic crisis and cuts have been made, to all the wrong things. Yes we need cuts but its more economically viable to tx on orals and have heppers back in working as economically contributing members of society than to have us draining the health system and waiting on liver transplant lists that never end. We just want them to see reason. Hohum. Sorry got off my bicycle a bit there. Rather passionate about the cause. Cal :P
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #163 on: September 21, 2015, 08:10:24 pm »
A M E N  Cal!!! Go get 'em tiger! :D
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #164 on: September 21, 2015, 08:23:23 pm »
Cal, it's obvious how much you care.  I'm so glad you are able to advocate and share your experience with specialists and others that could be influenced to help us for the better!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #165 on: September 21, 2015, 08:35:49 pm »
Thanks Byebye and Bree,
I promise to do my best. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #166 on: September 21, 2015, 08:55:25 pm »
 Cal , Good for You. Go kick some butt & get the help Your fellow Ozzy Heppers need and deserve. You are awesome. Hope all Your buddies down under know that. I have faith that You will make Your mark and spark changes badly need in Your Homeland.
Fight on Spartans!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #167 on: September 21, 2015, 09:16:33 pm »
Hey Cal, By the way,I follow Your posts all the time, Now My phone recognizes as one of My frequently visited sights when I get alerts from the forums! LOL!!! If You can convince My phone , just think what You can convince those guys when You meet with them!!!!!! Passionate I believe is an understatement!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #168 on: September 21, 2015, 09:26:49 pm »
Cal, it's unbelievable that the rest of the world is getting on board with these cures. Even though it's a challenge sometimes getting it approved. Good luck Cal, you will do great!

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #169 on: September 21, 2015, 09:48:23 pm »
Oh Tommy,
I wish I had your faith. We have been fighting this fight for about a year now. Our PBAC (Department who recommends new drugs of all sorts for all illnesses) recommended to the PBS (the department who funds and  puts them on prescription for us) to put Gilead and AbbVie through, it is ok'ed then by the TGA. I guess a bit like your FDA. The drugs are stuck at the PBS stage so far.
I am but a small cog in a huge wheel of Hep C Council and NGO's, Doctors and researchers and other hepper advocates. But I do my little bit when asked. I am truly one of the lucky ones to be on these orals on compassionate grounds. I owe it to my friends to speak out. We can't forget our community even if we are lucky enough to svr I have lived this HCV life for 30 years and since last tx in 2011, I have made so many dear friends. I have been a part of so many people's lives, some have svr'd some are txing some are getting sicker, some are beyond tx. It's genocide plain and simple if we can't get the drugs that everyone else has. I think it's Australia that is the only Western country to not provide their people access to the drugs. It's Australia's shame, hidden, because of the stigma.
I shall do my best. I'm getting over excited. I'll have to rest!!!! Glad to know I have such power over your phone, hehe. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #170 on: September 21, 2015, 09:52:24 pm »
Yes Scout,
It is unbelievable. I recently heard November could be the date. Maybe they will be shamed into it. Who knows? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #171 on: September 21, 2015, 09:56:08 pm »
 Cal, it's all about a war of attrition. One battle at a time will wear them down to the point of winning the War!!!! I posted an anecdote somewhere here before that applies to Your situation. Do You know how You can eat a whole ELEPHANT??????????? One bite at a time My Dear, one bite at a time!!!!!!!  You have it in You. Find Your inner Warrior and let him out. It is in us all but to be released upon discovery!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #172 on: September 21, 2015, 10:08:55 pm »
Cal, I was talking to my specialist at St Vincents- he said price negotiations are nearly complete and it is almost ready to go to cabinet.

Turnbull has at least one  acquaintance who has had access to trials /early access and should prove more sympathetic. Here's hoping.

It's important to keep agitating nonetheless!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #173 on: September 22, 2015, 04:33:34 pm »
Thanks Tommy,
My inner warrior has been resting since my last horror tx in 2011. But I am finding her again through this cause. She's in there just not as confident as she used to be! :-\
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #174 on: September 22, 2015, 04:37:12 pm »
Hi Phily,
Yes my Gastro says similar things, and I have a friend who's child has HCV and mum cleared after 3 ifn attempts, and now it's the child's turn. She attends St. Vincent's too, and is hearing the same thing. Let's just hope that Turnbull does has that compassion in him.
Yes we must keep being visible, despite being hidden from everyone's consciousness and eyes. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #175 on: September 22, 2015, 04:41:30 pm »
Hi all,
I got real unwell yesterday arvo and my GP sent me to the Hospital. My BP keeps plummeting. They don't know why, I have to keep moving which brings it up. It's been 80/58. But if course was normal at the GPs and the hospital. But I found the cause of my blurred vision, it's the low BP! Will get my GP to tell my Gastro.  Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #176 on: September 22, 2015, 04:47:10 pm »
Oh my goodness Cal!

Praying for you and your docs to get that back to normal asap!

<3 Bye
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #177 on: September 22, 2015, 05:38:51 pm »
Thanks Bybye,
I'm sure I can do a few star jumps during the day to get it moving!  :) most people gave high BP as a sxs? Boy oh boy! Cal ::)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #178 on: September 22, 2015, 06:27:42 pm »
My bp dropped a little and another friend on vp said the same thing. Mine has need verging on high (up to 140/80-85) before treatment. It sat in the sweet spot of 120/70) through treatment.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #179 on: September 22, 2015, 10:37:30 pm »
Phily,
That's, comforting to know that it's a side effect. I worry because I have the Aldosteronism and cardiomyopathy. But There's nothing I can do. If I move around it stays up. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #180 on: September 22, 2015, 10:48:36 pm »
Hi all,
I am just back from the Thyroid specialist and they want to remove my thyroid because of goitres which have over taken the gland. I have a croaky voice and difficulty swallowing. I am still absorbing this. I need to research it more. I have made an appointment for 6 months away so that tx is over and done. It was the ifn that screwed up my thyroid. I have a perfectly functioning thyroid before tx. I hate ifn. Thanks Goodness for orals. Cal :'(
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #181 on: September 23, 2015, 02:31:40 am »
Oh Cal!

This makes me so worried for you. I'm glad you're holding off for post tx. Who knows what craziness has been caused that'll be alleviated once it's gone for a bit...

Is there anything, besides you jumping up and down, they can do for your bp? Seems it'd be hard to do that AND get sleep ever.

Love and best wishes,

bye
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #182 on: September 23, 2015, 03:19:39 am »
I'm thinking of you Cal!  Take it easy on yourself...
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #183 on: September 23, 2015, 06:24:34 am »
I think it's important not to jump into any rash decisions about your health until and unless you need to. You never know how Tx might be affecting things. Just keep on keeping on. Treatment is your most important job right now.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #184 on: September 23, 2015, 06:39:00 am »
Thanks gals,
I am totally focused on tc. That's why I said I'd come back to the thyroid Doc in 6 months. It'll have to cone out I have 7 goitres and 2 huge ones that have taken iver the gland. They are stable enough for me to wait though. It's not on my radar to be thinking of such a huge op now.  We are so lucky that  we don't have to have ifn anymore. 
Sincerely thank you for your good wishes and advice. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #185 on: September 23, 2015, 07:01:01 am »
All the best. Your first month is behind you. Only two more. You've got this.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #186 on: September 23, 2015, 05:05:03 pm »
Phily,
Thanks darling girl. I have been meaning to ask you if you had 4-5 days worth of drugs left in the bottles at the end if the month? I have and will have at least another near 2 weeks left over, so am going to put it to my
Gastro that I take them? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #187 on: September 23, 2015, 07:17:12 pm »
Hey Cal, is the thyroid problems you are having related to the hep c or previous meds you have taken for hepatitis? Bummer with the problems you have been having. Hopefully you will have less side effects since you are 1/3 done now. I am 3 pills into my last bottle...woo woo. I have an appt next week to have blood work done again. I am pretty happy with my numbers so far.

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Bree

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Re: Cal on Vierkira Pak & Ribas
« Reply #188 on: September 23, 2015, 07:26:19 pm »
Go Scout!!!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #189 on: September 23, 2015, 07:30:08 pm »
Yes I did Cal. At the end of 24 weeks I had 24 days worth of meds from memory. I didn't take them, although my nurse said I could if I wanted. By the time 24 weeks was up I was done. I might have felt differently at 12 weeks.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Scoutdoy

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Re: Cal on Vierkira Pak & Ribas
« Reply #190 on: September 23, 2015, 07:37:24 pm »
Bree, you should be almost finished aren't you? How are you doing? I have to say I am very excited that I made the move to get on this medicine. I know several people who are having such a hard time getting approved or just won't go to their doctor because they are f0 or f1 and are waiting,,, thinking that they have plenty of time. I jumped in the arena after reading that once women go into menapause a large level of protection dicipates and being 48, I didn't want to take the chance. I prefer to stay at f0 if possible.

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #191 on: September 23, 2015, 08:17:26 pm »
Hi Scout,
The thyroid problems are from the interferon, it is notorious for causing thyroid issues. I had no problems before I started tx and after I did. So it was put down to that. However, nobody would put that on paper. I don't know why they protect interferon so much. It's poison. I guess it doesn't matter if it effects my thyroid  this time, because it will be gone soon! Hehe.
3 pills, you've killed it Scout. Hooray, fireworks, champagne (non alcoholic :-\). You must feel brilliant. Job well done. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #192 on: September 23, 2015, 08:20:35 pm »
Hi Phily,
So you did too, It's an Australian thing then. I know another viekirian who is doing the 24 weeks and his Doc told him to take the left over 3 weeks. He wasn't happy at first. He's ok now. I think with only doing 12, I will do it too. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #193 on: September 23, 2015, 08:23:06 pm »
Hi Scout,
I', F0 as well. But look at all the others things it's done to me. They are only just realising all the other damage to other organs it is doing. So good on you for jumping in. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #194 on: September 23, 2015, 09:50:48 pm »
Sorry my post was unclear. They said I could if I wanted but after 24 weeks they really didn't think it would matter.  I stopped right at 24 weeks - my correct end date.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Scoutdoy

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Re: Cal on Vierkira Pak & Ribas
« Reply #195 on: September 23, 2015, 10:18:02 pm »
Cal, I told myself if this medicine cured my hep I would quit smoking. Looks like I better get myself prepared
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #196 on: September 24, 2015, 02:45:51 am »
Hi Phily,
Yeah I understood that and agree after 24 weeks you've done enough my friend. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #197 on: September 24, 2015, 02:48:46 am »
Ooh Scout,
You'd better get those nicotine patches after you SVR. I wouldn't go cold turkey just yet. When you know your clear you can make a decision. It's not easy to do, I quit at 22 and it was one of the hardest things I'd ever done, that's till tx came along if course!  :) cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #198 on: September 24, 2015, 03:26:39 am »
I'm going to have to go on anti biotics. I have a sore throat, cough that hurts and a fever. I hope you can take anti biotics. I'll find out. I thought today, all this sickness is helping to pass the time! Gotta be positive. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

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Re: Cal on Vierkira Pak & Ribas
« Reply #199 on: September 24, 2015, 03:42:09 am »
Phooey!

Someone needs to throw you a break so you can catch it!

I checked the antibiotic thing out before tx, I know 2 that are contraindicated with VP + Riba, one is Amoxicillin and the other is Clarithromycin. Most others are ok. Your doc will know...

Way to have the right attitude Cali girl! With all you've been through, I know I'd give you a big ole pass if you were grumpy with me :)

bye, actually I guess I will go by BBC! It makes me sound all British-ey (right??? :D ) and brilliant, haha!  ???
« Last Edit: September 24, 2015, 03:44:16 am by byebyeC »
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

 


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