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Author Topic: Cal on Vierkira Pak & Ribas  (Read 263563 times)

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Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #200 on: September 24, 2015, 04:32:14 am »
Yes Cal, it's gonna be tough. I have been smoking for 35 years. I have a book that is a 6 week program that gets you to do things to break the habits you do when smoking. Its pretty interesting. We will see. But I am gonna give it a shot! I read that most antibiotics are safe on treatment, with the exception of two or three. Hopefully your doc gives you something to make you feel better.

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #201 on: September 24, 2015, 04:34:41 pm »
Hi scout,
Great that you have a plan. If you can do tx you can give up smoking!

I'll get the Doc (my GP is away for. Few weeks) to check up on the anti biotic he prescribes for me.  Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #202 on: September 25, 2015, 03:30:40 am »
Great, I'm being check for mycoplasma pneumonia. Just had tests and get them back Monday. Explains chills and sweats, sore throat cough etc etc.didnt think it was sxs but who can tell. I have anti biotics till then. I want to cry but I am wearing my big girl pants Byebyec! Stupid replacement GP, tells me you will have something going around, because you're not on interferon, so. You should be feeling ok. I nearly tore him a new one Eejit :-\cal >:( >:(
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #203 on: September 25, 2015, 11:09:31 am »
Cal! Cal! Cal!

For Pete's sake! Good on you big girl Cal, lol :D But, it's your party! You can cry if you want to! :'(

That's some bizarre medical "logic" from your GP... You should be feeling wonderful you silly girl! Oy :/

Alaskan size (((HUGS)))

Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #204 on: September 25, 2015, 01:07:53 pm »
Cal, Dear God Girl!!!!!! All My sides pale in comparison to the trials & tribulations that You have been having to endure!!!! Your perseverance in the face of such great adversity is amazing to say the least. Hopes , prayers , hugs, kisses , good vibes , whatever the hell it takes to get You back to abnormal coming Your way from Texas.
 You cry Your heart out if You need to!!!!! I won't tell anybody, OOPS. They are all reading this!!!! Good things & positive thought coming Your way from Me & My I-phone that You took over! LOL!!!

  CRYING DOES NOT MEAN THAT A PERSON IS WEAK-----BUT IT MEANS THAT A PERSON HAS A HEART!!!!!!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #205 on: September 25, 2015, 02:23:51 pm »
Cal, you obviously control your emotions better than I when it comes to people's thoughtless statements . Unfortunately I know what would have come out of my mouth if a GP said that to me ...."So, since you know how I have been feeling GP, just when did you go through treatment and poison yourself with interferon, because you have hepatitis and then endure another round of treatment on top of that you asshole" oh wow....I am feeling better! LOL

Scout

F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #206 on: September 25, 2015, 04:49:54 pm »
Hi Cal,  My heart is with you.  You are amazing.
I have a wicked smart but very low emotional I.Q. and very large ego specialist. Sometimes his comments bother me for days.  I'm so grateful his nurse is amazing.  And my internist is amazing to the max.  Means to an end.
I just have to shake off the ignorance of others and so glad we have each other.
We're here for you... much love.  Bree
« Last Edit: September 25, 2015, 10:54:42 pm by Bree »
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #207 on: September 25, 2015, 06:47:41 pm »
Hi Marianne,
Thanks for the hugs, much needed. Lovely. It us my party isn't it? He's a replacement while my GP us away on holidays so knows nothing and isn't afraid to flaunt it! He told me I wasn't on an immunosuppressant. Ribavirin is one. He said notes from your specialist say the drug aren't immunising, so you'll just have flu. When he prescribed the amocillin, I asked him to check for viekira interactions. I spelt it for him and he said your spelling it wrong. I said it's not passed here it's on compassionate grounds. He said how can I look it up? I said google. He awkwardly laughed and said good idea. I knew I was on a winner then.  :'( cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #208 on: September 25, 2015, 06:53:35 pm »
Thank you Tommy,
It's a worry when you start thinking ifn tx was easier than this! I have been unlucky. Once I have this under control, I'll be ok. I am half. Way next Thursday, so that milestone has my attention! It's kinda good to know the symptoms are related to a sickness rather than an extreme tx. Yes I am making a meal out if this tx aren't i? Hehe.
I am feeling the vibes and care and wishes coming from you and your phone! Hehe. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #209 on: September 25, 2015, 06:58:19 pm »
Scout,
Thank you. You said it for me. They have no idea. On some level this type if GP thinks I should be suffering. You know what I mean? Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #210 on: September 25, 2015, 07:08:52 pm »
Bree,
Thank dear one for that. I am amongst friends here. My little asylum in this mad chaotic world which is ours. My specialist would be appalled if he knew what the eejit said to me. I have a great specialist, just not readily accessible. He probably hasn't  had one with so many problems on oral tx, then these drugs are un chartered territory. We are the first batch of mice through the maze.  :-\  yes thanks to you and my forum friends. My family and friends are starting to get bored with me being sick. How do they think I feel? Doh ! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #211 on: September 25, 2015, 07:18:10 pm »
Cal, it's like this ....once a pharmacist said to me " you really should reconsider taking this strong of a painkiller" yea and "you should really feel what it's like to have a broken back and how my head feels from getting nailed by a bowling ball in a car accident" if people knew more facts before they judge you, they wouldn't sound so ignorant. That's one of the problems with having hepatitis...so many are quick to judge and assume your a drug addict or live a bad lifestyle, or nurses and doctors who think symptoms people feel are not real. It's a very sore spot with me and irritates me when I hear it happen to other people too. Hope you get feeling better, and can have a pain free day soon
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #212 on: September 25, 2015, 07:22:02 pm »
One thing my specialist mentioned to me was a clever little app from the Uni of Liverpool that charted drug interactions between HCV drugs and many others. It's available on the App Store and Google play. I have used it at more than one gp appointment to check if I should take another drug. It's called the Liverpool Hep iChart.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #213 on: September 25, 2015, 07:46:33 pm »
Hi Bree,
Yes, I think we all have worse stories of being judged erroneously. I don't care how people got this personally, I've made too many real friends in the HCV Community. I don't judge them. No one asks how did you get it? It's the Doctors I was thinking if asking at the q and A if this was a question asked on medical grounds or sticky beak values? They have no idea what strength it takes to take tx on. Also to carry around HCV itself. We are warriors and should be treated as such. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #214 on: September 25, 2015, 07:48:31 pm »
Phily'
Thanks, I am downloading that app as we speak. Brilliant idea. We really ate the advocates for our own health. Info is empowering. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #215 on: September 25, 2015, 09:07:55 pm »
Scout sorry, that last post to Bree was meant for you. Sorry Bree. My head is banging today, very weak. NO excuse, I do apologise. Cal ;D
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #216 on: September 25, 2015, 09:39:53 pm »
Cal, at least in our country the medicine is available. I hope yours approves the meds soon. I wonder how many years it will be before it is reasonable in cost.  I read that several new ones are coming out but I think Gilead is the manufacturer of them, so competition probably isn't going to be a factor for awhile


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #217 on: September 25, 2015, 11:00:53 pm »
Hey Cal, it's fine... I agree with you and Scout anyway. 
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #218 on: September 25, 2015, 11:26:37 pm »
Hell Scout, you guys are lucky, except the horror stories of people who r too poor to access it. No insurance etc. I recall your friend? But it will be great when we get access though I heard today it's looking like Jamuary now and triaged access. Which wArehouses my friend until they are churro tic enough to access care. Not acceptable I will certainly be bringing that up at the Q and A. We were told access to all. Hate these moving goal posts. Stupid Government. Cal :(
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #219 on: September 26, 2015, 06:42:40 pm »
Hi Marianne,
Thanks for the hugs, much needed. Lovely. It us my party isn't it? He's a replacement while my GP us away on holidays so knows nothing and isn't afraid to flaunt it! He told me I wasn't on an immunosuppressant. Ribavirin is one. He said notes from your specialist say the drug aren't immunising, so you'll just have flu. When he prescribed the amocillin, I asked him to check for viekira interactions. I spelt it for him and he said your spelling it wrong. I said it's not passed here it's on compassionate grounds. He said how can I look it up? I said google. He awkwardly laughed and said good idea. I knew I was on a winner then.  :'( cal

Hey Cal  8)

Bwahaa! "knows nothing and isn't afraid to flaunt it!" :D You crack me up!

"How can I look it up?" umm... YIKES! crawls away in fear for one's life, leaps to mind!

Oh dear Heaven. I think he owes you a lab coat and a stethoscope.

How're you doing today?... Any better?

Sticky beaks indeed!

<3 Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #220 on: September 26, 2015, 06:57:32 pm »
Marianne ,
I'm ok in the morning cough wise but am really weak. Then evenings the cough steps up, it's like I'm barking? Other than that I'm peachy. :)how are you doll? Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #221 on: September 26, 2015, 07:04:40 pm »
Hey Cal :)

That just sounds d r e a d f u l!... Hope that 5 year old stand in Dr. of yours gave you good cough medicine!

As for me, mild riba cough. Heavy nausea day. Feel like I have the flu.Yesterday was good though.

Your pile on of sx's makes me feel like the big whiney babby that I am though ;D

Cheers to better, hep c free days!

Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #222 on: September 26, 2015, 07:16:00 pm »
Oh Marianne,
Don't compare to me for goodness sake. I went in sick, I didn't expect it to be easy. Truthfully, I didn't expect it to be this hard either :'( yes 5 year old Doctor (love it)  let's me know ?Monday the test results. Will post as soon as I get them. I gave a friend on 24 weeks with similar flu type illness and she's been on anti biotic for five weeks. Have to ask my specialist about being on probiotics? I must remember to have Greek yogurt everyday, but it makes me nauseous.

So your having a nauseous fluey sxs day, sorry darling, tomorrow if another day. Viekira the gift that keeps on giving. Cal :-\
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #223 on: September 30, 2015, 11:37:29 pm »
Cal,,,,how are you doing? Are your side effects getting any better? I was thinking about you earlier and hoping that the side effects have taken a break and given you some stress free days. It's been a rough road for you, but a quitter you are not! LOL!!! Just wait until this is all over and you can look back and go WOW,,,I MADE IT, AND I WON!


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #224 on: October 01, 2015, 12:12:20 am »
Dear Scout,
I'm ok. Kickin and gougin my love. Infection still with me but not as bad. I did my 6 weeks bloods today. So see my GP next week Tuesday and the following week Thursday I see the specialist.

I have a low grade stress feeling a lot, like I'm working really hard but I'm not? Ribas I think. I am losing some air too. But that happened last time. I went out today and did some groceries and came back and lied down. Today is best day I've had for a while.

Yes it is all worth it and I'll look back, and will vaguely remember counting down 12 weeks. Blah! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #225 on: October 01, 2015, 07:18:24 pm »
Hi all,
I had my first sleepless night last night. Intake 2 RIBA at night and 1 in the morning , do you reckon I could swap that round? I'll also take it earlier. I took a sleeper but it did nothing.
I also woke up like I had run a marathon. Hopefully it's just under used muscles being used again after the last 6 weeks hospital, infection resting etc. etc. but have to go out today to sons lecturer appointment. Hope I can understand what he's talking about.  :-[ . Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #226 on: October 01, 2015, 07:26:45 pm »
I took my pm riba dose 2 hours before taking my last pm viekira pill.

I  don't think it matters.

If you are on only 2 , I would definitely take em in the morning.

Call Abbyvie and talk to tech.

I would definitely take as early as you need to so you can sleep.

and no caffeine if you are a coffee drinker, etc.

dm
« Last Edit: October 01, 2015, 07:30:45 pm by drummerman »
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #227 on: October 01, 2015, 07:28:22 pm »
ps - my coughing/wheezing  that I had for 6  weeks is just now starting to go away.
Went to doc 3 times about it.  I assume it was the riba.

I had chills too... teared up a lot too.

Its a tough fight....hang in there!

dm
« Last Edit: October 01, 2015, 07:31:27 pm by drummerman »
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #228 on: October 01, 2015, 07:38:57 pm »
Hi DM,
Oh yes the cough and the chills. Also sweats. Yes it ain't  no picnic . But I am hanging in. I just took some ibuprofen. That seems to have helped a but. Oh test and the watering eyes. I also get a nose bleed most days. I am anaemic enough without losing any! Cal >:(
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #229 on: October 01, 2015, 07:42:46 pm »
I took my pm riba dose 2 hours before taking my last pm viekira pill.

I  don't think it matters.

If you are on only 2 , I would definitely take em in the morning.

Call Abbyvie and talk to tech.

I would definitely take as early as you need to so you can sleep.

and no caffeine if you are a coffee drinker, etc.

dm
Hi DM,
No only drink ware and one cup of decaf tea. I'll change the dose around and have it at 5.30 instead go 7.30pm 9h great another time to remember to take a pull!  I see my specialist next Thursday and I'm sure he won't care. He doesn't seem to think we need the ribas at all. Must be newer research out. Thanks. Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #230 on: October 01, 2015, 10:26:34 pm »
Hi DM,
No only drink ware and one cup of decaf tea. I'll change the dose around and have it at 5.30 instead go 7.30pm 9h great another time to remember to take a pull!  I see my specialist next Thursday and I'm sure he won't care. He doesn't seem to think we need the ribas at all. Must be newer research out. Thanks. Cal

Since you are down to 3 , I don't think it really matters a bit when you take them.

Yeah, I had 3 times to remember.

dm

Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #231 on: October 02, 2015, 03:10:26 am »
Hi DM,
Yes went down from 5 to 3 in that second week I ended up in hospital. It still feels like I'm on 20! I have Riba rash all over now, I look very attractive :-* I also have riba rage, which has been a shock, I didn't get it last time. I nearly punched my sons door and stopped myself. He was so shocked. I explained to him about the riba rage and he said I've never seen you so mad. He was scared. I scared myself. :-\
Do you feel different today not having your VPak fix? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #232 on: October 02, 2015, 03:32:50 am »
Hey Cal, don't be too hard on yourself.  It's the riba.  I had it on the last treatment... I was a nut case and had to hide in my bedroom most of the entire year to keep from who knows what.  If someone (especially my loved ones) just walked past me, it ticked me off.  If someone asked me a question, it ticked me off.  Everything ticked me off.

You are quite special for all that you have been through and how you are coping.  You are in my thoughts and I hope after this treatment everything wonderful in the world happens for you!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #233 on: October 02, 2015, 03:50:52 am »
Darling Bree,
You are to kind to me. Kinder than I would be to myself anyway. Yes I know rationally it's not my fault, but it's like being possessed! It sounds like you has your share of possessions!

Bree thank you for being so good hearted, Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #234 on: October 02, 2015, 06:40:04 am »
Hi DM,
Yes went down from 5 to 3 in that second week I ended up in hospital. It still feels like I'm on 20! I have Riba rash all over now, I look very attractive :-* I also have riba rage, which has been a shock, I didn't get it last time. I nearly punched my sons door and stopped myself. He was so shocked. I explained to him about the riba rage and he said I've never seen you so mad. He was scared. I scared myself. :-\
Do you feel different today not having your VPak fix? Cal :)

Yes, I feel different.

Not better, just different.

It takes awhile for the riba to get out of your system, as I understand it.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

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  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #235 on: October 02, 2015, 12:00:24 pm »
Yes went down from 5 to 3 in that second week I ended up in hospital. It still feels like I'm on 20! I have Riba rash all over now, I look very attractive :-* I also have riba rage, which has been a shock, I didn't get it last time. I nearly punched my sons door and stopped myself. He was so shocked. I explained to him about the riba rage and he said I've never seen you so mad. He was scared. I scared myself. :-\

Hang in there, Cal! The riba can be tough, for sure. I had some problems with rash, and more probs with riba rage. Had to deactivate my Facebook account. I was just going psycho-berserk on people. And I was having near-psychotic rages where I just could not think straight. Fortunately I live alone and can keep to myself when I want to or need to.

Stay strong! It's worth it in the end.

kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #236 on: October 02, 2015, 05:23:34 pm »
DM,
That sounds really ominous. Yes apparently RIBA is in plasma for approx 4 or so weeks but it's in hidey place for up to 6 months. So you will feel the RIBA for a little while. Apparently it's not enough to be therapeutic, but I like to think it's helping out in some way to get us to SVR. Don't be despondent DM, you're UND heading to SVR. You can deal post tx, you've done it before. I think we all put our post tx stuff down to ifn and didn't give RIBA as much blame as we should. You'll bounce back eventually, you had a good tx so I think sooner rather than later. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #237 on: October 02, 2015, 05:35:45 pm »
Hi Kim,
Yes, relationships are very tenuous on RIBA. I belong to an Australian forum and have done for 5 years. I got into a fight (not like me, I'm a peacemaker if anything) with a friend. We are lunching Tuesday, or he is dropping in. I guess well have a laugh about it. He's a relapser too after 60 weeks on SOC. So he knows RIBA rage oh too well. He was posting that I was misunderstanding and noypt getting what he was saying. He was right. Biy am I glad I didn't post the elaborately mad postings I constructed. It's really hit me hard this time.

Living alone sounds really nice Kim. I guess your in the north? I'm an inner city dweller. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

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  • Posts: 1,968
  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #238 on: October 02, 2015, 06:39:20 pm »
Hi Kim,
Yes, relationships are very tenuous on RIBA. I belong to an Australian forum and have done for 5 years. I got into a fight (not like me, I'm a peacemaker if anything) with a friend. We are lunching Tuesday, or he is dropping in. I guess well have a laugh about it. He's a relapser too after 60 weeks on SOC. So he knows RIBA rage oh too well. He was posting that I was misunderstanding and noypt getting what he was saying. He was right. Biy am I glad I didn't post the elaborately mad postings I constructed. It's really hit me hard this time.

Living alone sounds really nice Kim. I guess your in the north? I'm an inner city dweller. Cal :)

Hi Cal. I live downtown in a small heritage cottage (originally a coalminer's cottage) in a town of about 80,000 in Canada. Will save the rest of the details for when I "out" myself and start doing some advocacy work. Not quite to that point yet… ;)

I have lived alone all my adult life, since I was 20 or so. I'm 61 now. Solitude is bliss for me.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #239 on: October 02, 2015, 09:07:38 pm »
Canada!
Oh Kim I've always wanted to go to Canada, my father lived in Ontario as a child. It looks so beautiful. Where you live sounds like bliss I have a picture of it in my mind's eye. Living alone sounds very attractive at the moment to me! Hopefully I won't hate everybody in the world soon! Hehe. Cal :P
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #240 on: October 02, 2015, 09:25:49 pm »
Canada is gorgeous. I'm heading over in Dec to see my daughter who lives in Vancouver. Last time I went over I travelled from Van, through Montreal, Quebec, Toronto, Halifax and on to Newfoundland. I also popped over to Vancuver island for the weekend and took the snow train to Jasper. I had a fabulous time.

This time I hope to get to Ottawa, more TO and over to Tofino. We are also planning on going to Cuba.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #241 on: October 02, 2015, 10:06:11 pm »
DM,
That sounds really ominous. Yes apparently RIBA is in plasma for approx 4 or so weeks but it's in hidey place for up to 6 months. So you will feel the RIBA for a little while. Apparently it's not enough to be therapeutic, but I like to think it's helping out in some way to get us to SVR. Don't be despondent DM, you're UND heading to SVR. You can deal post tx, you've done it before. I think we all put our post tx stuff down to ifn and didn't give RIBA as much blame as we should. You'll bounce back eventually, you had a good tx so I think sooner rather than later. Cal :)

Thanks Cal.  Everyday is different.  Didn't sleep one minute last night... it was weird..my mind was just racing from one thing to another and could  not get the tune to Strauss's Blue Danube to quit playing in my head... drove me crazy... I was actually glad to get up and get this day over with.  Had work, but fortunately I was able to show a video to 3 of my classes and then play a stupid pep assembly and they had to play for a Leukemia walk,  had to take a 1.0 time release Xanax to make it through the day.  Made it all tolerable.

Your right though ,  the last time I actually got used to the post tx sides and just learned to keep my mouth shut.

Fun times!
dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #242 on: October 02, 2015, 10:12:30 pm »
Hi Kim,
Yes, relationships are very tenuous on RIBA. I belong to an Australian forum and have done for 5 years. I got into a fight (not like me, I'm a peacemaker if anything) with a friend. We are lunching Tuesday, or he is dropping in. I guess well have a laugh about it. He's a relapser too after 60 weeks on SOC. So he knows RIBA rage oh too well. He was posting that I was misunderstanding and noypt getting what he was saying. He was right. Biy am I glad I didn't post the elaborately mad postings I constructed. It's really hit me hard this time.

Living alone sounds really nice Kim. I guess your in the north? I'm an inner city dweller. Cal :)

Thats funny!  i got in huge arguments on Med no Help.   And also got kicked off that forum that was about lords and ladies...and I wasn't even fighting there.. I was just trying to help people learn about IR and how it effects tx.  There were all like "well the doctor say, bla , bla, and you have to go with what they say"....it was so weird... don't know why they were so "Don't talk about IR"....they were really hostile to the whole idea.

Riba... the drug that keeps on giving.

dm

Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #243 on: October 02, 2015, 11:35:24 pm »
DM,
You sound like you had a difficult day. No sleep is pretty tough but we can cope, wer'e tough cookies us txers. Xanax and valium my favourite little helpers! Yes when you think about the past post tx, this is going to be nuffin". Keep rolling with the punches DM and one day it'll be over in a snap!

Yeah fighting over the smallest point and being so angry with others for not agreeing. Getting in fights over mental stuff that we would normally just shrug our shoulders over and think what a twat! Too hilarious getting chucked off of Med Help that's the teenage equivalent of being chucked  out of the pub! Our forum has been onto IR since I joined 5 years ago, I went onto a low GI diet as soon as I joined the forum. I should re visit the IR ting, because I returned a high blood free glucose reading, which is a sxs of Vierkira, note: 'that sometimes does go away". So need to watch our IR on Viekira too! Cal :) PS You'll sleep tonight.
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

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  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #244 on: October 02, 2015, 11:56:44 pm »
Canada!
Oh Kim I've always wanted to go to Canada, my father lived in Ontario as a child. It looks so beautiful. Where you live sounds like bliss I have a picture of it in my mind's eye. Living alone sounds very attractive at the moment to me! Hopefully I won't hate everybody in the world soon! Hehe. Cal :P

It is very beautiful here, Cal. Even though I am right downtown, I have deer and raccoons in my backyard. (Not such a great thing for the garden, mind you - the raccoons broke all the branches off one of my beautiful and bountiful fig trees in July before I figured out what was going on!) And while I don't have a bear swiping the apples from my backyard like Katie did, there were three bear cubs just 2 blocks away on my street in a vacant lot that had some untended apple trees. So nature is pretty much at the doorstep here. ;) I am a keen birdwatcher and have many opportunities close at hand.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline KimInTheForest

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  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #245 on: October 02, 2015, 11:57:53 pm »
Canada is gorgeous. I'm heading over in Dec to see my daughter who lives in Vancouver. Last time I went over I travelled from Van, through Montreal, Quebec, Toronto, Halifax and on to Newfoundland. I also popped over to Vancuver island for the weekend and took the snow train to Jasper. I had a fabulous time.

This time I hope to get to Ottawa, more TO and over to Tofino. We are also planning on going to Cuba.

Wow! That's quite the itinerary, Philadelphia. I PM'ed you in case you are coming through my town and have time to meet up. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #246 on: October 03, 2015, 12:15:07 am »
That would be nice if you could meet up


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #247 on: October 03, 2015, 12:18:54 am »
Cal, I have been working full time with young kids and today was the first day I just looked at my boss and said "I can't do it, my legs are here, they just don't want to carry my torso..lol" and left work. I have been working a lot but I am just plum wore out! I have sixteen days to go, but I seem to wear out pretty easy this last weak. I blame it on work though, I walked 32,500 steps on my shift yesterday. Eeeeegadds


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline KimInTheForest

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  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #248 on: October 03, 2015, 12:48:33 am »
Thats funny!  i got in huge arguments on Med no Help.   And also got kicked off that forum that was about lords and ladies...and I wasn't even fighting there.. I was just trying to help people learn about IR and how it effects tx.  There were all like "well the doctor say, bla , bla, and you have to go with what they say"....it was so weird... don't know why they were so "Don't talk about IR"....they were really hostile to the whole idea.

Am wracking my brain trying to figure out what "IR" is. Probably something really obvious…

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #249 on: October 03, 2015, 01:24:36 am »
Kim, now you got me too....something with Interferon RIBA and the rage it causes during treatment? Dunno, now I am curious. Interferon rage? Lol


Scout


F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #250 on: October 03, 2015, 05:58:13 am »
It is very beautiful here, Cal. Even though I am right downtown, I have deer and raccoons in my backyard. (Not such a great thing for the garden, mind you - the raccoons broke all the branches off one of my beautiful and bountiful fig trees in July before I figured out what was going on!) And while I don't have a bear swiping the apples y a mini from my backyard like Katie did, there were three bear cubs just 2 blocks away on my street in a vacant lot that had some untended apple trees. So nature is pretty much at the doorstep here. ;) I am a keen birdwatcher and have many opportunities close at hand.

kim
OMG Kim,
It sounds like out of the movies! Raccoons and deer. Wow and bear cubs, too cute! Though I assume their mummies and daddies aren't that cute. So they go for apples? Bird watching too, what a wildlife paradise.
I am inner city but we still have possums and bush turkeys, lorikeets, parrots and my dog Smithers! My beautiful boy a mini fox terrier. He's old now blind in on eye a bit deaf, still naughty as ever.

I am a cat person really, but he's a family dog. And my sons are grown up, so who's left with the dog? Mum of course. Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #251 on: October 03, 2015, 06:03:52 am »
Scout,
A lot of people work on this tx. I tried to work last tx but had to give it up. I was in medical research in PSTD. I loved my job and my patients but I couldnt think clearly. It's horrible to admit it's got to you, but if work has been heavy going and tx has been exhausting, easy or not, then it's ok to let yourself off the hook. I hope you get a good rest and be gentle with yourself. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #252 on: October 03, 2015, 06:10:28 am »
Scout and Kim,
I. R. Stands for Insulin Resistance. It was a big thing in info and RIBA tx. The lower your I. R. The better your chance of clearing. Also HCV predisposes you to diabetes.
So now you know!!!

Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

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Re: Cal on Vierkira Pak & Ribas
« Reply #253 on: October 03, 2015, 10:59:52 am »
I actually think I am getting a cold. Bummer, there are a lot of people sick at work and my kids go to different schools,,,EEEEK...NOT NOW.... I am so close to being finished!




Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline KimInTheForest

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Re: Cal on Vierkira Pak & Ribas
« Reply #254 on: October 03, 2015, 11:05:16 am »
Scout and Kim,
I. R. Stands for Insulin Resistance. It was a big thing in info and RIBA tx. The lower your I. R. The better your chance of clearing. Also HCV predisposes you to diabetes.
So now you know!!!

Cal :)

Thank you Cal. Good to know! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline KimInTheForest

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Re: Cal on Vierkira Pak & Ribas
« Reply #255 on: October 03, 2015, 11:08:58 am »

I am inner city but we still have possums and bush turkeys, lorikeets, parrots and my dog Smithers! My beautiful boy a mini fox terrier. He's old now blind in on eye a bit deaf, still naughty as ever.

I have not seen any of those animals "in the wild" - well, maybe a fox terrier. But not the others. Oh, I did see parrots in the jungle in Guatemala. No doubt different species from what you have in Australia. Have always wanted to go to Australia for the phenomenal birding I could do there. A whole world of new (to me) species to add to the Life List. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline drummerman

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Re: Cal on Vierkira Pak & Ribas
« Reply #256 on: October 03, 2015, 01:54:36 pm »
DM,
You sound like you had a difficult day. No sleep is pretty tough but we can cope, wer'e tough cookies us txers. Xanax and valium my favourite little helpers! Yes when you think about the past post tx, this is going to be nuffin". Keep rolling with the punches DM and one day it'll be over in a snap!

Yeah fighting over the smallest point and being so angry with others for not agreeing. Getting in fights over mental stuff that we would normally just shrug our shoulders over and think what a twat! Too hilarious getting chucked off of Med Help that's the teenage equivalent of being chucked  out of the pub! Our forum has been onto IR since I joined 5 years ago, I went onto a low GI diet as soon as I joined the forum. I should re visit the IR ting, because I returned a high blood free glucose reading, which is a sxs of Vierkira, note: 'that sometimes does go away". So need to watch our IR on Viekira too! Cal :) PS You'll sleep tonight.

It was a longggg day for sure.

I actually didn't get kicked off med no help, I got kicked off the website thats all about Lords and Ladies and you to certain levels like Squire, Knight, etc. There's a watered down version still up...

I didn't worry about IR on Viekira....  with these new meds I don't think it really matters...fingers crossed.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #257 on: October 03, 2015, 05:49:35 pm »
Kim,
You'd love the birds here. My Dad feeds them in his garden every morning they cluster around the bowl, biting each other and the bread and honey. It's truly beautiful. He used to have a big bird bath in the old house (he's in a villa now, he's 89) and they would flutter around on hot days. We used to have cockatoos in the wild at our house on the hill, before the
Bed elopers moved in. That's the problem here. South east Queensland is one of the largest growing areas in the world. It us becoming unbearable. Houses are being sold for u it sites everywhere . The habitat is being ruined. We gave had a number if corrupt premiers of our State who bend to the developers whim, if  you know what I mean. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #258 on: October 03, 2015, 06:02:04 pm »
It's funny that you talked about watching the birds yesterday, as that's exactly what I was doing as I was doing the draws and admin for a big equestrian event we are running. I am on 5 acres here and I have quite a few trees and shrubs around me. When I look out the window as I'm sitting at the table, I can see the bird bath, a lilac shrub, a big hawthorn bush, a mock orange, claret ashes and lots of other trees.

I'd just refilled the bird bath yesterday so all the birds dropped in for a saturday bath. It was like watching a mini Serengeti waterhole in action. Minus the lions of course. 
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #259 on: October 03, 2015, 06:08:40 pm »
DM
Did you sleep ok? Poor you ???
I'm afraid you lost me with the lords and Ladies thing DM! Sounds a bit Dungeons and dragons ....kidding ::)

Yeah apparently there has been some glucose readings that are high and I read that this doesn't always resolve as a sxs of ?Viekira. I am about to re group on the whole IR thing. I had a high glucose reading which went back to normal, but I am not going to play Russian roulette. It's not that different to what I eat, I just need to buy low GI rice, cereals etc and remember what is what. Will print out a shopping list.

Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #260 on: October 03, 2015, 06:14:29 pm »
It's funny that you talked about watching the birds yesterday, as that's exactly what I was doing as I was doing the draws and admin for a big equestrian event we are running. I am on 5 acres here and I have quite a few trees and shrubs around me. When I look out the window as I'm sitting at the table, I can see the bird bath, a lilac shrub, a big hawthorn bush, a mock orange, claret ashes and lots of other trees.

I'd just refilled the bird bath yesterday so all the birds dropped in for a saturday bath. It was like watching a mini Serengeti waterhole in action. Minus the lions of course.
Your place sounds beautiful. We have to get away from the city. I have always lived here because of work and the theatre. I never thought I would want to move away, but it's getting so crowded, such a rat race. It's not the place it was even 5 years ago. Wouldn't mind northern NSW but the boys are still at uni, so were stuck until they finish.
I dream of being on acreage and having that peace. You are very lucky.cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #261 on: October 03, 2015, 06:15:18 pm »
My glucose was way high at the beginning (14.8 ) and settled down to be mostly still too high (8 or so fasting).

My GP wanted me to start "doing something" - drugs or something. My specialist wanted me to wait till the treatment was finished and everything was out of my system.

He won.

I'm totally ignoring it for a month or so more.

I don't eat a lot of processed foods, don't drink soft drinks or carbonated sweet drinks, get exercise and am pretty slim.

I'll see how it goes.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline drummerman

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Re: Cal on Vierkira Pak & Ribas
« Reply #262 on: October 03, 2015, 06:18:12 pm »
DM
Did you sleep ok? Poor you ???
I'm afraid you lost me with the lords and Ladies thing DM! Sounds a bit Dungeons and dragons ....kidding ::)

Yeah apparently there has been some glucose readings that are high and I read that this doesn't always resolve as a sxs of ?Viekira. I am about to re group on the whole IR thing. I had a high glucose reading which went back to normal, but I am not going to play Russian roulette. It's not that different to what I eat, I just need to buy low GI rice, cereals etc and remember what is what. Will print out a shopping list.

Cal

Slept good last night!  Thanks for asking.

I just can't to the low carb thing anymore.    Anyway, ever since I went UND , I have not been hungry all the time and able to eat far less food.   I am assuming I am no longer IR... a symptom of HCV.

Will get a fasting glucose and insulin blood test as soon as I am svr.

Bet it will look normal!

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #263 on: October 03, 2015, 06:24:25 pm »
I'd love to live in the city. No, scratch that, I'd love to have a place in the city! And my place here.

Five acres isn't much, but it's enough. We've got a few BIG sheds, a workshop, three stables, a round yard, 5 paddocks and a house. The house is only small but I figure it's less to clean. We only have the one horse on it now, six chooks, two dogs and a big orange cat.

My partner's parents have 10,000 in NW NSW but that's a bit too isolated for me now. We used to live in the outback but eventually the lack of opportunities for the kids and the need to send them away to boarding school wore me down. Luckily my job is transportable.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #264 on: October 03, 2015, 06:25:46 pm »
that's really interesting DM. I've been surprised at how full I get on what seems like less food than before. I wonder if it's what you are talking about.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #265 on: October 03, 2015, 06:39:38 pm »
DM and Phily,
Yeah you guys are close to SVR, you've finished tx so wait till you get results, then like you say DM check IR. I didn't think it mattered on this tx but after getting the one of high reading I panicked. Dad had diabetes 2 and the HCV predisposition just irked me a bit.cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #266 on: October 03, 2015, 06:41:37 pm »
Phily,
Be great to have a unit in the city so you could still be in the cultural hub of things and keep your acreage. I'd like that. Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

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Re: Cal on Vierkira Pak & Ribas
« Reply #267 on: October 03, 2015, 06:43:49 pm »
that's really interesting DM. I've been surprised at how full I get on what seems like less food than before. I wonder if it's what you are talking about.

yep! and not as hungry between meals too, I'll bet.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #268 on: October 05, 2015, 03:02:48 am »
Phily,
I recall one if your earlier posts about a test to see if you have too much RIBA in the body. What is the name of the test, do you recall? Thanks. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #269 on: October 05, 2015, 06:21:31 am »
It's called a Ribavirin level test I think. ;)

I still have the paperwork in my car, I'll have a look tmw.

Basically it operates from the basis of determining a ribavirin dosage that maintains a  range that provides a therapeutic benefit. Now some people don't hold with it, but my specialist does. When they ran this test on me they found I had a significantly higher concentration of riba than many and that's what was causing me grief.

They immediately reduced it and I picked up quickly.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #270 on: October 05, 2015, 06:56:59 am »
Thanks Phily,
Much obliged, cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #271 on: October 05, 2015, 09:02:12 pm »
Phily,
I am going to ask the GP today to ask my Gastro for my visit next Thursday. Is it a blood test? Thanks. Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #272 on: October 05, 2015, 09:49:13 pm »
Yep
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #273 on: October 06, 2015, 12:40:07 am »
Cool. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

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Re: Cal on Vierkira Pak & Ribas
« Reply #274 on: October 06, 2015, 03:46:33 am »
Hi y'all,

I'm thinking, with all the riba/rage and riba/bawling that I'm going to request that test too. I'm on 1200 mg a day.

Seems like once it built up in my blood, I took the train straight to crazy town,population me. Dearest family and friends...Please stay back 50 feet, cause I'm a genuine 3-D chemically induced, nut job right now...

Was gonna say "you have no idea how certifiable this bleepity bleep bleep bleeping stuff is!!!" But YOU DO!!!

God bless you all for sharing, cause I've got hope now that it'll calm down... Thank YOU JESUS!!! And than you forum friends!!!

<3 Marianne
« Last Edit: October 06, 2015, 01:17:29 pm by byebyeC »
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #275 on: October 06, 2015, 04:35:05 am »
Marianne,
I lost the plot seriously for a few weeks there. I am still a danger to myself and others.  ::) I try now to keep my mouth shut, because I have no judgement at all.

We've all been to Crazy town compliments of Ribavirin. Sometimes it's hard remembering what normal is. Then I put down the knife and ask my sons nicely to make their beds.........mmmm.....its the ones around close to us that hold up the mirror. The look on my son's faces just tells me straight away now, I'm being a loony tune. 

Don't be hard on yourself chickie, it's part of the package. Cal :-*
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #276 on: October 06, 2015, 04:46:24 am »
Hi Y'all (I said it just lie you guys do!)

I went to the GP and my specialist is in Vanuatu on holidays, so she couldn't call him about the Riba Test. But said it was a great idea. She got a text from him checking up on me. He really is a caring professional man. I am lucky. She also devoured the Immunology Journal publication on HCV co Morbidities (called something else, I got it on Marianne's link I think. She wants me to give it to my Specialist. I shall have to word it nicely. Just in case he's been researching that for 5 years or something. :-[

Bloods: 1/10/15
HB 107 bit low (115-165) not drastic
AST 22
ALT 17
GGT 15

Pretty stoked with that! Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

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  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #277 on: October 06, 2015, 01:25:12 pm »
Cali Girll!

You crack me up just when I need it the most!!! Finally, this morning, I'm starting to feel the werewolf fur starting to fall off, the fangs recede, the hump on the back of my neck is slowly disappearing...I'm starting to feel almost pre-loony, hands in the air!!!

Thanks all for making me see I wasn't alone.

Thanks Cal for virtually holding my hand while I flew over the cuckoos nest, muah!

<3 Marianne
« Last Edit: October 06, 2015, 01:51:10 pm by byebyeC »
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #278 on: October 06, 2015, 01:48:24 pm »
How are you feeling today, Cal?
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #279 on: October 06, 2015, 04:41:51 pm »
Cal,,,,I am almost ready to start my final countdown... ahhhhhh..what the hell....


"12"




Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #280 on: October 06, 2015, 04:47:59 pm »
Cal, I don't know if you watch baseball at all...but if the Kansas City Royals make it to the World Series I swear I am going to get tickets and have a giant sign to hold up that has a picture of me slaying a dragon! A friend of mine is an artist!!!! You will have to look for me!



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #281 on: October 06, 2015, 05:00:59 pm »
 Scout, Did My last one this morning. Yours will be over before You know it. BTW, I wouldn't go to Alaska right now. I heard tell there is a wicked blonde haired she werewolf in the loose right now. Shedding everywhere. Good Luck on the last twelve .Still working on how I am going to cut out the smoking thing. I guess that will be figured out on the other side.
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #282 on: October 06, 2015, 05:12:27 pm »
Tommy, Congrats on your completion!!!! Right there with you on the smoking thing....maybe I will start a thread on post tx and we can go through the breaking the smoking habits and quitting like we have done on this thread for the hep treatment...LOL....honestly, talking to others that truly understand what I am going through, instead of feeling all alone,,,really helped me. Don't know why, but it did, and still does,,,


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #283 on: October 06, 2015, 05:31:35 pm »
I patched up the day my first bottle of Harvoni shipped.  Strange since I'm paranoid about supplements or OTC meds of any kind while taking this.  But quitting and getting rid of the HCV just seemed like two such huge monkeys, I might as well go at 'em at the same time.

For me, without the nicotine patches? Fuggadaboutit.  Most addictive thing on the planet, bar none.  But the patches make it doable.  This time of the year it gets easier in the PacNW too.  Never was an indoor smoker so when it starts getting cold and wet outside, it's a royal pain in the butt.  A million sane reasons to quit but damn hard.

I'm pretty sure they'll always smell yummy to be me.  Fresh second-hand smoke, that is.  I just won't be a reformed non-smoker like this >>  >:(  "Gross!  That smells awful!"

I miss 'em.  But I'm old enough to miss a whole lot of wonderful things. C'est la vie.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #284 on: October 07, 2015, 01:47:12 am »
Marianne,
Don't worry there's plenty of time to hold my hand yet! 5 weeks to go. Will start countdown soon! (Maybe a bit premature!)

Glad you're ok chickie. Cal :-*
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #285 on: October 07, 2015, 01:50:04 am »
Hi Else,
I'm ok thanks. The ribas keep tricking me, telling me I feel good and to go out. Then by the afternoon I am R.S.  shaking, weak, painful muscles etc. But it's worth it to get out. All worth it though to connect with the land of the living. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #286 on: October 07, 2015, 01:52:30 am »
Scout,
12..........yes time to countdown now!!!!

No we don't get the American baseball here? I don't think? I'd try to stream it though to see you in the crowd! Cal :P
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #287 on: October 07, 2015, 01:54:51 am »
Tommy,
Hooray on EOT. Goodbye pills!

Me and Perc were in Alaska this morning and I think I saw a blonde werewolf! Perc was scared, but I tickled her not so furry tummy. Cal :-X
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #288 on: October 07, 2015, 01:56:17 am »
Scout,
We're in our tribe, that's why we feel safe. Cal ;)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #289 on: October 07, 2015, 01:58:47 am »
Else,
Virtual pat on the back there, patches and pills together. Well done! Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #290 on: October 07, 2015, 10:52:49 am »
 Hey else, Good for You & Good Luck. NEW handle---- PATCHES!!! LOL!

  Scout , You working on that banner? Houston beat the Yanks last nite!!

  Cal, Hope things are a little better today!!! Like that thought---- Global Tribe of Heppers. I would assume we accept all , including Werewolves and imaginary friends!!  LMFAO!!!

  Marianne, You can run but You can't hide!!! I SEE YOU!!!!!! LOL!! Perci told me where You were!!!! He sees everything he said!!!!!

  WHEN WE TALK TO GOD, WE ARE PRAYING! WHEN HE TALKS TO US , WE'RE SCHIZOPHRENIC!!!

73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #291 on: October 07, 2015, 11:37:26 am »
I watched the game last night, we were hoping that Houston would win, the Royals have some psychological bad vibes with the yanks! GO ROYALS!


"11"


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #292 on: October 07, 2015, 06:33:11 pm »
Patches! LOL  I love it.  Too bad there wasn't a pirate avatar.  And as it turns out, I step down to the next smaller size patch on the day of my 4 week labs. It'll be the first time I've been to my HepC doc's office since May.  Well, not counting the trip to deliver some paperwork that just couldn't seem to be received via fax on their end.  No matter who sent it.  Darnedest thing.

just when you thought is was safe to go back in the water - dun dun, dun dun, dun dun...  ;)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #293 on: October 07, 2015, 06:48:35 pm »
Hi Tommy,

I figure were fighting a war together, we must be a tribe. Yes. Global tribe. There's enough of us to form our own minority group! Ir tribe. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #294 on: October 07, 2015, 06:50:14 pm »
Eplse,
I used to laugh at your other avatar, it was so comical, nows I get a fright. You'll but that virus to death. Shark attack, get out if the water! Cal :-*
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #295 on: October 07, 2015, 06:51:12 pm »
Scout,
11 like it a lot. I'm on 5 week count down now. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #296 on: October 09, 2015, 11:11:20 am »
Cal, how are you doing today? 9 days left...I am almost scared to quit taking the Harvoni. I know that sounds a little weird.



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline KimInTheForest

  • Member
  • Posts: 1,968
  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #297 on: October 09, 2015, 12:49:10 pm »
Cal, how are you doing today? 9 days left...I am almost scared to quit taking the Harvoni. I know that sounds a little weird.
Scout

I know what you mean, Scout. I have never been a pill-taker in my life - no prescriptions, not even vitamins or health supplements. But then 12 weeks of Harvoni comes along... and I feel like I owe my life to pills and Big Pharma. Haha! Shortly after I finished treatment (and got all sick with a mysterious post-tx malaise) I found out I was deficient in some vitamins and minerals (iron, B-12, D). So I am now taking those pills each morning as religiously and devotedly as I did the Harvoni and Riba. It's as though my brain can't shut off this new (and for me artificial, counter-intuitive) belief that health comes in a pill. But this too shall pass. I expect to get myself back to a pill-free status soon.

Congrats on nearing the finish line!

best,
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #298 on: October 09, 2015, 02:17:24 pm »
Hey Kim -

I know a lot of us (at least here in the Pacific NW according to my GP) are deficient in Vitamin D.  But do you think Harvoni was involved in the B-12 deficiency?

oops - on edit, that's likely caused by ribavirin induced anemia.
« Last Edit: October 09, 2015, 02:20:03 pm by Else »
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline KimInTheForest

  • Member
  • Posts: 1,968
  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #299 on: October 09, 2015, 03:42:53 pm »
Hey Kim -
I know a lot of us (at least here in the Pacific NW according to my GP) are deficient in Vitamin D.  But do you think Harvoni was involved in the B-12 deficiency?
oops - on edit, that's likely caused by ribavirin induced anemia.

Hi Else. I don't think either the Harvoni or the Riba were responsible for my B-12 or iron deficiency. I think I had those 2 going in due to years of vegetarian diet plus drinking lots of black tea, which inhibits absorption of both iron and B-12. I probably had the Vit D deficiency going in too. The anemia caused by the ribavirin is hemolytic anemia - not iron-related. But of course, if you happen to also be iron deficient for other reasons, it will be harder and longer to recover from the hemolytic anemia after you stop the ribavirin. My red blood cells kept climbing post-treatment, but my hemoglobin would not budge from treatment levels even after 9 weeks post-treatment. I think because my body did not have enough iron to make hemoglobin for my new red blood cells.

As for the Vitamin D, I have seen reference in journals to Hep C patients who are the hardest hit with the riba-anemia also showing the lowest levels of Vit D. Whether the ribavirin causes a drop in Vit D, or whether those people started out low in Vit D, I don't know. But that is why I ended up having my Vit D checked. It was in the low end of the 'normal' range. I would rather have all those things be in the high end of the normal range. :)

cheers,
kim
« Last Edit: October 09, 2015, 09:44:53 pm by KimInTheForest »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

 


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