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Author Topic: Cal on Vierkira Pak & Ribas  (Read 301257 times)

0 Members and 2 Guests are viewing this topic.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #300 on: October 09, 2015, 06:30:16 pm »
Hey Tommy,
Still think Perci is a straight up TRAITOR!!! ;D Ask him how Tommy is for moi s'il vous pláit?

Cali girl,
How the heck are you???...

Else, Love the s h a r k!!!

Kim, you are like the app on my phone when it comes to vitamins. Everytime I see your posts, I grab a d3 and b12... So I should add iron if I develop anemia?...

Scout, so happy you're done! Can't wait to join ya!

<3 Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #301 on: October 09, 2015, 06:38:20 pm »
It's long been a test done here in Oz before tx but D and B12. Li have been on Vit D since first tx in 2011. My B12 has been ok. But friends have B12 injections whilst waiting tx. HCV does cause low Vit D  and B12.

Interesting RIBA anaemia is linked to Vit D. Recently doubled Vit D and have been feeling slightly better. But could be a coincidence, my GB is rising as well? Anyway, they are 2 essentials fir us. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #302 on: October 09, 2015, 06:43:56 pm »
Scout,
I know what you mean about the pill and psychological crutch type thing. I am so used to planning my life around these pills which are at last taking me to where I yearn to go, well -dom! The thought of not having this life giving elixir everyday and depending on it's previous good work to keep me UND and to SVR is bloody terrifying! Cal  :'(
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #303 on: October 09, 2015, 06:54:12 pm »
Marianne,
Je suis tres bien. Le RIBA est  ca va. I'm doing ok my friend. Brain clearer. Mood lifted. Giant cold sore on lip, I am the Elephant man! Body still complaining about the raised energy use. It doesn't like being used, says it feels cheap. Hehe Cal :-*
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #304 on: October 09, 2015, 07:19:01 pm »
Tout es bon!  Ah the Riba... the bloomin' riba  :P

Lol Cal :D Keep on kicking till we've knocked 'em all down!

<3 Marianne

GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #305 on: October 09, 2015, 07:36:03 pm »
Byebye....I am not there yet 9 more days....well 8 sort of....depends on if I can get the one that flipped behind the stove...





Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #306 on: October 09, 2015, 07:45:18 pm »
Sorry Scout!

Did you try the trick with the duck tape on a dowel or a long kitchen wooden spoon, ruler etc
?...

Must've mixed you up with all the other finishers. Brain fog brain fog brain fog....

We shall celebrate again then :D
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #307 on: October 09, 2015, 07:52:03 pm »
Shoot, I couldn't even get it moved out enough to get a broomstick back behind it...., apparently there is only enough room behind there for a $1200.00 pill to fit through. My ex is going to come over and disconnect the gas and get it for me.  Guess I will be nice and cook him dinner or something...LOL


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #308 on: October 09, 2015, 10:40:33 pm »
Mariane,
Yep we're all still kickin and gougin'. We're getting there dear one. We can do it. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #309 on: October 09, 2015, 10:42:13 pm »
Scout,
The pain and agony of a lost pill. You poor thing. It's like losing a diamond! Sorry you have to make dinner for the ex. It will be worth it. Cal :-*
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #310 on: October 09, 2015, 10:51:39 pm »
  Scout, That means 8 days to figure out a way!!! Or cooking dinner!!! I think dinner is a wonderful way to show You are making it just fine. Just to be safe tell Marianne to send Traitor , OOPS, I mean Perci over for backup!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #311 on: October 10, 2015, 12:33:26 am »
LOL



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #312 on: October 10, 2015, 10:29:57 am »
Got the pill! Had a nice breakfast, and apparently should have moved the stove out a long time ago, it was kind of gross under there...lol


Scout

F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #313 on: October 10, 2015, 06:10:51 pm »
South,
I have the same issue with my fridge. But I can't be bothered,  I'll wait till I drop some Viekira pak under there! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #314 on: October 10, 2015, 06:28:10 pm »
I am telling you cal it was like a slow motion film...I saw it bounce and flip and my hands just wouldn't move fast enough..did get the floor nice and clean under there...apparently your supposed to pull your stove out more than once in ten years...lol



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #315 on: October 10, 2015, 06:30:09 pm »
I think it's everyone's worse nightmare losing a pill! I can see it I in slow mo too! Cal  :'(
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #316 on: October 11, 2015, 12:14:31 pm »
Scout,

This may make you laugh, actually all of you, but I've been missing one of my morning orange pills for the past week. Searched everywhere around the pill box. Several days later, I find it under my sewing table with the orange licked off and various and sundry "particles" attached... We have a one year old Labradoodle...Thank Heavens he didn't find the inside delicious as well! :D And, yes folks, I had to go rinse it off, so I can p u t  i n   m y  m o u t h...hurl!

I just love our puppy, but as Job in Arrested development says "Come on!"

Glad you got your precious pill back Scout 
<3 Marianne

https://www.youtube.com/watch?v=81Nl7VYFEaI
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #317 on: October 11, 2015, 04:14:44 pm »
Byebye that is too funny. My boss was looking at me because I was laughing out loud. It's amazing some of the things we will do isn't it? Well I rinsed grease and some kind of furry stuff (lord only knows what it was) and slammed it....hurl...LOL



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #318 on: October 11, 2015, 04:21:14 pm »
Well byebye...now at least you have an excuse...my dog ate my harvoni  :)
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribaspp
« Reply #319 on: October 11, 2015, 07:47:57 pm »
Marianne,
That's hilarious. Dogs will eat anything. You're lucky he didn't hobble it Dow. My dog Smithers eats anything that hits the flor. Bottle top, caps, paper, plastic. He doesn't wait to find out if it's edible!

Live that you rinsed it out and threw it down the hatch. Each pill is a precious gem.  :-* cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #320 on: October 11, 2015, 10:20:32 pm »
good thing you did not have to wait for the dog to do his business
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #321 on: October 11, 2015, 10:32:53 pm »
Beto,,,how are you feeling now that you are done with your meds


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #322 on: October 11, 2015, 10:37:28 pm »
Beto,,,how are you feeling now that you are done with your meds


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #323 on: October 11, 2015, 11:01:02 pm »
good thing you did not have to wait for the dog to do his business


Good on ya!!!!! Cal :P
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #324 on: October 11, 2015, 11:03:40 pm »
You naughty Beto!!! Eeeeeewwwww!!!!  :P :P :P
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #325 on: October 11, 2015, 11:15:37 pm »
teehee
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #326 on: October 13, 2015, 06:48:48 pm »
Hi all
8 weeks tomorrow. I am starting to feel better each day. I see the specialist tomorrow and will ask if i am having a V/L  at 12 weeks. Boy I hope so. I see the GP today and I had Bloods yesterday, LFT  and FBC . So will have something to report.

Does anyone else get brain zaps or jerks when falling asleep? They went away but came back this week? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #327 on: October 13, 2015, 08:27:44 pm »
Hey Cal,

I had 2 or 3 jerks while I was sleeping.  Kind of like the feeling you get right before you fall off a cliff.  weird.  Glad they weren't common.

How many more weeks do you have left on tx?

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #328 on: October 13, 2015, 08:55:36 pm »
Cal has 4 1/2 weeks left of a 12 wk course.  'Cause I'm all minding other people's business.  (3 hours sleep last night and punchy as a loon right now!  :o)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #329 on: October 13, 2015, 09:33:57 pm »
Scout,

Sorry just saw this...I am fair since end of meds.  A bit moody, but pretty good energy.  Of course like everyone else concerned about EOT bloods.  Hard to know because other sort of big stuff is goin down.

Cal- Congrats...keep on truckin' you gots this!!
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #330 on: October 13, 2015, 09:44:19 pm »
Thanks Else for the update on Cal,

Sorry to hear about your sleep issues.

Thought I was over the insomnia but had to take an ambien the other night.

It comes and goes.

I can tell I still have riba in my system cause I still get the weird little itches on my face...no rash... just scratch em and they quit itching.... so weird.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #331 on: October 14, 2015, 04:41:21 am »
Hi DM,
So they a sxs to! Where do these ribas get off terrorising us? It's spooky. I have 4 weeks left tomorrow. It's 6.40pm Wednesday night here. 18 hours ahead. Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #332 on: October 14, 2015, 04:43:16 am »
Else,
you poor darling" Punchy as a loon! At least your still making me laugh, minding other people's business, hehe. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #333 on: October 14, 2015, 04:51:28 am »
Thanks Beto,
I had some blood results today. Pretty happy.

AST  24
ALT   21
GGT  14

HB  122 (115-165) reference. So normal!

Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #334 on: October 14, 2015, 08:16:31 pm »
yeah Cal...woohoo...them's some small numbers yo... ;)
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #335 on: October 15, 2015, 12:32:41 am »
Thanks Beto,
Yes they look pretty good to me. I am just back from the Gastro and he has put my riba up 1 pill a day. on 4 a day again. Yippee! Feel like a deflated balloon. Cal :(
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #336 on: October 15, 2015, 01:19:30 pm »
Cal,

Hang in there girl friend.  I know, easy for me to say from the fence of EOT and having not had to endure the rigours of ribo.  You are going to beat this thing.

peace

beto
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #337 on: October 15, 2015, 01:43:32 pm »
Oh Cali girl!

Just hide all the household weapons and warn your family lol :D  4 more weeks!!! Go Gurrrrllll!!!

xoxoxoxox
Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #338 on: October 15, 2015, 02:07:54 pm »
Cal........3days left


Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #339 on: October 15, 2015, 04:40:22 pm »
Beto,
Thanks. I will get over it. I have been crying and am pretty upset. But have yo suck it up. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #340 on: October 15, 2015, 04:42:31 pm »
Marianne,
My husband was all out out by my news so I punched the kitchen bench and hurt my hand! Yes hide those weapons, and I haven't even gone up one RIBA yet!

Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #341 on: October 15, 2015, 04:43:40 pm »
Good on you Scout. Don't eat them all at once. No more under the fridge or being eaten by our pets either! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #342 on: October 15, 2015, 05:04:32 pm »
Cal, why did they add the extra riba?


Go Royals

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #343 on: October 15, 2015, 06:37:04 pm »
Thanks Beto,
I had some blood results today. Pretty happy.

AST  24
ALT   21
GGT  14

HB  122 (115-165) reference. So normal!

Cal :)

Good numbers, Cal! And good for you for hanging on to your hemoglobin somehow with the ribavirin doing its thang! You must be into Week 8 now? My hemoglobin was 96 by then, and I was feeling it!

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #344 on: October 16, 2015, 03:14:50 am »
Hi scout,
I'm upping the ribas because my HB is not too bad. It was 107 2 weeks ago but climbed incredibly. We want to give it all we can, not knowing if I am resistant or not because if previous txs. I probably am resistant. Still waiting for test results. Been waiting for 9 weeks, they only do them in batches of 50 so don't know where I am. However my Gastro saw  the dude who does them at a seminar and asked to put mine through ASAP. However, they are finding that resistance isn't an indication of SVR anymore! There are no studies long term. But I found a small one yesterday which I'll go find and post back here again. So Doc wants to throw as much as we can at it and ribas raise the stakes, so has to be done.
So hoping for SVR but also not getting too excited if you know what I mean? Gastro thinks we've got it beat but I'm a relapser so I take a lot if convincing!
Merck has apparently in development a drug that negates resistance completely! How cool is that? Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #345 on: October 16, 2015, 03:22:03 am »
Hi Kim,
Into week 9 now. Yep back on another RIBA because HB has shot up to mildly anaemic! So looking to go under again. Was around 107 about 2 weeks ago. Happy days ahead. May also be extending another month. Not set in stone yet. Im in the groove now, what's another RIBA and another month? It'll mean I'm only half way. But I'll be killing that *******!!!!! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #346 on: October 16, 2015, 04:10:48 am »
Here's that link to a very small research group on retreating after relapse on DAAs.



http://www.natap.org/2015/EASL/EASL_69.htm
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #347 on: October 16, 2015, 05:44:14 am »
Hang in there Cal!  This does have an endpoint... you will get through this and it will be worth it.  I am holding space for you that you will be cured with this go round.  It's just your time, that's it!

I've been so busy, I haven't had time to get on the forum.  I'm doing really well... I have more energy that I have had since I can even remember.  Amazed.  Grateful.
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #348 on: October 16, 2015, 01:06:42 pm »
Cal, your gonna make it...meeting guy about the t shirts on Tuesday. 2 days left for me...my anxiety has shot through the roof, with no logical reason why. I thought it came back the other day I was scared so I went to the doctor they said relax you have a cold and that was confirmed with both my children got sick....ugggg I think I am paranoid...LOL

Nice to hear BREE that you are doing so well


Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #349 on: October 16, 2015, 03:40:37 pm »
Scout,

One of the harvoni sides, including post tx (for me), is an exacerbation of anxiety attacks.  They are seemingly for no reason and come like a wave.  It is like suddenly an insecure slightly paranoid feeling comes over you, and though you intellectually know that there is no reason, the bad feeling just persists...then eventually goes and you can hardly believe that you had been that way just an hour prior.  Weird...do you get that? And I am not talking about typical anxiety attacks...this is different.

Also, has anyone in EOT phase still peeing all the bloody time regardless of H2O intake?  Good grief batman...
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #350 on: October 16, 2015, 04:23:43 pm »
Yes Beto,,,that is exactly what I meant. One hour I am questioning everything and then two hours later I think, why am I questioning this. I have also been having what I would call anxiety dreams, that I am dying. This has all come about in the last week. It's very strange


Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #351 on: October 16, 2015, 05:12:12 pm »
I wonder if some of this is the culmination of all of those years of doubt and dissociation and now we are strong enough to digest.  Strange brew this hep c survival...
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #352 on: October 16, 2015, 05:25:32 pm »
Yes to the crazy, vivid dreams!  Dang, it's getting to the point where I feel like I'm living a double life.  When I wake up I remember every detail.  Lots and lots of nostalgia in them.  Dreaming about people I haven't seen in 30 years, etc.  :o

You've got this, Cal.  I'm glad you found that study.  Very promising, though I think it's unlikely you'll need it.  Plan B's are nice to have in your back pocket, tho.  ;)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #353 on: October 16, 2015, 06:17:34 pm »
Hi Bree,
Thanks for the encouragement. It's so good to hear you are doing so well. Keep on keeping on my friend! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #354 on: October 16, 2015, 06:26:00 pm »
Hi scout,
Sounds like drug induced or EOT anxiety. Whilst were on the drugs, we are safe, it's after, that limbo parallel world we go to for 12 weeks, which is anxiety producing. I'm scared of EOT!

Looking forward to the t.shirts and wearing with pride  8)

Yeah I'll make it! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #355 on: October 16, 2015, 06:30:33 pm »
Beto,
Anxiety is awful, it's a sneaky little Venus fly trap that tricks you before you have time to think, hang on thing ain't right?

Ribas cause anxiety. I hate it, but  use mindfulness to see me through. It's all for a good cause! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #356 on: October 16, 2015, 06:34:44 pm »
Beto,

Yes years of doubt and disassociation have yo go somewhere. We've kept in compartmentalised for so long so we could live day to day and now those walls a falling away. Interesting what journey post tx will take us on after all these yeRs. That's what I'm looking forward to, no barriers. Cal :-*
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #357 on: October 16, 2015, 06:37:06 pm »
Else,
Yes the dreams on this have been a bizarre ride. Most if mine are nightmares. I think once again, years of being defined or defining myself as a hepper, has left some psychological luggage at my station. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #358 on: October 16, 2015, 07:39:55 pm »


 We've kept in compartmentalised for so long so we could live day to day and now those walls a falling away. Interesting what journey post tx will take us on after all these yeRs. That's what I'm looking forward to, no barriers. Cal :-*
[/quote]

well said CalPal...very similar to PTSD.  There is a book "In an unspoken voice" and another "Walking the Tiger" by Peter Levine.  It is a fresh look at trauma recovery, however, there are a lot of parallels I'm finding with respect to the emotional/Psychological/spiritual side of all of this sudden recovery from long term illness.  Your observation of compartmentalizing...rings a bell.  That's what trauma victims do.  Of course many of us have had our share of trauma in our lives as well. 
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #359 on: October 16, 2015, 08:23:17 pm »
Beto,

Yes years of doubt and disassociation have yo go somewhere. We've kept in compartmentalised for so long so we could live day to day and now those walls a falling away. Interesting what journey post tx will take us on after all these yeRs. That's what I'm looking forward to, no barriers. Cal :-*

Cal, I like how you put that. I find myself wondering...now what do I do? I have lived with walls in every aspect of my life...with myself, friends, family, coworkers....I haven't been able to be myself because I have a secret running my life. Even at home, I still hide my toothbrush and my razors from my children.

I don't know if I even can be normal anymore. I think it's gonna take some work



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #360 on: October 17, 2015, 12:15:47 am »
Hi Beto and Scout,
Yes it does has parallels to PTSD. In fact I think that many of us would fit the DSM V definition of it. There has also been studies (which coincidentally I worked on as a medical researcher) about PTSD and living with any long term illness let alone one with the stigma we bear. Living with a virus that can kill you and make you very sick and not being able to tell anyone (except those of trust) is an enormous psychological burden. Tx is gruelling and we have to hide that as well. The truth equals judgement, fear, ostracising , being talked about.
You know in your mind that you are co existing in a world of healthy people and the burden of truth makes you feel not as worthy somehow. Even though intellectually we know it's crap, we are equal, the stigma is too entrenched and the burden of being judged as not worthy is real not imagined.
A virus that is contagious is cause for fear in others, I don't blame them. I just don't want to be treated like a second class citizen or an object of fear. That alone makes me perpetuate the omitting of truth.
It can be contained psychologically by putting it in a compartment, which is there but contained so you can live as normal life as is possible, with a time bomb ticking inside you.
Now we are faced with a new truth of no HCV and yes Scout, it is going to take some big adjustments. I too hide my toothbrush and diligently put my razor in a plastic bad on the bag of the drawer. We won't have to do those entrenched rituals anymore. We'll find new ones and in time they'll become habits as well. But you raise an important point about moving forward and Bree called it unhooking from old familiar habits. Those barriers we used for self preservation are no longer necessary.
I think Scout that you can view it as an adventure, a voyage of discovery and yes it's going to take some work. Especially because we have been the host for this virus and therefore there is a symbiotic relationship going on and that will end like any other relationship and new horizons appear before us. 
It's a bit exciting/scary 8) Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #361 on: October 17, 2015, 12:51:27 am »
Very insightful dialogue from everyone.  As disease free as I feel I am right now in regards to Hepc, I was watching my 2 year old granddaughter today and was cutting my nails on the porch while she played outside.  She picked up my nail cutter and I had a moment of fear.  Hmmm.  We made cupcakes and we both licked the spoons and I have to admit (and I know better)   wondering if that was a smart idea.

I think my thoughts around it are heightened more this past year due to getting and being entrenched in treatment.  Before that, I was just doing life, quietly knowing what I was dealing with.  Didn't talk about it much even to close friends. 

I have to say I feel a new freedom I haven't felt in a very long time.  Like good things are happening and going to happen.  I really really like it, and definitely, I am unhooking one step at a time... sometimes in leaps in bounds!  Life is and can be amazing.  And we deserve it!   
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

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Re: Cal on Vierkira Pak & Ribas
« Reply #362 on: October 17, 2015, 01:35:34 am »
Agree, Bree!  That was beautifully put, Cal.  Yes, scary and exciting.  An existential crisis doesn't have to be a bad thing.  But it's shaping up to be a big thing.  ???
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #363 on: October 17, 2015, 11:35:55 am »
One day left! I am almost thinking of setting my alarm clock for the middle of the night just to get it over with! LOL



Go Royals!!!!!
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

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  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #364 on: October 17, 2015, 11:48:41 am »
Dang Scout, that is a low ALT yo!!!  You got this...not sure if you are talking a Royals win or 12 week UD.   :)

Cal...yes nicely put.  I am sure that the post treatment question will be debated long after we have moved on to SVR and excellent future health.  The road there may have its bumps, but it is all worth it.  I think what we can all take away from this experience is that homeostasis and equilibrium are a titter totter process and not something that just happens.  Our hearts and spirits are tested and skewed from all the years of living a disguise of normal for the folks that need us to be normal and strong. 

peace all
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

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  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #365 on: October 17, 2015, 03:50:10 pm »
Go Scout!!!  :D
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline beto

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  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #366 on: October 17, 2015, 04:35:32 pm »
hey scout,

look at it this way...Royals could lose...but you are sure to win  ;)
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #367 on: October 17, 2015, 05:19:18 pm »
One day left! I am almost thinking of setting my alarm clock for the middle of the night just to get it over with! LOL



Go Royals!!!!!
Scout

Hey Scout... post treatment rocks!!!  (Might take a little adjusting first... but come on in, the water is fine! 8) 
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #368 on: October 17, 2015, 05:32:17 pm »
Bree,
Your post excites me! He have such a thirst  for life now, it's our new contagious!!

I did exactly what you did last night. I cut myself on a falling to bits wire strainer. I immediately went into Hep Mode, sealed the are, checked would check strainer, checked surrounds and threw it out! I couldn't have my son, who uses it fir 2 min noodles all the time, use it again! I,m UND but still don't trust it. I hope SVR will convince me. I,m sure it will.

Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #369 on: October 17, 2015, 05:39:19 pm »
HimElse,
Thank you, but is was just me rambling. I won't blame the ribas !
Yes it's a big thing, but it's an adventure and I'm definitely due for one of those! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #370 on: October 17, 2015, 05:41:17 pm »
Scout,
In Oz we say " go you good thing " . You're excitement nearly hit me in the face! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #371 on: October 17, 2015, 05:49:15 pm »
Hi Beto,
Yes homeostasis  is a tricky balancing act. It's never to late to look after yourself and recover physically and mentally from this experience. well said "living a disguise of normal for the folks who need us  to be normal and strong" that's about it. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

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  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #372 on: October 17, 2015, 06:16:24 pm »
Well said all...

Our immune system's kicking back into "normal" gear should be interesting  8)

Looking forward to it!!!

Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #373 on: October 18, 2015, 09:07:51 am »
DONE!!!!!!



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #374 on: October 18, 2015, 09:15:58 am »
Good morning all.Cal I saw your post where you said you had a sore on your lip.When I went on that Peg Intron treatment years ago my mouth broke out something terrible.I use to get fever blisters and what happened was interferon was killing that virus(while trying to kill me) and I haven't had one since.Just a thought.
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline BillT

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Re: Cal on Vierkira Pak & Ribas
« Reply #375 on: October 18, 2015, 09:19:25 am »
I just saw you post Scoutdoy.Well done and congrats.I can't wait until I can say that.Cheers
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #376 on: October 18, 2015, 09:23:09 am »
Thanks Bill,,,,Going for my blood test tomorrow....I made it! Hopefully I get the good result and leave this beast in the dust!



Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #377 on: October 18, 2015, 09:33:11 am »
Don't worry because I'm sure you beat the monster.My question I do have for everyone is has anyone had problems with weight loss or appetite on this?I could stand to lose a few pounds but not 50.lol Damn I envy you people that are finished or finishing.
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #378 on: October 18, 2015, 10:08:43 am »
Bill, some people lose weight some people gain. Sorry, probably not what you wanted to hear. I was a loser, not much, about 10 lbs, but I really lost my appetite and I went and got a nutrition a drink supplement. Boost, very vanilla was the name. Make sure you drink lots of liquids.



Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline byebyeC

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  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #379 on: October 18, 2015, 10:13:06 am »
Congratulations Scout!!!  8) 8) 8) 8) 8)
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #380 on: October 18, 2015, 10:23:44 am »
Thanks byebye....I hope the after tx goes smooth.  I was lucky he did not suffer very many side effects during treatment and I didn't take RIBA. Woo woo I am pretty happy, might even go and buy a lottery ticket today




Go Royals

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #381 on: October 18, 2015, 12:19:45 pm »
My question I do have for everyone is has anyone had problems with weight loss or appetite on this?I could stand to lose a few pounds but not 50.lol Damn I envy you people that are finished or finishing.

Hi Bill

Welcome to another runaway thread that will never end  :).  I am a Harvoni person so, not sure if that has enough parallel with viekira sans riba.  Anyway, I had this amazing appetite that has not relented 2 weeks post.  Only gained about 5 pounds...but the good new is I felt good enough to work out.  I posted about it a lot, but I never received a post that anyone else had the hunger thing.  I did lose in the first 2 weeks...but likely most of that was water weight.

Scout...wooohooo!  Now you can complain about EOT...tee hee
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #382 on: October 18, 2015, 01:06:54 pm »
Scout!  You're headed for the other side!!!   8) 8) 8)  Big congratulations!

Beto, I never thought to mention it but yes, being on treatment gave me my appetite back after at least six years, maybe longer.  Appetite and then some!  ;D  Think Jabba the Hut.  I've put on some weight but meh.  It's moving into jacket and sweater weather here in the NW so who cares.  :)

F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline beto

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  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #383 on: October 18, 2015, 01:20:42 pm »
Those washboard abs are still down there...uhh...somewhere  :)
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #384 on: October 18, 2015, 03:10:45 pm »
Thanks byebye....I hope the after tx goes smooth.  I was lucky he did not suffer very many side effects during treatment and I didn't take RIBA. Woo woo I am pretty happy, might even go and buy a lottery ticket today

Go Royals

Scout

Hey Scout,  Congratulations!!!!  I think you will do great post treatment.  After the first week adjustment due to miscellaneous factors, it's been pretty awesome for me!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #385 on: October 18, 2015, 03:13:42 pm »
Re:  Weight and appetite.  I had periods of low appetite, mostly start of treatment and times I was ravenous!  My theory was that the body was working so hard internally to rid the virus it needed fuel! 

I lost 3 pounds but that's because I wanted to lose 5 and I was trying to not give in too much to the ravenous parts... but I ate if the situation called for it :)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #386 on: October 18, 2015, 05:00:22 pm »
Hi all,
I lost 3 Ks (6 ilbs) in the first month but the second as the HB adjusted I got ravenous too. Put back on the 3 I lost. Wondering how the extra RIBA since last week is going to affect my weight again. I can't lose it again, I look like a  skeleton. I look sick. At least if you have weight you look healthier. I reckon anyway. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

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  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #387 on: October 18, 2015, 08:00:06 pm »
 Scout, Yes done day has arrived. Break on through to the other side!!!!!! Should be getting My EOT blood work back Tuesday. Hope Yours says Your viral load is lower than Whale Crap!!!! Happy for You!!!! HOW ABOUT THEM ROYAL? Lottery ticket for sure.
 Beto, My six pack turned into a kegger about 30 years ago!!!LMFAO!

  Here is to all the Happy Healthy Heppers out there, and to the ones who are not there yet-- God Speed on the road trip to it.

 I STOPPED FIGHTING MY INNER DEMONS---- WE ARE ON THE SAME SIDE NOW!!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

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  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #388 on: October 18, 2015, 08:17:55 pm »
Yes Tommy is back in action.  Got the kegger visual thank you very much.  So we got some EOTers brewin'.  We are like spirits having transcended tx.  Now we get bitch about EOT not being what we wanted..teehee. 

Where does Tommy go when he disappears for a few weeks?  We all been rattlin on so you have some reading material when you finally surface.

Welcome back kegger
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline slats1056

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  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #389 on: October 18, 2015, 08:26:31 pm »
  I was in My little dark rubber room for about a week after EOT, then about another week to catch up on all this reading crap ( oops O mean stuff ) You crazies have been posting. HEEEERRRRES TOMMY!!!! Whatever it is --- I didn't do it!!!!
 Bill , I lost 10 lbs. during Tx., But I was trying to lose some. Hopefully I lose another 10-15 so I can get My kegger to lokks more like an 18 pack! Doubt very seriosly I'll get it back to a 12 pack!!! Much less a 6 pack!!!!ROTFLOL!!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #390 on: October 18, 2015, 08:55:27 pm »
Hey tommy,

Royals are looking pretty good, but waiting to come back in the late innings is pretty stressful for a lot of folks here. We were just talking tonight about how many die hard fans have dam near had heart attacks the last few nights


Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #391 on: October 19, 2015, 01:32:47 am »
Tommy,
Nice they let you have day release from the rubber room.  :-\hehe. Don't s are us pre EOTers with rubber room antics post tx! I have my own straight jacket thanks, it's floral.  :-*cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #392 on: October 19, 2015, 09:23:58 am »
I've had my rubber man cave set up nicely for a very long time.I was just wondering about the weight thing.I know this isn't anything like the last treatment but my head is still in that one and probably will be forever.I dropped to 126 lbs on that one.There was only 1 left in my six pack.I called this morning to get my AST and ALT and they were 40-69.I couldn't believe it.I think have everything going for me this time.Hey what's that light at the end of the tunnel...
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline BillT

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Re: Cal on Vierkira Pak & Ribas
« Reply #393 on: October 19, 2015, 09:42:13 am »
And for what it's worth I already had PTSD(Thank You Uncle Sam can I have another please...)and insomnia(I would like to thank Uncle Sam for that also)so I''m ahead of the game as far as those side affects go.
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #394 on: October 19, 2015, 12:30:17 pm »
 Bill, I used to think it was another train headed straight at Me!!!! Turns out. when I got to EOT a couple of weeks ago, it was all that bright light emitted by Bree!!!!
 Man that was a radical weight drop to say the least. I could stand to lose another 20-25 lbs. for My health but I am not pushing it. Just trying to go with the flow and eat healthier and smaller portions.
  Great that the Sx.'s aren't to bad for You. I had a rough time during Tx. and am having a few issues post EOT as well. I can't figure out why I had My mind set that I go in tomorrow for Lab results, Got to work this morning & looked at My calendar!!! It's TODAY!!!! Your number should keep on dropping just wait & see! Good luck & Godspeed to You!!!!!!

  GONE CRAZY-----BE BACK IN FIVE!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #395 on: October 19, 2015, 12:51:53 pm »
Good luck on your labs Slats.I'm sure they'll come out the negative for you.I could stand to lose 20lbs myself but it will come in time.In the mean time I'm going to avoid tunnels filled with trains,trucks,buses,and cows.Cheers
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #396 on: October 19, 2015, 02:38:44 pm »
Tommy, you crack me up.  Good luck on getting your good news!
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #397 on: October 19, 2015, 06:21:36 pm »
Hi bill,
Sorry you already have PTSD. You poor thing. Then HCV on top...great. How much can a koala bear? You are doing good, with an excellent numbers drop already. You'll be right. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #398 on: October 19, 2015, 06:24:53 pm »
Tommy,
You're the bomb. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #399 on: October 19, 2015, 06:29:31 pm »
WARNING: HIJACKING IN PROGRESS!!!!  UNDETECTED-UNDETECTED UNDETECTED!!!!!!!
DANGER : BEWARE OF HAPPY DANCERS!!! DO NOT ATTEMPT TO INTERFERE!!!JUST JOIN IN THE FESTIVITIES!!! SPONTANEOUS AWESOME SMILES AND DANCES ARE PREDICTED FOR THE FORSEEABLE FUTURE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

 


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