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Author Topic: Cal on Vierkira Pak & Ribas  (Read 262952 times)

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Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #800 on: December 18, 2015, 12:31:45 am »
Missed you,
You sound really happy and healthy. SO good to hear from you. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #801 on: December 19, 2015, 10:32:37 pm »
Australia's Christmas Present.


Thousands of Australians will rejoice at today’s announcement by Federal Health Minister Sussan Ley that a range of curative breakthrough hepatitis C medicines* will be added to the Pharmaceutical Benefits Scheme next year.

Hepatitis Australia CEO Helen Tyrrell said that it was “simply terrific” that new ground-breaking medicines for hepatitis C would be subsidised on the PBS from 1 March 2016.

“Last week, we were incredibly disheartened that the Mid-Year Economic and Fiscal Outlook (MYEFO) announcement did not include funding for new hepatitis C medicines, but today we are overjoyed that the waiting is almost over,” Ms Tyrrell said.     

“So many people have been anxiously waiting for this announcement. This is wonderful news and it is such a relief to have an end to the uncertainty,” she said.

“We congratulate Minister Ley who has delivered on her commitment to list these medicines as swiftly as she can and to make them available for everyone with hepatitis C, which hasn’t been achieved elsewhere. 

“Christmas will be a particularly joyous time this year for many living with hepatitis C as they can now look forward to the prospect of a cure and a much healthier future,” Ms Tyrrell said.

“The Turnbull Government is to be congratulated for showing leadership and investing in these game-changing therapies which represent the greatest innovation in the treatment of the hepatitis C virus in a generation,” she said.

 “If we can combine access to new treatments with improved access to needle and syringe programs across the country and in all populations, we have a real chance of preventing deaths and eliminating hepatitis C as a public health concern within a generation.

“We look forward to 2016 as the watershed year for hepatitis C in Australia as more people are treated and cured and we start to arrest spiralling rates of liver disease,” Ms Tyrrell added.

230,500 Australians are living with the hepatitis C virus which damages the liver, leading to liver scarring (cirrhosis), liver cancer and liver failure. Each month approximately 250 people with hepatitis C develop serious and potentially life-threatening liver disease or liver cancer.

New hepatitis C therapies have exceptionally high cure rates that exceed 90 per cent, shorter treatment durations and avoid the debilitating side-effects associated with existing therapies.

“We urge all Australians with risk factors for hepatitis C to get tested and talk to their doctor about new treatments,” Ms Tyrrell concluded.

 *sofosbuvir (Sovaldi); sofosbuvir and ledipasvir (Harvoni); daclatasvir (Daklinza) and ribavirin (Ibavyr).


We did it!
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #802 on: December 19, 2015, 10:37:16 pm »
Already done two interviews this morning. Now I'm heading home to remove my makeup, good clothes and bra!

Best news. Just the best.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #803 on: December 19, 2015, 10:47:48 pm »
Congratulations Australia!!!  Wonderful news.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #804 on: December 20, 2015, 02:26:33 am »
I'm very happy for you all down under.I'm just checking in.I've been trying to pass a damn kidney stone for the last week and it's about to drive me out of my mind.I'll be back when it's over.I can't even think right now.
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #805 on: December 20, 2015, 12:31:18 pm »
Been there Bill,

I have dealt with stones on two occasions but have not had them in about 25 years.  I'm surprised that more heppers on the new drugs have not had the issue.  I have observed that they can rear their ugly head when one has suddenly tripled the amount of water they drink after a period of under hydration.  One thing that has been gospel on this forum is HYDRATION!!!

They hurt like hell don't they?  I'm sure you are drinking cranberry juice and taking walks, so I won't offer up any advice.  You just have to pass them and deal with the pain.  I know that there are ultrasound treatments that can break them up (this was not available to me when I had them).  The first time I was hospitalized because I had six rather large ones.  They gave me next to no pain drugs because at the time all young people were considered addictive. 

Souldier through Bill...another drop in the bucket, hey.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #806 on: December 20, 2015, 06:23:48 pm »
Sorry Bill, (and Bet)

What auger. I have to have an ultra sound for gall stones. Very common in heppers. Bloody hell this fricken virus! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #807 on: December 20, 2015, 06:26:09 pm »
Hi Phily,
Thanks for advocating for us all. I am not sure if this was you on the ABC news? Dark hair in a Doctors office? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #808 on: December 20, 2015, 10:46:58 pm »
Not me Cal, mine was just a F2F interview on local tv and a radio interview on ABC.

http://www.nbnnews.com.au/2015/12/20/hepatitis-c-cure-for-all-australians/

and in case you're wondering what I'm doing with my hands when I'm doing downward jazz hands, I was just chatting with the interviewer about my last trip to Canada and describing (obviously very dramatically!) about going dog sledding in Jasper
« Last Edit: December 20, 2015, 10:49:26 pm by Philadelphia »
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #809 on: December 21, 2015, 11:30:44 pm »
Blimey!Where'd all these Aussie conga line dancers come from? :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

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  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #810 on: December 22, 2015, 12:38:28 am »
Australia BillT! :)
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #811 on: December 22, 2015, 03:02:06 am »
Oh well spoken and well said Phily!
It is the best gift to our community ever. Jubilant!  :) cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline HazelAustralia

  • Member
  • Posts: 178
Re: Cal on Vierkira Pak & Ribas
« Reply #812 on: January 08, 2016, 02:30:21 am »
I am just wondering what dose of ribaviron other 1a's on Veikira Pak are on?

I am on 1200mg a day (600 mg twice a day). I have been feeling really crummy the last 4 or 5 days - completely weak and breathless, find it hard to stand up for more than a minute.

My HMG is not too bad (10.6) but my nurse practitioner thinks there is possibly a potentiating effect with the riba's and my pre-existing airways disease. So, she has got onto the gastroenterologist (I don't have access to him), who is about to go on 2 weeks holiday. He said to reduce it to 800mg a day - but I have 600mg tablets and live 200km from the prescribing pharmacist, and it's evening. When I told her that the tablets I have are 600mg, she called him back and he said - make it 600mg.

I am happy to be hopefully relieved of the side effects, but I'm concerned that this is too great a reduction - and that he just settled on that because it was too much trouble to organise the 800mg. I am just beginning week 4, of a 12 week course. I wondered if I could have your feedback, what do you think? Will it still work?

Thanks people,

Hazel
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Philadelphia

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  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #813 on: January 08, 2016, 09:38:13 am »
Just to allay your concerns, my specialist (Greg Dore) reduced my ribavirin to 400mg from week 2 onwards due to the same issues you are having. I cleared the virus. 24 week Tx.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #814 on: January 08, 2016, 09:39:45 am »
Hi Hazel,
            I'm not a doctor,and never will be so take this for what it's worth.Cut the pills in half(You can do the footballs if you turn them sideways).If they're round you can get a pill cutter from any pharmacy for just a few dollars. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline HazelAustralia

  • Member
  • Posts: 178
Re: Cal on Vierkira Pak & Ribas
« Reply #815 on: January 10, 2016, 02:22:46 am »
Thanks Philly and Bill,

Your responses did the trick!

I didn't cut them Bill (though I considered it) as they are film coated, but the fact that your specialist (who I trust!) Philly, reduced yours even lower and earlier, reassured me, so I finished the day on the old regimen and have moved to the new.

Congratulations Bill!
Happy travelling Philly!

H.
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #816 on: January 15, 2016, 01:30:53 am »
Cal,,,,I made it. You will too. When is your test date?


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #817 on: January 17, 2016, 08:36:04 pm »
SCOUT!
Fecking unreal! I knew you would! Thank you for thinking of me. You are such a good person. I get the results of my 4 weeks eot on Thursday. I'm 5 weeks EOT now. Very fatigued. I am also waiting to see what happens about these gall stones. I get the thyroid removed in March. I am sure this will all make a different to how I feel. Thanks darling girl for your caring. Salx
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #818 on: January 18, 2016, 11:30:04 pm »
 Cal? Come out. come out where ever You are!!! Check out My nifty new signature and posts! I have been missing You on My phone lately!!!
  BTW, have You heard from BBC lately???? Hope You are getting better. Everytime I think things are getting leveled out, something new pops up! But---- We shall overcome!!! Right? Get Your rest and get healthy! Be chatting with You soon!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline AussieRosa

  • Member
  • Posts: 226
Re: Cal on Vierkira Pak & Ribas
« Reply #819 on: January 19, 2016, 02:19:37 am »
In response to the question about Ribavirin dose. I'm on 600mg in the morning, and 400mg in the evening. I weight 70kg. Hope this is helpful.

And my fingers are crossed for you, Cal!
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline HazelAustralia

  • Member
  • Posts: 178
Re: Cal on Vierkira Pak & Ribas
« Reply #820 on: January 19, 2016, 05:22:15 am »
Thanks AussieRosa, we are quite close in our stats and treatment type and dates. Wishing you well.
Hazel
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline AussieRosa

  • Member
  • Posts: 226
Re: Cal on Vierkira Pak & Ribas
« Reply #821 on: January 19, 2016, 06:44:12 am »
Hazel, yes we are!  Wishing you all the very best too. :D

I've been reading a lot of back threads and getting to know people a bit that way. Looking forward to getting to know you better and travelling along the path with you.

My viral load wasn't scanned into the nurse's pc when I picked up the meds yesterday so I won't find out what it was before starting treatment for another 2 weeks when I see her again. I'm really scared about side effects so possibly prone to panic at the slightest sign of something. Silly me!  ::)
Rosa
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #822 on: January 19, 2016, 09:42:40 am »
Congratulations on making the EOT Scout.I took some time for myself to put things in perspective and relax.We both need to get to SVR12 but I think we're done with this now.We've got everything but our diploma's. 8)

Cal I hope things get better for you soon.I saw my primary care doc the other day and got a consult to get this hernia fixed.Now that my LFT are normal there shouldn't be a problem.I don't know about you but I'm getting damn sick and tired of doctors. :)

AussieRosa,
                Don't worry about anything until there's something to worry about. ;)
« Last Edit: January 19, 2016, 09:49:30 am by BillT »
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #823 on: February 03, 2016, 08:47:28 pm »
Hello my dear forum friends,
I am sorry I haven't been posting lately. Post tx has been a bit rough. I never did make a thread in post tx. SO I may just do that now. :) Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Cal on Vierkira Pak & Ribas
« Reply #824 on: February 03, 2016, 09:05:26 pm »
Cal, it's so good to hear from you again -- a lot of us were asking each other if anyone knew how you were. Sorry you've been having a rough time post tx. Okay, I'll look for your new thread.

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #825 on: February 03, 2016, 11:03:25 pm »
Welcome back Cali.I was just thinking about you and wonder if you still had a pulse.We miss you. 8)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #826 on: February 03, 2016, 11:30:44 pm »
 SHE IS BAAAACK!! ;) ;) I got your message. Wishing You all the best. It pains Me to know that things are so rough post Tx, because it was so tough on You during Tx. :( :( :( I am so glad that You could visit for a while. Hoping that Your Med. team will get You back up and going soon. You really had us worried for a bit. You get Yourself rested and post when You feel able ;) ;) ;) All of the DRs. and tests, poking & prodding, tests & labs can take alot out of You. Not to mention the post Tx. malaise that You have to endure :P :P. Glad to see the results in Your signature though :) :)
 When You feel down , just remember that Your extended family and friends out here in Heplandia around the world are thinking about You and wish You good health and wellness A.S.A.P. :) :) :) :) Keep Your head up and keep on truckin' 8) 8)

 I STOPPED FIGHTING MY INNER DEMONS! WE ARE ON THE SAME SIDE NOW! 8)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #827 on: February 03, 2016, 11:52:27 pm »
I STOPPED FIGHTING MY INNER DEMONS! WE ARE ON THE SAME SIDE NOW! 8)

LMAO!!!  Dang it, Tommy.  Most quotable poster on the board.  ***can't stop laughing***  ;D ;D ;D
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #828 on: February 04, 2016, 12:02:58 am »
 My demons and I bid You a fond hello My good friend. It sure has been quiet lately, but it seems to be picking up 8) 8) 8) 8) 8)
 Have You seen My chainsaw?  ??? ::) :-[ :-X
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #829 on: February 04, 2016, 01:59:57 am »
Well then, I guess I have to chime in now  8)  Cal, love you, love you, love you.  I know there is more and more light waiting just around the corner... I can see you smiling and basking in it!  I'll send you a message...

And, everybody else, Tommy, Gnat, Else, Bill (anyone seen Beto?)... here we all are... like old hometown week!

I've been busy, lots of good work and some med stuff, not really treatment related. this and that, this and that.  Anyway just wanted to say I love my demons!  They wear sunglasses.  They are menehune demons. ha.   

 
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline KimInTheForest

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  • Posts: 1,968
  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #830 on: February 04, 2016, 11:41:22 am »
So good to hear from you again, Cal!!!  8)  I know exactly what you mean about post-treatment being rough. I too had a lot of problems post-tx.

I do think that these post treatments problems some of us experience will all clear up eventually. So patience is the key word.

I am finally in a position where I am able to feel some benefits of No More Hep C! Particularly more mental clarity and better mental functioning in general.

So hang in there, Cal. And keep on posting! We want to know how you're doing. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Else

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  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #831 on: February 04, 2016, 11:59:08 am »
And, everybody else, Tommy, Gnat, Else, Bill (anyone seen Beto?)... here we all are... like old hometown week!

Well there you go, Cal!  Your thread has always been the best hang-out on the forum!!!  ;D  ;D 

Love, support, mythical creatures (except for Bree's - those are real!), chainsaws and what have you.  8) 8) 8)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #832 on: February 04, 2016, 07:20:38 pm »
Oh boy,
My old partners in crime! It is truly appreciated that you are all still there for me and each other. I'll get there I promise. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline gnatcatcher

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  • Posts: 1,372
Re: Cal on Vierkira Pak & Ribas
« Reply #833 on: February 04, 2016, 07:58:00 pm »
That's the spirit! Cal, now that you've resurfaced, would you happen to know how Marianne is doing? I seem to recall that you've Skyped her in the past.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #834 on: February 04, 2016, 08:01:09 pm »
Glad you made a post cal, your fellow heppers were anxious to hear that you are ok. Keep in touch, and I hope you get better every day. Stay strong and positive, even though some days it can be hard



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #835 on: February 04, 2016, 08:48:07 pm »
even beto cares Cal... ;)
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #836 on: February 04, 2016, 09:13:19 pm »
I feel a conga line coming on. 8)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #837 on: February 04, 2016, 09:32:54 pm »
Too bad we are from all over the world, I would really like to meet some of you that I have been talking to for the last 7 months



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #838 on: February 04, 2016, 09:53:35 pm »
 Man, Cals' Place just started rolling again! :) Hey Cal, New name for a new thread------Cal and the Gang! ;D
  Hey Scout! How Ya doin'? That would be cool. To bad all the medical crap drains the bank account so fast :P

73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #839 on: February 04, 2016, 10:09:09 pm »
I'm still serious about a Hawaii get together later this year, for real.   I have some ideas that might be of some help...more will be revealed once we all get a little more well and ready to look at possibilities.  Consulting with menehunes now...  But they take their sweet time to pitch in! 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #840 on: April 01, 2016, 04:53:23 pm »
 Hey Cal, check in time! Don't make Me come over there and find You young lady!!! :) Hope You are feeling better. Check in when You can. Just a line to say hello and thinking about You!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #841 on: April 01, 2016, 04:54:52 pm »
 Any body talk with Marianne ( byebyec ) at all lately.
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Cal on Vierkira Pak & Ribas
« Reply #842 on: April 01, 2016, 05:11:14 pm »
Tommy, on March 24 Cal did report SVR12 and upcoming thyroid surgery: https://forums.hepmag.com/index.php?action=profile;area=showposts;u=18408

Cal, I, too, hope everything's going well and you'll check in soon.

Marianne last posted on Nov. 2. I wish I knew how she's doing.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #843 on: April 01, 2016, 11:26:48 pm »
 Back on Dec.7, Cal posted that she had skyped with her. Said she had reached EOT and was waiting Labs. Also said she was having a rough time post EOT. I believe she had a hospital stay shortly before that with a bad gall bladder attack. I sent her a couple of PM's but no reply. Last time I checked Her avatar picture was gone and replaced with a standard one.
  I knew about Cals' thyroid procedure coming up. Didn't want to bother her as she usually checks the forums even if she doesn't post. I was hoping a shout out might get a response.
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #844 on: April 02, 2016, 01:01:06 pm »
I forgot her avatar name
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #845 on: April 02, 2016, 11:23:56 pm »
 byebyec and her picture.
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

 


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