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Author Topic: Cal on Vierkira Pak & Ribas  (Read 367460 times)

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Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #400 on: October 19, 2015, 07:58:13 pm »
Yea for happy dances and bright lights (thank you Tommy)!!!

Bill T, I did the previous treatment too... no comparison, go in believing and expecting the best every step of the way (even if there is a dip here and there).

Cal, I got the book from the library today, The Happiness Trap.  Thank you for suggesting it.  It already won me over as it has an endorsement from Martha Beck (one of my heroes) on the front cover.  I plan to read it when I'm on Oahu next week for two days.

Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #401 on: October 19, 2015, 08:28:32 pm »
Tommy, I started a virtual conga line on another thread for you, come on the party awaits! Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #402 on: October 19, 2015, 08:31:11 pm »
Oh Bree,
I'm so happy you got the book. Russ Harris is an Australian writer. You will love it and no doubt we shall see some of it's wisdoms in your new thread as you adopt them and imbibe them. They are my internal dialogue, that other voice, when I am not doing too well at it on my own. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #403 on: October 19, 2015, 08:32:48 pm »
Cal, keeping the good stuff coming in... so the crap doesn't gain to much ground... that's the plan! 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #404 on: October 19, 2015, 08:49:52 pm »
A cunning plan Baldrick!  8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #405 on: October 19, 2015, 09:59:38 pm »
Scout,

One of the harvoni sides, including post tx (for me), is an exacerbation of anxiety attacks.  They are seemingly for no reason and come like a wave.  It is like suddenly an insecure slightly paranoid feeling comes over you, and though you intellectually know that there is no reason, the bad feeling just persists...then eventually goes and you can hardly believe that you had been that way just an hour prior.  Weird...do you get that? And I am not talking about typical anxiety attacks...this is different.

.

don't have the peeing problem, but basically feel like I am losing my mind. Way too much hyper-ness and anxiety, that comes in waves.  The only thing that gives me comfort is it is exactly theway I felt after my 1st tx and I came out of that...suddenly just woke up one day and everything was back to normal...it was so weird.  Not gradual at all.  Looking forward to that day again.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #406 on: October 20, 2015, 03:14:53 am »
DM,
Yuk anxiety, horrible stuff. You are strong and you know it is something to be endured until it dissipates. Then you'll be you again! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #407 on: October 20, 2015, 06:14:06 am »
DM,
Yuk anxiety, horrible stuff. You are strong and you know it is something to be endured until it dissipates. Then you'll be you again! Cal :)
thanks Cal.
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #408 on: October 20, 2015, 08:46:22 am »
Hang tough Drummer.Just keep remembering this isn't forever and it's better than the alternative.
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #409 on: October 20, 2015, 10:22:16 am »
Hang tough Drummer.Just keep remembering this isn't forever and it's better than the alternative.

Yup.
thanks Bill.
dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #410 on: October 20, 2015, 01:34:58 pm »
So glad you're undetected, DM.  And that you know that the hibbie-jeebies will pass.  At least it's a devil you know.

For YOU Tommy... (and for everyone else)

https://www.youtube.com/watch?v=fJ_3IWGocP8   ;D
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline byebyeC

  • Member
  • Posts: 286
Re: Cal on Vierkira Pak & Ribas
« Reply #411 on: October 20, 2015, 01:39:57 pm »
Hey DM,

I know exactly, precisely, how you feel. Very very bad feeling I hope you can get to the Doc n get some help there.

I'm so sorry you're going through this.

Else,

Awesome :D

Marianne
« Last Edit: October 22, 2015, 12:48:52 pm by byebyeC »
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #412 on: October 20, 2015, 02:51:48 pm »
Awesome :D

Marianne

Embarrassed to say how many times I've watched it.  For one, it's a cross-section just like the HCV community.
And it's got yer pole-dancing, yer congo line and my person favorite... the very last second or two where the banker-looking dude is finally gettin' his freak on!  ;D  Even a suit can't stem the tide of joy forever!   8)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #413 on: October 20, 2015, 03:31:12 pm »
So glad you're undetected, DM.  And that you know that the hibbie-jeebies will pass.  At least it's a devil you know.

For YOU Tommy... (and for everyone else)

https://www.youtube.com/watch?v=fJ_3IWGocP8   ;D

Yo, that's us Yall!!!! 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Cal on Vierkira Pak & Ribas
« Reply #414 on: October 20, 2015, 04:03:28 pm »
Thanks Marianne and Else.

It is a devil I know, and am in a hurry for him to leave.

I keep thinking, ... any day I'm going to wake up and be back to  normal.

I know it will happen.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #415 on: October 20, 2015, 05:53:49 pm »
How are you hangin Cal? It still hasn't sunk in that this is over for me, and hopefully for the rest of my life.


Go Royals

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #416 on: October 20, 2015, 05:56:57 pm »
Oh Else,
I am going to list the dance party in the sub way on my Australian Firum. It's the same in a train if bus here. Brilliant! Love it. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #417 on: October 20, 2015, 06:01:47 pm »
SM,
Have you used Mindfulness to cope with anxiety lashings? Bree got the book I recommended to her on it. I use it daily. So do my two sons who have anxiety disorders. The Happiness Trap by Russ Harris, you can get it cheaply on the Book Depository. It truly helps. There's also a free app called Smiling Mind. Lots of mindfulness exercises which are especially good for at night when you can't sleep as well. Cal :-*
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #418 on: October 20, 2015, 06:02:20 pm »
That's DM nit SM sorry .
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #419 on: October 20, 2015, 06:08:59 pm »
HinScout,
I'm ok thanks.
I'm going away to Noosa tomorrow for a holiday, a few days anyway, with a girlfriend.  I'll be off line till I get back.
I have cold sores and RIBA rash everywhere so I am a real catch at the moment! That extra RIBA us doing it's job if running me down. I see the FP next week, so I'll get a blood test to see my HB.
Tomorrow will be week 9! It's a happening thang!

Yes scout you are through with HCV now. A few more months and you'll close the chapter on that part if your life fir ever. You go girl  :-\cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #420 on: October 20, 2015, 08:54:56 pm »
Hi Cal,I believe I posted this before.When I was on the Pegintron and riba treatment my mouth broke out into one big cold sore.I haven't had one since.The only thing I can think is that these meds are killing more viruses than just the HCV.Just letting you know what happened to me.Enjoy your time away.
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #421 on: October 20, 2015, 09:10:49 pm »
Best yogurt I've ever eaten comes from Noosa.  Rhubarb/strawberry.  Hmmm.  So it's a place.  The more you know...  :)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #422 on: October 20, 2015, 09:47:44 pm »
Hi Bill,
I think Riba are an immunosuppressant? Form memory. I think that's my. That and HB being low makes you vulnerable to infection. Not nice though are they? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #423 on: October 20, 2015, 09:51:07 pm »
Hi Else,
Yes Noosa is about 1hr 1/2 from me. Its a beach resort. Very nice, beautiful white sandy beaches. You follow a trail for about 30 mins and you come to a nudist beach! It used to be quite hippie alternative but developers have got in and theres lots of rich people in huge homes right on the beaches. Our own ex PM Kev Rudd has a place there. Lifestyles of the rich and famous! But also a great family spot as there's a river there too, for fishing and boating. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #424 on: October 21, 2015, 12:10:09 am »
Again great news Tommy!! Proud o' ya
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #425 on: October 21, 2015, 03:58:08 am »
I'll see you good folk when I'm back from Noosa. Stay kicking and gouging! Cal :-*
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #426 on: October 21, 2015, 09:58:19 am »
Just googled Noosa.  Looks beautiful Cal.  Safe travels... we will keep the light on for ya.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #427 on: October 21, 2015, 10:02:04 am »
Beto...did you get your EOT blood test yet?




Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #428 on: October 21, 2015, 10:07:41 am »
No...I will have my blood drawn Monday most likely.  I am traveling for business right now.  I usually get results pretty fast, like 4 -5 days.  So pins n needles once again.  Funny, not matter how many folks report UD post tx, I still have trouble thinking "I've got this"
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #429 on: October 21, 2015, 10:14:21 am »
Beto, I had my blood test done yesterday..I kind of feel the same way


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #430 on: October 22, 2015, 08:58:38 am »
 Else,  Good Video. Definitely a diverse cross section! Loved it. For some reason My mind does not co-relate Your avatar with You. It does not compute!!!! LOL!!

 Scout, Waiting with baited breath for Your results. Talk about an adrenaline rush when You actually read NON-DETECTED LESS THAN-----. Go Royals!! But only after Scout!!!

  Beto, Thanx, waiting for Your results also. That little freakin' monster in Your brain just won't let You give it up!!!! I guess it'll take some time! Still have the doubts even after getting the results in My grubby mitts.

 Cal, Have a wonderful time!!!! You most definitely deserve the time off. Have fun, let it all hang out!!! LOL!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #431 on: October 22, 2015, 01:54:39 pm »
Big peace to you both, Scout and Beto.  Nothing but good news is on its way.   8)

LOL about my avatar, Tommy.  So I don't seem like an angry young rapper to you?  I was just having one of those days.  ;)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #432 on: October 22, 2015, 03:01:29 pm »
Hey Tommy some of us might surprise you.I'm 60 and love Trance.lol
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline slats1056

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  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #433 on: October 22, 2015, 03:18:03 pm »
  OK, I'm just gonna put this out there. I will listen to just about any kind of music out there as long as I have an idea of what it is about. Well I might have to draw the line at Techno and Disco!!!!!! LOL. It's funny to hear what My kids listen to. One is country & western, one is into 60's & 70's rock & roll ( the youngest 22 yrs.old ) , and one will listen to any thing that make o sound. It flips Me out when I hop into an elevator & hear Muzak renditions of The Door, Led Zepplin, ETC. ETC. At 59 I just think , why the hell get up & change the station???? Then I REALIZE THE REMOTE IS SITTING RIGHT THERE!!!!!!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #434 on: October 22, 2015, 03:19:18 pm »
 BTW, Not much surprises Me any more.
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #435 on: October 22, 2015, 03:22:35 pm »
I listen too it all.My line is at rap and hip hop.I just can't do it.
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #436 on: October 22, 2015, 03:51:00 pm »
I can't allow myself to think I've got this until I know for sure. So at the moment my thinking and language is full of indefinites. It looks like ... it seems possible ... Chances are ...

5 weeks will tell us.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #437 on: October 22, 2015, 05:53:00 pm »
I have to keep believing I'm cured... I needed to do that during treatment to keep it positive and I need to do it now.  All evidence points to it, blood work, how I feel, etc.  plus for me it's more fun that way.  Do doubts creep in, absolutely, and I try to move on to believing I'm cured.  I never felt that way with the previous treatment.

I just walked several miles with my friend today... 4 days in a row... before I would have had to take rest day after 2 days.  She said today she noticed my stamina was improving.
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #438 on: October 22, 2015, 05:53:55 pm »
Cal, we're keeping your space warm for you until you get back... 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Cal on Vierkira Pak & Ribas
« Reply #439 on: October 22, 2015, 06:27:29 pm »
The FDA just posted a warning about Viekira Pak and Technivie: http://www.fda.gov/Drugs/DrugSafety/ucm468634.htm
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #440 on: October 23, 2015, 10:32:36 am »
Just got my EOT results....NOT DETECTED!!!!!! AST 15 ALT 9




Go ROYALS
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #441 on: October 23, 2015, 11:03:14 am »
Spectacular, Scout!   8)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #442 on: October 23, 2015, 11:32:09 am »
 GREAT SCOUT, UNDETECTED AND LOW LIVER PANEL NUMBERS TO BOOT!!!! That is a real cause for celebration. Just make sure Your toes are out of the way. If I don't step on them virtually , I'll get them with My words!!!!!! LOL!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #443 on: October 23, 2015, 12:09:38 pm »
Thanks, yes it feels great. My hep doctor also told me that in their office they have never had anyone test undetected 3 times and then relapse. He told me to put the anxiety away waiting for the 12 week test!! That dos help...I am going to go buy a lottery ticket today. I don't normally waste my money on that sort of stuff, but what the hell


Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #444 on: October 23, 2015, 12:26:14 pm »
 Don't think of it as a waste. More like a frivolous expenditure to celebrate un-detected. If You win though---- I get half for talking You in to it!!!! HAHAHAHA!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #445 on: October 23, 2015, 12:46:24 pm »
I will look you up if I win tommy.




Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #446 on: October 23, 2015, 01:02:14 pm »
 This is too good. We are sitting here chatting on two different threads at the same time!!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #447 on: October 23, 2015, 01:20:18 pm »
LOL



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline KimInTheForest

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  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #448 on: October 23, 2015, 02:27:43 pm »
Congrats on your 12-week UND Scout! & good luck on the lottery ticket. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Cal on Vierkira Pak & Ribas
« Reply #449 on: October 23, 2015, 03:13:00 pm »
Hooray Scout!!!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #450 on: October 23, 2015, 04:03:19 pm »
Just got my EOT results....NOT DETECTED!!!!!! AST 15 ALT 9




Go ROYALS
Scout

Congrats on this thread too!!! 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #451 on: October 24, 2015, 12:40:23 am »
Hi Y'all, (love saying that!)

Noosa was beautiful but we has crap weather, but still managed to have loads of fun. Thanks for keeping the lights on and keeping the thread warm for me!

Hope you're all ok. I'll  check see what's going down. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #452 on: October 24, 2015, 12:42:05 am »
Hi Phily,
5 weeks to go to the last shout. Wow, that seemed to go fast, but I'm sure you wouldn't agree! I am dreading the 12 week wait personally. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #453 on: October 24, 2015, 12:43:59 am »
Tommy,
Thanks, it went too quick. I need another holiday already! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #454 on: October 24, 2015, 12:45:36 am »
Scout,
Congrats on EOT UND. Great low numbers there! Cal :) :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #455 on: October 24, 2015, 12:46:21 am »
Scout,
Come ad see me if you win! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline CHepCFree

  • Member
  • Posts: 66
Re: Cal on Vierkira Pak & Ribas
« Reply #456 on: October 24, 2015, 12:48:20 am »
FDA Warning - http://www.fda.gov/Drugs/DrugSafety/ucm468634.htm on Vierkira Pak released yesterday

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #457 on: October 24, 2015, 03:14:25 am »
Hi all,
I am experiencing liver pain, it's been going on intermittently since yesterday. I had it before tx but never this much. I also had it a lot in week one and two. Is this cause for concern? I'm week 10. Cal :-\
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #458 on: October 24, 2015, 07:05:57 am »
Just stay calm and call your treating nurse on Monday. My liver is much worse than yours and I'm still here.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #459 on: October 24, 2015, 09:22:55 am »
I agree with Philadelphia to call Monday Cal.Hopefully it will subside before then.I hope so since you only have 2 weeks left.I got my butt kicked yesterday with some sides but I feel much better today.Nobody said this was going to be easy but it beats the Peg treatment and the alternative.
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #460 on: October 24, 2015, 12:53:15 pm »
Cal, thanks, and I did buy the lottery ticket, they draw the numbers tonight. My Royals made it to the World Series. I am trying to get tickets to one of the games so I can take a giant sign that says I SLAYED the DRAGON!  Tickets are soooo expensive. 300 to 400 each... I Love the royals, but not that much. Do you think maybe you have been doing too much and may have pulled a muscle or something? I went back to the doctor a few weeks ago paranoid that the virus came back...and he said relax...you caught a cold...it was confirmed when my kids got sick a few days later, and then my tests came back undetected. Your soooo close to finishing...hang in there


Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

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  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #461 on: October 24, 2015, 02:16:54 pm »
Congrats on numbers and Royals.  Yes I get the feeling of being a bit concerned when you don't feel right...I get a little paranoid.  I will not know for about a week.  My last test was back at week nine and change.  Now at 3 weeks EOT I have the heebie jeebies.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #462 on: October 24, 2015, 04:53:31 pm »
Phily and Bill,
Thanks. I see my GP Tuesday and will check with her. It is subsiding, I think. You never know what you're gonna...."life is like a box of chocolates..."

Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #463 on: October 24, 2015, 04:58:27 pm »
Hi. scout,
Yes I have been doing too much. As I am probably getting another month. TBA. I was concerned it was still fighting the virus in my liver and that it should be done with the heavily artillery by now and just doing stealth bombings where needed. Good luck with that ticket, you've got all the luck in the world now! Cal :).
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #464 on: October 24, 2015, 05:43:10 pm »
Good luck with the Royals, Scout.  As the parent of a quasi Canadian I feel obliged to root for the Blue Jays, but I hope they are all fantastic games. I'm heading to Havana in January and hope to see at least one game down there.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Bree

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  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #465 on: October 24, 2015, 07:27:32 pm »
Hi all,
I am experiencing liver pain, it's been going on intermittently since yesterday. I had it before tx but never this much. I also had it a lot in week one and two. Is this cause for concern? I'm week 10. Cal :-\

Cal, I had liver pain at the beginning of treatment and again toward the end (last week or so).  I was concerned enough to post about it and someone else said they had it too at the end of treatment and they were UND too.
Also, when I got stressed out, sometimes I would feel it in my liver.
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #466 on: October 24, 2015, 07:30:33 pm »
Do you know until two years ago I could not reliably tell you which side of my body my liver was on? I still struggle unless I can picture myself having a liver ultrasound.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #467 on: October 24, 2015, 07:30:54 pm »
Not. Very. Smart.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #468 on: October 24, 2015, 07:47:46 pm »
Do you know until two years ago I could not reliably tell you which side of my body my liver was on? I still struggle unless I can picture myself having a liver ultrasound.

You are plenty smart Philly.  Are you right or left handed?  That's how I remember.  My right hand, liver on the right.
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #469 on: October 25, 2015, 12:57:49 am »
Cal, I had liver pain at the beginning of treatment and again toward the end (last week or so).  I was concerned enough to post about it and someone else said they had it too at the end of treatment and they were UND too.
Also, when I got stressed out, sometimes I would feel it in my liver.
Oh thanks Bree,
That really eases my mind. I am still having pain, but if you had it about the same times I did, I feel much better about it. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #470 on: October 25, 2015, 01:00:57 am »
Re the side of the liver,
I always check it out against a picture of the liver to be sure!  ::)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

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  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #471 on: October 25, 2015, 01:08:24 am »
Cal, I had liver pain at the beginning of treatment and again toward the end (last week or so).  I was concerned enough to post about it and someone else said they had it too at the end of treatment and they were UND too.
Also, when I got stressed out, sometimes I would feel it in my liver.

I had flank soreness in liver area last week of tx. It is concerning for sure. But I had been UND for weeks by then, and was still UND at EOT.  So it had nothing to do with Hep C. Now at 12 weeks post-tx, I have started to have some flank soreness again in liver area. But I think it is the regimen of vitamin and mineral supplements I have been taking since EOT when I discovered I was low in iron, B-12 and D. So I backed off on the Vit D, and flank soreness has nearly disappeared. May or may not be related. But I know in the past when I had Hep C, Vit D supps would give me flank soreness after a certain period of daily usage.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #472 on: October 25, 2015, 01:23:20 am »
Wow Kim,
That's really interesting. I take Vit D daily. I wonder if I  should back off for a bit? Will experiment, cal :-\
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

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  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #473 on: October 25, 2015, 01:33:31 am »
Wow Kim,
That's really interesting. I take Vit D daily. I wonder if I  should back off for a bit? Will experiment, cal :-\

It's worth experimenting with that, Cal. See if liver pain/soreness goes away. I wasn't happy about stopping my Vit D. I felt good about what it was doing for me. Also, studies have shown that people most affected by anemia while on ribavirin also are low in Vitamin D. So I thought the D might help me recover from my riba anemia. Also thought it might help strengthen my bones. But I don't want anything making my liver sore. Not when I am focusing solely on healing it.

kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #474 on: October 25, 2015, 04:43:38 am »
Hi Kim,
I used to be low as most HCV sufferers are, and so went on supplements. But I will experiment with it, it's worth a try. I may have too much. I might ask my GP for a Vit D profile test. I have good Vit D and ribas have floored me! Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #475 on: October 25, 2015, 08:44:38 am »
If nobody else is going to ask then I am.What the heck is a quasi Canuck Philadelphia?  :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #476 on: October 25, 2015, 08:53:15 am »
Cal,Evidently the Viekira is a mess with other drugs and supplements so you need to be careful.My doctor wants to know everything I'm taking before I take it.The problem is these meds are so new I think they're still working on a very very long list of do's and don't.I'm glad things let up a bit for you.Cheers
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #477 on: October 25, 2015, 09:39:44 am »
I was curious about that myself bill



Go ROYALS
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #478 on: October 25, 2015, 12:25:56 pm »
If nobody else is going to ask then I am.What the heck is a quasi Canuck Philadelphia?  :)

Tommy asked the question sometime back, but EOT memory laps I guess...I don't remember the answer...Philly?  Whats the deal with your site name again enquiring minds need to know.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #479 on: October 25, 2015, 03:52:46 pm »
Quasi Canuck = Almost Canadian
My daughter currently lives in Vancouver.

I'm Australian, she's Australian. Philadelphia is the name of one of my horses. Although I have been through Philadelphia on a train from NYC to DC.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #480 on: October 25, 2015, 05:36:28 pm »
Hi Bill and Scout,
My Doctor knows I'm taking it? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #481 on: October 25, 2015, 05:50:46 pm »
I think every Aussie I've ever met owned a horse Philadelphia.Don't you all have cows or something else down there?I know they hard to ride at first but after you break them in they're not bad and you get use to it,and if they break their leg you can turn them into a nice dinner. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Else

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  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #482 on: October 26, 2015, 01:13:46 pm »
Glad you got lots of good feedback and advice, Cal.  :)

Hey Philly, I just got back from Vancouver last night.  Vancouver in Washington State.  Both Vacouvers are about equidistant from Seattle, north and south.  So you always get to hear "Which one?".  Geez, even our state name is confusing.  "No, not that Washington."  :P

Okay, I'm rambling...
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #483 on: October 26, 2015, 04:14:39 pm »
We do have cattle Bill, but most people eat them (sorry vegetarians). Some people ride them in rodeos but I would ride one by choice.

It's a bit of a myth that most people have horses. We are one of the most urbanized countries on earth! Not a lot of high density. Living but a lot of houses in the suburbs. I live out of a major regional center with a few acres to call my own. Enough to swear when a water pipe cracks in the bottom paddock, or enough to spend all day fixing an electric fence problem.

I have neighbors across the hwy but people around if I need them.

I've refined my horse numbers from nine to one so I'm pretty happy with that. Lots more money in the pocket.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #484 on: October 27, 2015, 05:22:23 pm »
Cal, I am sure you said this before...but are you f4?




Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #485 on: October 27, 2015, 05:34:27 pm »
Hi Scout,
No F0.  Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #486 on: October 27, 2015, 05:36:23 pm »
Hi Philadelphia,

I have a couple of lady friends from down under that have show horses.One actually moved here to Florida and brought hers with her.I rode almost every weekend growing up but I haven't in many years and I miss it.When I was living in Ireland people rode on the beaches.Now that I would love to do.
« Last Edit: October 27, 2015, 05:38:18 pm by BillT »
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #487 on: October 27, 2015, 07:18:38 pm »
Ok, good cal...I read an article today and was concerned for you but this regards f4 people...that's really good that your an f0



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #488 on: October 27, 2015, 10:07:56 pm »
Scout,
Thanks darling' do you mean the FDA warning? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #489 on: October 27, 2015, 10:35:51 pm »
Cal, I was....but thank goodness it doesn't apply to you,,I am now 9 days EOT...I had my follow up with the hep doctor. It went well, he laughed and said that my liver numbers were better than his...LOL

Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #490 on: October 28, 2015, 02:22:51 am »
Scout,
Thanks for worrying about me :) you are kind.

Now those numbers are just ludicrous! How can we aspire to those? Setting the bar to high with those too low numbers!!! Cal ;D
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #491 on: October 28, 2015, 10:28:24 am »
Scout, your numbers are about as healthy as a liver gets!!!
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #492 on: October 28, 2015, 11:50:32 am »
Else I know they say viral count and time don't make a determining factor to damage that HCV has done but at 14 million viral load and having this shit for 30 years I feel blessed with my AST/ALT numbers and biopsy numbers. I have felt so horrible (fatigue and joint pain) for so many years! Just the fact that I got approved for Harvoni by my insurance company with the condition my liver was in stuns me. I truly think that denying patients that are too healthy is criminal, and insurance should get the meds to people BEFORE their liver declines. I understand it's a $$$ issue. With the latest news on the viekira pak and heppers with f4 status, Gilead may just raise their prices again...


Go Royals
Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #493 on: October 28, 2015, 01:13:27 pm »
We all agree scout,

 F0's to F2's and have the best chance of overall outcome.  However, it should not be a choice, everyone infected should get the med's, period.  If there are immediate needs or a child infected I am all for letting them to the front of the line, but outright denying folks. We are all well aware of how this disease progresses and F0 could be an F1-2 a year or two from now.  I have known of Harvoni type drugs hitting the studies for maybe 5 years.  I am F4...4-5 years ago I may have been F3.  Had it been available, and I had been cured I might be looking at F2 after a few years of liver improvement.

It is unprecedented what we are looking at.  Not since antibiotics have we been able to see such dramatic drug results.  Scout imagine if you had to wait another 2 years with a 14m viral load.  You are looking now a AST/ALT scores that most non heppers don't see.  That includes Teetotallers.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #494 on: October 28, 2015, 02:00:59 pm »
Beto, I abolutely agree with you. Had you gotten the meds a few years ago, there is no telling what your liver scores could be, and how much improvement you would have already achieved. My best friend is an f2 right now but was f0 just 2 years ago. She is tanking fast, and suffering much worse symptoms than I had, and has been denied twice for medication. It angers me so much that I want to go to capital hill and put us side by side and ask "why is my life more valuable than hers?" I got the meds and she cannot!


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #495 on: October 28, 2015, 04:48:40 pm »
It is so inequitable there with medical services being a money making model. In Australia we've had some news on access.
It looks unlikely there will be an announcement before February 2016 ( generics access will increase) . All drugs recommended by the PBAC will be funded. So that's basically the ones available to you. So all geno types will be covered . There will be unrestricted access (no triage) and a co payment of $38.00. 
It's good news but it is sitting with the House of Representatives now (our Government)  and it  was promised for December so people are unhappy. I hope to goodness they hurry this through, because we are in crisis. Access to generics is building fast. They cost about $3500.00. So not all can afford or are able to emotionally go that route. But we need them now. I think the HCV. Community will storm the Bastille if it doesn't happen.
What can your Government to to ensure equal access. I would. Be writing or speaking to my local member of parliament. There must be lobby groups there as well?,scout it's terrible your friend is suffering, I am so sorry. Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #496 on: October 28, 2015, 06:54:54 pm »
Beto, I abolutely agree with you. Had you gotten the meds a few years ago, there is no telling what your liver scores could be, and how much improvement you would have already achieved. My best friend is an f2 right now but was f0 just 2 years ago. She is tanking fast, and suffering much worse symptoms than I had, and has been denied twice for medication. It angers me so much that I want to go to capital hill and put us side by side and ask "why is my life more valuable than hers?" I got the meds and she cannot!


Scout

Scout, please tell her to keep appealing!!! I was denied three times.  It took the fourth attempt which put my case in front of an external (independent) reviewer that made all the difference.

I don't know if I would have done that (as almost everyone knows, it's so damn demoralizing to get those denials in the mail  :() if I hadn't seen someone on this forum who was approved with a fibrosis score lower than mine and asked how she did it.  She showed me it could be done.  And I mean graciously but very specifically.  Her cover letter, what was included in her final appeal, etc.  And it worked!

Yes Big Pharma is run by psychopaths, and insurance companies aren't much better.  But sorry, many doctors here in the U.S. are complicent.  They are telling many Hep C patients to wait.  They are telling Hep C patients that insurance companies won't approve Harvoni.  It is just not true.  The truth is they view it as a battle they are not compensated for engaging in.   There is a big difference between "Harvoni is unobtainable" and "obtaining Harvoni for you does not fit our business model."  If it is the latter, they need to say so.  "Warehousing" patients?  As if we are an asset to be stored for future exploitation in a friendlier business climate?

"You Can't Be Neutral on a Moving Train" - Howard Zinn
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #497 on: October 28, 2015, 08:03:50 pm »
Good on you Else,
I can feel your passion and anger. I never thought our battle would be the Insurance Companies in the U.S. and the Government in Australia. I thought we'd be battling our HCV with the orals. (Lots of assorted swear word, too rude to type in public!!! >:() Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #498 on: October 28, 2015, 08:21:55 pm »
HI all,
Just an update on tx status. I'm on day 71, into my 10th week. The extra riba has hit me a bit, but I am adjusting to it. Bloods today and see Specialist next Thursday. Going to ask for a 12 week V/L even though I am probably doing an extra month. I only had a 2 week and I haven't seen UND yet. He assures me I am, I feel UND but I need to see it! Other than that coping OK.

Q and A with Hepatitis Qld and Hep  Australia went really well. I've been asked to speak somewhere else as well! I got very passionate and they gave me the floor to beseech help for our community. Everything I said went down well, as I got applause at the end of it and people came up and thanked me for speaking on behalf of them or their clients. I am so glad I did it. I was so riba-ed up, I had to take a valium and pain killers to get there! I had an embarrassing riba cough and that scratchy voice from riba pharyngitis. So people saw what tx was like.  Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #499 on: October 28, 2015, 08:34:17 pm »
Cal

You go girl
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

 


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