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Author Topic: Cal on Vierkira Pak & Ribas  (Read 367458 times)

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Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #700 on: November 20, 2015, 05:31:20 pm »
Phily,
Sounds like a great plan.  We owe it to our fellow travellers to make sure they get these drugs. It looks like an announcement in the new year they say February, then hopefully it's good news.mi know the financial aspects are negotiated and we know The PBS gas the money now. So it's the toll out of the drugs that will be next. They are aiming fir GPs and Drug community groups with a Doctor to prescribe. There will be an initial triage I'm sure.

Now travel, sounds great. I still have 2 at home at uni, so my turn will come. I have a friend going on the Queen Mary 2 fir a long long cruise, doesn't that sound relaxing? Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #701 on: November 20, 2015, 05:34:51 pm »
Cal, I was just talking to my 18 yr old about taking a cruise together before she goes off to college....it sounds so relaxing


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #702 on: November 20, 2015, 05:58:31 pm »
Hi Scout,
I had a great time on the cruise I went on when the kids were in high school. It was relaxing, and I put on 5ks (10lbs) you beat so much, well if you're a piglet like me! Cal :) definitely go.
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #703 on: November 20, 2015, 09:32:00 pm »
I'm heading to Canada on Boxing Day to see my eldest who lives in Vancouver. We are travelling to Cuba together. What fun!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #704 on: November 21, 2015, 02:17:06 am »
Phily,
That sounds great. I wish I was as well as you. I hope one day il be the old me again and get back to all the fun things in life. I'm sure I will. I went into this tx very ill, so i can't expect too much. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #705 on: November 21, 2015, 02:50:27 am »
You will be one day, Cal.

Greg told me I was very sick, so if I can get better you certainly can.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #706 on: November 21, 2015, 09:02:37 am »
Stop with the If's and Hopefully's.You're Viekirians. 8)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #707 on: November 21, 2015, 09:11:42 am »
"We few, we happy few, we band of brothers ... "
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #708 on: November 21, 2015, 06:12:42 pm »
Hi Phily and Bill,
I have a few health issues to get through next, including that pesky thyroid removal and muscle weakness which had been a constant for so long, a fibromyalgia type thing.  But yes I am a Viekarian, a band of brothers and sisters. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #709 on: November 21, 2015, 06:17:42 pm »
Cal,,,,,are you feeling better being off the riba's?



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #710 on: November 22, 2015, 04:33:35 am »
Hi Scout,
Not yet! Had a little ole riba rage incident last night! Waiting, waiting............ Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #711 on: November 25, 2015, 04:35:28 pm »
Hi all,
Week 14 today. 2 more weeks to go.  I see my Gastro today. Usual nerves.
I am experiencing post tx sxs already and that's down to the ribas. Lots of pain, weakness, sweats, muscle pulling. Peripheral neuropathy is worse, I hope this settles down, my feet are burning up. Sores are clearing, but rash is still as itchy and horrible two weeks post ribas. I will post if Gastro tells me anything new. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #712 on: November 25, 2015, 05:31:46 pm »
I hope you feel better soon Cal.  All my love, Bree
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #713 on: November 25, 2015, 05:35:14 pm »
Sorry cal I don't understand what being on RIBA is like. I hope the sides go away for you so that you can enjoy being undetected. Tomorrow is Thanksgiving here in the states, and we all have to put on happy faces, take a Xanax or Valium, and go eat with our entire family and then experience the dreds of Black Friday! I have to work With the crazies that come out starting at 5 am ...eeeegaddds!


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #714 on: November 26, 2015, 12:52:13 am »
Hi Bree,
Thanks dearest. It's just post tx stuff. It'll pass. I'll be ok. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #715 on: November 26, 2015, 12:56:06 am »
Hi Scout,
Thanks friend. I'll be ok just post tx stuff. Been here before. I still have 3 weeks (not 2) of Viekira left. So it'll be a total OF 17 WEEKS.
Happy thanks giving. It's a nice thing to do be with your family. I didn't realise it was so close to Christmas. Enjoy yourselves. You have much to be thankful for this year. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #716 on: November 26, 2015, 03:08:18 am »
I know what you mean about post-tx stuff, Cal! Just when you think it's over (the riba) and gonna get better... stuff gets really bad for some reason - at least for some of us. But you're right, you'll be ok. Just takes time. That post-tx stuff will go away. Mine took a number of weeks to disappear (maybe 10). But I am good now - in fact, I am feeling really good health-wise.

(I am having other highly stressful problems in my life right now relating to heartless brutal government agencies trying to murder my elderly mother by trying to remove her from her home against her will and seize her assets because she won't live the way they want her to. But that's another story for another day. Like Thoreau wrote in Walden: "If I knew for a certainty that a man was coming to my house with the conscious design of doing me good, I should run for my life… for fear that I should get some of his good done to me – some of its virus mingled with my blood.")

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #717 on: November 26, 2015, 03:43:45 pm »
Kim,
Yes I recall you had a hard time post tx too. I went into this tx sick, so I can't expect anything else. I have to just go with it. :-X

That is terrible about your mum. I am looking after my 89yo father. He thought he was dying yesterday, it's so distressing. Old age is a horrible place. We lost mum 5 years ago and Dad has never recovered. It's a huge stress trying to get them proper care and services and fighting fir what they are entitled to. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #718 on: November 27, 2015, 05:52:18 pm »
Well  I'm definitely, in post tx stage even though I am still on the Viekira fir another 3 weeks. But over 2 weeks post RIBA.
I have muscle pain weakness and get soo tired post exertion. My feet are burning! If anyone has any ideas about this would be grateful. A nurse friend has told me an over e counter product to rub into the feet. Metsal. I am getting that today. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #719 on: November 28, 2015, 05:35:09 pm »
It's Sunday morning and I just counted my pills. This time in 2 weeks I shall finish Viekira and move over to the "other side"! I thought it was 3 weeks but it looks like I will have done 16 1/2 weeks. I think ill oi it down as 17 it's too unfinished otherwise I am nervous already.

Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #720 on: November 29, 2015, 08:27:31 am »
Hi Cal,
         I'm glad you're almost there and I have faith you'll be fine.You go girl. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #721 on: November 29, 2015, 05:22:03 pm »
Aw thanks Bill,
It's been a ride alright. Then into limbo/purgatory for the wait.......................
Thank you for supporting me, you've been really positive all along. Much appreciated my friend. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #722 on: November 29, 2015, 05:55:34 pm »
Hey Cal,  When is your completion date?  I'm confused...

My wish for you ... that you can maybe start to re-frame that "limbo/purgatory for the wait" mindset.  Up to you... and it's tough but you will get better each day after the meds even if there are challenges along the way....  I don't want to deny your feelings in any way... (and as we know from ACT, we can't do that), it's just that it's not helping to view your days that way... (said with love;)

I'm about to finish the Happiness Trap book.... it's really awesome.  I had borrowed it from the library, and even got an extension, it's a slow read to absorb for me in the middle of all kinds of b.s. in my life at the moment... but I swear it has changed me.  I'm going to buy my own copy and try to practice all the exercises more.  Thank you for suggesting that to me!!!  Love, Bree
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #723 on: November 29, 2015, 08:03:36 pm »
Oh Bree,
Aren't you a sweetpie.I do love you. I am really ok. I am about to finish the Viekira in 13 days time. So then it will be EOT at last. 17 weeks later......

I think that it is a purgatory for some. In that no man's land waiting type way. I'm afraid that I have to be a realist about the possibility of relapse. I am high risk for it. Hence getting the extra 5 weeks drugs. My Gastro has a back up plan for re txing already if I do relapse. I am at peace with it all. It will be shattering of course to go through this again. But I am still hopeful Bree. I don't think about relapsing at all. I am focused on how good I am starting to feel and getting on with life.

The Happiness Trap is my Bible, I use it as soon as I wake up to get me out of bed. No unhelpful thoughts gonna stop me now! SO glad you loved the book. My boys love it too. My eldest is having ACT therapy now. It is going to change  him and he has already started to change and be happier. It's magic.

Thank you for worrying about me. I do appreciate everything you say to me and don't ever worry about telling me off if I get negative. I need that! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #724 on: November 29, 2015, 08:56:44 pm »
You come a long way from the being stressed waiting on your results to where you are right now Cal.I'm happy to see it.Tell your doctor you don't need his backup plan because you're doing just fine,thank you very much. :) The only time a book has ever gotten me out of bed was when someone threw it at me and told me to quit snoring.I have to say that I really prefer coffee to get me up if I'm given a choice. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #725 on: November 30, 2015, 12:16:00 am »
Oh Bill,
That's so nice of. You to be so positive fir me. I'll keep the back up plan just incase ::)
I am good. I think the hep gives us so much anxiety and depression and that has lifted recently, so I am feeling good! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #726 on: November 30, 2015, 11:10:59 am »
My heart goes out to you, Kim.  I'm sure you will persevere taking care of your mom.  Crap time of year for this to be going on - not that there'd be a good time.  :(

I should know by now, but I can't recall - are you Canadian?
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #727 on: November 30, 2015, 12:10:14 pm »
My heart goes out to you, Kim.  I'm sure you will persevere taking care of your mom.  Crap time of year for this to be going on - not that there'd be a good time.  :(

I should know by now, but I can't recall - are you Canadian?

Yes, I'm Canadian. Thanks for your sympathies on this problem, Else & Cal re: social services trying, in their overzealous and over-reaching quasi b.s. authority, to kidnap and murder my elderly mom and seize her assets. It's an awful situation (all triggered by an anonymous call from a neighbor who has never met a single member of our family). And it is causing me a great deal of stress. I can hardly sleep right now. Very hard for me to get on with my healing and my New Life post-hcv in the way I had hoped to. And so disturbing to have this hanging over us during the final phase of my mom's life and my time with her on this planet.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #728 on: November 30, 2015, 06:30:07 pm »
Kim,
I'm so sorry for you. I worked in aged care as a Social Worker many years ago and I know in Australia to pay for our ageing population Dad's house asset, could also be a percentage seized by the Government if he goes  into care. It is so unfair. My father, has said that he will die at home. I think he has a plan. I don't blame him. He said to me, the only thing that gives me comfort now is knowing that my house will clear you girls debts. I was enquiring about the first stage care assisted living accommodation and found out all this Government intervention was going on. It is really unfair. But I don't know what the answer is in Australia. Perhaps if politicians took a pay cut?
I don't know your laws in Canada  but I know the stress of it all at our parents age is shameful. We are the ones left trying to navigate a rip off system and get the best care for our parents that we can. It is just so hard. I am sorry for you. I know what it's like. I stay with Dad a lot, he lives an hour away from me. He just got a new Doctor because he other Doctor kept prescribing him more drugs AD's and benzos. The new Doctor said he would call the other Doctor and tell her what he thinks! My Dad lost 6 kilos (12lbs) he weighs less than me now and i'm small. 
Sucks that a neighbour wouldn't intefere on that level. Good luck and try to do some deep relaxations to offset the stress. If you have a smart phone, download this app, it's free, Smiling Minds . It has lots of meditations and relaxations on it. I use it a lot. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

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Re: Cal on Vierkira Pak & Ribas
« Reply #729 on: November 30, 2015, 06:42:54 pm »
Thank you Cal! :) Sounds like you know what I'm talking about.

(No smart phones for me. I live a life without any wireless RF-emitting devices in my home or on my property, and always have. No cell phone, DECT phone, microwave oven, WiFi, smart meter, wireless mouse/keyboard - nada.)

I am sure I can find some relaxation aids. And I am a longtime practitioner of T'ai Chi and Qigong. So I do have the 'tools' to relax, centre, balance...  But boy is it hard to deploy them when so much crap is coming at you in a situation like this where the happiness of an elderly parent is at stake. :-/

Hugs,
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #730 on: November 30, 2015, 07:14:00 pm »
Kim,
I admire that you can live without all the trappings (and they are trappings) of technology. I have two sons 18 and 21 and technology rules. I have always been a bit of a tech head myself. :-[

Is it for health reasons? Because boy we don't know what the effects are. I often think about this and about how I refused to live near electricity stations or pylons. It's weird to think of this wireless just being everywhere. I live in a suburb where the coffee cafes are big. Everyone of them has wireless. I don't know how to live without a microwave!

Yes it is shameful what our poor mum and Dad are being put through. I just stopped everything and he is convinced he will die at home. However, that's a little naïve as anything can happen when you weigh 55 ks and have no muscle tone. If he has a fall then it could be out of our hands. Then we are at the mercy of the system. It's just shameful. Our parents worked hard for their assets. Dad worked 7 days a week in his business. He provided. He feels very upset about these new laws that could legally seize a percentage of his property. It is so  stressful. Yes if your up to it, tai chi is great. I don't know what the other one is? Cal :o
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline gnatcatcher

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Re: Cal on Vierkira Pak & Ribas
« Reply #731 on: November 30, 2015, 08:09:36 pm »
Kim, you have my sympathy, too. i had had the naive belief that Canada was a lot more forward-thinking than the U.S. about a lot of things, but the Hep Forums have been disabusing me of that notion. My mother is 93, fortunately only 8 minutes away so I'm there a lot and the superintendent couple in her apartment building know me and wouldn't pull something like your neighbor did, but there's still that ever-present awareness that something can happen in an instant that would radically change everything. -Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline KimInTheForest

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Re: Cal on Vierkira Pak & Ribas
« Reply #732 on: November 30, 2015, 08:14:02 pm »
Thanks Gnatty. :)

And Cal, yes my rejection of wireless devices in my life and home is health-related. But also a bit of a philosophical/lifestyle choice about living simply and using things that are mechanical rather than digital/virtual (she says while chatting to cyber-friends on an online forum  ;) ).

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #733 on: December 01, 2015, 04:05:04 am »
Haha Kim,
Chatting on the online forum! It's hard these days to live without technology. It's crept into everything. I have a husband who just cannot grasp technology. When he was at uni doing further studies 10 years ago, he was the only one in his group who couldn't grasp the computer. He's got it now, but it's taken a real brain shift to get there.
I admire you Kim. I would like to live in the country, a tree change. But I'd miss the culture of the city too much. I'm a city chick. Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #734 on: December 01, 2015, 05:41:20 pm »
12 days to go! Countdown is on. Never thought I'd get here. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

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Re: Cal on Vierkira Pak & Ribas
« Reply #735 on: December 01, 2015, 05:53:44 pm »
You did get to here and you will get beyond... it is happening Cal!!!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #736 on: December 01, 2015, 08:37:34 pm »
It's scary Bree, coming out from the protection of the drugs.....Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

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Re: Cal on Vierkira Pak & Ribas
« Reply #737 on: December 01, 2015, 09:19:04 pm »
It's scary Bree, coming out from the protection of the drugs.....Cal

Yes and it's also freedom and new opportunities 8)  And feeling much better!
I loved Harvoni and didn't want to stop but I was also ready to stop.  I'm thinking 2016 will be a much better year... (looked into my crystal ball;)
« Last Edit: December 01, 2015, 09:20:47 pm by Bree »
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

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Re: Cal on Vierkira Pak & Ribas
« Reply #738 on: December 01, 2015, 09:54:44 pm »
It's scary Bree, coming out from the protection of the drugs.....Cal

Yeah.  There's definitely some separation anxiety. 

 :o  Meds/no viral load are definitely, strongly associated in my mind.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Scoutdoy

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Re: Cal on Vierkira Pak & Ribas
« Reply #739 on: December 01, 2015, 10:54:09 pm »
Cal, I felt the same way. I actually didn't want to stop taking the Harvoni. Kind of weird I suppose, but that's how I felt. I made it and you will too


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline KimInTheForest

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Re: Cal on Vierkira Pak & Ribas
« Reply #740 on: December 02, 2015, 12:44:23 am »
I hear you all on the separation anxiety thing at EOT. My mind had forged such a tight link between the pills and my health/life during 12 weeks of treatments that at EOT I essentially ended up replacing the daily Harovni+riba with daily vitamins and iron to deal with my deficiencies that I discovered post-tx. It was like I couldn't stop taking pills. It was scary really because I have never been a pill person in my entire life - not even vitamin pills. My philosophy has always been health doesn't come in a pill or a gel cap or a protein powder. It comes in the food you eat, the way you choose to live on this planet, the relationships you form, the energies you allow into your life, the energies you put out to the Universe. It was scary that in just 12 weeks I had abandoned my long-held paradigm and was now psychologically dependent on pills as a means for saving my life and restoring my health.

But my body knew better. A point came after about 10 weeks of supplements post-tx where my body said very loudly: "No more pills! Stop immediately!" And so I did, and I felt much better for doing so!

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #741 on: December 02, 2015, 04:33:52 pm »
Hi Bree,
Thank god ness you have a crystal ball, why didn't you tell us before? Hehe! Yes my love it is exciting too. But more scary right now, give me a few weeks post and I'll feel better....I hope. Can you check that crystal ball? Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #742 on: December 02, 2015, 04:41:50 pm »
Hi Rlse,

Separation anxiety is the perfect way to explain it.  8) there is security in knowing the drugs are so strong they can get you to UND no problem, it's after for me that I am on shaky ground. I'm ok about that though. I am really liking getter better by increments. I want this so bad. I knew I was ill, but being well I had no idea how goid it would feel! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #743 on: December 02, 2015, 04:43:00 pm »
Scout, thanks fir your enduring encouragement as always . Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #744 on: December 02, 2015, 04:51:16 pm »
Hi Kim,
I know what you mean. I have planned my probiotics and various vitamins already. I can see me being the same. I was on antibiotics a lot during tx so definitely need probiotics. I think being on such heavy drugs as well.
I hope too to not have to take supps for long. Without HCV (Bree has a crystal ball and I'm going to clear!) we won't need all the things were depleted in the Vit D, B,
I am still using Alpha Lipoic Acid for my neuropathy.  Maybe I won't need that.
I also have prescription drugs fir some other HCV related stuff. Maybe just maybe in time I won't need them either?

I have to get my guy ready to absorb goid food. I gave always been on the Dash diet fir hypertension and it's very healthy.

I have put on weight too, after years if being skinny. I obviously am meant to have more weight on me and the HCV was making me skinny. Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

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Re: Cal on Vierkira Pak & Ribas
« Reply #745 on: December 03, 2015, 08:55:48 am »
I wish this stuff wasn't so expensive.My blood pressure hasn't been this good in a long time. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #746 on: December 03, 2015, 05:57:37 pm »
Hi Bill,
Yes my BP has been god to low during tx and I've had my BP meds slashed by 2/3rds.


My tinnitus has gotten worse dye to the ribas as well. It came on during last tx. Anyone else? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #747 on: December 05, 2015, 05:11:18 pm »
Hi all
7 days left today. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

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  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #748 on: December 05, 2015, 06:09:33 pm »
single digits... almost home! 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Scoutdoy

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Re: Cal on Vierkira Pak & Ribas
« Reply #749 on: December 05, 2015, 10:05:14 pm »
And the countdown has begun Cal....it an exciting time


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #750 on: December 06, 2015, 03:17:19 am »
Cal! You are nearly there!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #751 on: December 06, 2015, 03:30:41 am »


CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #752 on: December 06, 2015, 04:55:10 pm »
Thanks Girls,
Live the bug 7 Phily! It is exciting. But I'm still scared and excited.

Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Cal on Vierkira Pak & Ribas
« Reply #753 on: December 06, 2015, 09:04:09 pm »
SIX DAYS LEFT

CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #754 on: December 07, 2015, 02:18:07 am »
Oh Phily,
That's a beauty! Thanks friend. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

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Re: Cal on Vierkira Pak & Ribas
« Reply #755 on: December 07, 2015, 10:08:49 am »
Tic toc, tic toc.  Five days to go!!!   8) 8) 8)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #756 on: December 07, 2015, 06:03:27 pm »
Hi Else,
I like your security blanket metaphor. I get it! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #757 on: December 09, 2015, 06:28:37 am »
Oops - missed a day sorry! It was my school's end of year Presentation Day. Frantic doesn't begin to describe it.

CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #758 on: December 09, 2015, 06:35:05 am »
And now today!
 Four leaf clover for luck!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #759 on: December 09, 2015, 05:04:21 pm »
Oh thank you Phily,
4 days to go. Wow it's real :P Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #760 on: December 09, 2015, 05:26:24 pm »
Yep... real awesome!!!

Just wanted to say how much I loved "The Happiness Trap".  It was life-altering for me.  I guess I was just ready to re-sync what I had already been into.  I got several to give as Holiday gifts for a couple of friends.  I also downloaded the Smiling Mind app but haven't used it yet.
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #761 on: December 09, 2015, 07:54:05 pm »
Darn it I'm missing all the excitement.I hope somebody recorded it so I can catch up.Way to go Cali Girl.I've had a long week and I won't be around Friday or Saturday.Going to Orlando for a concert but I'll check in on you. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #762 on: December 09, 2015, 08:03:34 pm »
Hi Bree,
I'm so glad you are spreading the love of The Happiness Trap. It's an excellent gift. It is life altering. It certainly helped me through tx. It is truly amazing. I hate self help books normally being a Social Worker, but this one I buy for friends and family, to help stop their suffering. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #763 on: December 09, 2015, 08:04:40 pm »
Hey Bill,
What concert are you going to see in Orlando? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #764 on: December 09, 2015, 08:24:52 pm »
Going to see Trans Siberian Orchestra Cal.A lady friend and I have been going every year since I got back from Ireland in 2009.That's my Christmas present to her every year.They are amazing,and some of the best musicians I've ever seen.I can't wait.:)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #765 on: December 09, 2015, 10:47:52 pm »
Bill,
That's sounds amazing. Have a great time with your friend. Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

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  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #766 on: December 10, 2015, 07:05:16 am »
This is the show they're doing this year Cal and the one I've been waiting for them to do.This is a long watch so you can copy the link and enjoy it later.Their shows are simply amazing and they do all of this in concert.I mean the entire stage show is unbelievable. 8)

https://www.youtube.com/watch?v=eAODpLKZULA

« Last Edit: December 10, 2015, 07:16:28 am by BillT »
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #767 on: December 10, 2015, 07:09:37 am »
I can't post a pic on the road as I am, but I am thinking of you! Three more days. :)
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #768 on: December 10, 2015, 05:36:55 pm »
Hi bill,
That link didn't work for me, but I watched some others videos of them. Fantastic. I've never heard of them, I don't believe they've toured Australia? May be wrong. What a show. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #769 on: December 10, 2015, 05:37:57 pm »
Thanks Phily,
I appreciate that you ate thinking of me,so kind of you. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #770 on: December 10, 2015, 06:06:16 pm »
So excited for you!!!  8)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

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Re: Cal on Vierkira Pak & Ribas
« Reply #771 on: December 10, 2015, 06:50:13 pm »
Thanks Else,
Don't forget to have a tea and bikkie ready for me on the other side ;D Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Westy

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  • Posts: 17
Re: Cal on Vierkira Pak & Ribas
« Reply #772 on: December 11, 2015, 04:12:03 am »

Found you and your almost finished well done Cal  ;D

cheers
Gen 3a Started Sof Dac 16/10/15
Ribavirin Started 18/11/2015

V/L 19 Mill +
Hep C pos approx. 27 yrs
2 Week Bloods = Normal Ast Alt, V/L 16 :)
10/Dec/15    UND  Probably was at week 4

Non responder 2011 BMS (dac) Peg Rib

Offline Else

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  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #773 on: December 11, 2015, 01:03:25 pm »
Warm tea and bikkies ready.   ;D  And we have storytime and naps here.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Rubi

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  • Posts: 29
Re: Cal on Vierkira Pak & Ribas
« Reply #774 on: December 11, 2015, 01:55:31 pm »
Doesn't Gilead help when you have insurance? Maybe it's once insurance approves. I know I got the discount from them for the Sovaldi. Total cost after insurance co pay and the discount for the Sovaldi and Ribavirin is $155 a month. I am so thankful to be able to get it at that price.

I know I had been making plans to go to India if I had not gotten approval. I think the trip and everything is more around $3K USD. Also, India has a separate Passport (or VISA, I forget which) that has to be applied for as well as what we need to travel. If she is going to go this route I would make sure you research thoroughly. And,Jeffries is the name I was looking at also.
F 59
GT 2
Started treatment 9-28-15
Solvaldi/Ribavirin for 12 weeks
ALT/AST was 74/48; now 17/17
VL 5.6 million down to 42

Offline Philadelphia

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Re: Cal on Vierkira Pak & Ribas
« Reply #775 on: December 11, 2015, 04:54:12 pm »
Is it one day more Cal? Could it be?

I wrote this when I was on my last day:
http://blogs.hepmag.com/gracecampbell/2015/09/hepatitis_c_one_more.html

Enjoy your One Day More.
« Last Edit: December 11, 2015, 04:57:25 pm by Philadelphia »
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #776 on: December 11, 2015, 05:19:32 pm »
Hi Westy, ,
Yes here I am. 8) last pill this evening. Wow that seemed like forever. As soon as the ribas started to leave, I started to feel better. Good to see you on here. It's a great forum, really supportive people. Cal ;)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #777 on: December 11, 2015, 05:21:37 pm »
Hi Rubi,
That is so cheap. I'm glad you were able to access them. Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #778 on: December 11, 2015, 05:35:44 pm »
Hi Phily,
Thank you friend,
I am happy to be off this tx and just hope that this is the last x I have to do. It knocked me around as you know. I am happy to leave it behind. Now to defy the odds and SVR . I'll see you on the other side......cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #779 on: December 11, 2015, 10:30:19 pm »
Cal, you made it....good for you! I know it seemed like forever for you since you watched many people complete their treatment wondering if your day would ever come Well, it's here....you survived....and now your gonna remain virus free! We all are. I am so grateful to the group here on this forum that endured my messages and gave me support during my treatment. Jan 15th is my 12 week EOT test and I hope to be able to stand up and scream "Hepatitis....Go Fuck yourself...I AM FREE!" I took off January 18 to January 26th from work...because that week is gonna be about me! If I relapse...that week will really be about me! LOL ...I am pretty confidant though. Cal, I so...so hope that things start making a dramatic difference in your life now that you are finished with the treatment

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

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  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #780 on: December 11, 2015, 10:36:25 pm »
Going to see Trans Siberian Orchestra Cal.A lady friend and I have been going every year since I got back from Ireland in 2009.That's my Christmas present to her every year.They are amazing,and some of the best musicians I've ever seen.I can't wait.:)
Bill, I am going to go see Trans Siberian Orchestra on December 26. I am very excited, this is the first time that I have ever gone to see them. I have heard that they are absolutely fantastic

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline KimInTheForest

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  • Believe in yourself
Re: Cal on Vierkira Pak & Ribas
« Reply #781 on: December 12, 2015, 02:40:49 pm »
Hi Phily,
Thank you friend,
I am happy to be off this tx and just hope that this is the last x I have to do. It knocked me around as you know. I am happy to leave it behind. Now to defy the odds and SVR . I'll see you on the other side......cal :)

Congrats on finishing, Cal! It's been a long haul. And the ribas sure don't make it any easier.

I believe you will achieve SVR this time! Am holding you in my thoughts. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Else

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  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #782 on: December 12, 2015, 02:50:05 pm »
Ta-da!!!  8) 8) 8) Congratulations!
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #783 on: December 12, 2015, 03:13:47 pm »
Your numbers are looking good Else!!!

Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Cal on Vierkira Pak & Ribas
« Reply #784 on: December 12, 2015, 03:48:59 pm »
Cal... you are a trooper!  You have really hung in there.  My wish for you is that you take this new time in your life to nurture yourself as much as possible and envision the best outcome ever!  8)

 
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Cal on Vierkira Pak & Ribas
« Reply #785 on: December 12, 2015, 06:36:59 pm »
Your numbers are looking good Else!!!

Scout

Thanks Scout!  Still waiting for my viral load test.  :o
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #786 on: December 13, 2015, 05:37:01 pm »
Wow thanks Scout,
Yes it was a long haul only coz they told me I'd be having more mid stream, that made it seem like forever. But yes I made it. Yep Hep C go fuck yourself, I hope we can swear on the forum !  But that's how we all feel!
Not your 12 weeks EOT in January seems to have flown by, but of course it didn't for you!

I have lots of healing to do now. But I will do it happily now with a clearer mind and healthier body and more energy yes! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #787 on: December 13, 2015, 05:38:59 pm »
Thanks Kim and a Else,
I did it 8)cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #788 on: December 13, 2015, 05:40:37 pm »
Hi Bree,
Thank you for reminding me to be positive in your special way yesterday you do. You are a dear. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: Cal on Vierkira Pak & Ribas
« Reply #789 on: December 14, 2015, 07:54:25 am »
Congratulations on finishing Cali.Now you can relax and do some healing. :)
                                             
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Cal on Vierkira Pak & Ribas
« Reply #790 on: December 14, 2015, 10:15:27 am »
  Very happy for you Cal.  Long time on the chopping block for you.  When you look back to when you started you can say something like; " that was many, many 'sides' ago my dear."  Good luck moving forward.  Now you can post about getting the riba out of your system.  Good riddance when you do, hey?  Thanks for the humor along the way.  Many newbies to come will benefit by reading the words of the legendary "riba queen" CAL.
« Last Edit: December 14, 2015, 10:18:17 am by beto »
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Cal on Vierkira Pak & Ribas
« Reply #791 on: December 14, 2015, 11:36:56 am »
 Merry early X-mas to You and Happy EOT as well. Hopefully it's all sunshine and blue skies from here on out. We don't need no more stinkin Ribas! Play it cool and rest up little one. Oh Yea, by the way---Maybe I can have My phone back now ;D :-\ 8) 8) 8) 8)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #792 on: December 16, 2015, 01:36:35 am »
Congratulations on finishing Cali.Now you can relax and do some healing. :)
                                             

Hi Bill,
Thanks friend. But what is tis word, how you say "relax"? Cal ::)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #793 on: December 16, 2015, 01:38:10 am »
Hi Tommy,
NO you can't have your phone back. I am still to cross to the other side yet.I keep forgetting! Derr........Cal :P
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #794 on: December 16, 2015, 01:43:57 am »
Hi Beto,
Oh the riba Queen. I shall wear that crown proudly. I always try to wear a rown around the house anyways....

Yes get those friggin ribas out of the system. Can't wait to feel normal again. I just saw my GP and she said that my HB and Neuts were back to normal.! That's after nearly 5 weeks post riba. SO I am happy about that. Also returned the best ALT AST ever. 17! At last. My ALP is getting higher and way too high so I am meant to have an ultras sound on the liver, gall area, so I'll do that after Christmas.
I started probiotics 3 days ago and my stomach is settling nicely.

Yes many many sides ago Beto! Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline chuck3a

  • Member
  • Posts: 48
  • I'm Neo, his guardian angel now
Re: Cal on Vierkira Pak & Ribas
« Reply #795 on: December 17, 2015, 12:55:30 am »
Cal, that's wonderful news. EOT. glad to hear those magical letters from you. Now to move on, and reclaim your life. And about the rage queen title, all I saw was you being slightly perturbed, never raging  ;).
Chuck
diagnosed 2008 hep c 3a
viral load of 1656491 08/2015
treatment 2/2009 - 7/2009 pegasys and ribapak  failed
treatment starting: 09//16/2015 for 24 wks daklinza, sovaldi, and ribavirin
4/30/2013 alt - 133  ast - 143
7/24/2015 alt - 65    ast - 73   vl - 1656491
9/29/2015 alt - 21    ast - 24
10/14/2015 alt - 22   ast - 26   vl - not det.
11/11/2015 alt - 15   ast - 22
12-15-2015 alt - 14   ast - 21  vl - not det.
2-2-17 1 year 1 month hep c free
1-26-2016   alt - 11   ast - 19 vl - not det.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #796 on: December 17, 2015, 06:21:17 pm »
Cute Avatar Chuck!

Slightly perturbed mmm I don't think my family would agree there! I punched my sons door of his bedroom out of sheer frustration (over nothing) and I punched the kitchen bench in a frivolous argument with my other son. I hurt my hand that time! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #797 on: December 17, 2015, 07:28:02 pm »
Don't feel bad cal, my best friend did the same thing except she broke her arm. Kids can be frustrating....at any age


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Cal on Vierkira Pak & Ribas
« Reply #798 on: December 17, 2015, 08:22:37 pm »
Hi Scout,
Feel like I haven't spoken to you in ages. I am coming to the other side. I finished last Sunday. I keep forgetting to make a thread over there. Doh! Cal :o
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Cal on Vierkira Pak & Ribas
« Reply #799 on: December 17, 2015, 08:34:14 pm »
I haven't posted much in te last few weeks. I have been working a lot and both my children's birthdays have been in the last week. I went for a doctors appointment last Wednesday and he asked if I was getting any exercise....I showed him my I phone that tracks the number of steps I take each day and the previous day at work I logged 32,563 steps. He just about shit. I said, does that count? LOL


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

 


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