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Author Topic: Yay! I made SVR4 !  (Read 18361 times)

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Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Yay! I made SVR4 !
« on: September 01, 2015, 12:22:11 pm »
YAY! My labs just came back and I am still UNDETECTED 4 weeks post-treatment!  :D :D :D

I had been worried because I developed a mystery malaise shortly after finishing treatment. It had me in bed with fever and fatigue for at least 2 weeks, and I have been weak and pretty much dysfunctional the rest of the time. (Had no such problems during treatment.) But at least it is not Hep C. That’s the important thing!   :D

The other good news is that, whatever my mystery malaise was, it is finally lifting and is substantially gone now. I have an appointment with my GP today, but there is not much for her to do or check at this point. I am 5 weeks post-tx as of today.

I think my main problem was that I got very depleted during treatment. I did not have much problem with side effects in terms of any physical discomfort – no headaches, no nausea, no aches or pains. And I was going around leading my normal life while on treatment. But I could hardly eat, I lost 10 pounds, I never once got a proper night’s sleep, and my hemoglobin was below 100 g/L from Week 4 until very recently. Last week it crawled back up to 104, but that is still below normal.

In retrospect, I would urge anyone else having severe problems eating while on treatment to go out and find a high quality protein shake, or try medical marijuana for appetite recovery, or anything else that works to get some nutrients in you.

So glad to still be on the road to being cured! Keep the faith, everyone. You can do it!

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Yay! I made SVR4 !
« Reply #1 on: September 01, 2015, 12:52:14 pm »
WONDERFUL news, Kim. You sure deserve it -- what would these forums be like without you?
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline KimInTheForest

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  • Believe in yourself
Re: Yay! I made SVR4 !
« Reply #2 on: September 01, 2015, 01:01:28 pm »
Quote from: gnatcatcher on September 01, 2015, 12:52:14 pm
WONDERFUL news, Kim. You sure deserve it -- what would these forums be like without you?

Thanks Gnatty! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Sookiesue2

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  • Posts: 14
  • I got this!!
Re: Yay! I made SVR4 !
« Reply #3 on: September 01, 2015, 03:10:57 pm »
Congratulations Kim!! I can't wait until I can say the same, that won't be for a while since I will be only starting my treatment next week. I've been following this forum and your posts the last couple of weeks, I get so excited when I see success stories, especially with genotype 3a
Logged
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline KimInTheForest

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  • Believe in yourself
Re: Yay! I made SVR4 !
« Reply #4 on: September 01, 2015, 03:38:48 pm »
Quote from: Sookiesue2 on September 01, 2015, 03:10:57 pm
Congratulations Kim!! I can't wait until I can say the same, that won't be for a while since I will be only starting my treatment next week. I've been following this forum and your posts the last couple of weeks, I get so excited when I see success stories, especially with genotype 3a

Thanks Sookiesue. It's great that you are starting treatment next week! Sounds like you will be saying goodbye to Hep C in 2016. Phenomenal times we are living in right now.

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Patience

  • Member
  • Posts: 40
Re: Yay! I made SVR4 !
« Reply #5 on: September 01, 2015, 03:52:36 pm »
Oh, Kim, had I only known, I would have sent you my extra 20 lbs that I am now toting around! Funny what different SE can occur. I am 3 days now past EOT and feeling fine (and fat), although somewhat lethargic - but I've never been a bubbling fount of energy anyways. So great to hear your good news! Looking forward to hearing about your SVR 12!
Logged
GT 1b
Dx2000
Tx2005 peg/rib. responder but had to stop at 20 weeks due to eye and thyroid problems. Relapse 3 months later
2013 fibrosis F2-1
TX 6/7/15 Harvoni 12 weeks VL 815,000, log 5.91,     ALT 47, AST 80
@3 weeks: VL detected <15, log <1.18
@ 9 weeks VL Undetected
EOT 8/29/15 no labs done
12/3/15  14 week post EOT: UNDETECTED!!
 ALT 11 AST 21
2/19/16  24 week post: UNDETECTED

Offline kimharvest

  • Member
  • Posts: 35
  • Fighting to Get Back my Life - GT 3a
    • Vital Wonders
Re: Yay! I made SVR4 !
« Reply #6 on: September 01, 2015, 04:36:47 pm »
Congrats Kim!!! Wonderful news! From another 3a, KimintheDesert!
Logged
kimharvest
"Eat healthy food and drink pure water for a healthy life."
GT 3a  15,000,000 VL.
Started Sovaldi/Ribavirin 1/26/15 for 24 weeks.
Doctor Office Dropped me on 5/8/15 at 14 weeks;
Finished 4 months total, two months short.
I do not recommend Grand Junction Gastro!
Not Detected at 3, 6 & 12 months.

Offline KimInTheForest

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Re: Yay! I made SVR4 !
« Reply #7 on: September 01, 2015, 05:10:33 pm »
Thanks Kimharvest & Patience. :) Yes, Hep C treatment seems to be in the weight redistribution business. Some people end up with less - others more. haha!

keep smilin',
kim :)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Yay! I made SVR4 !
« Reply #8 on: September 01, 2015, 06:26:46 pm »
Wonderful news! Brava!
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline terih

  • Member
  • Posts: 74
Re: Yay! I made SVR4 !
« Reply #9 on: September 01, 2015, 08:16:08 pm »
Kim, this is so awesome! You've jumped that first hurdle!!!! Such wonderful news! I'm pretty positive you have an SVR in your near future!

Party woman, have some ice cream or whatever your favorite is! When I was having trouble eating on treatment, small meals through out the day seemed to help, have you tried that?

BIG CONGRATS to one of the best, most helpful souls around!                Teri
Logged
64 yrs. on this fine planet!
diagnosed 1993
Stage 1 cirrhosis
Genotype 1a
12 wks. Harvoni  Relapse late Feb. 2015
Currently treating with Solvaldi/Olysio
The light at the end of the tunnel, is often not a train!

Offline KimInTheForest

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Re: Yay! I made SVR4 !
« Reply #10 on: September 01, 2015, 08:34:15 pm »
Thank you Teri & Philadelphia!

Yes Teri, I am having some party food tonight! :) My appetite finally came back about 5 days ago, so at last I can eat normally again. Most of my other post-tx problems are disappearing now that I can eat again. So I think inadequate nutrition was at the crux of it. I found that during treatment I really just had to eat whatever I could whenever I could get it down.

kim :)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline ricpark

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  • Posts: 87
Re: Yay! I made SVR4 !
« Reply #11 on: September 01, 2015, 09:44:20 pm »
What can I say that everyone else above has said.

May your new Hep C free life bring you all the joy you deserve.

Best
Rich
Logged
Chronic 50 years
Geo 1A Stage 3
VL 17.5 mill
non-Hopkins lymphoma cancer
after 4 weeks
AST 87 now 29
ALT 128 now 27
VL now undetected
after 12 wks
VL  undetected

Offline KimInTheForest

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Re: Yay! I made SVR4 !
« Reply #12 on: September 01, 2015, 10:06:05 pm »
Thanks so much Rich! How are you doing? Have you received results on 4-week post-tx labs (since we started at virtually same time)?

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline ricpark

  • Member
  • Posts: 87
Re: Yay! I made SVR4 !
« Reply #13 on: September 01, 2015, 10:27:27 pm »
My Ins won't pay for 4 wk post, I take 12 wk post on October 19 and see Doc on November 2nd. My Cancer Doc says that the lymphoma should not return since I am SVR and it was connected to the Hep C.

I am busy trying to get rid or sell 20 years of crap to move into a small house (built in 1893) in Nebraska, I live in a larger house in the Kansas City area of Kansas. I can't afford the payments with my wife going on permanent disability and me on Social Security. It's my wife's family home in rural Nebraska (I'm a city boy from New York City, I will be bored).
Thanks for asking
rich
Logged
Chronic 50 years
Geo 1A Stage 3
VL 17.5 mill
non-Hopkins lymphoma cancer
after 4 weeks
AST 87 now 29
ALT 128 now 27
VL now undetected
after 12 wks
VL  undetected

Offline ricpark

  • Member
  • Posts: 87
Re: Yay! I made SVR4 !
« Reply #14 on: September 01, 2015, 10:32:15 pm »
I forgot to ask how are you feeling? My energy level seems to be slowly going up, today I replaced the drive shafts universal joints on my pick up truck (took almost all day fighting rust its 13 years old.

I just have cramps (not as bad, Doc approves of my self treatment) and bad heartburn.
Rich
Logged
Chronic 50 years
Geo 1A Stage 3
VL 17.5 mill
non-Hopkins lymphoma cancer
after 4 weeks
AST 87 now 29
ALT 128 now 27
VL now undetected
after 12 wks
VL  undetected

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Yay! I made SVR4 !
« Reply #15 on: September 01, 2015, 10:49:20 pm »
Quote from: ricpark on September 01, 2015, 10:27:27 pm
I am busy trying to get rid or sell 20 years of crap to move into a small house (built in 1893) in Nebraska, I live in a larger house in the Kansas City area of Kansas. I can't afford the payments with my wife going on permanent disability and me on Social Security. It's my wife's family home in rural Nebraska (I'm a city boy from New York City, I will be bored).

I have to say, an 1893 house in rural Nebraska sounds absolutely charming to me! I have "back to the land" fantasies that have been running in my mind for decades, and for some reason I have never been able to fulfill them. I am also very anti-wireless radiation - no cell phones, cordless phones, wifi, smart meters, etc. This rural farmhouse might be a very low EMF/RF environment. You cannot believe how many people are in desperate need of that kind of radiation-free environment right now and are searching everywhere with no luck.

Maybe Nebraska in winter would get old fast - I don't know. It won't be NYC, that's for sure. I hope you report back to us, Rich! Would love to see a photo of that 1893 house.

And great news that your lymphoma is likely gone! I was hoping that would be the case. Have been reading about how the HCV-related lymphoma disappears once the Hep C virus is gone.

My energy and health are finally improving after taking quite a downturn post-tx. Appetite back to normal, fever gone, cough almost gone, hardly any cramping. Just some fatigue. My hemoglobin and red blood cells are still below normal.

Good luck to you and your wife, Rich! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline GLCII

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  • Posts: 127
Re: Yay! I made SVR4 !
« Reply #16 on: September 02, 2015, 06:12:18 pm »
That's Great news Kim!!!

Logged
Pre Tx (VL 12043488) ALT 52/ AST 39
Harvoni Start Date 03/12
2 Week in Tx Results HCV RNA Detected, less than 15 IU/mL. ALT 19 / AST 19
4 Weeks in Tx Results HCV RNA Not detected. ALT 21 / AST 18
12 Week in Tx Results HCV RNA Not detected. ALT 17 / AST 19
--------------------------------------------------------------
Post 12 Week EOT Tx ALT 19/ AST 19 (Undetected)
Post 24 Week EOT Tx ALT 19/ AST 15 (Undetected)

Offline KimInTheForest

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  • Believe in yourself
Re: Yay! I made SVR4 !
« Reply #17 on: September 02, 2015, 09:18:10 pm »
Quote from: GLCII on September 02, 2015, 06:12:18 pm
That's Great news Kim!!!

Thanks GLCII. And congrats on your SVR12! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: Yay! I made SVR4 !
« Reply #18 on: September 02, 2015, 09:53:28 pm »
SVR 4 is a  big deal Kim and congratulations.
I remember seeing in another post that SVR at 4 weeks post puts you at 99% chance of clearing for SVR 12.
The odds are truly in your favor now.
Logged
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Yay! I made SVR4 !
« Reply #19 on: September 02, 2015, 09:56:52 pm »
Thanks Sapphire! :) I was really happy to get my SVR4 results because I became quite sick with mystery illness post-tx, and one always worries…

And congrats on your SVR12!

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Yay! I made SVR4 !
« Reply #20 on: September 02, 2015, 10:12:10 pm »
Congrats Kim....that's just awesome on your numbers. I was just telling Cal earlier that although I have really had no side effects,,I have no appetite. I have gone slightly anemic...i too have lost 10 pounds, and I didn't need to. I just have no appetite. I have decided that I am gonna just have to make myself eat so I don't lose more weight. I am very very happy for you!!!

Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Yay! I made SVR4 !
« Reply #21 on: September 02, 2015, 10:17:36 pm »
Rich, good luck with selling 20 years of crap. Should be a good week to do it, weather will be nice the rest of the week. I too am in Kansas City, but on the Missouri side...Go Royals!!!


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline KimInTheForest

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  • Believe in yourself
Re: Yay! I made SVR4 !
« Reply #22 on: September 02, 2015, 10:21:55 pm »
Quote from: Scoutdoy on September 02, 2015, 10:12:10 pm
Congrats Kim....that's just awesome on your numbers. I was just telling Cal earlier that although I have really had no side effects,,I have no appetite. I have gone slightly anemic...i too have lost 10 pounds, and I didn't need to. I just have no appetite. I have decided that I am gonna just have to make myself eat so I don't lose more weight. I am very very happy for you!!!

Thanks Scout! :) Speaking from experience (of how sick I got post-tx from being so depleted during tx), I now know how important it is to keep nutrients going in during treatment even if the side effects make it hard or impossible to eat normally. If I had it to do over I would:
1) get a high quality protein shake and take it daily (Ultra Nourish Liver Support Vegetarian Superfood is probably the one I would try first - not trying to promote any product here, it's just the one that looks the best to me from my research);
2) have my GP regularly check my iron and B12 and anything else like that that I might be getting deficient in if I am unable to eat;
3) take iron and B12 shots to correct it if necessary. I am going in to my GP next week for those 2 shots because I did become quite deficient in iron and B12, and that is probably why my hemoglobin and red blood cells still have not gone back to normal range 5 weeks post-tx.

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Yay! I made SVR4 !
« Reply #23 on: September 02, 2015, 11:29:23 pm »
Thanks for the advice Kim, I just drove up to cvs and bought some protein drinks and downed the first one...eeeeegaddds it was horrible but since I have already started to go anemic I figured I better get on it

Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!
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