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Author Topic: Can unused sealed Harvoni be donated?  (Read 9849 times)

0 Members and 1 Guest are viewing this topic.

Offline Espo2

  • Member
  • Posts: 30
  • Needle stick at work 1987, 1b
Can unused sealed Harvoni be donated?
« on: September 02, 2015, 06:37:22 pm »
Had to quit after 2nd bottle done, after 3rd bottle already sent. Doc doesn't want it. Anyone know how not to waste this? Legalities ?

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Can unused sealed Harvoni be donated?
« Reply #1 on: September 02, 2015, 08:03:23 pm »
Keep it. What if you need it in the future


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Espo2

  • Member
  • Posts: 30
  • Needle stick at work 1987, 1b
Re: Can unused sealed Harvoni be donated?
« Reply #2 on: September 03, 2015, 11:20:13 pm »
Thanks Scout, My VL is undetected for 3 labs. You think I would need it?

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Can unused sealed Harvoni be donated?
« Reply #3 on: September 03, 2015, 11:28:15 pm »
You never know...and that is $33,000 worth of medicine you have there...if for some ungodly reason something happens and you need it in the future your insurance could say "nope, we already sent you your fill" I don't know,,,but I would hang on to it...just in case
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Espo2

  • Member
  • Posts: 30
  • Needle stick at work 1987, 1b
Re: Can unused sealed Harvoni be donated?
« Reply #4 on: September 03, 2015, 11:32:54 pm »
Possibly another company coming out w new drug.I guess you are right, who knows. Just bothers me that some people have to go into debt for medicine they need.

Offline Espo2

  • Member
  • Posts: 30
  • Needle stick at work 1987, 1b
Re: Can unused sealed Harvoni be donated?
« Reply #5 on: September 03, 2015, 11:35:52 pm »
Are you still taking med?

Offline S.Belle

  • Member
  • Posts: 17
Re: Can unused sealed Harvoni be donated?
« Reply #6 on: September 04, 2015, 06:26:43 am »
What do you mean by "had to quit" after second bottle ?
Genotype 1
Infected in early 1990's Diagnosed in 2008
No previous treatment
Fibrosure score F3   Viral Load 94,000
ALT 117  AST 115
Started Harvoni on July 14, 2015



Two weeks into Harvoni blood test results:
ALT 13  AST 21
Viral Load  =  UNDETECTED  !!!


Four weeks into Harvoni blood test results:
ALT 14  AST 20
Viral Load  =  UNDETECTED

Five months post Harvoni treatment and still virus free !

ONE YEAR post Harvoni treatment and still virus free !!!

Offline Espo2

  • Member
  • Posts: 30
  • Needle stick at work 1987, 1b
Re: Can unused sealed Harvoni be donated?
« Reply #7 on: September 04, 2015, 09:16:42 am »
Anxiety and B/P unmanageable. 3 undetected labs.

Offline iana5252

  • Administrator
  • Member
  • Posts: 185
Re: Can unused sealed Harvoni be donated?
« Reply #8 on: September 04, 2015, 10:07:33 am »
DisposeMyMeds.org is an online resource to help you to find medication disposal programs at the local independent community pharmacy near you. This public service program is presented by the NCPA Foundation.

Your local community pharmacist has knowledge to ensure the safe and proper handling of your medications, from dispensing to disposal.

http://disposemymeds.org/

Offline byebyeC

  • Member
  • Posts: 286
Re: Can unused sealed Harvoni be donated?
« Reply #9 on: September 19, 2015, 06:49:17 pm »
Not sure if this reply would pass moderator snuff, but I've seen A LOT of people posting how they have begged to extend a month but their Dr. or insurance won't approve. If it were me, and I knew I couldn't use the rx, I'd look for one of these poor souls, pm them and get it to them somehow. That's just me...

God bless you with SVR!
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Rosie13

  • Member
  • Posts: 297
Re: Can unused sealed Harvoni be donated?
« Reply #10 on: September 22, 2015, 02:51:53 pm »
Hi Espo , sorry you had to quit but fabulous you were undetected 3 times. I almost did not get Harvoni because of the wording in my pharmacy coverage. They broke down & covered me 2 months only because major medical gave them an out. My GI wants me on it for 12 weeks but so far denied. I am hoping if my numbers are not undetected in 2 weeks  it will happen but so far they only will cover for 8 weeks. That stuff is golden so please hang on to it for awhile. Thanks
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Can unused sealed Harvoni be donated?
« Reply #11 on: September 22, 2015, 07:41:24 pm »
Espo2 - Did you discuss this with your doc before stopping? 3 undetectable viral loads does not equal a permanent cure
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Can unused sealed Harvoni be donated?
« Reply #12 on: September 22, 2015, 08:06:37 pm »
The only legal choice here is to find a safe disposal site. I'll refer you to the previous post:
Quote
DisposeMyMeds.org is an online resource to help you to find medication disposal programs at the local independent community pharmacy near you. This public service program is presented by the NCPA Foundation.

Your local community pharmacist has knowledge to ensure the safe and proper handling of your medications, from dispensing to disposal.

http://disposemymeds.org/

Please, no discussion about what to do with medication, other than safe disposal. There are legal issues here.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Onefluover

  • Member
  • Posts: 41
Re: Can unused sealed Harvoni be donated?
« Reply #13 on: September 22, 2015, 08:17:16 pm »
Yeah... Wow!
51 M HAV/HBV Im., HCV-G3a
Fibrospect 2 <16 (F0/1) VL 4M
Expsd 1984-1992 (?) dx 1992
First tx attempt 2015
Liver 18.6 cm, relatively course & echogenic w/ diffuse hepatocellular process. 
Abnormal labs: ALT 163, AST 73, Chol 118, HDL Chol 30, IGA .05, Ferritin 648, Iron Bind Cap 296, Iron Sat 60%
Signs & symptoms: Freq. severe headache, very high BP, abdominal pain, distentia, joint pain, dbl vis., white nails, Schamberg's Dis., nausea, mild Jaundice, dark urine, non-hereditary Hemochromatosis.

 


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