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Author Topic: Pretty happy!  (Read 17149 times)

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Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Pretty happy!
« on: September 11, 2015, 03:05:13 pm »
Just got call from nurse re: my 9 week blood draw.

She said I was "undetected"!

Course she has said this before and the report said >15  HCV RNA detected.

But ,  I'll take it anyway!

She is sending me hard copies.  I would love to see the actual word "undetected" on there!

Meant to ask her on the phone but was too excited!!

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Pretty happy!
« Reply #1 on: September 11, 2015, 03:14:14 pm »
Great news, DM!  8)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #2 on: September 11, 2015, 03:17:46 pm »
Thanks Kim!!!!!!!!

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Pretty happy!
« Reply #3 on: September 11, 2015, 03:23:02 pm »
How ya gonna celebrate? Ice cream? or…?

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Pretty happy!
« Reply #4 on: September 11, 2015, 03:50:37 pm »
That's great dm....do the happy dance!!
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Pretty happy!
« Reply #5 on: September 11, 2015, 04:43:06 pm »
dm, your news is making me ECSTATIC! Thanks for letting us know!
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Corey

  • Member
  • Posts: 31
Re: Pretty happy!
« Reply #6 on: September 11, 2015, 06:57:01 pm »
Excellent news!!  Congratulations!

Offline DeathtoHep

  • Member
  • Posts: 50
Re: Pretty happy!
« Reply #7 on: September 11, 2015, 10:00:38 pm »
Thats awesome. Hopefully it stays that way. I think im going to request a viral load for my next blood draw.
2005 Interferon nonresponder
2015 Approved for Viekira Pak
Pre TX:    8/3/15   AST 36 ALT 64
WK 3 lab: 8/25/15 AST 21 ALT 35
WK 7 lab: 9/25/15 AST 17 ALT 18
EOT   lab:11/1/15  AST 17 ALT 14 Undetected
12WK post treatment: lab 2/10/16 AST 25 ALT 24 Undetected

Offline Sheltonmj

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  • Posts: 36
  • New at this
Re: Pretty happy!
« Reply #8 on: September 11, 2015, 10:16:38 pm »
How do you feel vs. 2 years ago? Energy?
Been infected since early 80s
60
W male
Genotype 1a
 F4 cirosis
 Vl 4,000,000

Offline Philadelphia

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  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Pretty happy!
« Reply #9 on: September 12, 2015, 04:20:01 am »
Well done DM!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Lou66

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  • Posts: 18
Re: Pretty happy!
« Reply #10 on: September 12, 2015, 05:41:58 am »
Goood
Hcv since 1986
2003 peg inf.+ riba nullrespond.
Genotype 1a
Fibroscan 18,1  F4
Viral load 3800000
Start Harvoni 24 weeks 24 aug. 2015

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Pretty happy!
« Reply #11 on: September 12, 2015, 09:58:24 am »
 DM great news , I'm jealous. Lab lost part of My blood work at 4 week tests, although they billed for it!! Just did 9 week draw , Ins. co. denied request for quantitative because of 4 week SNAFU. More power to You, Keep on keeping on.
  The good fight continues My friends, let's kick some ass & take some name!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Pretty happy!
« Reply #12 on: September 12, 2015, 05:36:30 pm »
Yea, drummerman!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #13 on: September 12, 2015, 10:40:16 pm »
That's great dm....do the happy dance!!
yep , been doing it all day, even though i just cooked 650 hot dogs!  Football concessions ... ugh...with riba cough..

but, I was dancin the whole time!

thanks scoutdoy!
dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #14 on: September 12, 2015, 10:48:43 pm »
How ya gonna celebrate? Ice cream? or…?

kim

well actually ,  I have to say.... i ate whatever i wanted during tx... good food, healthy food and baaaadddd food, cookies , candy etc.

The first time i tx'ed I totally obsessed about insulin resistance... which i got under control with the south park diet.... and it was brutal .... and I still was unresponsive.

This time I said ..."screw that"... but here's the weird thing...before I cleared I was hungry ALL OF THE TIME.

On this new tx, I could eat say a handful of peanuts between class and I was fine and satisfied for an hour or so.....
I could eat lunch and not be hungry again 30 minutes later.

Well here is what was going on (IMO)  the hcv virus was making  me IR, resulting in this roller coaster blood sugar.  I was thinking that my IR was caused by my eating habits,... but actually it was the virus causing me to be IR...(which HCV thrives on).   

Anyway , mystery solved... and so nice to be able to eat and be satisfied for and hour or 2..... haven't tried Chinese food yet.....that will be a good test.

And thanks Kim for all your advice and encouragement!

Sorry so chatty....its the stupid riba.

dm
« Last Edit: September 12, 2015, 10:50:48 pm by drummerman »
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #15 on: September 12, 2015, 10:53:18 pm »
Well done DM!

Thanks Philly, ... you were a great coach and stabilizing mentor  .. I truly appreciate it!

dm
« Last Edit: September 12, 2015, 11:07:30 pm by drummerman »
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #16 on: September 12, 2015, 11:03:33 pm »
DM great news , I'm jealous. Lab lost part of My blood work at 4 week tests, although they billed for it!! Just did 9 week draw , Ins. co. denied request for quantitative because of 4 week SNAFU. More power to You, Keep on keeping on.
  The good fight continues My friends, let's kick some ass & take some name!

Well, these test machines are all different and different labs have different equipment....
turns out, mine was like several tried to tell me.... my machine (tobas taqman v2) apparently does double duty.. it can do a quantitive measure but if there is no hcv rna it reports:
"Hepatitis C Quantitation HCV Not Detected IU/mL"

My nurse highlighted that part... guess she picked up on my confusion re:quantitative vs qualitative .

Ps - I had a lab at a major university hospital that labeled my blood draws with THE WRONG NAME... what a mess.... the tech is always supposed to show you all three vials , with your name on the sticker... not just one vial...Everyone , always ask to see your sticker on your vials.... all of them.  Assume nothing.

Slats .... you are right behind me... and insurance will get it figured out.... everything is a constant battle , at least in my part of the country and insurance companies are getting pickier and jerkier.  Just keep fighting them.. you will win.  Keep asking for supervisors ....lower level workers are seldom helpful.  And most of the ones that gave me the most problem were from  Memphis (online pharmacy, that likes to pretend they are my insurance company and my insurance company lets them and passes the buck.
Shameful.

dm

« Last Edit: September 12, 2015, 11:12:23 pm by drummerman »
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #17 on: September 12, 2015, 11:06:50 pm »
Yea, drummerman!

Thanks Bree.... we're on the same track fast approaching the finish line!

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #18 on: September 12, 2015, 11:09:22 pm »
Goood
Thanks Lou!

Your on your way too!

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #19 on: September 13, 2015, 12:31:56 am »
Thats awesome. Hopefully it stays that way. I think im going to request a viral load for my next blood draw.

The only reason I got the vl tests that i did , is cause my doc is still thinking old school tx.

But I was so glad he ordered them as they did encourage me greatlyl

But they are not near as required as before.

Get em while you can, cause I got a sick feeling the ins companies are gonna get real stingy with them. 

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #20 on: September 13, 2015, 12:48:22 am »
How do you feel vs. 2 years ago? Energy?

That is a great question Shelton!

Its weird.  Its like two levels - the top level is the edgy, riba cough , winded level.

but underneath that there is a new feeling of normalcy. Being infected for 30 years... things changed so gradually, that I never really felt "sick", (except when the virus became very active, vomiting, chills, flu like, bad joint pain.  That lasted about a month and then I just gradually became moodier, less energy, ..etc... but it was so over so long a period that I really didn't notice. 

But now!!!  The first think I noticed .... the joint pain in each finger joint just disappeared at about week 3!  Just woke up,... pain gone!!! joint pain in hip gone!!  Thats when I knew....this stuff is working!
Also, I noticed that I was not hungry all the time.  Meals could hold me for 2,3, 4 hours.  Not like before, when I would eat and eat again 30 minutes later. The virus was inducing insulin resistance.  i tried to control this with diet, but now, it is gone.   Gonna get an IR test soon, and I bet it is normal.  And was normal only once in the past 15 years... and that was when I did the south park diet... which was nooo fun.

Other thing I noticed.... colors are more vibrant, my sense of smell is better.  And other system are working more like when I was 20yrs old with out giving TMI.    I am not as grumpy,  I have happy feeling that I remember having as a child... a profound appreciation of the moment I'm in... it could be a child laughing, a dog wagging his tail, a cloud passing, rain,  anything... and can bring me to the point of tearfulness.  It is not unpleasant , and I hope its not just the riba, cause I see beauty in things I see and hear that I haven't felt since I was a child through my 20s.   weird.  Hope it lasts.  I like it.

again...great question!!!
dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline coastal girl

  • Member
  • Posts: 36
Re: Pretty happy!
« Reply #21 on: September 15, 2015, 01:13:29 am »
Hi Drummerman,
Very interesting on the insulin resistance...That may be a problem I have had for awhile now...years actually.  I need to eat often and sometimes if I don't I get very shaky and irritable.  I'm surprised none of my doctor's have ever suggested that I take that test.  I started Harvoni 12 days ago and have had no bad sides unless you call energy boosts bad...well actually about 2 hours after dosing I do get a bit anxious for about an hour but it passes.  I would love my appetite to suppress a bit, weights not a problem but my liver probably doesn't appreciate having to process food constantly!!  I'll ask my GP about it, Thanks for the post, I thought I was just a piggy :)
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline DeathtoHep

  • Member
  • Posts: 50
Re: Pretty happy!
« Reply #22 on: September 15, 2015, 01:16:13 am »
Its funny how it seems everyone on Harvoni feels such energy boosts and previous symptoms disappear while on VP it seems to be the opposite.
2005 Interferon nonresponder
2015 Approved for Viekira Pak
Pre TX:    8/3/15   AST 36 ALT 64
WK 3 lab: 8/25/15 AST 21 ALT 35
WK 7 lab: 9/25/15 AST 17 ALT 18
EOT   lab:11/1/15  AST 17 ALT 14 Undetected
12WK post treatment: lab 2/10/16 AST 25 ALT 24 Undetected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Pretty happy!
« Reply #23 on: September 15, 2015, 06:25:48 am »
Hi Adam,
It's so cool that you're so happy. Makes me want to cry. I am crying more since starting tx ! But I can feel your energy jumping off the screen at me. You are the bomb!!! Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Pretty happy!
« Reply #24 on: September 15, 2015, 06:30:13 am »
Hi Deathtohep,
I have clearer thinking at week 3, it's still slow, but I have been able to read for small periods after 4 years post tx of not being able to concentrate long enough. Other than that, I'm too sick with sxs to feel better. That sounds really spooky baby.  :'(cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #25 on: September 15, 2015, 06:58:55 am »
Hi Drummerman,
Very interesting on the insulin resistance...That may be a problem I have had for awhile now...years actually.  I need to eat often and sometimes if I don't I get very shaky and irritable.  I'm surprised none of my doctor's have ever suggested that I take that test.  I started Harvoni 12 days ago and have had no bad sides unless you call energy boosts bad...well actually about 2 hours after dosing I do get a bit anxious for about an hour but it passes.  I would love my appetite to suppress a bit, weights not a problem but my liver probably doesn't appreciate having to process food constantly!!  I'll ask my GP about it, Thanks for the post, I thought I was just a piggy :)

Most doctors won't even know what you are talking about if you bring up IR.   They will just keep saying "we'll you A1C is fine and your not diabetic"..

If you have hcv , you are more than likely insulin resistant.  I have the formula for calculating IR somewhere, will look for it later.  I had to give it to my doctor.

My appetite is not suppressed now....it just that my blood sugar levels are now stabilized (I believe) and so I don't spike and then go low.  I had the same shakiness, etc.... not overweight either.   I use to always get so annoyed when my college room mate used to always say  "your always hungry! and eating all the time".

I will look around for some bookmarks and look and books and try to send you some info.   Don't even mention to your doc until you have some background info.... he more than likely look at you like you are insane.

Fortunately my doc is very open and looks at everything I give him...or at least he says he does...he may just be humoring ...but if I ask for an IR test, he gives it to me.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline coastal girl

  • Member
  • Posts: 36
Re: Pretty happy!
« Reply #26 on: September 15, 2015, 11:52:32 am »
Thanks DM,  any info would be greatly appreciated :)
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline coastal girl

  • Member
  • Posts: 36
Re: Pretty happy!
« Reply #27 on: September 15, 2015, 11:57:15 am »
Thanks DM,  any info would be greatly appreciated :)
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #28 on: September 15, 2015, 09:50:13 pm »
Thanks DM,  any info would be greatly appreciated :)

Here is the website with an online calculator or you can do the math yourself.
You have to get a fasting glucose test and a fasting insulin test.

http://gihep.com/calculators/other/homa/

Again, your doc may act like you are insane and tell you "you are  not diabetic, you are not overweight and you A1C is perfect."

But here's the deal.  If you are IR , you are probably producing enough insulin.  The dumbed down explanation I received (and thats the only way I could understand it) is:   "You have plenty of insulin, it moves sugar into the cells of your blood.  The problem is each cell has a lock on it.... if you are IR, these locks are rusty and hard to open, so insulin can't efficiently move sugar into the cell.  The insulin cannot unlock the rusty lock.  To top that off, your pancreas starts creating too much insulin in an attempt to compensate..... guess what this leads to....pancreatic cancer.. not good.

Now while HCV induces IR , so does your diet.  So it is a battle on two fronts , until you get rid of your hcv...then it gets a lot easier diet-wise.

The only time I got my IR under control was when I went on the south beach diet...it was grueling and it work and I did feel better.  Then I switch to a strict paleo diet and that worek as well.  But now I eat a wide variety of food both good and bad.

Anyway , here is a good book that does a good job of explaining IR.
"The Insulin-resistance Diet,  Cheryle R. Hart, M.D."

I think I got it from amazon.  It  is far more than a diet book and has a lot of good info.  Check it out.

ps - something like 80% of all IRs go on to become diabetic.  Not totally sure of the percentage....its somewhere in the book.  And  you can find many websites that also do a good job explaining.

Good luck getting your doctor to order you a fasting glucose and fasting insulin blood test.  But let him know how you are hungry all of the time , and irritable if you don't eat and feel you may be Insulin Resistant which you are concerned may lead to diabetes.

Post the result is you do get your HOMA score.  Would be interested.

dm
« Last Edit: September 15, 2015, 09:52:27 pm by drummerman »
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Pretty happy!
« Reply #29 on: September 15, 2015, 09:54:22 pm »
Hi all,
I was alerted to IR before my first tx and went on a low GI diet. I got my homa index down to a great level. I have stuck with it because of the propensity of HCVers developing Diabetes 2. Drummer man will tell you how to do the calculation easier but here is a link to a calculator.  https://www.dtu.ox.ac.uk/homacalculator/
Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Pretty happy!
« Reply #30 on: September 15, 2015, 09:55:20 pm »
Sorry DM we must have posted at the same time! Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Pretty happy!
« Reply #31 on: September 16, 2015, 03:17:51 pm »
Congrats to you, Warrior!  (I mean, drummerman - your avatar is too memorable! ;D)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Picnic

  • Member
  • Posts: 110
Re: Pretty happy!
« Reply #32 on: September 16, 2015, 03:32:09 pm »
I am sure you meant <15  HCV RNA detected because >15 is detected. Larry
Larry

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #33 on: September 16, 2015, 04:16:13 pm »
Thanks DM,  any info would be greatly appreciated :)

ps - I might be a little too hard on doctors  concerning IR subject.  Things could be totally different now.  A lot has changed since 2008.

Also, I really don't think IR has an effect on today's new tx, but it is good to have it under control just so you  don't have those glucose spikes.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #34 on: September 16, 2015, 04:17:41 pm »
I am sure you meant <15  HCV RNA detected because >15 is detected. Larry

yep.

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Pretty happy!
« Reply #35 on: September 16, 2015, 04:21:01 pm »
Congrats to you, Warrior!  (I mean, drummerman - your avatar is too memorable! ;D)

Thanks Else!

Glad you like the avatar!  Uma!!!  Beatrix Kiddo!
"I have vermin to kill."

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline DeathtoHep

  • Member
  • Posts: 50
Re: Pretty happy!
« Reply #36 on: September 17, 2015, 02:59:48 am »
This is an interesting topic since in the last couple years I have felt extreme fatigue after eating in addition to heart problems which led to Afib and an ER visit. Later they said I have MVP but will get this checked further after treatment. I also had high levels of protein in my urine and high BP consistently. Again, all in the last two years these things have developed. Ive always wondered if I was prediabetic but Ive told two doctors about my symptoms and they just told me to limit my sugar intake. I will agree that doctors overlook a lot and its hard for me to trust them when they tell me nothing is wrong....obviously something is wrong or I wouldnt be there! ???
2005 Interferon nonresponder
2015 Approved for Viekira Pak
Pre TX:    8/3/15   AST 36 ALT 64
WK 3 lab: 8/25/15 AST 21 ALT 35
WK 7 lab: 9/25/15 AST 17 ALT 18
EOT   lab:11/1/15  AST 17 ALT 14 Undetected
12WK post treatment: lab 2/10/16 AST 25 ALT 24 Undetected

 


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