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Author Topic: Nearing EOT - Finishing Strong and Staying Positive!  (Read 188458 times)

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Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #100 on: October 02, 2015, 09:02:30 pm »
I read somewhere here that ribavirin is traceable in plasma for around 4 weeks? I think. But is in tissue, cells, muscle etc for up to 6 months! Mmmmm gotta love the ribas! I haven't investigated the Viekira Pak yet, there's so many darn drugs in them!  :)Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #101 on: October 03, 2015, 02:59:02 pm »
Cal... and everyone.  I was anxiously awaiting the VL test post treatment.  So I got the test results today and they did the wrong one!!!  They did HBV... thank you doctor, infectious disease specialist!  Really builds confidence huh.  (Well, at least I know I don't have HBV!) 

This test was ordered when I saw him at 6 week mark on treatment and not scheduled to see him again until 3 weeks post after we got EOT results (which I get when they come in via the portal).  I even contacted the nurse to make certain the VL test was ordered before I went for the blood draw.  It was supposed to be done within one week EOT.  Yep, she said it's ordered.  It's all in the computer so I don't actually see the order.

Since I have been sick with this flu (and still am), I really extra wanted confirmation for my mental and emotional health.  So, now I have to make certain he orders the correct test, go back and wait another week.  Guess I might as well relax about it.  Out of my control.  I had a really bad experience at this last blood draw... I'll go in with stronger boundaries this time around.

These test are so important to us... we go through the mill for treatment.  I wish folks wouldn't be so damn cavalier about it!

I still feel positive about things, despite being sick and everything else. 
 
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #102 on: October 03, 2015, 06:48:25 pm »
Oh Bree,
You poor thing. That is unacceptable. How do they manage to be so consistently. Wrong? Practice I guess. Yes it's out of your control now, and you are unwell, so try to have a stress free week. It will be UND but you need to see it, I understand. Thinking of you. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #103 on: October 03, 2015, 07:02:40 pm »
Thanks Cal!  I needed a little empathy today.  You made me laugh.  Here I ran in on Monday to get results by Friday, thought I wouldn't get them till Monday and I got them on Saturday, only to be wrong test. 

We all make mistakes and I know he's a smart guy, but seriously!  I'm glad I didn't have him do a biopsy!  He has a huge ego, I'll be surprised if he apologizes.  One of those.  I struggled with him this entire time and look the other way as he wrote the script and understands this disease clinically.

So when I start my thread on the other side "Making the Most of Post" I guess I might as well start "Making the Most" now. More lessons...err opportunities.

Yes, in my heart I know it's undetected. 
 
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #104 on: October 04, 2015, 03:33:51 am »
You're welcome poor Bree.
My Doctor is lovely and I have his mobile number to call him anytime and he's available to me. I just feel I shouldn't bother him and get my GP to call instead! I'm such a baby.

There are a lot if egos in this Medical world. I wonder if a crazed RIBA eager has gone off their nut? Rightly so too, good on them.

You're UND Chickie. :)

Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #105 on: October 04, 2015, 03:04:26 pm »
Poor Bree!!!

I hope you're feeling a bit better... Have you gone in for your re-test yet?...

Just a few more days of waiting. Then if they don't get it right... throat punch ;D

teehee,
Marianne
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #106 on: October 04, 2015, 06:45:32 pm »
Quote from: Cal on October 04, 2015, 03:33:51 am
My Doctor is lovely and I have his mobile number to call him anytime and he's available to me. I just feel I shouldn't bother him and get my GP to call instead! I'm such a baby.
You're UND Chickie. :)
Cal

Thanks Cal!  That's awesome Cal that you doc is that way. I could go on and on about my specialist doc but not worth the energy... he had too much of my energy already!   Grateful my GP which is an internist is smart and awesome and willing to help!  When I got approved from Support Path, she called and said she was dancing in her office!

BTW, you are not a baby... you are one of the strongest people I know!

I'm feeling better each day!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #107 on: October 04, 2015, 06:55:42 pm »
Quote from: byebyeC on October 04, 2015, 03:04:26 pm
Poor Bree!!!

I hope you're feeling a bit better... Have you gone in for your re-test yet?...

Just a few more days of waiting. Then if they don't get it right... throat punch ;D

teehee,
Marianne

Ha Marianne,  thanks for asking.... I think the question is are you feeling better? ;).  Nothing I can do about the re-test until doc re-orders hmmm, the correct one, on Monday.  Let's hope he's in his office on Monday. 

I had an fantastic event at sunset last night.  Drove a golf cart to this pristine cliff in one of the most beautiful places on earth.  Instantly I felt better... pure joy.  That helped a lot!

I'm starting to feel a little better each day... sleeping a little better too, each day builds a better day.  I'm still struggling with this flu thing but feel I have passed the half way mark.  I took dogs to doggie park and walked 3 miles (best walk in a long time), singing to my ipod all the way!  I really want to build on this type of freedom and "song in my heart".  It's a good thing.  8)  Just waiting for my body to catch up.  I think I need to give it time... it's been through quite a bit!  Thank you body, for hanging in there and supporting me all this way :)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #108 on: October 04, 2015, 07:27:17 pm »
Quote from: Bree on October 04, 2015, 06:45:32 pm
Thanks Cal!  That's awesome Cal that you doc is that way. I could go on and on about my specialist doc but not worth the energy... he had too much of my energy already!   Grateful my GP which is an internist is smart and awesome and willing to help!  When I got approved from Support Path, she called and said she was dancing in her office!

BTW, you are not a baby... you are one of the strongest people I know!

I'm feeling better each day!
Bree,
You're pretty strong yourself kiddo! Yes we need someone on our side in this war. The internist sounds special.  You are so full of life you inspire me. I too will face post tx with appreciation to be there. Not with despair that I don't feel fab yet! I know my poor old bod has taken a. Serious beating so far.  It will need love and care for a while. It's so important to be like you and remain grateful and happy no matter what the body is saying. Love your work. Cal 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #109 on: October 04, 2015, 09:50:14 pm »
Bree,

Was it the "throat punch" that gave me away? (she blushes :D )...

Gotta love ribavirin... Literally have to. I'll live through it, the victory dance with all my Happy Ex-Heppers! Can't wait!!!
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #110 on: October 04, 2015, 11:09:26 pm »
Marianne,
I agree.
We have to love ribas. They are getting us to where we want to go. We have to accept them now and be mindful of there sxs and appreciative of the therapeutic kick of those sxs!Plenty of time to slag them off when you''ve svr'ed. But now we LOVE them. Yummy. hehe. Cal :-*
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #111 on: October 04, 2015, 11:33:32 pm »
So lucky I wasn't on ribas.  But I have been... now if they only made them in gummy bears. Ha.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #112 on: October 05, 2015, 11:06:33 am »
Lol Cal and Bree!

Thank you for keeping me laughing :D :D :D
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #113 on: October 05, 2015, 04:19:53 pm »
Hey, everybody -- Tommy (slats1056) should be taking his last pill tomorrow! He hasn't posted anything since October 2 -- sure hope he's sprinting to the finish line.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #114 on: October 05, 2015, 05:53:39 pm »
Yes he has been quiet?  Hope he's ok. Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #115 on: October 05, 2015, 08:25:26 pm »
I thought the forum was quiet... maybe he took a weekend break.
Earth to Tommy... Tommy where art thou?
I know he will be glad to complete treatment...
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #116 on: October 05, 2015, 08:33:16 pm »
O.k. got EOT blood test done... again.  The Doc actually apologized! (Miracles never cease). More like..."sorry about that".  He said that when he clicks Hepc test both Hepc and Hepb come up and it has happened a couple of times.  I was thinking .... well, if it has happened a couple of times... might be a good idea to pay close attention to which box is checked.  But, the new me Bree let it slide.

There also did another Comp and CBC... I told them I had those done last week and she said I could have every month if I wanted and this is a new month.  Who am I to argue?

Anyway, expecting great results and feeling better every day all in all.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #117 on: October 05, 2015, 08:59:25 pm »
Bree, glad you're feeling better every day.

It wasn't all that long ago that doctors were taught never to apologize. Then they learned that patients are unlikely to sue a doctor who apologizes. They're still quite new at this apology business. It's great that you are able to cut him some slack.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #118 on: October 05, 2015, 09:06:04 pm »
OMG,
We don't sue here, or very rarely. It usually makes the papers or TV when someone does. Bree great that you got  an apology, some have such a God Complex.
Now we wait for good results. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #119 on: October 05, 2015, 09:16:19 pm »
This guy does have a God complex, so all the more surprising.  This EOT test was very important to me, esp since I have been sick.  To apologize was the right thing to do.

Apologies are important when we step on someone's toes, or cost them time, money, distress or hurt them.  Having said that, I didn't behave so great at a retail store today after a long wait in line with a really inconsiderate person in front of me that made everyone else have to wait about an extra 20 minutes.

I'm still happy and grateful!  I think I am cured so I'll take a few inconveniences along the way!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #120 on: October 05, 2015, 10:05:42 pm »
Quote from: gnatcatcher on October 05, 2015, 04:19:53 pm
Hey, everybody -- Tommy (slats1056) should be taking his last pill tomorrow! He hasn't posted anything since October 2 -- sure hope he's sprinting to the finish line.

I've been thinking the same thing - awfully quiet here without Tommy's jokes… We hope you're doing ok, Tommy!

kim :)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #121 on: October 05, 2015, 10:31:36 pm »
 Hey Everybody, I appreciate the concerns coming from everyone but those around Me at the moment! As usual , being the go to guy around here I have been run ragged since Friday. The mortals need their Man on the spot , so I was happy to oblige them. Although it wore Me down to a nub. What with cars broke down, wreckers. car wrecks, more wreckers, car rentals, body shops,repair shops,loaning My vehicle out, helping in-laws , buddies , plumbing problems (no return help there HA HA ) , and everyone elses' problems I haven't had time for My own!!!!! Oh yea, I forgot about the personal banker role!!!! MY BUTT IS LITERALLY DRAGGING THE GROUND RIGHT NOW! I really wonder if people realize how sick & tired We really are compared to the so called health problems and B.S. they are having. Oh well , I continue to march on through the Valley because that is who I am.
 Hope everyone is feeling better and getting healthy. It took Me about an hour or two to get caught up on posts.
 Yes Ladies I am still kicking & screaming. Any day Your get to smell & see the flowers instead of the roots is a good one.
TOMORROW IS INDEED MY LAST DIAMOND BEFORE THE INEVITABLE GRINDING WAIT FOR LABS , THEN OF COURSE 12 & 24 WEEKS TESTS. Scheduled for EOT labs. on 10-14-15 and results 10-19-15 . Oh the drudgery of waiting.
 I must say that it is a happy time for EOT, yet a tad anticlimactic at the same time!!! I can't believe how I have been looking forward to the daily pill, seems like a hell of a lot longer than 84 days. Still having some migraines , tinnitus in left ear ,constant exhaustion. But I haven't been letting on to anyone just how much. It always seem that everyone is having worse problems or a worse day and I am just bitching. That I am so lucky to have the treatment. No one ever thinks about how things have been the last 40 plus years with this anchor around My neck. Oh well , I'll just keep on like Atlas with the weight squarely on My shoulder and soldier on!!!!! BUT, My time is coming soon! I plan on some Me time. Do things I want to do! Go fishing or hunting when I choose. Find Me a new hobby. WHATEVER I CHOOSE TO MAKE UP TIME LOST. Find My heart ( I now it is still around here somewhere, Where did I put the darned thing anyway???? ) and soften it up a little. I think I will rebuild the old Harley I first bought when I was seventeen. The options are endless!!!
  Apparently , so is this post, So let Me see if I can end it with a bang! Here goes!!!

Wow , You really going to fight Me on the internet? What's the worst You can do? CAPS LOCK ME TO DEATH!!!!!!!

 TAKE CARE OF YOURSELF FIRST SO YOU CAN TAKE CARE OF THOSE THAT DEPEND UPON YOU AND NEED YOU THE MOST!!!!!!!!!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #122 on: October 05, 2015, 10:36:10 pm »
Oh, there you are!  At least with being so busy, you haven't had time to dwell on those issues that take up our head space, like test results!  Being busy can be a blessing at times. 

Glad you are almost to the finish line and thanks for weighing in and letting us know you are still with us!  8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #123 on: October 05, 2015, 11:00:57 pm »
 Hey there Breedly-Dee! Yea I was reading Your posts. That just chaps My hide when They screw up & I costs us. Time , money , worry , nerves!!!! I still have not heard a word about the screw up on My 4 week lab work, ins. co. says be patient. I got her good!! I told her I allready was one!!!!LOL! I , too have noticed a tendency to fly off the handle at the drop of a hat!!!! But then again with My lack of a filter between My brain & My mouth , most don't notice it! HA HA!!
 Gnatty My Gnatty!!! How are things on the other side My Dear???? Hope You got some rest & are feeling better!!!!
  Kim and Cal, I hope You two are feeling better. You guys have the patience of Job to put up with all the trials & tribulations of Sxs. during & after Tx,

 WE LIVE IN AN ERA OF SMART PHONES AND STUPID PEOPLE!

 P.S.  Seriously Guys, You can't imagine how it makes My day just being here with YA'LL on the forums!


 
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #124 on: October 05, 2015, 11:03:33 pm »
  HE'S BAAAAAAAACK!!!!!! QUICK LOCK THE DOOR.
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #125 on: October 06, 2015, 01:13:46 am »
I'll be back said The Tominator and he was! We missed you goofing off and generally being a cool dude. Glad you have been well and that your last pill is ready for you doing it's farewell dance.
Yes I can imagine it is an anti climax. We have invested sooo much on getting well, emotionally, intellectually and of course with our time, then it's done and the wait begins AGAIN! Nevermind, I always remind myself to keep my eye on the prize. Off to the GP now to have some blood results woohoo! We still will have those to live for, for a little while yet!. Glad you're back. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #126 on: October 06, 2015, 01:52:36 am »
Bree, Glad you got an apology :) Sorry you're still not feeling well. Your good attitude is an example to us all! <3


Your story made me triple check what labs were being taken today at my 4 week. Want that VL! No one "likes' to be an example of what could go wrong. You got me to triple check the paperwork that was going with my labs :)

So than you NewBreeMe <3
Marianne
« Last Edit: October 06, 2015, 02:07:39 am by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #127 on: October 06, 2015, 02:03:10 am »
Hey Tommy! I mean, HEY TOMMY!

DITTO WHAT GNATTY, BREE, KIM  & CAL SAID!!! (POR FAVOR NOTICE MY ALL CAPS!!!)

Sounds like you've been crazy busy! WE MISSED YOU!!! 8) 8) 8) :o :o :o

Last pil... happy for you. Friendly reminder that Cal and I shall haunt you if you forget us on post tx's side  :o ::) :-[ :-X :-X :-X :-


Ladies! You locked the door whilst I was distracting him with my antics right??? :D
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #128 on: October 06, 2015, 03:31:48 am »
Marianne,
Your plan was dastardly and foolproof, except the door couldn't be locked, they need to come back and forth after all to look after us. .   :P :P :P :P :P :P :P :P :P :P Cal (your partner in crime).  :) :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #129 on: October 06, 2015, 04:05:32 am »
Quote from: slats1056 on October 05, 2015, 11:00:57 pm
. . . Gnatty My Gnatty!!! How are things on the other side . . .

Sleepy -- I'm turning into Rip Van Winkle. If it happens to you, you won't have enough time left over to fix up that Harley.

Tommy, you sure came back roaring, like that awakened grizzly in Montana:
http://apnews.myway.com/article/20151005/us-grizzly-attack-gagging-bear-c211df0690.html

Which test is the odd one out: GMAT, GRE, LSAT, MCAT, SVR12? They're all bloody, but we don't have to study.

Gnatty
« Last Edit: October 06, 2015, 04:15:02 am by gnatcatcher »
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #130 on: October 06, 2015, 01:04:45 pm »
 Out on a limb here , I have not studied for SVR! Just paid attention. That is My final answer!!
  BBC,  Perci told them to do it!!! Besides , I have a master key!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #131 on: October 06, 2015, 01:30:28 pm »
Last day for you today, Tommy?  Sweet!  8)  Celebration in order?

Bree, sorry to hear about the lab screw-up.  You handled that gracefully.

BBC, your humor never fails to crack me up.  You have such a great attitude.
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #132 on: October 06, 2015, 01:35:18 pm »
Tommy,

That darned Perci! He always foils my plans! Even with the all caps... waa waa waaamp!

So goes the way of most of my plans lately, alas...

Can't say we didn't give it the old college try.

Hey Tommy! How'd you get Perci on your side for crying' out loud!!!

 :P
« Last Edit: October 06, 2015, 01:37:39 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #133 on: October 06, 2015, 02:06:30 pm »
 Marianne, You just think You are crazy!! Me and Perci, well that is a long story. BTW, tell Perci straight jackets do NOT come in hawaiin print. He'l just have to settle for tie dyed.
 Thanx All for the congrats & well wishes.

  Else as to the celebration I was thinking about a big ole Texas size seegar and a six pack of Budweiser NA after a good Mexican food dinner!

   Yo no soy marinero, Soy Capitan Mi amigos en la Guerra! VIVA EOT!!! VIA SVR!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #134 on: October 06, 2015, 02:35:04 pm »
Concedo usted es el Capitán en la guerra! VIVA VIVA SVR!

umm... make sure to have Perci plug that hole down there el Capitán ;D


                                      :o :o :o
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #135 on: October 06, 2015, 02:38:39 pm »
 Patches?? We don't need no stinkin' patches.  Btw, can Perci swim?????
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #136 on: October 06, 2015, 02:58:47 pm »
Tommy and Marianne, you two have a secret language.  lol
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #137 on: October 06, 2015, 03:06:03 pm »
Quote from: Bree on October 06, 2015, 02:58:47 pm
Tommy and Marianne, you two have a secret language.  lol

I'm hearing cajun espanole with a Texas twang.  And some random yiddish thrown in.  ;)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #138 on: October 06, 2015, 03:06:50 pm »
 Combination of Espanol, craziness, & Hepanese I do believe. The more insane , the better the understanding.  After all I knew what we were getting into before hand!!!
 No You Didn't!!! Yes I did. No way ,we'll discuss this later when they lets Us out!!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #139 on: October 06, 2015, 03:08:16 pm »
Re:  Blood work.  I already got the CBC and Metabolic tests back... damn, they are fast on that, 10 hours! (All normal AST /22 and ALT/14 (that's one less than last week it was 23/15).  The only wacky result is platelets have dropped to 114... they run low, usually about there... on treatment they came up to 134, still low...   

Putting it in perspective, if the AST/ALT and everything else is normal, it seems like the VL will be non-detected.  It is, because I claimed it!

 I'll put all of this in my signature when I get the VL test back.

Got about 6 hours sleep.  I guess that's the new me Bree.  I can tell my body is trying to make sense of all of this and get over this bug if that's what it is (my son kicked it in 5 days (youth), me I'm up to 10 days so far...  ... in the meantime
my heart is happy 8)  (I have to wear sunglasses where I live;)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #140 on: October 06, 2015, 03:10:35 pm »
 Now Your talking Else. I am going to blame it on Gnatty and all of You other crazies out there. Couldn't be Me !!!! No way! I am riding the wheels off of this crazy train from the caboose I might add!!!! 84 day and I still have not seen the conductor! LOL!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #141 on: October 06, 2015, 03:13:57 pm »
Quote from: BDK on September 22, 2015, 09:05:23 pm
Yay - 16 more days of Harvoni to go - AND got my first undetected result today (bloods drawn at end of week 8 - previous bloods drawn at week 3 were VL of 70).  Very exciting, even though I know that the big one is another 3 1/2  months away.  I will be glad to see what "me off Harvoni" is going to feel like - I have no idea of how to attribute how I feel physically to what anymore (meds, disease, diet, lack pf exercise, etc etc.).  Not that I feel bad at all, but it's hard to believe that Harvoni is killing off the virus with no symptoms, even subtle ones, at all.  I'm so grateful I was able to get this drug, and so angry that it isn't available to everyone who needs it.

Is today the day?  Must be close!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #142 on: October 06, 2015, 03:18:07 pm »
 Bree, the numbers don't lie. The Queen has issued an edict that whatever she claims , so it shall be!!! Hope You kick that bug soon so You can enjoy the new found freedom! Oh to be young again!!!! NOT , ain't no way I'm going thru that crap a second time!!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #143 on: October 06, 2015, 03:19:52 pm »
Quote from: Bree on October 06, 2015, 03:08:16 pm
Putting it in perspective, if the AST/ALT and everything else is normal, it seems like the VL will be non-detected.  It is, because I claimed it!

You're so non-detectable you could walk thru one of those airport scanners and not cast a shadow.  ;)

Quote from: slats1056 on October 06, 2015, 03:06:50 pm
After all I knew what we were getting into before hand!!!
 No You Didn't!!! Yes I did. No way ,we'll discuss this later when they lets Us out!!!!

You kids pipe down in there!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #144 on: October 07, 2015, 01:32:08 am »
I go out for the day and all hell breaks loose!

Percy and I had lunch, we just had to get away. He was feeling claustrophobic, something about locked doors? Anyway he paid, I'm happy. Cal :-X
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #145 on: October 07, 2015, 01:33:39 am »
Tommy,
I think you've been talking to yourself. Are you sure you're not on ribas? Cal ;D
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #146 on: October 07, 2015, 01:35:30 am »
Bree,
That's such a quick turn around with your tests and they've gone down AGAIN. SVR in the bag sweetheart! Cal  8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #147 on: October 07, 2015, 01:36:57 am »
Else,
Just letting you know I'm pinching this line.

"You're so non-detectable you could walk thru one of those airport scanners and not cast a shadow" Hilarious. Cal ;D
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #148 on: October 07, 2015, 01:39:29 am »
Gnatty,
You deserve a little Rip Van Winkle time out, well earned! Cal 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #149 on: October 07, 2015, 01:41:37 am »
Marianne,
Where did you learn Hepanese? (nice on Tommy). Cal 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #150 on: October 07, 2015, 03:17:02 pm »
Hey Yall... I just caught up with the last day of this thread.  Slept about 6.5 hours, feeling a little better... this post treatment thing "waxes and wanes" ... damn that medical jargon.

"I have a dream".... that one day we won't even talk medical jargon.  I swear we could all be doctors and very good ones, I might add.

Else, love the "You're so non-detectable you could walk thru one of those airport scanners and not cast a shadow".  That's great. lol.

Let's start a contest... "You're so non-detectable or "I'm so non-detectable"....
I'll go second... Else went first...

"I'm so non-detectable people are starting to call me Casper!"
« Last Edit: October 07, 2015, 11:15:29 pm by Bree »
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #151 on: October 07, 2015, 04:34:56 pm »
You're so non-detectable you don't need to fly under the radar 'cause it can't see you anyway.  8)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #152 on: October 07, 2015, 06:58:47 pm »
You're so non detectable you could be an Illusionist. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #153 on: October 07, 2015, 07:12:48 pm »
Ha ha Everyone!

You're so undetectable you could walk through the zombies on The Walking Dead and they wouldn't even know you were there.  8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #154 on: October 07, 2015, 10:00:07 pm »
Bwhaaaaa!  This Sunday night, TWD season premiere!!!  Okay, okay - I got this.

You're so non-detectable Darrel Dixon couldn't track you. (those are bold words, my non-zombie loving friends!)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #155 on: October 07, 2015, 10:48:00 pm »
I'm so non-detectable I'm delectable...

Dang you dudes are weird.  Hey Tommy!  So your are now one of the chosen?  Are you done?  You have referred to us grads as being on "the other side" so we are like ghosts?

Anyway congrats Tommy...party at your house.  Where are we all gonna meet?  What city?  I like missed this whole thread...just read it today Oct 7th.

peace all
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #156 on: October 07, 2015, 11:02:14 pm »
Hey Beto,  it's Bree... I started this thread, trying to keep walking through the end of treatment strong, positive and on the upswing... and hey, it turned into a party, an upswing of inspirational support and humor (with Tommy, cal, byebyeC, else, etc. what else could it be;)  :)  Everyone welcome, jump on it, the water is perfect!

So I think Tommy is planning a virtual BBQ (along with byebyeC) and I'm planning a virtual luau (guess where I live) and you have a graduating class of 2015 started.  We are going to be so busy post treatment. 
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #157 on: October 07, 2015, 11:14:18 pm »
How funny.  You know Bree I have visited other forums and they are nothing like this one.  A convergence of like minded, like hearted folks.  This has been good medicine.
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #158 on: October 07, 2015, 11:20:39 pm »
Oh Gnatty, how could I have missed this link!!!   :o
Quote from: gnatcatcher on October 06, 2015, 04:05:32 am
http://apnews.myway.com/article/20151005/us-grizzly-attack-gagging-bear-c211df0690.html
Can he come to the party?  Sounds like he'll go virtually anywhere and would make an excellent bouncer.  ;D
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #159 on: October 07, 2015, 11:51:11 pm »
Hey there,
Virtrual BBQ is at my place (Australia) Tommy's bring a gator so we needed a big BBQ. Yes jump in I do have a pool and it's hot here. BOy it's gonna be the party to end all parties! Cal 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #160 on: October 08, 2015, 12:20:22 am »
Congrats on finishing tommy and Bree glad they straightened out your tests, your gonna be undetected for sure.

Cal, any word on when you are gonna speak on behalf of hepatitis treatment and getting hep c drugs approved in Australia?


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #161 on: October 08, 2015, 12:25:12 am »
Thanks Scoutdoy!!!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive
« Reply #162 on: October 08, 2015, 02:20:20 am »
Hi as out,
I heard yes. They are still working out the specifics of what they want me to talk to, but it'll be the patients side of the story. She read out the names of the panel and said and then you'll be sitting next to Dr. C. I said he's my Doctor, we both couldn't believe it, out of all the gastros in  Brisbane he is the representative. So I am really happy. It's 29th October so not long. It's a Q and  A style. Should be fun. I'll tell you more when I get the specifics. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #163 on: October 08, 2015, 02:23:35 am »
Cal, that's wonderful and I am sure you will do a good job


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #164 on: October 08, 2015, 08:20:11 am »
Quote from: Else on October 07, 2015, 11:20:39 pm
Oh Gnatty, how could I have missed this link!!!  http://apnews.myway.com/article/20151005/us-grizzly-attack-gagging-bear-c211df0690.html :o Can he come to the party?  Sounds like he'll go virtually anywhere and would make an excellent bouncer.  ;D

Else, how about both the grizzly and the bow hunter? The grizzly might be content to eat some 'gator and go back to sleep.

Cal, good on you!
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #165 on: October 08, 2015, 10:47:50 am »
 You are so undetectable I can see the harvoni sparkle in You liver. AWW MAMA, I want some diamonds too!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #166 on: October 08, 2015, 10:49:04 am »
coolio cal...we all await your rehash.
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #167 on: October 08, 2015, 11:04:09 am »
 Bree, Sorry for the hijacked thread!!!!  NOT!!!!! Here piggy,piggy,piggy. Damn that little guy is fast!! I don't have to wear one of them grass skirts do I , Grass makes Me itchy!!!! Not to sure about the coconut bra either!! LMFAO!!!!
  Beto,  The weirder the better I always say!! No ghosts, One toke over the line sweet Jesus!!! Sittin downtown in a railway station------! Somebody help Me get the fork out of My back , I'm done Baby!!!!
 Else, Promise He will behave himself, Or I'll have to eat him. Me and Perci are hungry I tell Ya!
 Scout , what do You think? The Astros & the Royals battling it out on the Harvoni baseball diamond. Think we need a section for the DRAGON?????
 Cal, get rested up & ready to kick the door in on them at Your function!!! Knock 'em dead!!! Hope you are feeling better today!!
  Gnatty, Vegetarian is an old Indian word for BAD HUNTER!!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #168 on: October 08, 2015, 12:45:26 pm »
Quote from: Bree on October 06, 2015, 02:58:47 pm
Tommy and Marianne, you two have a secret language.  lol

Bree, a- Sure hope you're starting to feel better (((HUGS)))b- LOVE it! We MUST be undetectable to zombies! Woo hoo!

Me thinks it's call Crazinese or Ribanese(?)...  :P Nah, Tommy's got it, Hepanese!

Tommy, I really don't like how Perci switched sides here!!! Traitor! :D
« Last Edit: October 08, 2015, 04:07:37 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #169 on: October 08, 2015, 01:02:27 pm »
Tommy you are right on the section for the Dragons...LOL... Here is a good one,,, My daughters Rugby team really is The Dragons! How ironic...Royals haven't been doing well against Houston... We will see


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #170 on: October 08, 2015, 01:16:09 pm »
How bout " Im so undetectable but I can't prove it cauce my friggin labs havn't come back"...my 2 week labs were only a few days ...now the important 4 wk is missing in action....sigh
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #171 on: October 08, 2015, 01:38:09 pm »
LOL....good one Rosie....you almost gotta laugh at some point ya know? Like when I called for my refill and they said you don't have one ...and I replied .. I realize I'm not a mathematician but 3-2 is one ...not 3-2 is zero ....I did pass kindergarten !


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #172 on: October 08, 2015, 01:55:34 pm »
Quote from: Scoutdoy on October 08, 2015, 01:38:09 pm
LOL....good one Rosie....you almost gotta laugh at some point ya know? Like when I called for my refill and they said you don't have one ...and I replied .. I realize I'm not a mathematician but 3-2 is one ...not 3-2 is zero ....I did pass kindergarten !

Whereas to my specialty pharmacy, 3-3 = 1. A few weeks after they sent me my third bottle, they emailed that it was time to reorder. I ignored the email, so they phoned -- a recording with an option to talk to a live person. I said I'd be happy to receive and use the fourth bottle as long as my insurance was paying for it. Well, actually, no . . . .  All this, of course, happened a couple of days after the independent survey company had phoned to ask how the specialty pharmacy had performed.

Yes, laughter is the only effective antidote to bureaucratic inanity/insanity.

Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #173 on: October 08, 2015, 02:02:50 pm »
This morning a nurse from the specialty pharmacy called for a short interview. Her questions were grinners. " Are you depressed?" I said no not anymore!
                                     " Are you drinking?"   I said no not anymore!
                                     " Are you experiencing any side effects?" I told her my left thumb stopped working a few weeks ago & she wanted to have a pharmacist talk to me about weather to discontinue treatment! I said that was not realistic & I will continue the Harvoni at all costs!!!!!WOW!!!!!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #174 on: October 08, 2015, 02:06:34 pm »
Hey Yall,

Tommy, no hijacks perceived here... just friends being together - making the most out of our extreme situations.

Rose, I hear ya, waiting on mine... again (first one wrong test, duh)!

Cal, you are one of the best reps I can think of who could give testimony.  And, we all have a great bbq.

Scout, that was you with the pharmacy mix up.  I remember.  Mine was lost on delivery with a new fed ex carrier.  Heart attack.  Finally got it sorted.

Yea us!!!  Going for a walk with a friend who I just learned her and her husband are moving back to the mainland.  I was so bummed, I cried.  Two of my best friends and my part of my inner circle that I can could count on my fingers. Feeling oddly emotional post treatment.  She's a nurse practitioner and is a great help to me.  Oh well, I'll just have to go visit. Still blessed.... Bree!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #175 on: October 08, 2015, 02:09:03 pm »
Rosie good answers to the nurse.  New question: Which would you prefer, a liver or a thumb?
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #176 on: October 08, 2015, 02:18:38 pm »
2 thumbs up for the liver! To hell with opening jars!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #177 on: October 08, 2015, 02:21:14 pm »
Bree, I hear you that your friend moving is hard especially because she has supported you. I have only a few people that know & they are all a phone call , facetime or email away. Yes, you can visit but stay in touch...she will still be there I am sure!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #178 on: October 08, 2015, 02:35:00 pm »
Thanks for the laughs, Scout, Rosie and Bree -- I needed them in between trips to the loo. Whoa, I thought diarrhea was a possible side-effect of treatment, not 8 days post. Guess I was anal-retentive for the entire 12 weeks  :-[

Bree, I'm sorry your friend won't be within hugging distance -- bummer indeed. Good on you (as Cal would say) that you're counting your blessings.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #179 on: October 08, 2015, 02:57:20 pm »
 Gnatty, thankful it's not just Me. I was afraid it would be passed up as some poopy humor if I brought it up. Of course EVERYBODY that has been coming around has a cough, sneezes, colds & what not. Great , now that the Meds are done everybody around Me is getting sick! So much for anal-retentive!

  Rosie, o.k. THUMBELLINA!!!!!

  BBC, not a traitor, just an equal opportunity spook-migo!!!

  Scout, Thats' O.K.! The Astros have a tendency toward choking come crunch time when You least expect it!! Math according to Jethro Bodine on the Beverly Hillbillies.
Nought plus nought is nought!! Now lets practice My gazintas. One gazinta one one time!!LOL

  Bree, Extreme You say???? I thought it was My usual abnormal!! How many thumbs does it take to hitch hike to Hawaii???
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #180 on: October 08, 2015, 02:59:43 pm »
Quote from: gnatcatcher on October 08, 2015, 01:55:34 pm
Whereas to my specialty pharmacy, 3-3 = 1. A few weeks after they sent me my third bottle, they emailed that it was time to reorder. I ignored the email, so they phoned -- a recording with an option to talk to a live person. I said I'd be happy to receive and use the fourth bottle as long as my insurance was paying for it. Well, actually, no . . . .  All this, of course, happened a couple of days after the independent survey company had phoned to ask how the specialty pharmacy had performed.

Yes, laughter is the only effective antidote to bureaucratic inanity/insanity.

Gnatty

My specialty pharmacy was so bad....it was a nightmare until I finally got my first round...then not so bad, except they would call occasionally and say/ask stupid ass questions.  I sure hope they send me a survey to fill out.   A total joke.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #181 on: October 08, 2015, 03:06:05 pm »
specialty pharmacies blow
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #182 on: October 08, 2015, 03:38:55 pm »
Go figure.  I guess there's just no telling where the weak link will be in the convoluted process of treatment approval.

I gotta give big props to Walgreen's Specialty Pharmacy in Beaverton, OR.  Amazingly competent with really fast response times.  I had a case mgr in the "special handling division" from the get-go.

They even went the extra mile to try and work with my doctor's office early on to get prior approval.  Though ultimately my prescription was "closed out" (their terminology of limboland, not canceled) , and my case mgr apologetically explained that there was only so much she could do if my doctor's office wouldn't return her calls or acknowledge her faxes.

BUT!  Fast forward 12 weeks, I called them the day I got the notice of my denials being overturned by the independent reviewer.  It was a Friday afternoon.  My case mgr. contacted my insurance to verify coverage, a pharmacist  called me on Monday for a long consult, (I think he read the package insert to me!  ;D) and I had meds in hand on Tuesday.  Wow!

If you can choose your Specialty Pharm - I highly, highly recommend Walgreens!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #183 on: October 08, 2015, 03:55:56 pm »
Quote from: slats1056 on October 06, 2015, 03:18:07 pm
Bree, the numbers don't lie. The Queen has issued an edict that whatever she claims , so it shall be!!! Hope You kick that bug soon so You can enjoy the new found freedom! Oh to be young again!!!! NOT , ain't no way I'm going thru that crap a second time!!!!

Tommy,
Ya took the words right out-a mah mouth! NEVER EVER EVER go through that young person drama/turmoil! Just some health for the grand babies and adult  kids :)   :o
« Last Edit: October 08, 2015, 04:15:08 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #184 on: October 08, 2015, 04:32:30 pm »
Quote from: Else on October 08, 2015, 03:38:55 pm
Go figure.  I guess there's just no telling where the weak link will be in the convoluted process of treatment approval.

I gotta give big props to Walgreen's Specialty Pharmacy in Beaverton, OR.  Amazingly competent with really fast response times.  I had a case mgr in the "special handling division" from the get-go.

They even went the extra mile to try and work with my doctor's office early on to get prior approval.  Though ultimately my prescription was "closed out" (their terminology of limboland, not canceled) , and my case mgr apologetically explained that there was only so much she could do if my doctor's office wouldn't return her calls or acknowledge her faxes.

BUT!  Fast forward 12 weeks, I called them the day I got the notice of my denials being overturned by the independent reviewer.  It was a Friday afternoon.  My case mgr. contacted my insurance to verify coverage, a pharmacist  called me on Monday for a long consult, (I think he read the package insert to me!  ;D) and I had meds in hand on Tuesday.  Wow!

If you can choose your Specialty Pharm - I highly, highly recommend Walgreens!

Else - ditto Walgreens in Arizona.  Fought tooth and nail for me through 4 denials only to have the business taken from them by the specialty pharm that connects with the same insurance company that denied me.  This is big business BTW.  We hep C'ers are the new gold rush.
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline BDK

  • Member
  • Posts: 58
  • "Appeal, Appeal, Appeal!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #185 on: October 08, 2015, 04:57:55 pm »
Done and dusted!!!!  Last pill down the hatch
Logged
Genotype 1a
Diagnosed 1992
Liver biopsy 1998 stage 0-1.
Peg inf + riba 1999, stopped at 25 weeks due to side effects-undetected then but reappeared within 3 months.
Liver biopsy 2006 - stage 0-1.
Fibroscan 2015 - stage 0-1.
VL >12 million.
AST, ALT high normal range.
7/17/15 Started Harvoni for 12 weeks.
8/4/15   VL 70, AST 19, ALT 11
9/17/15 VL Undetected (<12), AST 19, ALT 16
11/10/15 EOT +5 weeks VL Undetected (<12), AST 16, ALT 14
1/12/16 EOT + 14 weeks VL Undetected (<12)

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #186 on: October 08, 2015, 05:11:54 pm »
Wooo-hooo! 

***doing The Wave here, hoping to start off a global response***

Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #187 on: October 08, 2015, 05:23:36 pm »
Oh my gosh you guys ....I am at work outside smoking a cigarette and laughing my ass off at these posts ..thank you very much! Ditto on the trade a thumb for a liver....LMAO

Congrats BDK!!!! Your done....now go apply for a job at a pharmacy....here is your pre app test ...... 1+1+1 = WHAT?

scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #188 on: October 08, 2015, 05:25:25 pm »
Ride that wave!  Congrats BKD, join the "hui" (translation: group).

Just walked 4+ miles with my friend who is moving (not for several months).  She kicks my butt with exercise.  I was afraid I wasn't ready but she makes me rally.  She wrote this awesome letter when I was trying to get treatment explaining how my stamina was not normal and I had to rest every few days. She's already planning my extended visit to where they will be on the mainland.

Still feel I'm going to cry any minute and a bit off (like burning behind my face) and head is "thick"... body comes and goes... but damn, I think I'm getting better  8)   ... and better and better and better.  Yep, that's my new mantra.

Better, great, fantastic, awesome, wonderful, out of this world!!! 
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #189 on: October 08, 2015, 05:48:10 pm »
AWESOME POSTS TODAY ...BDK.....LAST PILLL DOWN THE HATCH YIPPPEEEEEEE!!!
Day 35 for me ...going along perfect.
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #190 on: October 08, 2015, 05:49:09 pm »
 BDK, EXCELLENT!!! Happy dance time.
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #191 on: October 08, 2015, 05:56:40 pm »
BDK and Else,

Supercalifrajilisticexpialidocious!!! Def joining Else's  "WAVE"ooooooah oooooooah!!! 8) 8) 8) 8) 8)

Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #192 on: October 08, 2015, 06:53:55 pm »
Woosh! There's a cyclone warning off the east coast of Australia called Cyclone Else!

Reading all the issues you guys have with pharmacies, I wonder if that will happen here or if the drugs will still come through the hospital pharmacies?mmmm. I got my whole 12 weeks in bottles just handed to be at my appointment!
 We are finding that the 12 seekers have approx 1 1:2 weeks extra drugs and the 24 seekers 3 weeks. Some are being advised to take them extending tx. But the hep council if Australia are collecting them by post to get a whole tx regime fir someone in need who can't access the drugs. Great idea.
 :)cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #193 on: October 08, 2015, 06:57:28 pm »
Bree,
So so sorry that your best pal is going, it's happened to me twice now and I have never replaced them. They hold a special saved seat in my heart. Yes we call, Skype etc. but it's not like dropping for a cuppa and a whinge. You are such a darling, I hope this won't pull you down, remember to keep mindful about it until you are off your trainers wheels. Poor thing. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #194 on: October 08, 2015, 07:00:17 pm »
Bdk,
Congrats my friend. Good on you (as I say 8) you are a champ. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #195 on: October 08, 2015, 07:01:58 pm »
Barbara, congratulations and welcome to "the other side." Here's hoping your post-Tx is easy.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #196 on: October 08, 2015, 07:21:04 pm »
Thanks guys for your kind support,
I shall do my best and keep you posted. There has been a lot of movement towards the o/s generics and a few HCV Dallas Buyers Club style organisations, which I think the Government is concerned  about (embarrassed more like) so these things as well ask saving lives are bringing awareness to the powers that be of the desperation now being felt. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #197 on: October 08, 2015, 07:26:38 pm »
Else,
Love the new avatar is that you? Much less scarier than the shark!  :) cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #198 on: October 08, 2015, 07:29:46 pm »
Rosie,
I admire your chutzpah Chickeebabe . Thumbs up hehe! What has happened with the thumb exactly? Cal ]
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #199 on: October 08, 2015, 07:31:19 pm »
Quote from: gnatcatcher on October 08, 2015, 02:35:00 pm
Thanks for the laughs, Scout, Rosie and Bree -- I needed them in between trips to the loo. Whoa, I thought diarrhea was a possible side-effect of treatment, not 8 days post. Guess I was anal-retentive for the entire 12 weeks  :-[

Bree, I'm sorry your friend won't be within hugging distance -- bummer indeed. Good on you (as Cal would say) that you're counting your blessings.
anal retentive, now you're anal expulsive poor thing! Good on you Knatty. Cal  :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.
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