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Author Topic: Started my treatment.....  (Read 7445 times)

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Offline Lbec209

  • Newbie
  • Posts: 1
Started my treatment.....
« on: September 23, 2015, 09:13:52 am »
I just started my treatment with harvoni 4 days ago, I read as much as I could about the side effects, so I knew what to expect. I have been living with hep c for 30 years, mostly in denial. I didn't drink, I eat right, I exercised everyday.... the disease never seem to bother me, except I was always extremely fatigued... I have taken harvoni now for 4 days, with minimal side effects, & I will have to say, I have never felt better in my entire life then I have felt in the last 4 days. I have so much energy, a feeling of enlightenment, that I've never experienced before. I can't explain it, nothing else has changed. I will keep u updated through this forum,

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Started my treatment.....
« Reply #1 on: September 23, 2015, 09:56:23 am »
Welcome and it's great you are feeling so well. People here are a great support. All the best for treatment!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Started my treatment.....
« Reply #2 on: September 23, 2015, 05:55:32 pm »
Object,
Big welcome,
Great that you are feeling so well. It will get even better. Here's to an easy tx. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Started my treatment.....
« Reply #3 on: September 23, 2015, 05:56:56 pm »
Sorry I didn't call you object it's my I pad corrector! Lbec.  :) :) :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Started my treatment.....
« Reply #4 on: September 23, 2015, 06:00:56 pm »
Congratulations, LB!   ;D  I can relate.

It's almost like I forgot what it felt like to think clearly.  It's heavenly and I'm only 9 days in.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Started my treatment.....
« Reply #5 on: September 23, 2015, 06:07:21 pm »
Welcome, some people call that the Harvoni High.  I'm at the end of 12 weeks, 5 days left and for the most part, it has been wonderful...more energy than before...
if this is what it feels like to not have hepc, I want it more than ever!  Enjoy the journey as much as you can... Bree
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Lynnpren

  • Member
  • Posts: 11
  • Think Positive and Drink WATER, WATER, WATER.
Re: Started my treatment.....
« Reply #6 on: September 23, 2015, 07:41:21 pm »
Hi and Welcome, I too just started treatment yesterday. No real side effects and hope not to have any. The trick all these wonderful forum friends have told me is to drink "WATER" and lots of it. Which I have been doing. I am new here and still trying to learn all I can. Hope you keep having a smooth ride. Im right behind you. ;)


Ok Who can now tell me what tx means?? Thanks Went to Dr, today added my lab results. Not sure what the viral load is either.
~ Lynnpren ~

HCV Since 2000, Geno Type 1a
AST-67....ALT-122
V/L 146,884
9/22/15 - Start 12 weeks Harvoni.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Started my treatment.....
« Reply #7 on: September 23, 2015, 07:48:37 pm »
Tx=short for treatment.

Viral load is a unit of measure used for monitoring effectiveness of treatment.  High or low, in and of itself, is not a reflection of the health of your liver. 

It ranges widely.  12 million IU/mL, 7 million IU/mL, etc.  I started at 4,201950 IU/mL

IU=international units.  mL=milliliters.

So you'll see why people are ecstatic when their viral load drops from 7 million to, say 700.  In four weeks.  It happens!  ;D 
« Last Edit: September 23, 2015, 07:51:05 pm by Else »
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Lynnpren

  • Member
  • Posts: 11
  • Think Positive and Drink WATER, WATER, WATER.
Re: Started my treatment.....
« Reply #8 on: September 23, 2015, 08:04:24 pm »
Thanks a lot Else. I just got my labs today from Dr. and don't see anything on it about the viral load. That is why I was asking. Guessing I'll have wait for next labs so they can compare the 2 results. Again, Thanks for your help.. Let me go drink some more water..LOL
~ Lynnpren ~

HCV Since 2000, Geno Type 1a
AST-67....ALT-122
V/L 146,884
9/22/15 - Start 12 weeks Harvoni.

 


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