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Author Topic: Starting treatment tomorrow  (Read 52041 times)

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Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting treatment tomorrow
« Reply #100 on: October 04, 2015, 11:35:22 am »
Hey Cal,

I didn't mean to sound glib, or in anyway trivialize you surgery (if I did). Surgery is always a big deal and scary.  I get freaked out just having a tooth pulled.  Never to be taken lightly.  Just be assured that everything will be OK.  It is easy for me or, anyone else to feed you stories of successes, or to give you a nudge.  With all you have been through, here is another obstacle...a bump in the road? yes...but also, one more hill to climb.  Just remember you are not alone. 
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Starting treatment tomorrow
« Reply #101 on: October 04, 2015, 11:40:49 am »
Hey cal, are they for sure going to take out your thyroid after you finish treatment? Wouldn't it be cool if it kind of reversed itself because of treatment? Haha one can hope anyway....14 days to go for me and I am done!!!!!


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting treatment tomorrow
« Reply #102 on: October 04, 2015, 12:08:14 pm »
yo scout,

I had not thought of that.  Lots of things can turn around after the burden of hep is gone.  This disease is hard on all the organs...thyroid issues have popped up elsewhere.  Yeah Cal...maybe your thyroid will re-boot and you can be all like, "you ain't taking my thyroid yo!"
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Starting treatment tomorrow
« Reply #103 on: October 04, 2015, 12:24:58 pm »
It's possible...with the hep gone...those white cells can attack stuff they should be...hey, I never thought there would be a cure for hepatitis either at one time.



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Starting treatment tomorrow
« Reply #104 on: October 04, 2015, 12:28:08 pm »
Your numbers are looking good beto



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting treatment tomorrow
« Reply #105 on: October 04, 2015, 12:39:38 pm »
Thanks Scout,

Yes totally cool.  I believe that my cirrhosis is going to improve down the road too.  Looking at ast/alt numbers that low is so weird.  Also, I would have never imagined having adult conversations about how good my numbers looked.  :)
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Starting treatment tomorrow
« Reply #106 on: October 04, 2015, 04:17:25 pm »
Beto,
I didn't find you glib. I wanted to know of success stories and you gave me one. Thanks. Also thank you for saying your with me. I haven't spoken to anyone about it yet. They are really over my HCV adventures and just want me to get over everything. Wish I could, my greatest wish actually. Yes another fork in the road. Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Starting treatment tomorrow
« Reply #107 on: October 04, 2015, 04:23:34 pm »
Hi Scout,
They are taking it out because the ifn caused 6 large goitres to grow and they have grown over my thyroid. It is still functioning normally but I have difficulty swallowing and it's leaning on my  larynx  as my voice gets randomly croaky.  So no it won't resolves unfortunately. It will however stop me from feeling like the Elephant man :-[ hehe Cal :-\
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Starting treatment tomorrow
« Reply #108 on: October 04, 2015, 04:31:41 pm »
Beto,
I don't know if goitres can shrink. I doubt it somehow. But it would be nice to say. Yo you ain't takin no thyroid from me he hear! I love the way you guys say Yo! Beto are you from the city? Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting treatment tomorrow
« Reply #109 on: October 04, 2015, 04:38:46 pm »
Hi Scout,
They are taking it out because the ifn caused 6 large goitres to grow and they have grown over my thyroid. It is still functioning normally but I have difficulty swallowing and it's leaning on my  larynx  as my voice gets randomly croaky.  So no it won't resolves unfortunately. It will however stop me from feeling like the Elephant man :-[ hehe Cal :-\

Hi Cal. Have you asked your doctor about alternatives to thyroid surgery/removal? I am pretty sure there are drugs that shrink thyroid goitres. Maybe they don't work in all situations. Also, I think aspirating the goitre can be done to reduce the size (i.e., a needle that removes fluid). Maybe you have investigated all this. But it seems to me that thyroid surgery and removal should be the final resort after all else has been tried - especially when the thyroid is still functioning normally…

best,
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Starting treatment tomorrow
« Reply #110 on: October 04, 2015, 07:17:26 pm »
Hi Kim,
I'm really glad you brought this up. I was in too much shock to ask about alternatives to radical surgery. I have had the 2 giants ones aspirated. That was horrible. But I see my GP tomorrow and I'll ask her about getting a second opinion. The waiting list to get into see endocrinologists is 6 months. I guess I could put my name down now. I think they are worried about choking and permanent damage to my vocal chords. But I am willing to look at shrinking. The 2 big ones are enormous you can see them protruding easily. People ask me what it is. If surgery is the only option then I do have an appointment to see the same specialist again in 5 1/2 months. I could ask him why he has. Recommended surgery ? Thanks I really am not thinking straight. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

 


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