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Author Topic: Making the Most of Post Treatment  (Read 127410 times)

0 Members and 4 Guests are viewing this topic.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #100 on: December 23, 2015, 01:46:18 pm »
Yea Beto!!! That was fast!  SVR, love the sound of that... congrats and live your life to the fullest!!!  8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Making the Most of Post Treatment
« Reply #101 on: December 23, 2015, 02:45:43 pm »
Lovely numbers, beto -- congratulations!
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline jakas

  • Member
  • Posts: 265
Re: Making the Most of Post Treatment
« Reply #102 on: December 23, 2015, 03:50:10 pm »
@gnat you should be gettings your soon too. Congrats Beto :)
Logged
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline jakas

  • Member
  • Posts: 265
Re: Making the Most of Post Treatment
« Reply #103 on: December 23, 2015, 03:55:00 pm »
Excellent, GOD BLESS ! and Merry Christmas and a very healthy new year :)
Logged
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Making the Most of Post Treatment
« Reply #104 on: December 23, 2015, 08:15:12 pm »
thanks all...peace
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Making the Most of Post Treatment
« Reply #105 on: December 23, 2015, 08:43:25 pm »
Merry Freakin' HCV-Free Christmas, Beto! Enjoy the feeling. Enjoy the serenity. Tomorrow's going to be a great day.

http://youtu.be/wWDHl8ad9QE
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #106 on: December 23, 2015, 10:29:26 pm »
Mele Kaliki Maka (Hawaiian for Merry Christmas)!!!!  8)

Beto your present came early  :)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Making the Most of Post Treatment
« Reply #107 on: December 23, 2015, 10:57:40 pm »
Hooray for Beto 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8)

Merry Christmas my dear forum buddies. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Making the Most of Post Treatment
« Reply #108 on: December 24, 2015, 01:47:16 am »
Happy SVR and Merry Liver to you Beto!
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #109 on: December 24, 2015, 08:47:46 pm »
 Cool Beans Beto, SVR 12 and nice numbers to boot! Happy for You man. Tie a bow around that one you little elves! Gnatty should be coming up soon, as well as a few others. My 12 week EOT comes up next week. Due to the Holidays ,I won't know My status until the first week or two of the New Year. 

 Merry Christmas and Happy New Year to everyone, or whatever blows Your dress up. Good Health to all.

 I JUST STOLE SANTAS' NAUGHTY LIST AND IT LOOKS JUST LIKE MY FRIENDS LIST!
 :o :o :o :o ;) ;) ;) ;) ??? ??? ??? ???

Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline willie g

  • Member
  • Posts: 427
  • geno 1 25million etc. s/o for treatment
Re: Making the Most of Post Treatment
« Reply #110 on: December 25, 2015, 04:23:52 am »
hey post hep c survivorS there is a little transition period to cleanse your system   if I can recommend a GREAT supplement  that has helped me on this new greatful journey        it is called JNK  90 VEGGIE CAPSULES,  THAT REALLY WORK,,,,  CHECK IT OUT ON THE WEB IONLY TAKE 1 A DAY AND THE TRANQUIL    CLARITY   FEELING I NOW HAVE FROM IT IS AWE!!SOME  IT HAS VITAMIN K AND OTHER SEROTIN   AND HEALING EFFECTS   I FELT IT AFTER ONLY ONE WEEK    MERRY CHRIST MAS''JUST WILLIE G'
Logged

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #111 on: December 25, 2015, 05:26:18 pm »
WOW!  What a Christmas present... I woke up this morning to new info from my health portal.  My 12 week post test results are in.  UNDETECTED!!!  I'm stoked... now I can say SVR and use the word CURED (although I was already using it with caution in my mind).

It's hard to believe and a little difficult to comprehend, after all this time with HCV to be able to use the word cured.  Like it's gone!  I hope I can live bold and strong and fully knowing I have received this gift.

I thought the results would come after Christmas...what a Christmas present!!!  Bree
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline jakas

  • Member
  • Posts: 265
Re: Making the Most of Post Treatment
« Reply #112 on: December 25, 2015, 05:33:50 pm »
Great news the best CHRISTMAS GIFT ! :D
Logged
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #113 on: December 25, 2015, 05:40:28 pm »
Quote from: jakas on December 25, 2015, 05:33:50 pm
Great news the best CHRISTMAS GIFT ! :D

Thanks... yes the best gift ever!!! :)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Making the Most of Post Treatment
« Reply #114 on: December 25, 2015, 06:58:11 pm »
WONDERFUL NEWS, Bree! Amazing that your portal is active over a major holiday.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #115 on: December 25, 2015, 07:19:54 pm »
Congrats Beto and Bree!  Way to go!
Had my 12 week blood draw last Monday.  No results yet.  Hopefully next week.

WillyG - I ordered JNK  90 VEGGIE CAPSULES per your recommendation.   Hope they help as I have felt like  crap for 3 months.  Feel like the riba/viek aged me 5 years.  On a positive note.. every day I feel a tad better.  Just keep telling myself that once the riba has completely cleared , I will feel better.  Read somewhere that it takes 6 months to clear the riba.  I know the first time around it took a year.... ugh.

Tired of feeling bad.  Hope the JNK helps!!!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #116 on: December 25, 2015, 07:27:27 pm »
Quote from: gnatcatcher on December 25, 2015, 06:58:11 pm
WONDERFUL NEWS, Bree! Amazing that your portal is active over a major holiday.

Thanks Gnatty!  I'm so happy!  I think they told me in the past that the portal was a 24 hour delay for posting in which case it would have come back Dec. 24... who knows how these things work.  I made sure my docs office has it post automatically without him having to approve it first.

You are coming up soon right?
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #117 on: December 25, 2015, 07:34:21 pm »
Quote from: drummerman on December 25, 2015, 07:19:54 pm
Congrats Beto and Bree!  Way to go!
Had my 12 week blood draw last Monday.  No results yet.  Hopefully next week.

WillyG - I ordered JNK  90 VEGGIE CAPSULES per your recommendation.   Hope they help as I have felt like  crap for 3 months.  Feel like the riba/viek aged me 5 years.  On a positive note.. every day I feel a tad better.  Just keep telling myself that once the riba has completely cleared , I will feel better.  Read somewhere that it takes 6 months to clear the riba.  I know the first time around it took a year.... ugh.

Tired of feeling bad.  Hope the JNK helps!!!

dm

Drummer, there you are!  I was worried about you!  I had my test on Monday too... I'm sure your UND results will be in soon.  It's what I expected but still a huge relief.  My friends all said they knew it already... but seeing it in black and white really helps.  I'm sure you'll feel better as time goes by.  I'm not peak every minute but I'm starting to think some of it could be age.  After all, I have nothing to compare it to.  But I feel better... like I don't have that hepc feeling.  And, I didn't have to deal with riba this time around.

Willy - I looked up the JNK veggie caps and I'm already taking most of the the ingredients in other supplements. I just felt like my body needed some supplement support.  I'm thinking of a cleanse but wanted to get past the 12 week post mark.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Making the Most of Post Treatment
« Reply #118 on: December 25, 2015, 07:35:38 pm »
dm. so glad to hear from you again. A lot of us were asking about you. Sorry you've had such a rough 3 months.

There's a person on vpak+riba in another thread who has landed in the hospital after being on the meds for only a little over 2 weeks. Her husband is asking whether anyone else landed in the hospital due to treatment. If anyone has info for him/her, here are the direct links to today's posts:
http://forums.hepmag.com/index.php?topic=3664.msg36323#msg36323
http://forums.hepmag.com/index.php?topic=3664.msg36344#msg36344

Bree, my ALT and AST are back and looking good (see in sig file below).

Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #119 on: December 25, 2015, 07:46:34 pm »
Yep, Gnatty I very good sign indeed.  Mine were 28 & 19 and gave me confidence the VL would be UND.  Yours too!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #120 on: December 25, 2015, 07:57:12 pm »
Quote from: gnatcatcher on December 25, 2015, 07:35:38 pm
dm. so glad to hear from you again. A lot of us were asking about you. Sorry you've had such a rough 3 months.

There's a person on vpak+riba in another thread who has landed in the hospital after being on the meds for only a little over 2 weeks. Her husband is asking whether anyone else landed in the hospital due to treatment. If anyone has info for him/her, here are the direct links to today's posts:
http://forums.hepmag.com/index.php?topic=3664.msg36323#msg36323
http://forums.hepmag.com/index.php?topic=3664.msg36344#msg36344

Hey Gnat, 
It has been a rough 3 months... but able to work... and no more insomnia!  So thankful for that.   Don't have near the appetite I used to and have lost about 10 lbs... but thats probably  a good thing.  Never felt close to going in hospital... but just generally crappy.  Went through a weird period where I had severe pain in my fingers.  Wasn't joint pain,  but the bones themselves.  It felt just like shin splints only in my fingers.  Thank god it only lasted a few days.  Now I just have occasional finger joint pain.... much less than before tx.

Anway, I will be glad when this ride is over.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #121 on: December 25, 2015, 08:00:03 pm »
Quote from: Bree on December 25, 2015, 07:34:21 pm
Drummer, there you are!  I was worried about you!  I had my test on Monday too... I'm sure your UND results will be in soon.  It's what I expected but still a huge relief.  My friends all said they knew it already... but seeing it in black and white really helps.  I'm sure you'll feel better as time goes by.  I'm not peak every minute but I'm starting to think some of it could be age.  After all, I have nothing to compare it to.  But I feel better... like I don't have that hepc feeling.  And, I didn't have to deal with riba this time around.


Thanks Bree!  Yep , riba sucks, big time.
My doc had me setup to do a blood draw on Jan 6, but really Dec. 21 was 12 weeks post eot, so I had em change it.  fingers crossed!
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Making the Most of Post Treatment
« Reply #122 on: December 26, 2015, 12:40:14 am »
Congrats on your SVR12 Bree! That's some Christmas present!  :D

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Making the Most of Post Treatment
« Reply #123 on: December 26, 2015, 12:43:22 am »
Quote from: drummerman on December 25, 2015, 07:19:54 pm
Congrats Beto and Bree!  Way to go!
Had my 12 week blood draw last Monday.  No results yet.  Hopefully next week.

WillyG - I ordered JNK  90 VEGGIE CAPSULES per your recommendation.   Hope they help as I have felt like  crap for 3 months.  Feel like the riba/viek aged me 5 years.  On a positive note.. every day I feel a tad better.  Just keep telling myself that once the riba has completely cleared , I will feel better.  Read somewhere that it takes 6 months to clear the riba.  I know the first time around it took a year.... ugh.

Tired of feeling bad.  Hope the JNK helps!!!

dm

I will be very interested to know if the JNK helps you, drummerman. I hope you will post and let us know either way. I went and had a look at JNK after Willie G posted about it. I was tempted to order some myself.

Good luck on your lab results next week!

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Bree

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  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #124 on: December 26, 2015, 01:05:27 am »
Quote from: KimInTheForest on December 26, 2015, 12:40:14 am
Congrats on your SVR12 Bree! That's some Christmas present!  :D

kim

Thanks so much Kim!  I'm very happy... really I can't even find the words to describe this feeling.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Making the Most of Post Treatment
« Reply #125 on: December 26, 2015, 08:52:06 pm »
Oh Bree,
My darling girl! If a positive attitude and a good heart counted for anything then you had it in the bag all along. I am so pleased for you. You've made my day! Calx
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Making the Most of Post Treatment
« Reply #126 on: December 26, 2015, 08:58:23 pm »
Hi DM,
Sorry it's been a rubbish 3 months for you. Fecking ribas! I finished the ribas 6 weeks ago and Viekira 2 weeks ago. I started getting post tx as soon as I stopped the ribas. I have the bone pain and joint pain. But my worst sxs if muscle pain and weakness. I also have brain fog back again. I have my first post VL Early January. SO about 4 weeks post EOT.
I hope you'll post your 12 EOT results as soon as you get them. Cal :)
 
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline gnatcatcher

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Re: Making the Most of Post Treatment
« Reply #127 on: December 26, 2015, 09:08:30 pm »
Quote from: drummerman on December 25, 2015, 07:57:12 pm
. . .
 have lost about 10 lbs
. . .
I think you sent those pounds to me :-[   Too bad you don't want them back :(

Quote
. . .
Anyway, I will be glad when this ride is over.
Here's wishing you a "happily ever after" ASAP.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #128 on: December 26, 2015, 09:47:48 pm »
Quote from: Cal on December 26, 2015, 08:52:06 pm
Oh Bree,
My darling girl! If a positive attitude and a good heart counted for anything then you had it in the bag all along. I am so pleased for you. You've made my day! Calx

There's been many a day when you made my day, believe me!  That book, the Happiness Trap changed me.
I must have given out 5 at least as presents this year.

I can't wait for all of us that are in the loop to get our results.  I have a feeling it's going to be a very happy group.  It's been so special to share this journey with you all.  I'm still thinking about our get together in 2016!   8)  Bree
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

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  • Cal on Viekira Pak
Re: Making the Most of Post Treatment
« Reply #129 on: December 28, 2015, 11:35:09 pm »
Hi Bree,
The fares to Hawaii are really cheap for some reason? I will be there with bells on my love! :) Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Rosie13

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  • Posts: 297
Re: Making the Most of Post Treatment
« Reply #130 on: December 29, 2015, 10:50:06 am »
Bree!!! So Freaking Happy For You! Riding in a truck down hwy back to sunny Florida.
Almost time to know that SVR feeling too...in my mind I am already there.my body says so...this year has been a whirlwind but 2016 is way too good to be true.Your posts are infectiously gleeful...please keep us smiling!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Making the Most of Post Treatment
« Reply #131 on: December 29, 2015, 02:24:35 pm »
It's so exciting to read these stories of virus eradication. I can't believe we are at the point we are with so many people clearing. It's an amazing time, to be sure.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Rosie13

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Re: Making the Most of Post Treatment
« Reply #132 on: December 29, 2015, 02:48:46 pm »
Hi Philadelphia, yep we are at the beginning of the wave with generic coming out..more people saved & less fighting w/ insurance.wonder what the generic costs?
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Making the Most of Post Treatment
« Reply #133 on: December 29, 2015, 03:08:07 pm »
If you head over to fixhepc you'll see costs - 12 weeks of sof/led or sof/dac for well under $2000 Australian.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #134 on: December 29, 2015, 05:48:55 pm »
Quote from: Rosie13 on December 29, 2015, 10:50:06 am
Bree!!! So Freaking Happy For You! Riding in a truck down hwy back to sunny Florida.
Almost time to know that SVR feeling too...in my mind I am already there.my body says so...this year has been a whirlwind but 2016 is way too good to be true.Your posts are infectiously gleeful...please keep us smiling!

Mahalo Rosie!  That's how I felt too.  I told my body even before I started treatment that it's time now.  I told the virus, it's been a ride, but it has to go now, it's time is over...it can't live here anymore (and I believed it and I guess the virus did too. ha).  Tommy called me the Hep C Whisperer....

I felt it was gone, and sometimes a few lingering tweaks and body aches made me a bit fearful, but I overrode them and kept believing.  Even though I knew it, the confirmation really helps!

Yes, 2016, is our oyster... what shall we do with it? (provided of course, we live each day starting now, to the fullest we can.)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #135 on: December 29, 2015, 05:52:11 pm »
Quote from: Philadelphia on December 29, 2015, 02:24:35 pm
It's so exciting to read these stories of virus eradication. I can't believe we are at the point we are with so many people clearing. It's an amazing time, to be sure.

Yep Philly, isn't life right now great for us?  I hold so much space in my heart for Hep C suffers to be free!

Generics, or however we do it.  We all need to take matters into our own hands when it comes to our health.
This forum is a supreme educator.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

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  • Posts: 765
  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #136 on: December 29, 2015, 11:02:13 pm »
 Here is to New Me Bree and her SVR12 8) ! Almost passed up Your results while reading posts. What an Xmas present :D

 Hi there DM, Sorry You are still feeling bad. Seems I hopped on the Crapola train right after the last time I talked with You. Supposed to be on vacation, instead more GP , Internist , Chiropractor , PT and lab visits instead of R&R time. At least I have My SVR12 blood draw at the end of this month!
 
 I will check in to the JNK that Willy posted about. Still having some G.I. issues so I haven't been taking any supplements lately. Everything either goes right through or turns to concrete. No happy medium it seems!! YEA!

  Hey Cal! how are You doing Girl. Any word from Mary, Mary, Quite Contrary Up North in Alaska. Hope You Guys are doing well ;) ;D

  Rosie , when is Your SVR12 lab work. It seems like You and I were close. I thought there was a couple of others also!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #137 on: December 29, 2015, 11:27:41 pm »
Thanks so much Tommy!  I was waiting to hear from you 8)
I'm so stoked that one by one we are coming up SVR.
Can't wait for that get together in 2016!

I'm sure your body will find it's rhythm soon.  What a roller coaster ride this journey is... a worthy one but can be up and down nonetheless.

Still stoked..... Bree
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Rosie13

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  • Posts: 297
Re: Making the Most of Post Treatment
« Reply #138 on: December 30, 2015, 12:07:32 am »
Hey there Slats!!!! I go in on jan 5th so will be chewing nails till the 9th or 10th!So glad you are still sending your cheerful & funny posts.We do still depend on it you know! Here's to a super fun new years & early great news on SVR!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Rosie13

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  • Posts: 297
Re: Making the Most of Post Treatment
« Reply #139 on: December 30, 2015, 12:09:24 am »
Hey there Slats!!!! I go in on jan 5th so will be chewing nails till the 9th or 10th!So glad you are still sending your cheerful & funny posts.We do still depend on it you know! Here's to a super fun new years & early great news on SVR!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Rosie13

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  • Posts: 297
Re: Making the Most of Post Treatment
« Reply #140 on: December 30, 2015, 12:20:02 am »
Bree,spoken like a true HepC whisperer! My friend recommended a book I'm ordering tomorrow called"The gift of adversity" I told her about our journey & she was so excited to recommend the book.Forgot the author of course!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline slats1056

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  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #141 on: December 30, 2015, 12:25:40 am »
 Hey Rosie, Guess I need to go back to the Eye Doc, seems I am seeing double!!! :) Yuck , Yuck , Yuck! My labs are actually the 31st. But since I will be there on the 30Th. getting some other work I'll do them then.Then the same pulling hair out for a week or two.
 I think Scout is right here with us also. Any body else? My memory ain't what it used to be. What were We talking about? LOL :)

 DEAR OPTIMIST,PESSIMIST, AND REALIST. WHILE YOU GUYS WERE ARGUING ABOUT THE GLASS OF WATER , I DRANK IT! SINCERELY, THE OPPORTUNIST ;D
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #142 on: December 30, 2015, 02:14:34 am »
Quote from: slats1056 on December 30, 2015, 12:25:40 am

 DEAR OPTIMIST,PESSIMIST, AND REALIST. WHILE YOU GUYS WERE ARGUING ABOUT THE GLASS OF WATER , I DRANK IT! SINCERELY, THE OPPORTUNIST ;D

The Opportunist must have been on Harvoni. HA HA HA  :) 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Rosie13

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  • Posts: 297
Re: Making the Most of Post Treatment
« Reply #143 on: December 30, 2015, 10:01:31 am »
Tommy & Bree FUNNY!! I was bouncing in a ford f150 @ the time I hit the tiny box 2x HA! but lets talk about eyes for a minute...My eyes are looking so bad lately.Red all the time & lookin' like I had a rough night @ the saloon. During tx I had some irritation but thought it would be gone by now. Keeping shades on for now... Other than my brain & eyes I'm damn near good as new!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline slats1056

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  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #144 on: December 30, 2015, 10:34:11 am »
 Bree, You know it! All this time I thought I was a pessimist, turns out I'm the opportunist! ;)

  Rosie, The red eye thing seems to be ongoing. But. no irritation. Eyes seem to be nice & lubricated. Doc suggested eye drops but I hate putting anything in My eyes , so-----! Still have a little blurry vision at times and some floaters that the eye Doc says are normal at My age, So I'm chalking that up to Old Timers Syndrome.
  Now about that brain thing!!!!!! I know it is around here somewhere, I was just playing with it a little while ago------- :o ??? ::) Can't remember where I put that thing!

 OMG, I AM SO RICH! SILVER IN THE HAIR, GOLD IN THE TEETH, CRYSTALS IN THE KIDNEYS, SUGAR IN THE BLOOD, LEAD IN THE ASS, IRON IN THE ARTERIES, AND AN INEXHAUSTIBLE SUPPLY OF NATURAL GAS! I NEVER THOUGHT THAT I WOULD ACCUMULATE SUCH WEALTH :) ;)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Philadelphia

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Re: Making the Most of Post Treatment
« Reply #145 on: December 30, 2015, 11:08:12 am »
The eye thing is interesting, I am getting the exact opposite! My eyes were often showing blood vessels before I started Tx, now they are pretty clear. My eyesight is pretty ordinary, but it was ordinary before I started treatment so I can't blame the drugs for that.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline jakas

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  • Posts: 265
Re: Making the Most of Post Treatment
« Reply #146 on: December 30, 2015, 11:44:08 am »
OMG, I AM SO RICH! SILVER IN THE HAIR, GOLD IN THE TEETH, CRYSTALS IN THE KIDNEYS, SUGAR IN THE BLOOD, LEAD IN THE ASS, IRON IN THE ARTERIES, AND AN INEXHAUSTIBLE SUPPLY OF NATURAL GAS! I NEVER THOUGHT THAT I WOULD ACCUMULATE SUCH WEALTH


just excellent Slats 1056
 ;D ;D ;D ;D ;D ;D
Logged
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline beto

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  • Posts: 548
  • "no risk it, no biscuit"
Re: Making the Most of Post Treatment
« Reply #147 on: December 30, 2015, 11:53:47 am »
As Tommy's brain fog clears...this is what we get  :)
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Making the Most of Post Treatment
« Reply #148 on: December 30, 2015, 11:55:40 am »
Tommy, I am right here with you guys. Get my Svr 12 on Jan 11th and my appt with hep Doctor is the 15 th. I am so looking forward to seeing the results. I took some time off of work the 15th to the 21st. Figured I would either celebrate or liquidate my assets and go on a worldwide vacation with the kids if this disease comes back. I am soooo over messing with this.


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #149 on: December 30, 2015, 12:12:24 pm »
 Hey Beto, What is happening dude? Not the usual brain fog, just unable to connect the dots at times. LOL! HE IS BAAAAACK!!! 8)

 Scout, Don't waiting SUCK? I vote for CELEBRATION! Although the trip sounds most excellent also! I need all My assets so I can afford the New Year Medical bills, Insurance starts all over again, so I need the bucks,LOL :) 8)

  Fixing to go in for a back cracking and massage to try to work out some of the kinks in the old body! Then its off to the new Internist to check out headaches and lower G.I. issues.

  Jakas, Laughter is the best medicine and it don't cost a dime!

 LIFE IS TO SHORT TO BE SERIOUS ALL OF THE TIME. SO, IF YOU CAN'T LAUGH AT YOURSELF-------CALL ME, I'LL LAUGH AT YOU!!! :D :D :D :D
 
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Rosie13

  • Member
  • Posts: 297
Re: Making the Most of Post Treatment
« Reply #150 on: December 31, 2015, 12:26:33 am »
Ok the eyes will be white when my blood is SVR & sometime after that I can pick up my brain. It would be so boring if everything worked at once. CELEBRATE !!!!!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #151 on: December 31, 2015, 03:22:16 pm »
Finally!!! got my lab results.  Had to call as usual.   12 week EOT "HCV NOT DETECTED"!!!!

I'm still in shock.  I was so nervous to call and felt like the news would be bad as I have felt lousy since eot  and was experiencing liver area pain  for  a few weeks , this past week I had no pain though.

Huge thanks to all who helped me through this ..(hope I don't leave anyone out, so many helped me in ways you don't even know)..
Philly (of course!), Rosie, Gnatty, Willie (on sup you suggested for 2 days now)  Lynn, Bree, Kim,  Cal (still working on ACT! it helps!),Prudence,  Slats (please send money, I'm stranded in Nigeria) , Scout, Beto, and all who post here.  I have been on several forums these past eight years... this is the best!

Now, I wait 3 more months and get final blood draw and hopefully doc says no more appointments. 

On another note, is 12 weeks und regarded as SVR???

Yet another note,   some of you may remember that I had a terrible time with a wheezing cough that lasted months.  I assumed it was the "riba cough", but my doc suggested I try allergy shots.  So I have been injecting myself for a couple of weeks ( I have a mold allergy),  cough/wheeze  has gradually subsided and vanished!  Not sure if the shots are responsible or just a coincidence as it can take up to a year for shots to have an effect or (as the doc tells me) some people respond immediately!  Anyway, glad cough is gone. 

Happy New Years to all!  Hang in there.  "Never give up, Never surrender.  Activate the Omega 13."
https://www.youtube.com/watch?v=9fdcIwHKd_s

dm
« Last Edit: January 01, 2016, 09:34:52 pm by drummerman »
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Making the Most of Post Treatment
« Reply #152 on: December 31, 2015, 03:43:07 pm »
dm, this is exciting! The rougher a person's treatment, the more excited I get when reading the news "12 week EOT 'HCV NOT DETECTED'"!
"On another note, is 12 weeks und regarded as SVR???"
Yes -- you've reached SVR12. More to the point, on these modern meds, 12 week EOT undetected is regarded as CURED!
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #153 on: December 31, 2015, 03:54:10 pm »
Quote from: gnatcatcher on December 31, 2015, 03:43:07 pm
"On another note, is 12 weeks und regarded as SVR???"
Yes -- you've reached SVR12. More to the point, on these modern meds, 12 week EOT undetected is regarded as CURED!

Thanks Gnat! I wasn't sure... still can't believe.  It will be hard to not worry for 3 more months, hard to get my head out of that place!
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Making the Most of Post Treatment
« Reply #154 on: December 31, 2015, 04:02:17 pm »
coolest of cool beans DM...wooohooo! SVR12 yo!  Got mine too last week.  It's so funny...I have had a headache ever since I got the news.  I was like the only person who did not have the headaches during tx and EOT.  Now for 24 weeks!!! happy new year...
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #155 on: December 31, 2015, 04:04:22 pm »
Quote from: slats1056 on December 29, 2015, 11:02:13 pm

 Hi there DM, Sorry You are still feeling bad. Seems I hopped on the Crapola train right after the last time I talked with You. Supposed to be on vacation, instead more GP , Internist , Chiropractor , PT and lab visits instead of R&R time. At least I have My SVR12 blood draw at the end of this month!
 

Thanks Tommy.  I feel a tad better each day and that keeps me going.  Also, remembering that it took me a year to get over 1st tx.

Excited about your next svr blood draw!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #156 on: December 31, 2015, 04:06:58 pm »
Quote from: beto on December 31, 2015, 04:02:17 pm
coolest of cool beans DM...wooohooo! SVR12 yo!  Got mine too last week.  It's so funny...I have had a headache ever since I got the news.  I was like the only person who did not have the headaches during tx and EOT.  Now for 24 weeks!!! happy new year...

Thanks and Congrats Beto!  This tx treats everyone so differently ... its like a box of  chocolates.  I probably felt worse the 1st month off the meds than i did during tx.  Yuck. 

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Making the Most of Post Treatment
« Reply #157 on: December 31, 2015, 04:14:04 pm »
Excellent news drummerman!

What a way to kick off the New Year, or to say goodbye to 2015 and a whole lot more!

kim  8)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #158 on: December 31, 2015, 04:14:24 pm »
Yea DM!  I just knew it!  I called Gilead Support Path and they are calling 12 weeks post SVR and Cured.  I'm going with that.  I think Lynn said it's 99+% cured.  I'm cured and so are you.  the 24 week thing is just extra extra confirmation.

FYI,  I have had liver "awareness" these past weeks, like when I bend or move a certain way, I can feel my liver.  It had me a bit concerned too.  It still does but at least I know it's not HCV.  And, Beto, I've had more headaches lately than before.  What's up with that.  I guess it's back to water which I just wasn't thirsty anymore after Harvoni.   Small issues, I think.

And, I am majorly getting into the ACT process.  Thank you Cal!

Again, Drummer, congrats!

I'm thrilled... all of us are turning up SVR!  I think our whole tribe in this group that have gone through this together is getting cured.  Yea, for all of us! 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #159 on: December 31, 2015, 04:18:53 pm »
Quote from: KimInTheForest on December 31, 2015, 04:14:04 pm
Excellent news drummerman!

What a way to kick off the New Year, or to say goodbye to 2015 and a whole lot more!

kim  8)

Thanks Kim!!!!! Sorry I left you off my thank you list... you were on there originally, don't know what happened .. but have since edited!! You were one of the first I met and were quite helpful!  Thank you!
dm
« Last Edit: December 31, 2015, 04:25:58 pm by drummerman »
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #160 on: December 31, 2015, 04:23:31 pm »
Quote from: Bree on December 31, 2015, 04:14:24 pm
Yea DM!  I just knew it!  I called Gilead Support Path and they are calling 12 weeks post SVR and Cured.  I'm going with that.  I think Lynn said it's 99+% cured.  I'm cured and so are you.  the 24 week thing is just extra extra confirmation.

FYI,  I have had liver "awareness" these past weeks, like when I bend or move a certain way, I can feel my liver.  It had me a bit concerned too.  It still does but at least I know it's not HCV.  And, Beto, I've had more headaches lately than before.  What's up with that.  I guess it's back to water which I just wasn't thirsty anymore after Harvoni.   Small issues, I think.

And, I am majorly getting into the ACT process.  Thank you Cal!

Again, Drummer, congrats!

I'm thrilled... all of us are turning up SVR!  I think our whole tribe in this group that have gone through this together is getting cured.  Yea, for all of us! 8)

Thanks Bree!  Yeah, thats exactly what I was feeling.. slight liver pain, when I would turn a certain way, etc.  Not real bad pain... but yeah, more an "awareness" with just a bit of pain.  It did concern me as well.  But then it just stopped... I took that as a good omen... which I guess it was!

yeah, ACT is pretty cool.  There are even some recordings you can download from their web site.  Not very costly and I found to be helpful. 

Someone should start a new post with a summary of where all of us are at, tx-wise.   I would but too damn lazy! lol.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Making the Most of Post Treatment
« Reply #161 on: December 31, 2015, 04:41:22 pm »
Quote from: drummerman on December 31, 2015, 04:23:31 pm
Someone should start a new post with a summary of where all of us are at, tx-wise.   I would but too damn lazy! lol.
dm, there already is a list:
http://forums.hepmag.com/index.php?topic=3084.0
and a different list for those of us who took Harvoni.
So you can be as damn lazy as you want.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #162 on: December 31, 2015, 04:46:02 pm »
Quote from: drummerman on December 31, 2015, 04:23:31 pm
Thanks Bree!  Yeah, thats exactly what I was feeling.. slight liver pain, when I would turn a certain way, etc.  Not real bad pain... but yeah, more an "awareness" with just a bit of pain.  It did concern me as well.  But then it just stopped... I took that as a good omen... which I guess it was!

dm

I'm still having that liver awareness and slight pain... was thinking I might have an ultrasound or something... I would be pleased if it stopped.  I'm thinking it's just the liver re-adjusting maybe?

I'll check out those ACT recordings too.

Yes a list for our group might be good.  I might start it but not today... today is Star Wars, then big potluck thing and major FireWorks at the Beach.  Yea for life! 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Making the Most of Post Treatment
« Reply #163 on: December 31, 2015, 05:51:14 pm »
Yay wow woo whooo and what a happy new year for you and us all!

About SVR aka sustained viral response.

All SVR means is any time post treatment you have a "not detected" result like say SVR4 not detected 4 weeks after treatment has ended. Not cured but a good sign you probably have cleared the virus. Heck even a week post treatment if you were tested then that would be SVR1 but wouldn't tell you much about cured.

SVR12 a sustained viral response 12 weeks after treatment has ended which many hep c doctors and the AASLD are calling cured. As Gnatty said I read somewhere that SVR12 is 99.8% likely cured also SVR4 equates to 98.5% cured.

SVR24 the date some doctors hold as cured

And my personal favorite SVR infinity cured forever!

Happy New Year to all!
« Last Edit: December 31, 2015, 06:00:40 pm by Lynn K »
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #164 on: December 31, 2015, 06:14:09 pm »
Quote from: gnatcatcher on December 31, 2015, 04:41:22 pm
dm, there already is a list:
http://forums.hepmag.com/index.php?topic=3084.0
and a different list for those of us who took Harvoni.
So you can be as damn lazy as you want.
lol!  very cool.
thanks,
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Making the Most of Post Treatment
« Reply #165 on: December 31, 2015, 06:15:49 pm »
gotta love our livers...am I right?  We have put them through so much sh%$.  They have been there for us the whole time, even the cirrhotic ones.  Three cheers for our livers.  My liver is my best friend.  Well after Gnatty  :)
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #166 on: December 31, 2015, 06:18:10 pm »
Quote from: Lynn K on December 31, 2015, 05:51:14 pm
Yay wow woo whooo and what a happy new year for you and us all!

About SVR aka sustained viral response.

All SVR means is any time post treatment you have a "not detected" result like say SVR4 not detected 4 weeks after treatment has ended. Not cured but a good sign you probably have cleared the virus. Heck even a week post treatment if you were tested then that would be SVR1 but wouldn't tell you much about cured.

SVR12 a sustained viral response 12 weeks after treatment has ended which many hep c doctors and the AASLD are calling cured. As Gnatty said I read somewhere that SVR12 is 99.8% likely cured also SVR4 equates to 98.5% cured.

SVR24 the date some doctors hold as cured

And my personal favorite SVR infinity cured forever!

Happy New Year to all!

Thanks Lynn,

I guess there will always be some remnants  of the virus, thus the hesitation to use the "cured" word.  But what I am wondering.... will it be necessary to get vl tests every 5 years or should I just get liver panels and if those get out of whack then get a vl test??  Just wondering.  Won't talk to doc for 3 more months.  Didn't even see  him this time.  Nurse said it was not necessary.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Making the Most of Post Treatment
« Reply #167 on: December 31, 2015, 06:27:33 pm »
Hi DM

I think we are the ones hesitant to say cured more than the docs  :)

After so many years of being infected it is just so hard to believe we are. To me it's like a miracle ya know?

There aren't really any remnants of the virus if there were it would be roaring back like last year when I relapsed on Sov/Oly 12 weeks post my viral load was above my pre treatment level.
 
I only had the SVR 24 at my request and since I have had so many failures and am kinda 50/50 about asking to have a 1 year check. But yeah if the dragon should somehow sneek back we would see increasing ALT and AST test results.

The experts believe that relapse at this point where we are would be exceedingly rare and that the primary way we would test positive again would not be from relapse but from a new infection.

I have a coworker friend who was one of the lucky ones who cured with interferon and Ribavirin back in the day. His doc decided to test him since we have these new meds "just in case" anyway he came back negative after maybe 20 years since he treated.

Believe it we are cured!
« Last Edit: December 31, 2015, 06:34:05 pm by Lynn K »
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline drummerman

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Re: Making the Most of Post Treatment
« Reply #168 on: December 31, 2015, 06:51:41 pm »
Quote from: Lynn K on December 31, 2015, 06:27:33 pm


After so many years of being infected it is just so hard to believe we are. To me it's like a miracle ya know?

Believe it we are cured!

It is hard to believe and it does seem like a miracle!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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Re: Making the Most of Post Treatment
« Reply #169 on: December 31, 2015, 06:53:25 pm »
Quote from: drummerman on December 31, 2015, 06:51:41 pm


My doc was only going to test at 24 weeks but I mentioned 12 weeks and he was totally agreeable.
Not sure about a year check.  I don't think he does that, but probably would if I requested it.


It is hard to believe and it does seem like a miracle!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Lynn K

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  • Get tested, get treated, get cured, fight Hep c!
Re: Making the Most of Post Treatment
« Reply #170 on: December 31, 2015, 07:02:49 pm »

I don't see where you originally posted that but yeah ditto ditto
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Rosie13

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Re: Making the Most of Post Treatment
« Reply #171 on: December 31, 2015, 07:31:56 pm »
Drum roll for Drummerman! I cannot tell you how happy I am for you ...no words to describe our group graduating to a new life free of hepc.You have been there from the beginning helping us all to cope & share the scary times.The fireworks have started in my neighborhood. ..3 cheers for a stunning 2016 my friend!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline drummerman

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Re: Making the Most of Post Treatment
« Reply #172 on: December 31, 2015, 07:37:16 pm »
Quote from: Rosie13 on December 31, 2015, 07:31:56 pm
Drum roll for Drummerman! I cannot tell you how happy I am for you ...no words to describe our group graduating to a new life free of hepc.You have been there from the beginning helping us all to cope & share the scary times.The fireworks have started in my neighborhood. ..3 cheers for a stunning 2016 my friend!

Thanks Rosie!  Enjoy the fireworks!
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Philadelphia

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Re: Making the Most of Post Treatment
« Reply #173 on: December 31, 2015, 07:55:48 pm »
Oh my golly gosh! Big hugs to you! Every time I see one of us come through the door I am so freaking excited. Congrats DM. You're the man of the moment. :)
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline gnatcatcher

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Re: Making the Most of Post Treatment
« Reply #174 on: December 31, 2015, 08:20:20 pm »
Quote from: beto on December 31, 2015, 06:15:49 pm
gotta love our livers...am I right?  We have put them through so much sh%$.  They have been there for us the whole time, even the cirrhotic ones.  Three cheers for our livers.  My liver is my best friend.  Well after Gnatty  :)
Ah, shucks, beto :-[ -- you're right up there in my book, too. I'm grateful to my liver AND my kidneys (which were walloped in 1996 by what was diagnosed as lupus nephritis but for all I know could've been an EHM of HCV).

Yes, Rosie, enjoy the fireworks! Around here, it'll mostly be guns going off (fortunately, not in our immediate neighborhood, but only a few blocks away, so we'll be hearing them).
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline drummerman

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Re: Making the Most of Post Treatment
« Reply #175 on: December 31, 2015, 08:20:27 pm »
Quote from: Philadelphia on December 31, 2015, 07:55:48 pm
Oh my golly gosh! Big hugs to you! Every time I see one of us come through the door I am so freaking excited. Congrats DM. You're the man of the moment. :)

Thanks Philly!  Right back at cha!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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Re: Making the Most of Post Treatment
« Reply #176 on: December 31, 2015, 08:21:33 pm »
Quote from: gnatcatcher on December 31, 2015, 08:20:20 pm
Ah, shucks, beto :-[ -- you're right up there in my book, too. I'm grateful to my liver AND my kidneys (which were walloped in 1996 by what was diagnosed as lupus nephritis but for all I know could've been an EHM of HCV).

Yes, Rosie, enjoy the fireworks! Around here, it'll mostly be guns going off (fortunately, not in our immediate neighborhood, but only a few blocks away, so we'll be hearing them).

In my junior high years , me and my buddy always shot a shot gun in the back yard... in a residential neighborhood.  Good times.
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Rosie13

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  • Posts: 297
Re: Making the Most of Post Treatment
« Reply #177 on: December 31, 2015, 08:45:20 pm »
Well it could be guns,gnatty!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline KimInTheForest

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  • Believe in yourself
Re: Making the Most of Post Treatment
« Reply #178 on: December 31, 2015, 11:23:55 pm »
Quote from: beto on December 31, 2015, 06:15:49 pm
gotta love our livers...am I right?  We have put them through so much sh%$.  They have been there for us the whole time, even the cirrhotic ones.  Three cheers for our livers.  My liver is my best friend.  Well after Gnatty  :)

Beto, the coroner (who was also the mayor) of Ferrol Spain would agree with you. He had the town erect a statue to the liver in 1987 - a liver-shaped granite sculpture to honour what he called "the silent and unselfish organ." Story here: http://www.apnewsarchive.com/1987/Spain-Inaugurates-Monument-to-the-Liver/id-f2e9cc5db49d4d9dc07425ea10fc1092

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline slats1056

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  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #179 on: January 01, 2016, 12:27:19 am »
   Drum roll please----And the newest winner in the SVR12 Liver Lottery is-----------DRUMMERMAN 8) 8) 8) 8) 8)  Great to hear the good news. Another one bites the dust! It's a nightmare waiting, but a dream come true when the news comes through! Best Wishes and good health to You for the New Year DM. :D Pinch Me so I know it is not a dream ;) :)
   By the way, I'm stuck in Pakistan at the moment. I'll get back to You on the fund transferal. I could get some AK's or RPG's cheap at the moment though ;D LOL!

    LIVER LOVERS UNITE FOR THE CAUSE!

 I NEED TO GET ON MEDICATION SO I CAN SLAP STUPID PEOPLE AND BLAME IT ON THE SIDE EFFECTS!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline drummerman

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Re: Making the Most of Post Treatment
« Reply #180 on: January 01, 2016, 09:50:37 am »
Quote from: slats1056 on January 01, 2016, 12:27:19 am
   Drum roll please----And the newest winner in the SVR12 Liver Lottery is-----------DRUMMERMAN 8) 8) 8) 8) 8)  Great to hear the good news. Another one bites the dust! It's a nightmare waiting,

Hey thanks Tommy!  It was a nightmare waiting for results.  Still trying to shake the nervousness!

When do you get your next vl test?

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Scoutdoy

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Re: Making the Most of Post Treatment
« Reply #181 on: January 01, 2016, 09:15:03 pm »
Eeeeegadds, I am really starting to get nervous for my 12 week EOT test on January 11. Every little ache or pain I am thinking I relapsed, I can't wait to get it done and hopefully this will be over


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline drummerman

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Re: Making the Most of Post Treatment
« Reply #182 on: January 01, 2016, 09:19:25 pm »
Quote from: Scoutdoy on January 01, 2016, 09:15:03 pm
Eeeeegadds, I am really starting to get nervous for my 12 week EOT test on January 11. Every little ache or pain I am thinking I relapsed, I can't wait to get it done and hopefully this will be over

Scout

Don't worry Scout.  I was doing the exact same thing.  You've got this.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

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  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #183 on: January 01, 2016, 10:20:36 pm »
Quote from: Scoutdoy on January 01, 2016, 09:15:03 pm
Eeeeegadds, I am really starting to get nervous for my 12 week EOT test on January 11. Every little ache or pain I am thinking I relapsed, I can't wait to get it done and hopefully this will be over


Scout

I kept myself busy (which was easy at this time of year) and didn't have a lot of time to dwell on it.  (I must say that achy liver thing was/is a little concerning).  I also told myself I am cured and it was negative and that's what I expected to see.  It's quite a process on this treatment road.  It just tells us how much we really, really want to be cured!   Scout, I just know you are SVR!!!  Trust that and we'll be so happy when you get your results! 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline beto

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  • "no risk it, no biscuit"
Re: Making the Most of Post Treatment
« Reply #184 on: January 01, 2016, 11:00:37 pm »
Scout- I second Bree's knowing that you are totally SVR.  Your virus was probably gone day one of tx.   :)
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Philadelphia

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Re: Making the Most of Post Treatment
« Reply #185 on: January 02, 2016, 12:23:54 am »
I was really nervous too Scout. Getting my LFTs and stuff earlier made it easier as they had dropped even further, but I was on tenterhooks. Let me repeat what you said to me: "You've got this."

Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Scoutdoy

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Re: Making the Most of Post Treatment
« Reply #186 on: January 02, 2016, 12:44:21 am »
Thanks Philadelphia ...the stress is getting to me a little ...I am ready to come back on here and say I did it! Hope so anyway...


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

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  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #187 on: January 02, 2016, 08:40:57 pm »
 Hey DM, 
     Blood draw was scheduled for the 31st, but I was at the lab doing work for My new internist and did it on the 30Th. Now it's back to the waiting game for New Years!
Hope You are feeling better these days. How are the New supplements doing for You?

  Scout, How are You feeling these days?
      Waiting definitely blows. Staying busy does help.  :)

 HAPPY NEW LIVER TO EVERYONE!
       
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline drummerman

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Re: Making the Most of Post Treatment
« Reply #188 on: January 02, 2016, 08:51:28 pm »
Quote from: slats1056 on January 02, 2016, 08:40:57 pm
Hey DM, 
     Blood draw was scheduled for the 31st, but I was at the lab doing work for My new internist and did it on the 30Th. Now it's back to the waiting game for New Years!
Hope You are feeling better these days. How are the New supplements doing for You?

 HAPPY NEW LIVER TO EVERYONE!
     

Thats cool Tommy.  The waiting game sucks... i know.  But you know you got this dragon whupped!

Too early to tell about the new sup.  Only have been on it a week. 
I used to be king of the supplements and knew a great deal about them.... but this go around , I said screw it,  I'm gonna eat what i want to eat and pretty much cut out all sups... except for occasional glucopower (which I still believe is the greatest supplement collection on the planet... only prob is, it can upset my stomach and give me heart burn so its tricky.

happy new liver to you too!

ps - did I read you were in texas???  If so, I'm right next door in Arkansas!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline slats1056

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  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #189 on: January 02, 2016, 09:32:25 pm »
 DM,
   Hell, that makes us practically neighbors! Yeah, I have not been taking any supplements until I can get My system regulated back to abnormal. Been trying to eat a little healthier though. Funny I used used have a problem with acid re-flux, but not so much since EOT.


 TEXAS SAYS THEY HAVE A FERAL PIG PROBLEM. I SAY WE HAVE A BBQ OPPORTUNIY!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline drummerman

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Re: Making the Most of Post Treatment
« Reply #190 on: January 02, 2016, 10:34:20 pm »
Quote from: slats1056 on January 02, 2016, 09:32:25 pm
DM,
   Hell, that makes us practically neighbors! Yeah, I have not been taking any supplements until I can get My system regulated back to abnormal. Been trying to eat a little healthier though. Funny I used used have a problem with acid re-flux, but not so much since EOT.


 TEXAS SAYS THEY HAVE A FERAL PIG PROBLEM. I SAY WE HAVE A BBQ OPPORTUNIY!

Hi neighbor!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #191 on: January 02, 2016, 10:40:54 pm »
 Well , Howdy there Podnuh@ ??? :P ;) :D
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Making the Most of Post Treatment
« Reply #192 on: January 03, 2016, 01:07:59 pm »
Hey DM, I am doing well. Just waiting for the EOT test. I may actually take it a few days before the 11th because of a scheduling conflict. I don't think it should make that big of a difference. I feel good, but who knows. The mind is a powerful thing.  I am just so ready to get this shit over with.


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Making the Most of Post Treatment
« Reply #193 on: January 03, 2016, 06:01:44 pm »
 Hey Scout,
     How are You doing on the stopping smoking thing? I haven't quit yet , but still working on it! :( :-\
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Making the Most of Post Treatment
« Reply #194 on: January 03, 2016, 07:32:49 pm »
I haven't started yet.kind of waiting to see if my results are still undetected...I am going to start the 21 day quit smoking plan if they are....if I relapsed....I am going to move into the Marlboro factory and just go to town...lol


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #195 on: January 05, 2016, 08:49:01 pm »
Quote from: Scoutdoy on January 03, 2016, 01:07:59 pm
Hey DM, I am doing well. Just waiting for the EOT test. I may actually take it a few days before the 11th because of a scheduling conflict. I don't think it should make that big of a difference. I feel good, but who knows. The mind is a powerful thing.  I am just so ready to get this shit over with

Scout

I hear ya!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Making the Most of Post Treatment
« Reply #196 on: January 05, 2016, 09:07:44 pm »
How are you doing dm? Now that your medically cured?


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Making the Most of Post Treatment
« Reply #197 on: January 05, 2016, 09:18:46 pm »
Quote from: Scoutdoy on January 05, 2016, 09:07:44 pm
How are you doing dm? Now that your medically cured?


Scout
Feeling a little better everyday.  Able to sleep.  Able to work.  Appetite has come back.  Still feel generally bad, but so much better than a month ago.  Cough... gone!

Waiting on day I feel really good due to absence of virus!  I know its coming!

thanks for asking!
dm

Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Making the Most of Post Treatment
« Reply #198 on: January 09, 2016, 08:23:32 pm »
I'm having a lot of gratitude today! 8)  I'm feeling pretty good (minus a sore foot) and it's an outstanding, gorgeous, beautiful, over the top day here in Hawaii.

Working on home projects, music playing, movies with friends tonight, life is good.

My gratefulness in deep, for so many things.  Life is beautiful. Just wanted to say this :)  Love, Bree
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Making the Most of Post Treatment
« Reply #199 on: February 18, 2016, 11:47:07 am »
I just stumbled on  this thread from another -- WHAT AN INSPIRATIONAL THREAD, so full of GREAT wisdom and hope, for those of us getting ready to get on the Harvoni train!!  I will be returning to this particular thread often over the next 12 weeks +.  I agree with Bree that gratitude is very important in this curing process and I plan to really try to focus on that during my treatment, which should be starting in the next 48 hours....... just waiting for "the" call with instructions on delivery, etc!!  Again, great info here!!  Thanks, FT
Logged
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!
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