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Author Topic: Here I go!  (Read 8865 times)

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Offline Smittys Dude

  • Member
  • Posts: 10
Here I go!
« on: November 01, 2015, 09:49:02 pm »
Day 2 Harvoni
Treatment  naive
1a
About  2 million
F3
Healthy guy

Question:
I've actually  been  well, other than getting older. My question is, how are folks with SVR "feeling " better?

Thanks


Logged

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Here I go!
« Reply #1 on: November 01, 2015, 11:22:03 pm »
Welcome to the forum  Smitty. You might be best posting this in post treatment. There's more SVRs over there. Were still txing here!

Good luck with Harvoni tx. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Here I go!
« Reply #2 on: November 01, 2015, 11:25:55 pm »
Welcome Smitty's Dude! One way those of us post-tx are feeling better is from the relief and optimism about finally being free of a virus that has dogged us for years. So there is a boost in mood and state of mind that happens at SVR12.

good luck on your journey! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Here I go!
« Reply #3 on: November 02, 2015, 09:23:25 am »
Hi, S. D.
   I finished Harvoni treatment (Tx) on 9/30. As soon as I started on the Harvoni, I had a lot more energy than before. Before Tx, I hadn't realized how very fatigued I had actually become (I had chalked it up to age, other ailments, and lack of sleep).
   Post-Tx, I'm still definitely better than before Tx, although my energy level isn't as "jazzed" as during Tx. There have been a few times this past month where I needed a ton of sleep for a few days, then things would normalize again.
   Harvoni seems to affect different people different ways + and/or -, whether during or after Tx.
   My hepatologist doesn't check for SVR4, just for SVR12, so I won't know how that feels until late December. It DOES feel good to know that my liver enzymes dropped from stratospheric to normal when tested on Day 28 of Harvoni. Whether or not I achieve SVR12, my liver has had a respite from an almost 44-year HCV attack.

Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Smittys Dude

  • Member
  • Posts: 10
Re: Here I go!
« Reply #4 on: November 02, 2015, 01:38:45 pm »
Thanks for the answers. I guess I'm wondering if this vague sense of fatigue is HCV or just aging. Time will tell...anyway, Day 3!   
and so far so good!
Logged

Offline MaryC

  • Member
  • Posts: 117
  • Life is not a sprint; it's a marathon.
Re: Here I go!
« Reply #5 on: November 02, 2015, 02:41:51 pm »
Quote from: Smittys Dude on November 02, 2015, 01:38:45 pm
Thanks for the answers. I guess I'm wondering if this vague sense of fatigue is HCV or just aging. Time will tell...anyway, Day 3!   
and so far so good!

Welcome Smittys Dude,
So glad to hear of another person gaining access to needed treatment.  I am on Daklinza and Sovaldi (also in Harvoni).  I am 2 days shy of completing 7 weeks of treatment.  Treatment for me has gone very well.

I am 59 yo and only discovered earlier this year that I have chronic HCV.  I have experienced chronic fatigue and muscle aches for the last few years that I just figured were part of the aging process as well.  My friends teased that it was because I am very active and a runner, I am getting too old to run. While I think getting older means that you ache a bit more and don't have the energy you once had in your youth, I am hopeful that post treatment I notice an improvement in my overall energy level. 

Good luck to you!
Mary
Logged
GT 3a
Dx'd 4/15 not known when contracted
Labs 7/15:
-VL 537,000
-AST 32
-ALT 41
-Fibrosis score 0.46 (F1-F2)
Started tx 9/17/2015 with Daklinza + Sovaldi
6/6/16: 24 week EOT SVR!  Cured!

Offline Smittys Dude

  • Member
  • Posts: 10
Re: Here I go!
« Reply #6 on: November 20, 2015, 03:32:38 pm »
3-4 weeks. No side effects.  Blood test shows essentially zero - down from 2million. So far so good. Amazing stuff.
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Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Here I go!
« Reply #7 on: November 20, 2015, 03:34:04 pm »
Quote from: Smittys Dude on November 20, 2015, 03:32:38 pm
3-4 weeks. No side effects.  Blood test shows essentially zero - down from 2million. So far so good. Amazing stuff.

Fantastic! sounds like you are on your way to being cured! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Smittys Dude

  • Member
  • Posts: 10
Re: Here I go!
« Reply #8 on: November 20, 2015, 03:36:47 pm »
Yup :)
Logged

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Here I go!
« Reply #9 on: November 20, 2015, 04:02:35 pm »
At the risk of sounding a little woo-woo, I feel better at an almost cellular level. In some strange way I feel treatment has replaced a wearier, sicker, more worn-out me with something newer, less exhausted, less ill. 

It has been such an odd feeling over the past week (I'm one week shy of having my 12 week post EOT tests) that I blogged about it yesterday. I don't know if I've achieved SRV12 yet, and I am cautious by nature so I haven't assumed I have, but by golly I feel better right now.

http://blogs.hepmag.com/gracecampbell/
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Smittys Dude

  • Member
  • Posts: 10
Re: Here I go!
« Reply #10 on: November 20, 2015, 04:09:32 pm »
Great Blog. ..thanks for sharing.  Congrats :)
Logged

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Here I go!
« Reply #11 on: November 20, 2015, 05:34:26 pm »
Smitty,
Love your work my friend! Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline atomic dog

  • Member
  • Posts: 160
Re: Here I go!
« Reply #12 on: November 22, 2015, 09:43:22 pm »
24 weeks post-treatment. Feeling much better. 2 lingering side effects from Harvoni weight gain,  packed on 25 pounds, that is tough to reduce; and  problems, chronic diarrhea abated recently by high fiber and probiotics. But in terms of my energy, headaches, et al, yeah, I feel better and am very glad I fought to get on the Kaiser treatment plan. Of course, I still have almost 50 years of liver damage, but the NIH and other liver experts are saying that evidence indicates the liver can regenerate to some extent.
Logged
Infected 1969, dirty needle
Geno 1a
Stage 2 fib, some necrosis
TX naive
1/29/15 ALT61; AST43
2/16/15 Started Harvoni; VL 1.5 m;
2/19/15 ALT40; AST24
2/29/15 ALT29; AST25
3/9/15 ALT28; AST25; 
3/9/15 < 20 IU/mL (3 wks) HCV RNA remains 'detected'
3/24/15 ALT30; AST25;
3/24/15 <20 IU/mL (5 wks) HCV RNA
4/10/15 <20 IU/ml (7 weeks) HCV RNA
4/20/15 ALT36; AST27
4/20/15 UND
5/11/15 UND (EOT); ALT33; AST25
6/11/15 UND; ALT 34; AST 29
8/14/15 UND
11/15/15 SVR, 24-wk EOT

Offline Smittys Dude

  • Member
  • Posts: 10
Re: Here I go!
« Reply #13 on: November 22, 2015, 09:50:10 pm »
Sounds great!  Last I heard weight gain comes from eating more than you need (more than you burn ). So, eat fewer calories and walk, run, skip, swim, whatever every day. The "experts" may not yet know if the liver regenerates but they do know it will now stop getting worse, so you have no worries!
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Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Here I go!
« Reply #14 on: November 23, 2015, 04:24:22 am »
Atomc,
What is Kaiser Treatment Plan? I lost weight early in tx then got a voracious appetite around week 8. I now am healthily padded for the first time is ages. I have been skeletal since my last. Tx in 2011. So it's a celebratory weight. However I do have to get fit now and buy new clothes! Yes I gave heard there is some reversal of damage too. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.
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