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Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Author Topic: Fighting Hep C: A Hep Forum Member's Story  (Read 4991 times)

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Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Fighting Hep C: A Hep Forum Member's Story
« on: September 26, 2015, 04:28:12 pm »
Mugwump has given me permission to connect his Hep Story to his Hep Forum identity. His story is a powerful illustration about how much hep C weighs on us, particularly the heavy fear of infecting others. By telling his Hep Story, Eric (Mugwump) invites us all to confront our deepest fears, and share them with each other. http://www.hepmag.com/articles/eric_reesor_2846_27742.shtml

Annette Simmons said, “Storytelling is a vaccine against war.” We are at war with hepatitis C; I invite you to share your story: http://www.hepmag.com/hep_stories.shtml
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline byebyeC

  • Member
  • Posts: 286
Re: Fighting Hep C: A Hep Forum Member's Story
« Reply #1 on: September 26, 2015, 08:05:05 pm »
Great story Eric :)

Thank you for sharing!

Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline KimInTheForest

  • Member
  • Posts: 1,952
  • Believe in yourself
Re: Fighting Hep C: A Hep Forum Member's Story
« Reply #2 on: September 26, 2015, 08:52:22 pm »
Thanks for sharing your story, Eric. It's really moving. May more of us follow in your footsteps and step up to tell our stories. Glad you had the courage to do so. It's inspiring. :)

kim
« Last Edit: September 27, 2015, 01:34:24 pm by KimInTheForest »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline MaryC

  • Member
  • Posts: 117
  • Life is not a sprint; it's a marathon.
Re: Fighting Hep C: A Hep Forum Member's Story
« Reply #3 on: September 27, 2015, 12:35:56 pm »
Thank you Eric for having the courage to 'come out' and share your story.  Breaking down barriers starts with reducing the stigma associated with this disease.  I applaud your courage!

Mary
GT 3a
Dx'd 4/15 not known when contracted
Labs 7/15:
-VL 537,000
-AST 32
-ALT 41
-Fibrosis score 0.46 (F1-F2)
Started tx 9/17/2015 with Daklinza + Sovaldi
6/6/16: 24 week EOT SVR!  Cured!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,356
  • Get tested, get treated, get cured, fight Hep c!
Re: Fighting Hep C: A Hep Forum Member's Story
« Reply #4 on: September 28, 2015, 12:27:21 am »
Thanks Eric for saying the bit about me but just to add you haven't seen the planes they use for skydiving lol! :)
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Fighting Hep C: A Hep Forum Member's Story
« Reply #5 on: September 28, 2015, 04:44:31 pm »
Thanks Eric,

For me it was my son playing with my bic razor.  I am so glad you can now report...you ain't got it.  I'm curious though...whats the best fish you ever caught?  Now you've got to take me fishing.

 :)

HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: Fighting Hep C: A Hep Forum Member's Story
« Reply #6 on: November 06, 2015, 12:30:50 am »
I am not brave enough to be outed yet and much respect to all of you that are.

For me the moment was when I cut finger at work after treatment and was in panic mode trying to fine a bleach wipe to detoxify all traces of my fluids and then I was hit by the 2x4 of truth-  that I was now undetected for virus. I was no longer a walking biohazard.
The weight lifted and I was blown away by just how much I had been carrying all these years and had been  in full on denial about the burden and the toll it had taken on me.
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

 


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