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Author Topic: 2016 graduates, How many of us are there here?  (Read 17699 times)

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Offline morab

  • Member
  • Posts: 232
  • Lives in the woods
2016 graduates, How many of us are there here?
« on: January 04, 2017, 03:55:47 pm »
Has anyone counted the 2016 graduates who reached undetected this year?
I reached SVR 24 at the end of the year!
morab
3/2016 G 1a
Alt 84
Ast 62
Fibrosis score lab 0.66
quantitation 894,670
4/23/16 day 6, naive Harvoni 12 week treatment
5/27/16 week 4 lab results UNDETECTED AST 23 ALT17

Offline kimlav

  • Member
  • Posts: 24
Re: 2016 graduates, How many of us are there here?
« Reply #1 on: January 04, 2017, 09:40:52 pm »
Hi Morab,

Congrats to you and everyone else in 2016.

I guess I am #2 on this list you are compiling.

Kim
52 year old female
Geno 1a
Contracted in the 80's
Tx naive
vl 657,000 in Nov/15
No liver damage
ALT prior to tx: 107, 91 - 41 at 2 wks, 38 at 4 wks
AST prior to tx: 59,72 - 45 at 2 wks, 37 at 4 wks
started 8 wks Harvoni on Jan 21/16
EOT vl <12 detected
4.5 wk EOT vl - target not detected! RNA Not detected!
12 wk EOT vl - target not detected! (Will never get tired of typing that)
24 wk EOT vl -  not detected

Offline NYCHEPCMAN

  • Member
  • Posts: 63
Re: 2016 graduates, How many of us are there here?
« Reply #2 on: January 05, 2017, 09:49:56 am »
I graduated in 2016!

Feeling much better, my brain fog is gone, and even my dentist commented last night on how my teeth had no plaque build up - which is a first. 
GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira
Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25

Offline andrew j

  • Member
  • Posts: 477
Re: 2016 graduates, How many of us are there here?
« Reply #3 on: January 05, 2017, 08:21:56 pm »
I'm clear, too (Thank the Lord!).
SVR 12 early Sept.

Congrats (again), Morab!
I will post on your other thread soon.
« Last Edit: January 06, 2017, 02:57:27 pm by andrew j »

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: 2016 graduates, How many of us are there here?
« Reply #4 on: January 06, 2017, 12:32:40 pm »
It would be lovely if graduates would pass along the hope by submitting their stories to Hep Stories https://www.hepmag.com/category/hep-stories

You don't need to be a writer, because we help with that. You just need to be brave and willing. Short stories are the best.

Congratulations everyone.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline rainbowray

  • Member
  • Posts: 263
  • Gen 1B
Re: 2016 graduates, How many of us are there here?
« Reply #5 on: January 06, 2017, 01:03:32 pm »
Well, It is over two years since Sol/riba treatment. I am not detected. My Liver pains from stage 3 are all but gone, just a few discomforts now and then on the liver. My neuropothy is still the same. Evidently nerve damage from autoimmune issue from Cryoglobunimia is not going to heal . The Cryo is still there also, although very mild.
So I guess I should count my blessings especially after knowing I had Heb C for 44 years before getting treatment.

Offline lporterrn

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  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: 2016 graduates, How many of us are there here?
« Reply #6 on: January 07, 2017, 08:53:11 pm »
It is so good to hear from you! And although recovery wasn't 100%, it sounds better, especially in light of 44 years!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline SomewhereinTX

  • Member
  • Posts: 30
Re: 2016 graduates, How many of us are there here?
« Reply #7 on: February 19, 2017, 09:32:09 pm »
Has anyone counted the 2016 graduates who reached undetected this year?
I reached SVR 24 at the end of the year!
morab


Hi morab!

Had blood work done at 12 weeks on November 10, 2016.
Was undetectedfor my 12 week SVR.

Just posted in another thread that I requested a 24wk SVR and was told no as the 12 week showed me to be cured.  That was the same day as my 24 week Firbroscan where I found out my Fibrosis Stage went from Stage 2 (just before treatment began) to now Stage 3. 
No explaination as to why that may be.

I think I am going to seek out someone else will to do a 24 week SVR on me to be sure.
Diagnosed November 2015
VL 1.1Mil
VL just prior to treatment beginning: 316k
F2-3
Completed 8 week Harvoni Treatment 8-18-16
Undetected after 8week EOT
Liver enzymes in normal range

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: 2016 graduates, How many of us are there here?
« Reply #8 on: February 20, 2017, 01:40:30 pm »
Somewhere - If you don't get anywhere with this, you can also request the test from your primary care doc. A cheaper, reasonable alternative is to request a liver panel. Generally when hep C returns, it really drives the ALT up. Your primary care doc can order that. Given that you are at stage 3, it is reasonable for you to be monitored for cirrhosis and liver cancer. Any chance that you have fatty liver disease? This is rapidly replacing hep C as the #1 liver disease. https://www.hepmag.com/basics/non-alcoholic-fatty-liver-disease-basics
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Patty

  • Member
  • Posts: 25
Re: 2016 graduates, How many of us are there here?
« Reply #9 on: May 01, 2017, 08:19:34 am »
Hi Morab,
I'm here and one of the 2016 graduates. Blood test show undetected, but struggling with post treatment symptoms. Praying they go away,but see many are still suffering. All my joints ache, and ultrasound shows my liver is swollen, test show a slight increase in my blood work, so I'm wondering why and what did the treatment do as far as are immune system is concerned. Glad to be rid of hep-c, but feel I have woken some sleeping giants as far auto immune goes. Congrats on all for becoming undefeated and being hep-c free. Let's just pray everything else improves with time.
Patty
Geno type 1a
Fibrosis stage 4 severe
Infected by a patient I worked on 2003
Went thru Interferon combo for almost a yr in 2004 was taken off because hemmorage behind my eye
Harvoni 12 week treatment startered 4-14-2016
1 yr later Hep-C undetected

Offline Patty

  • Member
  • Posts: 25
Re: 2016 graduates, How many of us are there here?
« Reply #10 on: May 01, 2017, 08:21:05 am »
Hi Morab,
I'm here and one of the 2016 graduates. Blood test show undetected, but struggling with post treatment symptoms. Praying they go away,but see many are still suffering. All my joints ache, and ultrasound shows my liver is swollen, test show a slight increase in my blood work, so I'm wondering why and what did the treatment do as far as are immune system is concerned. Glad to be rid of hep-c, but feel I have woken some sleeping giants as far auto immune goes. Congrats on all for becoming undefeated and being hep-c free. Let's just pray everything else improves with time.
Patty
Geno type 1a
Fibrosis stage 4 severe
Infected by a patient I worked on 2003
Went thru Interferon combo for almost a yr in 2004 was taken off because hemmorage behind my eye
Harvoni 12 week treatment startered 4-14-2016
1 yr later Hep-C undetected

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: 2016 graduates, How many of us are there here?
« Reply #11 on: May 05, 2017, 03:46:25 am »
Not class of 2016 but class of 2015.

Just wanted to share today May the Fourth makes 2 years since EOT or SVR104 :)
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Mike716

  • Member
  • Posts: 15
  • Here's looking at you. . .
Re: 2016 graduates, How many of us are there here?
« Reply #12 on: May 08, 2017, 08:55:23 pm »
Hi, all.

I'm a 2016 graduate. Tested UND one year ago after 12 weeks on Solvadi/Olysio, and again three months ago, since being diagnosed HCV+ in 2008. Now, all my liver functions are normal, including the hepatic enzymes, exceot for platelet count, which remains low.

One big plus: I just passed the first winter of my life with no flu, cold, grippe, or other major virus infection. It seems that my immune system, freed from waging a war of attrition with HCV, is now free to fight the topìcal viral infections that have plagued my life.

This is a huge positive side effect to offset all the reported negative ones.

Cheers.

Mike
Diag. 2008: HCV geno 1a
Biopsy 2008: F1-F2
Fibroscan 2012: F2-F3
Fibrotest 2015: F4 (& AST 150)
Tx 2015: Sovaldi+Olysio, 12 wks.
EOT+3mos. VL: UND
EOT+15 mos. VL: UND

Offline hummingbird57

  • Member
  • Posts: 39
Re: 2016 graduates, How many of us are there here?
« Reply #13 on: May 09, 2017, 10:25:02 am »
I'm also a 2016 graduate.  Started generic Harvoni in 7/16 - completed 9/16 - 12 week.  Undetected 12 weeks / Undetected 24 weeks in 3/17.   Main complaints were numbness in fingers and in toes and general joint aches.  Most have subsided.  Certain that these conditions are real but the anxiety and depression created by any chronic condition can exacerbate these aches - maybe not for everyone but did for me.  Trips to the chiropractor for stiff neck, shoulders were sometimes weekly.  Now, no adjustments since December '16. 

Hoping everyone starts getting some relief as SVR continues!
Genotype 1a
contracted 1975/ dx 2003
treatment naive
Harvoni tx - started 7/3/16
Treatment completed - 9/24/16
EOT - 10/6/2016 - HCV Undetected!!!!!!!

Offline mario555

  • Member
  • Posts: 226
Re: 2016 graduates, How many of us are there here?
« Reply #14 on: May 09, 2017, 10:39:43 am »
Hi everyone!
I was cured in April 2016 after 24 weeks treatment with Harvoni.  24 weeks test showed undetectable. I did do a blood panel this February for my alt levels (15!) after I got scared reading about someone who might have relapsed 16 months later.
I still have post treatment side effects (dizziness and ear ringing) but I feel 10 years younger than what I am! I was stage 4 so I would be in deep sh.. if I wouldn't have taken this miracle drug!
Good luck to everyone!
Mario
60 years old. Likely infected 1975. Geno 1a
F4  8 millions VL,  AST 140  ALT 140
Generally in good health except problems are creeping up rapidly!
2 failed attempts Inf 2000 and Inf-riba 2010
Harvoni 24 weeks
Start 11/13/2014   EOT 4/27/2015
VL2 - UND
VL4 - UND (may 25)
VL12 - UND
VK24 -  UND
Hopefully cured forever!

Offline I fightis thetitis

  • Member
  • Posts: 129
Re: 2016 graduates, How many of us are there here?
« Reply #15 on: May 11, 2017, 05:17:08 am »
Celebrating 1 year EOT May 7. Which means I'm 16 mos @UND and virus free!
I experienced severe liver pain post eot @24 weeks (Oct 2016-Feb 2017) and the good news since feb pain has been in check.
Which makes me feel like liver is healing or at least whatever was causing that ab pain has improved.

I'll have ultras and labs next month and request a fibroscan to check F score.
Class of 2016 rocks!

Word to your liver!

Greg
M59  56@start of TX. date infected:1976
diagnosed 1997 - asymtomatic
Genotype 1a
AST 111 -ALT 124 - AFP -89
Viral Load 1900000 - Log 6.28
Fibro Test F4 ActiTest A3
Harvoni 24 wks - start date 11/24/15

6 Week Labs VL Undetected!
104 weeks EOT Undetected.

8/25/17 Fibrosure score 80 = F4
11/10/17 Fibroscan 7.5 mean 1.6 m/s = F2
8/2018 Ultra sound normal.

Offline NYCHEPCMAN

  • Member
  • Posts: 63
Re: 2016 graduates, How many of us are there here?
« Reply #16 on: May 23, 2017, 04:16:30 pm »
I am at the one year point too and feel terrific!

My brain fog is gone as are heart palpitations, and vertigo....

I also don't have any liver pains and don't have swallowing issues anymore.

amazing how many things hep c triggers on people.
GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira
Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25

Offline Rickta53

  • Member
  • Posts: 9
Re: 2016 graduates, How many of us are there here?
« Reply #17 on: June 11, 2017, 03:13:05 pm »
Hello, its been a while since my last post. I am a 2016 graduate, took my last Harvoni pill on 12/24/16. Undetected at 12 weeks and now undetected at 6 months with all normal blood test numbers. Just had an upper endoscopy done for any evidence of damage to stomach and throat, specifically to look for varices. My results were negative for damage from the hepc virus. Have never came across anyone else mentioning the scope check but my doctors both said that varices are common with hepc patients. I feel cured and feel great. No after effects no aches or pains just a future without the dreaded virus. Thank you Harvoni!

Rickta53 (now 63 lol)

Offline jakas

  • Member
  • Posts: 265
Re: 2016 graduates, How many of us are there here?
« Reply #18 on: June 11, 2017, 03:38:00 pm »
63 WEEKS UNDETECTED  ;D
Thanks to all of you for the support along the way.
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline mario555

  • Member
  • Posts: 226
Re: 2016 graduates, How many of us are there here?
« Reply #19 on: June 11, 2017, 04:46:27 pm »
Happy for you Ripta! I finished my treatment in April 2015. After 6 months my specialist wanted me to have an endoscopy for varices. I refused the treatment based on the fact that while I was sick, no mention of this procedure was made but now that I am cured, he wanted the procedure! If anything, my throat would have been better after the cure so, what's the use? My specialist was very mad at me because I dared to have an opinion and he kicked me out of his office never to see me again! When I think I was the public spokesperson for the hospital patients and was instrumental for the acquisition of a large piece of equipment, I was rather disturbed. Then it downed on me! I was not a money maker for him anymore!
Is this test required? Probably in a portion of the patients but probably useless for the large majority of us! In any case, I am not a doctor but I have never heard of previous hep c patients to bleed to death from their throat!
60 years old. Likely infected 1975. Geno 1a
F4  8 millions VL,  AST 140  ALT 140
Generally in good health except problems are creeping up rapidly!
2 failed attempts Inf 2000 and Inf-riba 2010
Harvoni 24 weeks
Start 11/13/2014   EOT 4/27/2015
VL2 - UND
VL4 - UND (may 25)
VL12 - UND
VK24 -  UND
Hopefully cured forever!

Offline Flaco

  • Member
  • Posts: 56
Re: 2016 graduates, How many of us are there here?
« Reply #20 on: June 30, 2017, 03:54:50 pm »
I'm one.

Started Harvoni March, 2016, was undetectable in like 2 weeks and stayed that way until EOT @ 24 weeks in August. Was SVR24 in Feb. '17, and will be going for my 1 year checkups in August. I'll get my thump test (forgot whatchacallit) Fibroscan around that time.

I was stage F4 at my preliminary Fibroscan back in Feb. '16, but really didn't feel like I was on my death bed, which was how I figured one would feel at end stage - cirrhosis. Except for chronic painful neuropathy I felt pretty OK. Now, however, I dunno. I hurt all over all the time - nerve pain in my extremities and limbs as well, but I've had that for years (though it has intensified) - sometimes little twinges in my right side as well, infrequent. Also I'm experiencing a fair amount of itchiness.

At every liver doc office visit he would rave about how great my test charts looked.

So I don't know. We'll see.
« Last Edit: June 30, 2017, 04:22:08 pm by Flaco »
Best Regards,
Jack

Diag 2001
Failed PEG-int/Riba 2002, 48 wks.
2015-16:
F4 compensated
VL 14.7 million
GT 1A
Alkaline Phosphatase(37-127 U/L): 12/23/15 216; 1/14/16 152; 1/29/16 103; 3/18/16 68; 4/1/16 70
SGPT (ALT) (15-78 U/L) 12/23/15 862; 1/15/16 753; 1/29/16 518; 3/18/16 48; 4/1/16 28
SGOT (AST) (9-44 U/L) 12/23/15 283; 1/15/16 226; 1/29/16 165; 3/18/16 24; 4/1/16 19
Start Harv 24 wks. 3/4/16
Undetected 2 weeks into Tx
Liver&metabolic nos. steadily improving since start TX
EOT 8/18/16

Offline CureSeeker

  • Member
  • Posts: 121
  • Virus Free! Happy Dance Time!
Re: 2016 graduates, How many of us are there here?
« Reply #21 on: June 30, 2017, 04:59:43 pm »
I'm not sure if I qualify.  *shrugs*

I took my last dose at the end of November 2015, and achieved SVR12 in February 2016.

A big CONGRATULATIONS to the class of 2016 (whether I qualify or not), and everyone who has slain their dragons - EVER!  :D
Once you eliminate the impossible, whatever remains, no matter how improbable, must be the truth.

~ Arthur Conan Doyle


Genotype 3a, F 0-1
Sovaldi & Ribavirin x 24 weeks

2/23/16 - UNDETECTED!  SVR12 achieved.  :D
6/21/17 - UNDETECTED!  1.5 years post treatment.
July 2018 - UNDETECTED!

Offline MommaT

  • Member
  • Posts: 65
  • Tomorrow Is a New Day
Re: 2016 graduates, How many of us are there here?
« Reply #22 on: July 15, 2017, 03:49:25 am »
Hello All!
I am a 2016 Graduate checking in! I took My Epclusa from Sept to December 2016.
I hope WE all keep Clear of Hep C and maybe even reverse THE damage??? I am Compensated Cirrhosis with Lots of Nerve Pain and No Sleep! But, good thing is if I can stay clear and I have changed my diet-avoiding meat and processed food. I have no idea if it will work but worth a try! Can the liver regenerate? Let's hope so!
I am seeing Liver Specialist soon to have a plan. Might as well look at transplant connected Dr who REALLY knows his stuff because honestly-Gastroenterologist are limited. My theory find the worse case scenerio Dr and get good care!
Good Wishes Alumns!
62 year old Female
Treatment Naive
Genotype 2b
2001 Dx Donated blood after 9/11
2002 Biopsy F1
2016 Fibroscan 15 F4
Comp Cirrhosis Stage 1
pretreatment VL 1,722.660 mil
platelets 122 low
alpha 2 Macroglobulins 647
Apolipoprotein A-1 214
GGT 67 high
AFP Serum Tumor Marker 11.4
ALT 563 AST 332
2016 Sept 16 Epclusa started
4 wk VL <15 HCV Detecte
ALT 19 AST 18
8 wk VL HCV Undetected!
12/8/16 EOT Yipee!
12 wk VL HCV Undetected
SVR 12
SVR  24  10/5/2018 HCV Undetected   12/10/18 DETECTED????????

Offline mario555

  • Member
  • Posts: 226
Re: 2016 graduates, How many of us are there here?
« Reply #23 on: July 15, 2017, 07:15:24 am »
Congratulations and good luck with your liver! The great news is that you have stopped the disease in its path!
60 years old. Likely infected 1975. Geno 1a
F4  8 millions VL,  AST 140  ALT 140
Generally in good health except problems are creeping up rapidly!
2 failed attempts Inf 2000 and Inf-riba 2010
Harvoni 24 weeks
Start 11/13/2014   EOT 4/27/2015
VL2 - UND
VL4 - UND (may 25)
VL12 - UND
VK24 -  UND
Hopefully cured forever!

Offline Flaco

  • Member
  • Posts: 56
Re: 2016 graduates, How many of us are there here?
« Reply #24 on: August 27, 2017, 01:10:29 pm »
Update:
My peripheral neuropathy pain had become such a central part of my life that I got on my GP about it. He prescribed gabapentin (Neurontin) which seemed to make matters worse (or at least my pain and twitches (myoclonic jerks are they called?) got worse during the time I was taking gabapentin), so I gradually took myself off of it.

Doc changed me to Lyrica a month or so ago, and the change is dramatic. Very little pain now (reduced to (relatively) minor pain in my hands and feet), and unvoluntary movements - jerks & twitches are minimized. Not sure about liver impact, though. Need to look that up...

Now if I can just get my blood sugar under control I should be in pretty good shape. I'm taking metformin (Glucophage) 1000mg 2x/day and it's not doing the job. I'm lucky to get 200mg/dl 2 hours post prand.

While I was waiting for my thump test (fibroscan) I thumbed through a Hepatitis C magazine there which included an article on coffee and how good it may be for the liver. As a home roaster of coffee, that's good news! :D It did not occur to me at the time to look and see if the magazine was Lucinda's :( I suspect it might have been, though.
« Last Edit: August 27, 2017, 01:15:06 pm by Flaco »
Best Regards,
Jack

Diag 2001
Failed PEG-int/Riba 2002, 48 wks.
2015-16:
F4 compensated
VL 14.7 million
GT 1A
Alkaline Phosphatase(37-127 U/L): 12/23/15 216; 1/14/16 152; 1/29/16 103; 3/18/16 68; 4/1/16 70
SGPT (ALT) (15-78 U/L) 12/23/15 862; 1/15/16 753; 1/29/16 518; 3/18/16 48; 4/1/16 28
SGOT (AST) (9-44 U/L) 12/23/15 283; 1/15/16 226; 1/29/16 165; 3/18/16 24; 4/1/16 19
Start Harv 24 wks. 3/4/16
Undetected 2 weeks into Tx
Liver&metabolic nos. steadily improving since start TX
EOT 8/18/16

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: 2016 graduates, How many of us are there here?
« Reply #25 on: August 28, 2017, 12:59:50 pm »
All these wonderful outcomes make especially good stories. Please tell your hep story at Hep Stories https://www.hepmag.com/category/hep-stories
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

 


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