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Author Topic: Travel in the second week of treatment with Veikira?  (Read 6613 times)

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Offline HazelAustralia

  • Member
  • Posts: 178
Travel in the second week of treatment with Veikira?
« on: December 11, 2015, 12:38:30 am »
Hi everyone,

Thanks for your invaluable words, ideas and support. It's really helped me heaps already, just in deciding to go ahead and pursue treatment with a bit more knowledge.

Last I heard I was looking at treatment sometime in the new year. I just returned from an appointment where I was told that someone has dropped out of the compassionate program, the drug company have given the hospital another pack, and if I want it, I can start next Wednesday. I said - yep. Yes please!

That's the 16th December. On the 28th I have a 12 day trip to Kerala, South India all planned, paid for, leave taken from work etc. It's about a 14 hour flight. Doc said fine, I can take the drugs with me. I am just wondering, given that many have said that the first two or three weeks can knock you around, what do people think about travelling during that time?

I'm trying to get everything planned and I am really happy to have a date. It's only now seeming real.

Best wishes

Hazel.
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline jakas

  • Member
  • Posts: 265
Re: Travel in the second week of treatment with Veikira?
« Reply #1 on: December 11, 2015, 12:54:54 am »
I am doing the same but after 4 weeks of starting. I think you should be fine. Just keep drinking water and only bottled water at your destination of travel Kerala.
Avoid too spicy food as south Indian food can be hot.
There is an Indian probiotic called VIBACT, take that as soon as you get there so you will avoid any stomach problems. Good Luck !
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline BillT

  • Member
  • Posts: 573
Re: Travel in the second week of treatment with Veikira?
« Reply #2 on: December 11, 2015, 07:18:54 am »
Hi Hazel,
            I'm glad you have the chance to treat and welcome to the club.I say go on the trip and enjoy yourself.Not everyone is getting leveled by the meds so there's no way of telling how they will effect you.It sounds like the trip is a done deal so do it and deal with everything else as it comes along. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Travel in the second week of treatment with Veikira?
« Reply #3 on: December 11, 2015, 07:51:00 am »
Weeks three and four I was hammered. I agree with Bill. You deal with what happens. Adjust your expectations if you need to. Be kind to yourself. Have fun!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline NYCHEPCMAN

  • Member
  • Posts: 63
Re: Travel in the second week of treatment with Veikira?
« Reply #4 on: December 21, 2015, 03:55:01 pm »
Insurance rejected treatment but doctor says to expect to be approved soon.

Question for those who took Veikira (no Riba) - during the 12 weeks of treatment (or after), any particular period where work or travel was difficult? Is a cruise out of the question?

I can take off the entire treatment time but don't want to if I don't need to - also have family in Florida so would be nice to get out of cold for a few weeks....thanks for your insight
GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira
Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Travel in the second week of treatment with Veikira?
« Reply #5 on: December 21, 2015, 04:27:28 pm »
Everyone seems to deal with sx differently, and sx seem to be different for each patient. Most people will tell you it's the riba that makes it hard and for people with minimal liver damage that's true ibelieve. Cirrhotics might find treatment a little harder.

I found the first month challenging. Once my ribs was reduced to 2 tabs a day instead of 5 it was plain sailing.n

Good luck! I blogged my entire treatment (24 weeks) going back to March this year. Link is in my sig below.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: Travel in the second week of treatment with Veikira?
« Reply #6 on: December 21, 2015, 10:08:01 pm »
Hi NYC

I was on Harvoni with Ribavirin so not exactly the same and everyone is different but just for reference I traveled to Italy from Washington state for a week which is hard enough on your system if healthy and I was about in the middle of my treatment. The walking tour was a bit tiring but would not have missed it for the world. I also went on an Alaska cruise 9 days after I finished my treatment.

I also worked full time plus on treatment and I have cirrhosis.

So basically it is up to you. Just know yourself and if you are tired take a break and don't push yourself too hard.

Go down to Florida and soak up some sun you will feel better than staying home is my advice.  :)

Best of luck
Lynn
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

 


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