User

Welcome, Guest. Please login or register.
November 14, 2024, 09:19:58 pm

Login with username, password and session length


Search

Forums Index

Stats

Members
Stats
  • Total Posts: 55133
  • Total Topics: 4851
  • Online Today: 242
  • Online Ever: 3061
  • (September 25, 2024, 11:40:40 pm)
Users Online
Users: 0
Guests: 216
Total: 216

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.
« previous next »
Pages: [1]   Go Down

Author Topic: Looking at the finish line  (Read 17156 times)

0 Members and 2 Guests are viewing this topic.

Offline BillT

  • Member
  • Posts: 573
Looking at the finish line
« on: January 01, 2016, 07:59:44 am »
At this time next Friday I'll have one pill left.I'm excited,nervous,and anxious.I'm doing my EOT labs on Tuesday so they'll be back by then.God I hope this worked.


                                           Happy New Year Everyone!!!
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Looking at the finish line
« Reply #1 on: January 01, 2016, 08:22:37 am »
Bill, you're good. Is it Rosie who has the crystal ball? I'm sure she'd say so, too. Not only that, but pretty much everyone who's going to tell you something similar today is totally sober -- where else but on the Hep C forums are you going to find that many sober people on the morning after New Year's Eve? SVR12*, here you come!

Gnatty

*or SVR11.428571, but who's counting ;)
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Looking at the finish line
« Reply #2 on: January 02, 2016, 12:28:40 am »
Look at your numbers Bill. They are outstanding. We can't wait to hear how it goes. We are all with you on this. :)
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Looking at the finish line
« Reply #3 on: January 02, 2016, 01:00:49 am »
Quote from: gnatcatcher on January 01, 2016, 08:22:37 am
Bill, you're good. Is it Rosie who has the crystal ball? I'm sure she'd say so, too. Not only that, but pretty much everyone who's going to tell you something similar today is totally sober -- where else but on the Hep C forums are you going to find that many sober people on the morning after New Year's Eve? SVR12*, here you come!

Gnatty

*or SVR11.428571, but who's counting ;)

Gnatty, it's me with the crystal ball... and I looked in it and yep, Bill, you're good!!!  8)
(by the way, I had 18 years of sobriety yesterday, Dec. 31!)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Looking at the finish line
« Reply #4 on: January 02, 2016, 03:01:42 am »
Bree, sorry about that -- I knew it was someone with a pink avatar who lived where it's sunny and warm ;D  Big-time congrats on your 18th sobriety anniversary -- that took a whole lotta willpower!

Bill, see, Bree's totally sober, so she's giving you a totally unjaundiced* reading of that crystal ball!

Gnatty

*both meanings. (I, on the other hand, had another pang of enzyme envy looking at your AST and ALT numbers, thanks to Philly's reminder.)
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Looking at the finish line
« Reply #5 on: January 02, 2016, 03:23:09 am »
Yea, Bill me too on the envy re LFT's.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline BillT

  • Member
  • Posts: 573
Re: Looking at the finish line
« Reply #6 on: January 02, 2016, 07:52:25 am »
Well I'm about to start day 7.Thank you all so much for the smile and support this morning.I know now how nervous everyone else getting to EOT has felt.It almost doesn't seem real that I'm very likely cured.I've been trying to squash that little bug in my mind that keeps reminding me that I went through 11 months of hell on the interferon only to relapse.This treatment has been too easy for me and that scares me.My apologizes to those that have had to suffer through theirs.I'm just barely awake right now so I'm going to get the meds in me and go back to bed for a bit.I'll be back later. :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Looking at the finish line
« Reply #7 on: January 02, 2016, 10:35:13 am »
The waiting is interesting. It's almost useful to break the treatment journey up into sections of waiting: waiting for treatment, waiting for the first UND, waiting for the last tablet, waiting for 12 weeks post eot. Almost ... ;)

I remember blogging about it and if I wasn't on a train heading to Tsawwassen I'd link to it because I felt the same way you do.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Looking at the finish line
« Reply #8 on: January 02, 2016, 11:15:43 am »
It turns out I only thought I was sailing through the weeks of waiting from EOT to SVR12. In retrospect, during that period my posts were very cut-and-dried, but after the UND came back, they waxed eloquent. My mind was probably trying to prevent a jinx by tiptoeing around. I didn't even have a prior relapse -- the wait seems to be even more fraught with anxiety for those who did.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Looking at the finish line
« Reply #9 on: January 02, 2016, 09:36:31 pm »
 Bill,
   The count down begins! ;) >:( 8)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: Looking at the finish line
« Reply #10 on: January 03, 2016, 06:07:52 am »
Hey Bill,
So you also see the almost empty bottle  :)
Nice to hear, you are almost ready!!!
You Will have a very good birthday party I hope ,
X Madelief
Logged
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline BillT

  • Member
  • Posts: 573
Re: Looking at the finish line
« Reply #11 on: January 03, 2016, 09:37:34 am »
Good morning all,
                         I'm awake this morning and feeling great.I've been taking Aleve PM and they've helped me sleep great the last 2 days(and taken care of that kidney stone pain).It seems to be the only thing that's helped with the sleep.I got a letter from the Veterans Admin and they want me to do my last labs over in Orlando next Friday.I've been doing them over here on the each so I'm not sure what's going on with that.I'm going to call tomorrow and find out so I'll let you all know.

Gnatty,
 I live on the beach here in Florida and sober people are hard to find even when it's not a holiday.My numbers do make me feel better,and like this has worked.Everyone's numbers have really done nicely from the looks of it.I think they'll get better for all of us now that the dragon is dead.

Bree,
       Congratulations on the sobriety,and I love that crystal ball.Take good care of it.I know I'm worrying over nothing,but after destroying myself mentally and physically(I weighed 126 lbs when that was over and I'm 5'8")on the interferon I started this treatment in a bad frame of mind.I was shocked when my numbers came back like that on week 4 but I'm very pleased with them.

Philly,
       I've been breaking up the treat like that myself.It's the always waiting part that's gotten to me right now.It's seems the closer the last pill gets the harder it is to wrap my mind around this whole trip.I think the lack of sleep has had a lot to do with my frame of mind.The 2 days of great sleep has done wonders for me.I definitely recommend the Aleve PM to help with any pain and sleep,or the regular Aleve for the daytime.

Tommy,
          You just had to remind me didn't you...5 and a wakeup my friend!! :)

Madelief,
            I told you I was right behind you.Turning 60 was never high on my list of things to do in life because I never expect to see 19.I retired when I was 38 so life has been good to me,except for this Hep C mess.I guess God is keeping me around because I'm so much fun and have such a great personality(grumpy but great).lol   


            The front door is open.Please help yourself to any meds you find.
                              They're on the counter in the kitchen.   
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Looking at the finish line
« Reply #12 on: January 03, 2016, 11:56:47 am »
 Hey Bill,

   I found it strangely exuberating approaching EOT. The flip side was that about 10 days before, I was obsessive/compulsive about counting the damn things. All along knowing exactly how many were in the bottle. BTW, I still have all three empties in the cabinet where I see them every morning.  I just can't seem to bring Myself to throw them away.
  When down to the wire , the mind gets a little wonky at times with all that is going on in there. Happy for You that it is getting so close. I am getting much better sleep over all since EOT despite the Sxs.
   Here is to You Big Guy! It is Your time. Go for it. Have a Beachin' time EOT fellow traveller!

 YOU CAN'T START THE NEXT CHAPTER OF YOUR LIFE IF YOU KEEP RE-READING THE LAST ONE 8) 8) 8) 8) 8) 8) 8) 8) 8)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Looking at the finish line
« Reply #13 on: January 03, 2016, 12:41:59 pm »
Quote from: slats1056 on January 03, 2016, 11:56:47 am
BTW, I still have all three empties in the cabinet where I see them every morning.  I just can't seem to bring Myself to throw them away.

I am still looking at the wall calendar I made for my 84 days, where I drew a big red "X" through each day as I took my pills. I can't take it down for some reason, even though I'll be going for my SVR24 (!!!) labs later this month. It's like I have to keep reminding itself that it's true...

Congrats Bill on being so close to the finish line!

And Happy New Year to all!  :D

kim
« Last Edit: January 03, 2016, 12:50:56 pm by KimInTheForest »
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Looking at the finish line
« Reply #14 on: January 03, 2016, 12:49:10 pm »
still have my 3 bottles...thinkin' we fill em' with jelly beans for make-shift maracas...for this conga line everyone's been talking about. 

We all witcha Bill for EOT grad night.  The break you deserve is round the corner. 

Tommy and Scout, hurry up already  :)

As for the rest o' you trouble makers...party at Bree's house!!!
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Looking at the finish line
« Reply #15 on: January 03, 2016, 02:50:43 pm »
Tic toc, tic toc.  The big countdown!!!

The last week on medication was odd for me.  "Security blanket" issues with the Harvoni.  (I might still have that, actually.  :o  2 more months before 12wkEOT labs.)

Wow Bill, your LFT's are so great, you're a shoe-in!  ;D
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline BillT

  • Member
  • Posts: 573
Re: Looking at the finish line
« Reply #16 on: January 03, 2016, 03:54:58 pm »
I didn't get any bottles Beto,all I got was little cardboard boxes with blister packs. :) I'm already starting to relax thanks to all of you Else.I think once the 12 week labs are back I'll be able to breath again.I really didn't get hit with sxs but a few times which I'm extremely grateful for.That and the fact my numbers look great(as everyone keeps pointing out :) )are beginning to set me at ease.From the looks of it we all have gone through this at EOT to some degree.I'm going to concentrate on the fact that for the most part everyone has achieved SVR12 and so will I.Thank you everyone. :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Looking at the finish line
« Reply #17 on: January 03, 2016, 09:56:22 pm »
Bill,

The general harvoni narrative has been a bit different than what you Viekerians have experienced  :).  The three bottles of harvoni is something that 12 weekerharvonians get.  We all bought different cars and are headed in the same direction.  The beauty is the fact that we all are on the same train.  Bill your humor and heartfelt posts have been food for the hepper soul. Thank you.  I can name (right now) so many folks on this forum, that have helped me brave this road less traveled.  If I try to name everyone, I fear I might forget an avatar.

I hope I never have to deal with "riba rage".  I have great respect for those who have met that SOB.  I also have respect for the folks that won the 'harvoni hell' lotery.  Then of course we can all praise our predecessors/contemporaries that went through the dark age torcher chamber of Peg (as did you and so many others).  also, and I am not being dramatic here, but the great many that died trying to beat this.

about 18 years ago, my wife worked with a woman whose husband (like me) had 'C' and was not doing well.  My wife listened to the daily reports describing the issues he endured.  He passed within 2 years.  I sit pretty all these years later and though I took my lumps and was besieged by struggles, I saw my kids soccer, baseball, football and basketball games.  i watched them graduate from highschool and college.  I saw 18 Christmases and  a zillion sunsets. 

I don't know why these platitudes have surfaced in this moment in this post.  Perhaps I had just been thinking about them at this emotionally charged time...enter 2016.  We survivors carry a lofty torch.  I turn 60 this month and I really want to start over.  I hope I can bring something to this crazy world that is outside of myself, because before hep-c and hep-c second chance, I am not so sure sure I aced that subject. 

peace all
« Last Edit: January 03, 2016, 10:01:59 pm by beto »
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Looking at the finish line
« Reply #18 on: January 04, 2016, 12:33:28 am »
I still have my 3 empty bottles of Harvoni in my bedstand drawer.  I don't want to let them go.  When I got the first bottle I put it on a pedestal and took photos of it.  I kissed the bottle every day before I took the pill out.... a reverence, if you will.

I was ready for this treatment, on all levels and I knew it would work.  I went in with as good as attitude as I could have.  I blessed the virus and bid it ado.  That's not to say I didn't have fears and doubts at times... I did.  I just didn't let it get the best of me.

I went through a year of hell on peg-intron and riba... in fact, I never even looked up Harvoni figuring it was a variant of that type of treatment.  My internist said that this is different.  That was late January, 2015.  After 6 months of seeking, I finally got it and I'm "cured" by the end of 2015!  That's just flat out amazing!  8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Looking at the finish line
« Reply #19 on: January 04, 2016, 12:35:26 am »
Quote from: beto on January 03, 2016, 12:49:10 pm
still have my 3 bottles...thinkin' we fill em' with jelly beans for make-shift maracas...for this conga line everyone's been talking about. 

We all witcha Bill for EOT grad night.  The break you deserve is round the corner. 

Tommy and Scout, hurry up already  :)

As for the rest o' you trouble makers...party at Bree's house!!!

Yep, I'm serious about you guys coming to Hawaii in 2016!!!  Once the rest of us get some results, we'll start figuring out a strategy... if we can get this treatment, we can do anything!!!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline I fightis thetitis

  • Member
  • Posts: 129
Re: Looking at the finish line
« Reply #20 on: January 04, 2016, 03:53:59 am »
Congratulations Everyone.. and Bill based on your numbers and everyone else's experience it appears it's only a matter of time for the official "cured" word.  You all give people inspiration and hope.. Glad you're here. Pretty cool start to 2016.
Tomorrow I will be 1/4 through 24 weeks of Harvoni.. I never used to count days.. now I count months, days, pills, hours since last dose ect....
I start week 6 on Tuesday and I'll prob go in for my labs sometime this week.. Was not in a rush over the holidays and decided to let the Harvoni do it's thing a few extra days before first labs. Best to everyone for 2016!
Logged
M59  56@start of TX. date infected:1976
diagnosed 1997 - asymtomatic
Genotype 1a
AST 111 -ALT 124 - AFP -89
Viral Load 1900000 - Log 6.28
Fibro Test F4 ActiTest A3
Harvoni 24 wks - start date 11/24/15

6 Week Labs VL Undetected!
104 weeks EOT Undetected.

8/25/17 Fibrosure score 80 = F4
11/10/17 Fibroscan 7.5 mean 1.6 m/s = F2
8/2018 Ultra sound normal.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Looking at the finish line
« Reply #21 on: January 04, 2016, 10:21:09 am »
Amen to everything you've said Beto. We are the lucky ones. Despite our sx, despite our health, we are the survivors. And there are plenty who haven't been so lucky.

Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline BillT

  • Member
  • Posts: 573
Re: Looking at the finish line
« Reply #22 on: January 04, 2016, 08:34:38 pm »
And then there were 4.I'm able to do my EOT labs here so I'm going to get up early and get them done.Hopefully the results will be in on Friday.

Thank you Beto,
                      Every one of us has done wonders helping the others here get through this.You all have made it very easy for me and the information everyone has posted is priceless.The tragedy is for those that don't have a support system,and don't know about this site.You were spot on when you called the old treatment the dark ages.We're truly blessed to be able to treat,and beat,the dragon now with almost 100% success rate.I never ever thought I would see that day.

Bree,
       I think you're a little nuts if you don't go into a treatment of any kind without some reservations.You are another one of us that had the Peg hanging over our heads when we started and that alone put us back a few squares mentally.We made it though and that's what matters now.I'm going to accept that invitation to come to Hawaii but it like leaving the beach to go to the beach for me. 8)

Hi I Fights,
                Welcome to the forum since we haven't talked before.Congratulations on hitting the 6 week point.I think the only thing I haven't counted on this treatment so far has been sheep(damn insomnia).Good luck on your labs and let us know when you get them.You have to be the only one that's not in a hurry for their labs.Everyone else want's instant gratification and can't wait to see the progress we've made. :)

Amen to everything you just said too Philly,
                                                            We are the lucky one's but there are going to be many more survivors from now on.We're just the beginning of the never ending conga line. :)
« Last Edit: January 04, 2016, 08:47:29 pm by BillT »
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline BillT

  • Member
  • Posts: 573
Re: Looking at the finish line
« Reply #23 on: January 05, 2016, 12:44:06 pm »
I got my EOT labs done this morning.Now I wish Friday would get here so I can get to the bloody EOT!!! 8)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline NYCHEPCMAN

  • Member
  • Posts: 63
Re: Looking at the finish line
« Reply #24 on: January 05, 2016, 01:56:32 pm »
Congrats Bill!!! Hopefully I will be making the journey as soon as insurance approves the medication.
Logged
GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira
Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25

Offline Laura

  • Member
  • Posts: 19
Re: Looking at the finish line
« Reply #25 on: January 05, 2016, 10:00:26 pm »
Bil,
We are standing by to cheer you across the finish line!!

 8) 8)

Laura
Logged
--------
F / 60 years old
Genotype 2b
Treatment started 12/19/2015, 12 weeks Sovaldi / Riba
RIBA reduced from 1000 daily to 800 1/8/2016, further reduced to 600 1/11.
Hep C status known since 1997
Etiology unknown-
US Navy Vet, air gun inoculations  1975
Gamma globulin inoculations, late 80's, for international travel

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Looking at the finish line
« Reply #26 on: January 06, 2016, 10:27:44 am »
2 pills left to go, Bill.  Amirite?  :D
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline BillT

  • Member
  • Posts: 573
Re: Looking at the finish line
« Reply #27 on: January 06, 2016, 10:47:49 am »
Thanks NYC,
                 I'm glad you're joining the club ad welcome to the forum.You're stats mirror mine so you'll do great.The hard part is getting approved for some so keep pushing for it.Do you have any idea which treatment they're trying to get you?

Hi Laura,
            I'll be the old slightly overweight guy wheezing over the finish line.You can't miss me. :)

Hi Else,
          You are correct,but it's 2 packs with 9.I have one more tonight(Viekira).I feel great,and can't wait to get to the other side of the tracks.As I said,I did my labs yesterday so I'm hoping to hear something in the next few days.They didn't set an appointment for me so they'll call me with the results.I'm sure they're fine and I'll post as soon as I hear anything.You all have done wonders for me getting through this and I can't say thanks enough to everyone for the support. :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline NYCHEPCMAN

  • Member
  • Posts: 63
Re: Looking at the finish line
« Reply #28 on: January 06, 2016, 12:49:21 pm »
Quote from: BillT on January 06, 2016, 10:47:49 am
Thanks NYC,
                 I'm glad you're joining the club ad welcome to the forum.You're stats mirror mine so you'll do great.The hard part is getting approved for some so keep pushing for it.Do you have any idea which treatment they're trying to get you?


Thanks....I hope so because I want to get this over with....Looks like Viekira because I a have GHI (Emblemhealth) which uses Express Scripts and I fit the treatment criteria. Already got rejected, don't know why, doctor resubmitting.
Logged
GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira
Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Looking at the finish line
« Reply #29 on: January 06, 2016, 01:17:12 pm »
Quote from: NYCHEPCMAN on January 06, 2016, 12:49:21 pm
Thanks....I hope so because I want to get this over with....Looks like Viekira because I a have GHI (Emblemhealth) which uses Express Scripts and I fit the treatment criteria. Already got rejected, don't know why, doctor resubmitting.

Hi NY, and welcome!  The prescription written by my hepatologist was denied three times, despite the fact that Harvoni (in my case) was on my insurance's formulary.  According to my insurance, in plain language, they didn't think I was sick enough yet.

Don't give up!  Once appeals reach the level of an independent review (which is your right per the ACA), your insurance's company's denial will likely be overturned.  BUT!  Your insurance company is betting on you giving up.  Even your doctor may not think it's worth the hassle.  They don't get paid for grappling with insurance companies.

Appeal, appeal and appeal again.  You'll get your medication.
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline BillT

  • Member
  • Posts: 573
Re: Looking at the finish line
« Reply #30 on: January 07, 2016, 09:10:51 am »
One more day.Make room on the other side for me. :)

Hi NYC,
          As Else has said the insurance companies will try to make this as difficult as possible so don't give up.I'll have to let the other wade in on dealing with that,but I believe there are also advocates that can help.Someone will post it so keep checking back.GL
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Looking at the finish line
« Reply #31 on: January 07, 2016, 10:18:06 am »
Bill! Nearly there!
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline BillT

  • Member
  • Posts: 573
Re: Looking at the finish line
« Reply #32 on: January 07, 2016, 10:42:45 am »
I'm excited Philly.I'm a bit anxious about the EOT labs(not in a bad way)but I should have those results any day now.I'll post when I get them.I'm trying to stay busy to keep my mind off of this but cleaning the house a 3rd time is probably useless. :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Looking at the finish line
« Reply #33 on: January 07, 2016, 10:48:32 am »
You could always come over and clean mine ... ;)
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Looking at the finish line
« Reply #34 on: January 07, 2016, 11:04:23 am »
  Bill,
  Cue the back ground music! Charge of the Viekirans :D Here You Go 8) ;) :)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline BillT

  • Member
  • Posts: 573
Re: Looking at the finish line
« Reply #35 on: January 07, 2016, 11:07:03 am »
Thanks Tommy.The neighbors already think I'm OCD so I may as well make them think I nuts to. 8)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Looking at the finish line
« Reply #36 on: January 07, 2016, 11:28:41 am »
 Be careful who You show Your nuts.! :o ;) ::)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret
Pages: [1]   Go Up
« previous next »
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.