Welcome, Guest. Please login or register.
April 20, 2024, 07:24:56 am

Login with username, password and session length


Members
  • Total Members: 6307
  • Latest: golfer
Stats
  • Total Posts: 55126
  • Total Topics: 4851
  • Online Today: 91
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 81
Total: 81

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Itchy or pins and needles feeling with Hep C  (Read 10140 times)

0 Members and 1 Guest are viewing this topic.

Offline Anne A

  • Member
  • Posts: 31
  • my Rubicon
Itchy or pins and needles feeling with Hep C
« on: February 27, 2016, 09:03:28 pm »
Does anyone know how to stop the itching that comes sometimes for no reason, mostly in the evening. Taking Spironolactone 50 and furosemide 20 in the morning.
can't seem to find a food or anything that causes this and it's not everyday. Any help would be appreciated.
Female,67, treatment naive,Geno type 1, Diagnosed 2000,contracted late 1960s,AST108(10-35 u/l)ALT 58(6-29 U/L)Platelet-90

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: Itchy or pins and needles feeling with Hep C
« Reply #1 on: February 28, 2016, 11:46:45 pm »
Hi Anne and welcome

Based on the meds you are taking do you have cirrhosis?

Do you know what your bilirubin levels are? Having cirrhosis can cause elevated bilirubin levels which can cause itching. The best person to ask would be your hepatologist anout how to best reduce your itching especially if as I am assuming you have cirrhosis you should discuss all medications with your doctor.

I have heard people have had good results with oatmeal skin care products such as Aveno

Good luck
Lynn
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Anne A

  • Member
  • Posts: 31
  • my Rubicon
Re: Itchy or pins and needles feeling with Hep C
« Reply #2 on: February 29, 2016, 02:35:59 pm »
Hi Anne and welcome

Based on the meds you are taking do you have cirrhosis?

Do you know what your bilirubin levels are? Having cirrhosis can cause elevated bilirubin levels which can cause itching. The best person to ask would be your hepatologist anout how to best reduce your itching especially if as I am assuming you have cirrhosis you should discuss all medications with your doctor.

I have heard people have had good results with oatmeal skin care products such as Aveno

Good luck
Lynn
Hi Anne and welcome

Based on the meds you are taking do you have cirrhosis?

Do you know what your bilirubin levels are? Having cirrhosis can cause elevated bilirubin levels which can cause itching. The best person to ask would be your hepatologist anout how to best reduce your itching especially if as I am assuming you have cirrhosis you should discuss all medications with your doctor.

I have heard people have had good results with oatmeal skin care products such as Aveno

Good luck
Lynn
Female,67, treatment naive,Geno type 1, Diagnosed 2000,contracted late 1960s,AST108(10-35 u/l)ALT 58(6-29 U/L)Platelet-90

Offline Anne A

  • Member
  • Posts: 31
  • my Rubicon
Re: Itchy or pins and needles feeling with Hep C
« Reply #3 on: February 29, 2016, 02:45:50 pm »
Thank you Lynn for the information, I also read other posts of people on Harvoni so will try these solutions. My Bilirubin is 1.3 H and have beginning cirrhosis. I'm not good with where or how to post my stats like some people. So glad to find this site as it helps to talk to people about Hep C. I go to a gastro office which deals with a lot of Hep problems. Not sure I could stand up to treatment but am looking into it.
Female,67, treatment naive,Geno type 1, Diagnosed 2000,contracted late 1960s,AST108(10-35 u/l)ALT 58(6-29 U/L)Platelet-90

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: Itchy or pins and needles feeling with Hep C
« Reply #4 on: February 29, 2016, 04:10:00 pm »
Anne

The new treatments are not like the old ones. I treated 3 times with intreferon based treatment. My 24 weeks of Harvoni was nothing in comparison.

If you cure your hep c your cirrhosis will stop its progression and with time you may even see some improvement with liver function avoiding the need for liver transplant or continued progression of your liver disease to liver failure.

I hope you will consider being treated again I know after what we have been through considering treatment again can be a scary proposition but you can do this Anne and it is so important that you try.

Good luck with whatever you decide
Lynn
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Anne A

  • Member
  • Posts: 31
  • my Rubicon
Re: Itchy or pins and needles feeling with Hep C
« Reply #5 on: February 29, 2016, 09:35:44 pm »
You are so brave to fight so hard after the Interferon hell I have heard about from so many!
I don't take well to medicine of any kind-reactions to the three I'm on and depression is keeping me from stepping up. Waiting for a consultation at the big hospital in Fla. thanks for the encouragement.
Female,67, treatment naive,Geno type 1, Diagnosed 2000,contracted late 1960s,AST108(10-35 u/l)ALT 58(6-29 U/L)Platelet-90

Offline Mugwump

  • Member
  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: Itchy or pins and needles feeling with Hep C
« Reply #6 on: March 01, 2016, 11:15:33 am »
Anne, fear is a very heavy burden to bear when you have HCV. It is very hard at times to tell others that you have the disease because of fear. It is even harder to understand that the extra hepatic effects of this disease can be influenced by your fear. The itching is caused by chemical imbalance due to liver cell death and is symptomatic of chronic HCV infection in some people.


Others have immune skin responses and extreme chemical sensitivities precisely because HCV does cause immune issues. These include, but are not limited to, gastro intestinal irritations, thyroid antibody like reactions, skin rashes, contact dermatitis and the list goes on and on.



Over many years of tears and fears post diagnosis my fears and trepidations almost made me give up all hope. I failed interferon treatment in 2004 and by 2013 was incapable of working and had given up hope of seeing more than a few more years of decent existence.


The new direct acting drugs changed this and removing HCV from my body was my only option.


The help here on this forum is spot on when it comes to recommendations and if you do decide to treat the disease it is best that you are well informed as to the facts. The side effects posts will scare you but the truth is that few people experience dangerous side effects with the new direct acting anti viral treatments that are curing HCV.


All the best to you achieving freedom from the fears and uncertainty that this disease creates for all of us and the ones we know and love. Freeing yourself from this disease can also free those who care and know you from this curse. The tears of joy in my wife and daughter's eyes spoke more to me about why treatment was worth it when I received my SVR 12 status!


Eric
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline Anne A

  • Member
  • Posts: 31
  • my Rubicon
Re: Itchy or pins and needles feeling with Hep C
« Reply #7 on: March 01, 2016, 09:09:56 pm »
Eric, Your kind and very informative post brought me to tears -good ones- that someone would take the time to write me. I am so appreciative for information which lightens my depression. Confusion as to the choice of what to do, afraid if I take the new drugs I'll get worse or won't be strong enough to finish will be helped by knowing all the facts. I will keep learning first,as you said. Thank you so much.   Anne
Female,67, treatment naive,Geno type 1, Diagnosed 2000,contracted late 1960s,AST108(10-35 u/l)ALT 58(6-29 U/L)Platelet-90

 


© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.