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Author Topic: Warning: In poor taste  (Read 5196 times)

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Offline Flaco

  • Member
  • Posts: 56
Warning: In poor taste
« on: March 14, 2016, 11:25:05 am »
Not really  ;D

No, what it is is this: Has anyone besides myself lost his/her taste for any food or drink that you've loved all your life?

Tl;dr hint: You can get the gist by just reading the next two sentences, and then skip to the second-to-last paragraph.  ;)

For some reason coffee does not taste good to me any more. This has been going on since December, so it has nothing to do with treatment. I have loved coffee for over 50 years. For the last six years, since I retired, I have ramped up my involvement with the brew. I'd buy the green beans and roast them at home, and if I must say so myself, I have produced the best coffee I've ever tasted. In my life! Others have agreed. I have over half a dozen ways to brew it. I have books on it. I read coffee forums. I progressed from roasting in an iron skillet to an old bread machine I re-purposed (called a BMHG - bread machine, heat gun- or Coretto as it's known to my Aussie coffee snob friends) to a "proper" roaster I got for Christmas in 2010. I'm a coffee geek. Or was...

After not having roasted in a while for various reasons basically having to do with a sort of long period of not feeling well, I roasted what I considered a bad batch. So, paying more attention to the process, I roasted another. No good. I bought fresher green beans and still couldn't make anything work. :( After much experimentation and shameful waste of coffee, both my own home roast and store-bought specialty coffee (in other words freshly roasted store-bought), I finally decided it was me - NO coffee tasted good to me. :(

So the common denominator is me, not the coffee. I'm hoping this is temporary. What do y'all think? Anyone else have a similar problem? Did it ever go away?

I know this problem sounds pretty lightweight compared to the major physical ailments I read about on here caused by liver disease (which are heartbreaking!). And it is - I only mention it because it's my hobbies which keep me sane. Anything to keep my mind off my liver and my shortened life span.
Best Regards,
Jack

Diag 2001
Failed PEG-int/Riba 2002, 48 wks.
2015-16:
F4 compensated
VL 14.7 million
GT 1A
Alkaline Phosphatase(37-127 U/L): 12/23/15 216; 1/14/16 152; 1/29/16 103; 3/18/16 68; 4/1/16 70
SGPT (ALT) (15-78 U/L) 12/23/15 862; 1/15/16 753; 1/29/16 518; 3/18/16 48; 4/1/16 28
SGOT (AST) (9-44 U/L) 12/23/15 283; 1/15/16 226; 1/29/16 165; 3/18/16 24; 4/1/16 19
Start Harv 24 wks. 3/4/16
Undetected 2 weeks into Tx
Liver&metabolic nos. steadily improving since start TX
EOT 8/18/16

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Warning: In poor taste
« Reply #1 on: March 14, 2016, 11:38:10 am »
Hmmm.  I did experience changes in my taste sensation after I started Harvoni.  For example, a stick of bland string cheese was suddenly and inexplicably too salty to eat.

But that doesn't explain your situation.  ???

Btw - you may have the coolest avatar on the board!
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Jo-Anne Hiscock

  • Member
  • Posts: 7
Re: Warning: In poor taste
« Reply #2 on: March 14, 2016, 01:11:34 pm »
I have been on Harvoni since Feb. 2, 2016,  I  have also mislayed my taste buds. Coffee tastes really strong right now but hubby says it is fine so I know it is just me.
 The same thing happened when I was on the Ribavirin, Interferon treatment a few years ago.  The tastes do come back.  I find everything tastes too salty or like cardboard.  Keep on chugging along.  It will get better. J hiscock

Offline Flaco

  • Member
  • Posts: 56
Re: Warning: In poor taste
« Reply #3 on: March 14, 2016, 02:52:55 pm »
Btw - you may have the coolest avatar on the board!
Thanks! I wish I could say I invented it, but I'm reasonably honest. :) <-- (beatific smile) It was something in a spammy snail-mail I received. I scanned it, made it black & white, and made it 120x120 pixels. OK I said I'm reasonably honest. ::)

I kinda like Beto's avatar. It has a very Mexican sort of look, ala Día de Muertos or something.
Best Regards,
Jack

Diag 2001
Failed PEG-int/Riba 2002, 48 wks.
2015-16:
F4 compensated
VL 14.7 million
GT 1A
Alkaline Phosphatase(37-127 U/L): 12/23/15 216; 1/14/16 152; 1/29/16 103; 3/18/16 68; 4/1/16 70
SGPT (ALT) (15-78 U/L) 12/23/15 862; 1/15/16 753; 1/29/16 518; 3/18/16 48; 4/1/16 28
SGOT (AST) (9-44 U/L) 12/23/15 283; 1/15/16 226; 1/29/16 165; 3/18/16 24; 4/1/16 19
Start Harv 24 wks. 3/4/16
Undetected 2 weeks into Tx
Liver&metabolic nos. steadily improving since start TX
EOT 8/18/16

Offline Flaco

  • Member
  • Posts: 56
Re: Warning: In poor taste
« Reply #4 on: March 14, 2016, 03:03:17 pm »
Thanks, Jo-Anne. Good to know.

I don't remember much from when I was on PEGint/Riba. There's a hole in my memory where that year belongs. I do remember having no appetite, though. Maybe it WAS that nothing tasted good.
Best Regards,
Jack

Diag 2001
Failed PEG-int/Riba 2002, 48 wks.
2015-16:
F4 compensated
VL 14.7 million
GT 1A
Alkaline Phosphatase(37-127 U/L): 12/23/15 216; 1/14/16 152; 1/29/16 103; 3/18/16 68; 4/1/16 70
SGPT (ALT) (15-78 U/L) 12/23/15 862; 1/15/16 753; 1/29/16 518; 3/18/16 48; 4/1/16 28
SGOT (AST) (9-44 U/L) 12/23/15 283; 1/15/16 226; 1/29/16 165; 3/18/16 24; 4/1/16 19
Start Harv 24 wks. 3/4/16
Undetected 2 weeks into Tx
Liver&metabolic nos. steadily improving since start TX
EOT 8/18/16

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Warning: In poor taste
« Reply #5 on: March 14, 2016, 08:20:50 pm »
Flaco, I did have a metallic taste in my mouth during days 50 to 53 of my 12-week treatment. Others had reported it before me. What was really interesting was that the metallic taste was at the back of the mouth, so I could still enjoy the taste of things as they entered my mouth.

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Warning: In poor taste
« Reply #6 on: March 14, 2016, 11:27:30 pm »
Me too.  Directly associated with Harvoni treatment though.  Also, I recall early threads about this.  In my case (and I heard others as well) tastes were amplified...especially sweet and astringent.  Sometimes a food I loved tasted horrible.  A natural sugar would explode in saccharin, metallic bursts.  It was intermittent and my normal taster returned. 
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

 


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