Welcome, Guest. Please login or register.
June 22, 2024, 09:09:59 am

Login with username, password and session length


Members
  • Total Members: 6309
  • Latest: Vicki
Stats
  • Total Posts: 55127
  • Total Topics: 4851
  • Online Today: 117
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 1
Guests: 86
Total: 87

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Generic Harvoni  (Read 10351 times)

0 Members and 1 Guest are viewing this topic.

Offline Rocket Girl

  • Member
  • Posts: 40
  • Harvoni Treatment: January 23rd 2016
Generic Harvoni
« on: April 21, 2016, 02:26:23 am »
4 wk Lab Work showed less than 15. I started with a Viral Load of 7 million.  Just received my 12 wk Lab result - NOT DETECTED!  I had headaches & fatigue.  I noticed the weakness only at the Gym.  Half way thru therapy was the worst, so I started Juicing and drank nothing but water and my morning coffee. I did however lose a lot of hair. Thinned out pretty bad. The 12th week of therapy it stopped, so hopefully it will start to grow again.  I think my therapy would have gone smoother had I ate better and drank nothing but clean water, and a lot of it!  I'm glad it's over.  This is the only therapy I have done.  Don't underestimate this pill.  You want to be on your best behavior, so to speak.  Hope this helps the newbies.  Will let you know how the 3 month Post Labs go.  Hope you are all well and hang'in in.
M
Started  GENERIC HARVONI: 1-23-2016
Female:  57 yrs old
Infected:  1987
Diagnosed:  2002
Treatment Naive
Genotype:  1A
Fibrosis Stage 2
Alt:  37
Ast:  48
Viral Load:  7 million
4 Week Labs: < 15
12 Week Labs: NOT DETECTED
3 Month Post Therapy Labs:  NOT DETECTED

Offline HazelAustralia

  • Member
  • Posts: 178
Re: Generic Harvoni
« Reply #1 on: April 21, 2016, 04:26:31 am »
Good news Rocket Girl,
Hope your hair grows back soon
take care

Hazel
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Generic Harvoni
« Reply #2 on: April 21, 2016, 11:34:25 am »
Congrats on the "Not Detected" status, Rocket Girl! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Rocket Girl

  • Member
  • Posts: 40
  • Harvoni Treatment: January 23rd 2016
Re: Generic Harvoni
« Reply #3 on: April 22, 2016, 01:59:29 am »
Thanks so much Hazel & Kim!  This journey is nothing short of a miracle.  All the glory goes to Almighty God and much gratitude for 3 special men who gave their valuable time and effort to help a complete stranger, whom I will never forget as long as I live.
M
Started  GENERIC HARVONI: 1-23-2016
Female:  57 yrs old
Infected:  1987
Diagnosed:  2002
Treatment Naive
Genotype:  1A
Fibrosis Stage 2
Alt:  37
Ast:  48
Viral Load:  7 million
4 Week Labs: < 15
12 Week Labs: NOT DETECTED
3 Month Post Therapy Labs:  NOT DETECTED

Offline brie41

  • Member
  • Posts: 191
Re: Generic Harvoni
« Reply #4 on: April 22, 2016, 03:39:48 pm »
Hi Rocket Girl, 

  Congrats on your wonderful test results!!  Are you on Zepatier?  I have a good friend who started last week and she is experiencing zero side effects.   She also didn't have any negative side effects from the hcv even though she had it for decades.  I am almost through my 5th week of Harvoni and feeling really good, but did have some side effects the first few weeks.  How lucky we are to have these new meds, I will never take it for granted!!!!  Take care.  Brie
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

Offline Rocket Girl

  • Member
  • Posts: 40
  • Harvoni Treatment: January 23rd 2016
Re: Generic Harvoni
« Reply #5 on: April 22, 2016, 08:18:01 pm »
Hey Brie41,
I know, Harvoni is really amazing!  So grateful!  It is definitely doable but I felt different. I am glad it's over. Seems like I've been tired for 15 years. Today is one week after Therapy and feeling more like myself everyday.  Sounds like your gonna breeze thru Therapy!  So happy for you!  I still seems so surreal. Thanks for the kind words.
M
Started  GENERIC HARVONI: 1-23-2016
Female:  57 yrs old
Infected:  1987
Diagnosed:  2002
Treatment Naive
Genotype:  1A
Fibrosis Stage 2
Alt:  37
Ast:  48
Viral Load:  7 million
4 Week Labs: < 15
12 Week Labs: NOT DETECTED
3 Month Post Therapy Labs:  NOT DETECTED

Offline Suze

  • Member
  • Posts: 7
  • If at first...........
Re: Generic Harvoni
« Reply #6 on: April 24, 2016, 05:55:18 pm »
Nice to hear about someone else taking generic Harvoni! Started mine on the 14th! I too am so grateful to Greg Jefferys and the others who have made it their mission to get these meds out to all of us who can't get them any other way! I have notice little in the way of side effects. Headaches, a bit of nausea, better sleep!! I have discovered if I have a green drink when I take my pill that I don't get nauseated!
Did you test at 2 weeks as well? My doctor said 4 weeks but I've heard of many folks who also tested at 2. Congratulations on your und status!!!!!
61 yo female genotype 1a
DX 2003
INTERFERON & RIBA 2003 non responder followed by
INFERGEN daily for 30 days - 2003 non responder
BOCEPRIVIR trial 2005 almost cleared..... But not!!
Start Generic Harvoni 4/14/16
Pre Generic Harvoni VL 2,500,000
2 week VL (7)

Offline Rocket Girl

  • Member
  • Posts: 40
  • Harvoni Treatment: January 23rd 2016
Re: Generic Harvoni
« Reply #7 on: April 24, 2016, 11:20:45 pm »
Hi Suze,
Thanks so much!  Everyday, I feel better.  Greg & his friends are amazing helping so many people.  All their time and energy for complete strangers who are sick.  As far as my Lab work, I had to fight for most of it.  My Kaiser Permenente Physician Assistant was so happy for me but made it quite clear he was not treating me.  I didn't care I just wanted my blood work and he made me fight for it.  To this day he has never commented on the results. Frankly, even my own family doubted but I knew Greg was the real deal!  I also know Harvoni does not have a 100% cure rate so if it did not work, that's not on Greg.  The PA still wound up duping me. He was suppose to run the Viral Count before therapy began and wound up using the prior year as a benchmark.  I never checked because he was soooo thrilled for me.  So really I was checked at 4 & 12 wks.  And I will be checked at 3 months post therapy. I will ask for one more check at 1 year and celebrate with a strong Baileys & Coffee!  Wonderful Costa Rican Coffee. The Nurse Moderator on this site said it would be very rare for one to relapse due to life style after one year, so that's the plan.  I don't want to take any chances. I don't know about a 2 wk check.  I think a good Dr. would check your Viral load prior to therapy and then 4,12 and 3 months post therapy. I am sooo happy for you and that you found Greg. When you think about all the people out there and there's only so much time in a day . . . you and I got thru to Greg.  The Almighty's hand was undeniably present!
M
Started  GENERIC HARVONI: 1-23-2016
Female:  57 yrs old
Infected:  1987
Diagnosed:  2002
Treatment Naive
Genotype:  1A
Fibrosis Stage 2
Alt:  37
Ast:  48
Viral Load:  7 million
4 Week Labs: < 15
12 Week Labs: NOT DETECTED
3 Month Post Therapy Labs:  NOT DETECTED

Offline Angie M

  • Newbie
  • Posts: 1
Re: Generic Harvoni
« Reply #8 on: April 05, 2017, 03:07:27 pm »
Hi, this is day 5 for me - the nausea is extreme- You mentioned a green drink when yours got bad. What kind of green drink. thanks.

Offline Roger

  • Member
  • Posts: 171
Re: Generic Harvoni
« Reply #9 on: April 14, 2017, 08:03:01 pm »
I've been off this board for a couple of years and just poked in to see what's been happening.  What is "generic harvoni"?  Where can I read about it?  I took Harvoni a couple years ago and it was uber expensive. I am guessing that the generic is far less expensive?  I'd love to hear more, please!
Genotype 1a
2006 - Dx
2009 Biopsy      - Stage 2
2013 FibroScan - Stage 2
2014 FibroSure - Stage 3

Started Harvoni 11.21.2014 Viral Load - 313,593
12.26.2014 - UND (at 5 weeks)
At 8 Weeks - UND
EOT 02/12/15 - UND
12 Week EOT Blood Work - UND

Offline andrew j

  • Member
  • Posts: 477
Re: Generic Harvoni
« Reply #10 on: April 15, 2017, 07:39:30 pm »
Hi Angie,

'Green drinks' normally means green smoothies, but can sometimes mean drinks either based on, or that include spirulina.
It can also mean green teas.

Green smoothies, as you probably know, tend to be either veg-based (and are often based on blended spinach, or kale), or fruit-based (using, for e.g. banana and kiwi).
... Just to confuse things - here in New Zealand, drinks are sold that are called 'spirulina' - but that are really just green fruit smoothies (blended orange juice, banana and kiwifruit), with a bit of spirulina added.

Which of these was most calming when I was going through treatment?
Probably green teas - or the commercial spirulina drinks (not too much, though).

Dry toast can sometimes help with nausea.

Remember: You need to drink plenty of water while you are taking Harvoni.
That's probably the most important thing for easing nausea.

Offline andrew j

  • Member
  • Posts: 477
Re: Generic Harvoni
« Reply #11 on: April 15, 2017, 07:57:49 pm »
Hi Roger,

You can find good answers to your question by googling it.

Best wishes,
A.

Offline Gaj

  • Member
  • Posts: 172
  • Optimist
Re: Generic Harvoni
« Reply #12 on: April 15, 2017, 09:25:19 pm »
Hi Roger,

As you surmised, generic Harvoni (along with other generic HCV medications) is considerably less expensive than the branded versions while being just as effective. There are now a number of reputable sources worldwide such as the FixHepC buyers club and also Greg Jefferys who regularly blogs on this board about his experiences and the current situation with generic HVC medications.

https://www.hepmag.com/blogger/greg-jefferys

« Last Edit: April 15, 2017, 09:28:11 pm by Gaj »
Male - 61 years
Genotype 3a (since 1978?)
Diagnosed 2012
Treated 2013 PEG/Riba/Dac (Relapsed)
F4 - HCC#1 Resected 06/15 - #2 RFAblated 11/15
11/18/15 Commenced Generic Tx - Sof/Dac/Riba (24wks)
Pre Tx = ALT: 270  AST: 209  ALB: 31
05/05/16 = ALT: 34  AST: 32  ALB: 40  VL: Undetected (EOT)
06/16/16 = Relapsed
06/23/16 = ALT: 92  AST: 59  ALB: 40  VL: 290,770
01/12/17 3rd Tx - Zepatier + Sofosbuvir (16wks)
05/03/17 EOT und
06/22/17 SVR7 und
07/27/17 SVR12 UND!
10/26/17 SVR24 UND & Cured!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Generic Harvoni
« Reply #13 on: April 15, 2017, 09:25:55 pm »
To use the Search feature on this site: at left in the Search area, click on Advanced search, then enter
generic harvoni
and make sure Match all words is selected.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Gaj

  • Member
  • Posts: 172
  • Optimist
Re: Generic Harvoni
« Reply #14 on: April 15, 2017, 09:59:01 pm »
Hi Angie M,

Just a word of caution regarding green tea. While i can't comment on its effectiveness for nausea, it is sometimes recommended as a "liver tonic" and does appear to have some benefits for reducing ALT and AST levels. However there is some suspicion that excess consumption can be detrimental to liver health. This isn't scientifically proven at this time and appears mostly related to "extracts" and "concentrates" but it is something that should be considered by those with compromised liver function.

https://livertox.nih.gov/GreenTea.htm




« Last Edit: April 15, 2017, 10:01:14 pm by Gaj »
Male - 61 years
Genotype 3a (since 1978?)
Diagnosed 2012
Treated 2013 PEG/Riba/Dac (Relapsed)
F4 - HCC#1 Resected 06/15 - #2 RFAblated 11/15
11/18/15 Commenced Generic Tx - Sof/Dac/Riba (24wks)
Pre Tx = ALT: 270  AST: 209  ALB: 31
05/05/16 = ALT: 34  AST: 32  ALB: 40  VL: Undetected (EOT)
06/16/16 = Relapsed
06/23/16 = ALT: 92  AST: 59  ALB: 40  VL: 290,770
01/12/17 3rd Tx - Zepatier + Sofosbuvir (16wks)
05/03/17 EOT und
06/22/17 SVR7 und
07/27/17 SVR12 UND!
10/26/17 SVR24 UND & Cured!!!

 


© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.