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Author Topic: Loss of hearing and voice changes....  (Read 5587 times)

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Offline dragonslayerinprogress

  • Member
  • Posts: 62
Loss of hearing and voice changes....
« on: May 02, 2016, 03:44:46 am »
Curious if this has happened to anyone and will it all go away after treatment. Support at home is horrible and get yelled out because I can't  hear what people are saying to me. It's all jumbo.
Also have like a "tinging" in my voice. I can't describe it but it sounds metal. Constantly clearing my throat as well. It had gotten better but came back with a vengeance when they added 3 more months of treatment. Will I ever get my life back? Frustratin g!
Geno 2b
dx in 1990, 52 years old
Origin: unsure. Might have been infected at birth
Tx Naive
Pre tx labs 12/7/15
VL 1,315,890 6.119
ALT 188
AST 161
Started tx Solvadi/Ribavirin on 1/19/16
4 weeks undetected
8 weeks undetected
12 weeks undetected
16 weeks undetected
20 weeks undetected
24 weeks...no testing
EOT 4 wks UNDETECTED
ALT 34
AST 42
EOT 8 wks- UNDETECTED
ALT 38
AST 50
Platelets 49

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: Loss of hearing and voice changes....
« Reply #1 on: May 02, 2016, 04:51:10 pm »
The rough voice can be a side effect from the ribavirin there is one side patients report called a RIBA cough which could be related

Hearing could be age related or stuffiness from congestion you could ask your doctor about this
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Loss of hearing and voice changes....
« Reply #2 on: May 03, 2016, 05:49:53 am »
I've heard harvoni people talk about a sort of tinnitus, is that what you are experiencing?
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline dragonslayerinprogress

  • Member
  • Posts: 62
Re: Loss of hearing and voice changes....
« Reply #3 on: May 06, 2016, 02:39:52 pm »
I've had tinnitus for years now but this is just hearing loss plain and simple. Now I can't hear certain tones and such. Hard to hear family in the same room.
Geno 2b
dx in 1990, 52 years old
Origin: unsure. Might have been infected at birth
Tx Naive
Pre tx labs 12/7/15
VL 1,315,890 6.119
ALT 188
AST 161
Started tx Solvadi/Ribavirin on 1/19/16
4 weeks undetected
8 weeks undetected
12 weeks undetected
16 weeks undetected
20 weeks undetected
24 weeks...no testing
EOT 4 wks UNDETECTED
ALT 34
AST 42
EOT 8 wks- UNDETECTED
ALT 38
AST 50
Platelets 49

 


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