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Author Topic: do side effects go away?  (Read 7273 times)

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Offline Sparky

  • Member
  • Posts: 3
do side effects go away?
« on: May 13, 2016, 10:17:12 am »
Hello all,
I am in week 12 of my Harvoni treatment and was just wondering about side effects. Some of which that came about almost immediately... low energy, headaches, insomnia. To the ones that took a couple of weeks mainly joint pain and muscle aches.
I have had moderate to severe joint and muscle pain for years due to arthritis and from what I was told effects of HEP C.
The symptoms I have in my lower back and legs (primarily knees) now are pretty intense. Severe weakness and throbbing that leads to an overall flu like scenario.
I am grateful for my undetected viral count and normal AST-ALT numbers up to this point.
But my lord I am praying the later side effects do start resolving themselves upon the completion of my treatment.
My doctors didn't seem to think these symptoms were related to the Harvoni. And primary side effects listed don't mention them. I must say I was a little relieved to see through this forum that there are others with this condition.
Everybody reacts to things in there own way. I hope this helps others and good luck to you all.   
geno type 1A
diagnosed early 90's
treated late 90's with Interferon/Ribavirin no success
started Harvoni 2/26/16 viral load 3,500,000
so far so good!

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: do side effects go away?
« Reply #1 on: May 13, 2016, 01:04:09 pm »
Hi Sparky and welcome to the forum! I, too, am in week 12 of Harvoni treatment -- finish the last pill next Tuesday and go in for my EOT labs.

I am sorry to hear you've had a hard time w/ sides. Sounds like these 3 mos. have not been very fun. This drug affects each of us differently, as you've seen from the various posts here.  I haven't really had any sides to speak of --  I'm curious to see how I fare once I take that last pill. It appears that most sides do dissipate over time, from what I've read here. I am sure you will get some feedback from others on this. What I wanted to say was that we just don't know how our bodies will really react until we take them, with the studies showing that most, but certainly not all (!) overall do pretty well.  There is a lot still to learn about these DAAs, and your scenario is another part to be figured out. How long did you have HCV? Seems like that may be a part of the puzzle.

Congrats on getting thru your treatment and on your way to SVR, and I hope you will be feeling better very soon --- maybe after that last pill is down! Keep us posted and take care, FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline morab

  • Member
  • Posts: 232
  • Lives in the woods
Re: do side effects go away?
« Reply #2 on: May 13, 2016, 03:27:36 pm »
Sparky
You are not the only one with these very symptoms, I too am getting more back pain, leg and feet cramps and swollen feet that are quite debilitating.
I have 2 pills left of my first bottle of a 12 week treatment so don't feel alone.
I am hoping that we both feel much better after treatment is done.
I feel like the virus and the drug are trying to escape my body any way they can.
But I am very hopeful that you and I will feel better after treatment!
Keep us posted! I really want to know if others like me with these symptoms get relief at some point.
I just wish Gilead were documenting our side effects, as they keep telling everyone that what we are experiencing has nothing to do with the treatment. Which doesn't help us to feel very good about a future prognosis on the sides.
To both of us getting a renewed energy level with less pain.
Good luck and keep in touch!
Morab
3/2016 G 1a
Alt 84
Ast 62
Fibrosis score lab 0.66
quantitation 894,670
4/23/16 day 6, naive Harvoni 12 week treatment
5/27/16 week 4 lab results UNDETECTED AST 23 ALT17

Offline Sparky

  • Member
  • Posts: 3
Re: do side effects go away?
« Reply #3 on: May 18, 2016, 06:29:16 pm »
Hello All,
Today was my last pill. I can't wait for the the day I report to you all that my legs and things are on the rebound. Meanwhile I will just carry on and wait.
God Bless
geno type 1A
diagnosed early 90's
treated late 90's with Interferon/Ribavirin no success
started Harvoni 2/26/16 viral load 3,500,000
so far so good!

Offline Jeanne00

  • Newbie
  • Posts: 1
Re: do side effects go away?
« Reply #4 on: May 18, 2016, 08:34:13 pm »
Hi Sparky... I'm new to the forum and recently completed 12 weeks of Viekira tx. So far I'm non-detectable and will have my 3-month post tx blood work in one more month. I also experienced some mild joint/arthritis discomfort before treatment that became worse with the meds. Mine is in the hands and elbows and it's taking some time for it to improve. I appreciate you and others sharing in such detail about your experiences with side effects; it helps me to not feel "crazy"! We are the trailblazers with these medications so it's up to us to support each other and share our experiences so that someday hopefully it will be easier to let people know what to expect in terms of side effects and recovery time. I hope your discomfort eases soon and your tx is successful!
Blessings:may we all be Hep free:)

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: do side effects go away?
« Reply #5 on: May 18, 2016, 09:01:07 pm »
Welcome to the forums, Jeanne. And congrats on your last pill, Sparky!

kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline morab

  • Member
  • Posts: 232
  • Lives in the woods
Re: do side effects go away?
« Reply #6 on: May 18, 2016, 10:14:06 pm »
I am also having symptoms of pain. Some started in the last 3 years were right leg and foot numbness, leg cramps, back pain. Now on treatment they are severe, and the added gut ache and bloating with nausea.
I have had a few good days but for the most part I am miserable.
I hope to fully recover but it seems to be something none of us will know until we see what happens long after treatment.
Good luck to us all
Morab
3/2016 G 1a
Alt 84
Ast 62
Fibrosis score lab 0.66
quantitation 894,670
4/23/16 day 6, naive Harvoni 12 week treatment
5/27/16 week 4 lab results UNDETECTED AST 23 ALT17

Offline AussieRosa

  • Member
  • Posts: 226
Re: do side effects go away?
« Reply #7 on: May 19, 2016, 06:40:13 am »
Morab, I'm so sorry to hear you're suffering so many severe side effects from your treatment. Are you able to manage some of them with antacids and pain meds, at least? I do hope so. You shouldn't have to be in so much discomfort.
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: do side effects go away?
« Reply #8 on: May 19, 2016, 11:58:06 am »
Morab, I'm really sorry to hear this.  Perhaps a call to your GP to let him know of these sides might get you some relief?  Many members on this forum tolerate taking a host of other meds that don't negatively impact the Harvoni, so I'd let him know how badly you're feeling.  We want you to feel better during this fight if at all possible!! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline morab

  • Member
  • Posts: 232
  • Lives in the woods
Re: do side effects go away?
« Reply #9 on: May 19, 2016, 01:05:37 pm »
I did see my GP this week, ultrasound was today.
So far today is an ok day, like riding a wave.
Going to the chiropractor this afternoon, hope to get some relief from a good popping!
Thanks for the concern!
Morab
3/2016 G 1a
Alt 84
Ast 62
Fibrosis score lab 0.66
quantitation 894,670
4/23/16 day 6, naive Harvoni 12 week treatment
5/27/16 week 4 lab results UNDETECTED AST 23 ALT17

 


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