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Author Topic: Getting Generic Harvoni?  (Read 8108 times)

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Offline Baxter

  • Member
  • Posts: 87
Getting Generic Harvoni?
« on: May 29, 2016, 03:16:14 am »
I'm on Harvoni and coming up on my 12-week test in a week and a half, and as of 4 and 8 weeks was still detected - 6.4 million at start of treatment, 69 copies at 3 weeks, and <15 detected at 7 weeks. My last pill is June 14, and my "12 week" test us actually at 11 weeks, a week from this Monday.  I'm not unduly concerned at this point, but if I do come back still detected at 11 weeks, I would be very interested in buying another month's supply and extending my treatment to 16 weeks.

Anyone ever do this? Is it doable, and how would one go about it?
Gen 1a
Inf. '85
Dx '98
'98 biopsy - Grade 2, Stage 2, VL 7 mil
'01 biopsy - Grade 1, Stage 1, VL 1.5 mil
'08 biopsy - Grade 1, Stage 1, VL 3.5 mil
'12 biopsy - Grade 1, Stage 1, VL 3.5 mil
'16 Fibrosure - Grade I, Stage 3, VL 6.4 mil and 4.8 mil
4/23/16 - ALT 89, AST 50, pltlts 120k. Started 12 wks Harvoni
4/31/16 - ALT 30, AST 21, pltlts 125k
4/14/16 - ALT 25, AST 16, pltlts 126k, VL 69
5/11/16 - ALT 28, AST 21, pltlts 140k,VL <15
6/7/16 -EOT, UNDETECTED!
9/7/16 - cured. Low Stage 2 fibrosis

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: Getting Generic Harvoni?
« Reply #1 on: June 02, 2016, 12:14:27 am »
there were several here who were detected at end of treatment and even at 4 weeks post but went on to achieve SVR 12 most notably Dragon Slayer.

The only test that counts is the 12 week post treatment even EOT and detected does not mean failure

But hopefully you wont have to make those types of decisions

Good luck
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Getting Generic Harvoni?
« Reply #2 on: June 02, 2016, 12:47:50 pm »
Baxter, Lynn's comments are what is currently accepted for reaching SVR.  Even if you are still detected at EOT, most likely your doctor would not do anything until another test at 12 wk EOT, as that is the accepted cure standard.

It's a bit nerve-wracking, but that's what the standard is at this time. So, just hang on and try to be patient --- not easy, I know!! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

 


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