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Author Topic: Prayers for a great result on my ultrasound  (Read 7931 times)

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Offline dragonslayerinprogress

  • Member
  • Posts: 62
Prayers for a great result on my ultrasound
« on: June 07, 2016, 06:13:37 am »
I had an ultrasound in April of 2015. It was all normal. My bloodwork proved otherwise and I was diagnosed with F-4 Cirrhosis. I asked them to do an AFP test on me just in case and it was a little elevated. 40 something but they want to do another ultrasound tomorrow. Please pray that it shows nothing :-) Not really worried which is very rare for me. I know I've kicked this and have been spared of anything else.
Thank you in advance.
Geno 2b
dx in 1990, 52 years old
Origin: unsure. Might have been infected at birth
Tx Naive
Pre tx labs 12/7/15
VL 1,315,890 6.119
ALT 188
AST 161
Started tx Solvadi/Ribavirin on 1/19/16
4 weeks undetected
8 weeks undetected
12 weeks undetected
16 weeks undetected
20 weeks undetected
24 weeks...no testing
EOT 4 wks UNDETECTED
ALT 34
AST 42
EOT 8 wks- UNDETECTED
ALT 38
AST 50
Platelets 49

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Prayers for a great result on my ultrasound
« Reply #1 on: June 07, 2016, 12:37:33 pm »
Good luck on tomorrow's ultrasound, dragonslayerinprogress! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Lynn K

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  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Prayers for a great result on my ultrasound
« Reply #2 on: June 07, 2016, 02:21:20 pm »
If it helps I have read they are more looking for big changes in AFP and numbers in the hundreds.

I assume that like me you will have abdominal ultrasounds and AFP testing every 6 months for the foreseeable future in not for the rest of our lives because of our cirrhosis.

Have you had any cirrhosis symptoms like edema or ascities? Have you had upper endoscopes to check for varicies?

Anyway good luck I am sure you will be fine
Lynn
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline brie41

  • Member
  • Posts: 191
Re: Prayers for a great result on my ultrasound
« Reply #3 on: June 08, 2016, 08:00:47 am »
I wish you all the best with your ultrasound Dragoninprogress!  Good thoughts coming your way!  Brie
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

Offline jakas

  • Member
  • Posts: 265
Re: Prayers for a great result on my ultrasound
« Reply #4 on: June 08, 2016, 04:01:13 pm »
Hope it all goes well
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline Rosie13

  • Member
  • Posts: 297
Re: Prayers for a great result on my ultrasound
« Reply #5 on: June 08, 2016, 04:50:23 pm »
dragonslayerinprogress, keeping you in my thoughts & prayers ...being positive ...it will be all good.
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline dragonslayerinprogress

  • Member
  • Posts: 62
Re: Prayers for a great result on my ultrasound
« Reply #6 on: June 09, 2016, 05:37:59 am »
I was running at an F-2 for the past 10 years. A lot of personal loss came starting 2012 and still here. Not sure if stress causes it to get worse but in April when they found F-4, I had no symptoms other than my platelets being 75,000. In December when I did a recheck, my albumin levels were low 3.0, Bilirubin was 1.9 and platelets tanked down to 47,000.Felt foggy but no edema. Just what looked to be a constant bruise on my right foot below 2nd-3rd toes. I started getting edema in the feet and ankles after starting treatment. It goes up the calf as well. NoAscities and they have never done and endoscopy. We only have had Fibrosures and that one said F-4 but with bloodwork, it was probably right. I have a little less than 4 weeks left of my 6 month treatment. I cleared the virus at 4 weeks. I have noticed that my edema is dissipating now. My feet (size 10) look long and lean again but you can't press on the left foot. It moves and feels like someone inserted gel into it. It's just puffy and really gross feeling lol. I have lots of pain and tight calves still but I feel like I have improved already. That's a good thing :-)
I have a friend on one of the facebook boards and she had a transplant last year. Talked to her about it and she said her AFP ran around 300 before transplant and she didn't have cancer so that gave me hope.
I do know now from research that the AFP can also just go up because of the virus itself, also goes up with Cirrhosis, and (this was interesting) it goes up if your liver is recovering. Kind of broad so I am taking it with a grain of strand but hard to wait for results as usual.
Thanks for the prayers and well wishes. Hope to know in a few days or by Monday. Just keeping busy and keeping positive.
Irene

If it helps I have read they are more looking for big changes in AFP and numbers in the hundreds.

I assume that like me you will have abdominal ultrasounds and AFP testing every 6 months for the foreseeable future in not for the rest of our lives because of our cirrhosis.

Have you had any cirrhosis symptoms like edema or ascities? Have you had upper endoscopes to check for varicies?

Anyway good luck I am sure you will be fine
Lynn
Geno 2b
dx in 1990, 52 years old
Origin: unsure. Might have been infected at birth
Tx Naive
Pre tx labs 12/7/15
VL 1,315,890 6.119
ALT 188
AST 161
Started tx Solvadi/Ribavirin on 1/19/16
4 weeks undetected
8 weeks undetected
12 weeks undetected
16 weeks undetected
20 weeks undetected
24 weeks...no testing
EOT 4 wks UNDETECTED
ALT 34
AST 42
EOT 8 wks- UNDETECTED
ALT 38
AST 50
Platelets 49

Offline Rosie13

  • Member
  • Posts: 297
Re: Prayers for a great result on my ultrasound
« Reply #7 on: June 09, 2016, 12:50:11 pm »
Another revelation my Mayo Dr. told me @ the 24 week testing was that the fibroscan score I had @ start of tx. was possibly scewed due to inflammation. I thought it would take more than a few years to heal the damage. With a F0  24 wk. score it was apparently the severe inflammation causing it to look worse. That was an amazing visit!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Prayers for a great result on my ultrasound
« Reply #8 on: June 09, 2016, 11:43:57 pm »
Hey I have edema also I had mild ascities which is visualized on ultrasound so if you have ascities they would note in on your ultrasound report.

Have you mentioned the edema to your doctor? I have been taking spironolactone (a diuretic) since summer 2008 still have some edema but not as bad as when I try to get off the meds. You might want to ask your doctor about adding a diuretic more comfortable feet and lower legs that way.

Good luck
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline dragonslayerinprogress

  • Member
  • Posts: 62
Re: Prayers for a great result on my ultrasound
« Reply #9 on: June 13, 2016, 06:14:57 am »
I have some Spiro pills here. Haven't taken them yet. I also belive the virus was just a time at the time as well. Still waiting for results :-)
Geno 2b
dx in 1990, 52 years old
Origin: unsure. Might have been infected at birth
Tx Naive
Pre tx labs 12/7/15
VL 1,315,890 6.119
ALT 188
AST 161
Started tx Solvadi/Ribavirin on 1/19/16
4 weeks undetected
8 weeks undetected
12 weeks undetected
16 weeks undetected
20 weeks undetected
24 weeks...no testing
EOT 4 wks UNDETECTED
ALT 34
AST 42
EOT 8 wks- UNDETECTED
ALT 38
AST 50
Platelets 49

 


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