User

Welcome, Guest. Please login or register.
April 18, 2024, 09:48:20 pm

Login with username, password and session length


Search

Forums Index

Stats

Members
  • Total Members: 6307
  • Latest: golfer
Stats
  • Total Posts: 55125
  • Total Topics: 4851
  • Online Today: 77
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 58
Total: 58

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.
« previous next »
Pages: [1]   Go Down

Author Topic: Treatment  (Read 10604 times)

0 Members and 1 Guest are viewing this topic.

Offline Stevie.C

  • Member
  • Posts: 15
Treatment
« on: July 20, 2016, 04:06:21 pm »
Went for fibroscan today bloods , the scan went fine , the was 5.5 , which I was told was good and no damage , anyway waiting to see the specialist in 3 weeks and find my course . I was told if I'm geno 3 you can be offered interferon/ribavarin immediately . I'm in UK and even have to be put on a waiting list here , but the interferon and riba can be done right away so I'm  wondering if anyone has past experiences with this as I've not heard great things about the interferon .
Logged

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Treatment
« Reply #1 on: July 20, 2016, 10:20:43 pm »
Quote from: Stevie.C on July 20, 2016, 04:06:21 pm
Went for fibroscan today bloods , the scan went fine , the was 5.5 , which I was told was good and no damage , anyway waiting to see the specialist in 3 weeks and find my course . I was told if I'm geno 3 you can be offered interferon/ribavarin immediately . I'm in UK and even have to be put on a waiting list here , but the interferon and riba can be done right away so I'm  wondering if anyone has past experiences with this as I've not heard great things about the interferon .

Hi Stevie. First of all, that's great that your fibroscan score is nice and low with no real damage to liver! :)

As for the offer of interferon/ribavirin... I would not go that route. Now that the GOOD drugs are here, I see no reason for anyone to go with the earlier era of treatment that has higher toxicity and lower cure rate and often a longer treatment time. Geno 3 people (which i was before I was cured last year with Harvoni/ribavirin) can now be cured with a variety of all-oral (no interferon) treatments. I would suggest you hold out for one of those. They can even be purchased in generic form overseas, and many people are curing themselves that way. But if possible, get yours domestically with health care coverage. That is always better.

I myself never did the earlier interferon/ribavirin treatment because of the toxicity and poor cure rate. But many others here on these forums have. I am sure some of them will chime in.

good luck to you, whatever you decide. :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Treatment
« Reply #2 on: July 20, 2016, 11:05:20 pm »
The cure rates with Interferon & Ribavirin for genotype 3 are about 65%.

I was a genotype 1a and treated 3 times with interferon based treatment with no response. If that was all there was I would but as there are these new medicines with near perfect cure rates I would not mess with interferon unless I had no other option and had advanced liver disease.
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Stevie.C

  • Member
  • Posts: 15
Re: Treatment
« Reply #3 on: July 21, 2016, 03:26:24 am »
Thanks for the replies , it's great to have feedback from actual recipients .
I hope I'm not geno 3 so I don't have the dilemma of choosing that treatment , but think I would turn it down and wait for the better easier option . Here I was told I will normally get treated within a year and 18 months Max so I will wait I think as i never fancied the interferon. I also wouldn't like to miss work or have any side affects , and wouldn't like to go thru a set of treatment and it not work which would kill optimism a bit , it's just the waiting for me ,I have lots of plans in my life I want to get on with but I'm healthy I suppose that's the main thing .thanks.
Logged

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Treatment
« Reply #4 on: July 21, 2016, 03:58:29 am »
Just to add I did work full time on all my treatments and only missed some time the first time I was taking Ribavirin and became very anemic. My doctor added epotin to boost my RBC count and I went back to work after a couple of weeks. I won't say I felt good felt like I was just getting over the flu for 6 months so basically like crap for the whole time.

Anyway hope it works out for you.
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline BillT

  • Member
  • Posts: 573
Re: Treatment
« Reply #5 on: July 21, 2016, 11:38:30 am »
Considering your numbers I would wait Steve.Trust me,the interferon is one nasty treatment(I survived it)and there's only a 30% cure rate on it.I'm shocked they even still offer it.
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Stevie.C

  • Member
  • Posts: 15
Re: Treatment
« Reply #6 on: July 21, 2016, 03:15:22 pm »
Thanks guys , I think I would wait if it comes to that , here's hoping I'm not geno 3 so I just avoid the dilemma, I will get treated here it's just if how long but I am a good candidate I was told , hope when I see the specialist he has good an outlook , I will keep you posted and thanks
Logged

Offline Stevie.C

  • Member
  • Posts: 15
Re: Treatment
« Reply #7 on: August 15, 2016, 02:26:04 pm »
Just a little follow up.

I'm geno type 1a and count is 107 000 (which I know isn't that big of an issue) from what I believe , but seen specialist and I'm on a waiting list now , which is how it works from where I am from in Scotland , I was told I should be treated within a year from now so here's hoping I get away on holiday next October like I want and put the story to bed for once and for all
Logged

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Treatment
« Reply #8 on: August 15, 2016, 02:52:02 pm »
Thanks for the update, Stevie, and hope your name comes up sooner vs. later on the list.  Best to avoid all alcohol until you are cured! FT
Logged
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline andrew j

  • Member
  • Posts: 477
Re: Treatment
« Reply #9 on: August 17, 2016, 06:39:45 pm »
Hi Stevie,

With new drugs coming on stream all the time, competition must be hotting up to
secure deals to supply to the U.K - especially considering the size of your public health budget.
i.e. Your name might come up sooner than you think.

I really hope so!

Best regards,
Andrew J.
Logged
Pages: [1]   Go Up
« previous next »
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.