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Author Topic: Where do I begin  (Read 11010 times)

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Offline BillT

  • Member
  • Posts: 573
Where do I begin
« on: July 15, 2016, 01:07:22 pm »
I just got back from having the 6 month post treatment Fibroscan done.When all of this started it was 10.Today(the drumroll please)...5.3!!I can't believe all of this.I didn't expect that kind of improvement that fast.


http://hepatitiscnewdrugresearch.com/fibroscan-results-the-scoring-card.html
« Last Edit: July 15, 2016, 01:27:17 pm by BillT »
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Where do I begin
« Reply #1 on: July 15, 2016, 02:23:14 pm »
Wow! Such good news, Bill! Very heartening for all of us that this can happen.

kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Where do I begin
« Reply #2 on: July 15, 2016, 04:22:21 pm »
W O W !!!  Makes me want to go out and get a fibroscan!  I've had a biopsy and the FibroSure Test, but no scan.  Excellent news!!! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Where do I begin
« Reply #3 on: July 15, 2016, 05:56:02 pm »
Super awesome news Bill! Treating as early as possible is key.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline BillT

  • Member
  • Posts: 573
Re: Where do I begin
« Reply #4 on: July 15, 2016, 07:25:18 pm »
Thank you all.I'm pure and simply stunned.

Kim,We've seen a lot of great results around here.I never expected to be one of them if you want the truth.It really can happen and is happening.God and I have this agreement.She'll let me be happy now and then but never for long.I'm doomed!! :)

Thank you Ft.I'm not sure which test tells you more,or is more realistic in results.At least the Fibro's are non-invasive.I've never had a biopsy and from what I'm told I never want to.

I had the Dragon since 1973 Philly.When all of this first started I didn't know much as far as the health concerns and liver damage went with it.As I went along,and learned more,I couldn't beleive I wasn't damaged more than I was.That's why I'm shocked right now that things are going to normal for me so quickly.I thought I was damaged goods and was always going to be.Imagine that...I was wrong for the first time in my life. 8)

                                                How to slay a Dragon
                                        1) Make the decision it needs to die
                                                     2) Get started         
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Where do I begin
« Reply #5 on: July 15, 2016, 08:12:27 pm »
What I meant to say, and of course didn't, was "treat early before too much damage is evident". These DAAs have only been available a short time and for we old timers often the damage is done. But for those following us, the earlier you treat, the better your chance of a good recovery and great outcomes for your liver and your health in general.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline AussieRosa

  • Member
  • Posts: 226
Re: Where do I begin
« Reply #6 on: July 16, 2016, 05:41:07 am »
Great news, Bill. You must be elated.
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline BillT

  • Member
  • Posts: 573
Re: Where do I begin
« Reply #7 on: July 16, 2016, 09:58:38 am »
Thank you Rosa.I'm still in shock and probably will be for a while. 8)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline jakas

  • Member
  • Posts: 265
Re: Where do I begin
« Reply #8 on: July 16, 2016, 02:08:20 pm »
Great gives all hope  :)
God bless !
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline brie41

  • Member
  • Posts: 191
Re: Where do I begin
« Reply #9 on: July 16, 2016, 03:04:35 pm »
Hi Bill,

  That is amazing!  It still seems surreal that in just a few short years, we have these wonderful drugs that cure most of us and non invasive tests instead of the dreaded liver biopsies.  Brie
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

Offline Determined

  • Member
  • Posts: 44
Re: Where do I begin
« Reply #10 on: July 16, 2016, 09:20:52 pm »
Wonderful news, Bill.  Can't wait to hear about the next one.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Where do I begin
« Reply #11 on: July 16, 2016, 10:42:22 pm »
Congrats Bill, I am very happy for you.  It's quite an adjustment NOT having the virus anymore for some people. I know I was still hiding my toothbrushes and razors at my house for quite a while. It's almost like post stress syndrome. You have lived so long with this disease, you have to adjust to not having it anymore...but what a wonderful thing it is....Enjoy your cure and live on virus free!


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline BillT

  • Member
  • Posts: 573
Re: Where do I begin
« Reply #12 on: July 17, 2016, 09:42:35 am »
Thanks Determined and thank you Scout,
                                         Everybody was all smiles when they saw those results.As I've said they were curious to see how we were doing post treatment also.I forgot to ask how others were doing but I will.I did ask about having another scan done in a year and they told me to request it through my primary care doctor.Unless something goes off the rails I won't see her again until January which is perfect.I know not everyone will get the same results,but I hope mine will make others feel that what they go through during treatment is worth it.

Speaking of hide the razors Scout,has anyone heard from Cali?I hope she's doing better and wonder about her all the time.
« Last Edit: July 17, 2016, 09:52:17 am by BillT »
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline HazelAustralia

  • Member
  • Posts: 178
Re: Where do I begin
« Reply #13 on: August 24, 2016, 11:34:28 am »
Gee I didn't know that could happen! Wonderful work Bill's liver!
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Baxter

  • Member
  • Posts: 87
Re: Where do I begin
« Reply #14 on: August 27, 2016, 03:50:57 am »
Congratulations, that's fantastic news. It really is amazing, isn't it? It just boggles my mind to think that in just a few years, I went from wondering how long I was going to live to wondering what I'm going to do with all the wonderful healthy years that lie ahead of me.

I know, I'm probably overconfident because my 12-week post blood tests aren't for a week and a half, but... well, when you've been sick that long, you kind of develop a sense of what it feels lie - and when it doesn't feel like that anymore, you can't help noticing.
Gen 1a
Inf. '85
Dx '98
'98 biopsy - Grade 2, Stage 2, VL 7 mil
'01 biopsy - Grade 1, Stage 1, VL 1.5 mil
'08 biopsy - Grade 1, Stage 1, VL 3.5 mil
'12 biopsy - Grade 1, Stage 1, VL 3.5 mil
'16 Fibrosure - Grade I, Stage 3, VL 6.4 mil and 4.8 mil
4/23/16 - ALT 89, AST 50, pltlts 120k. Started 12 wks Harvoni
4/31/16 - ALT 30, AST 21, pltlts 125k
4/14/16 - ALT 25, AST 16, pltlts 126k, VL 69
5/11/16 - ALT 28, AST 21, pltlts 140k,VL <15
6/7/16 -EOT, UNDETECTED!
9/7/16 - cured. Low Stage 2 fibrosis

Offline brie41

  • Member
  • Posts: 191
Re: Where do I begin
« Reply #15 on: August 27, 2016, 08:46:39 am »
Hi Bill,

  That is amazing as Baxter said!!  I had one biopsy and never wanted to repeat it.  I then had a fibroscan and couldn't believe this simple, painless test was available and you could have peace of mind that is was accurate!!  It seemed to all happen so fast and well we lucked out!!

Baxter,

  Best of luck with your 12 week test.  Sending good thoughts your way!!  Brie
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

 


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