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Author Topic: SVR 12 = HAPPY DANCIN' TIME!!!!  (Read 14143 times)

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Offline FutureThinker

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  • Posts: 711
  • Onward and upward!
SVR 12 = HAPPY DANCIN' TIME!!!!
« on: August 23, 2016, 12:43:45 pm »
I just got accepted into the prestigious "SVR12 Club"!!!!!!!!!!!!!!!!!!!!!!! Lots of happy dancing going on around here, to be sure!!!!!! Almost doesn't seem real, I've had HCV for over 40 years, and now it is finally gone. Still don't have what I consider consistent normal energy, but my doctor feels that will come with time. My doctor wants one more lab in 6 months, and then I will be DONE. 

All of you on this forum truly made this journey bearable, for which I am so very grateful. You all understand like no others can. The Harvoni "ride" was a breeze, I had so few sides and increased energy for most of it, to boot. I am well aware this isn't the case with everyone, so again, I am very grateful.

Thanks again to all who listened to me, advised me, and supported me for the past year and a half --- it's been quite a journey!!  To all who are struggling to get treatment, KEEP UP THE FIGHT! Don't give up and hang in there -- the fight is worth it.  THE FUTURE IS VERY, VERY BRIGHT! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #1 on: August 23, 2016, 02:10:31 pm »
CONGRATS FT !!!

:)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Mike

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  • Posts: 999
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #2 on: August 23, 2016, 09:55:56 pm »
Congrats Future Thinker!!!

Here's a little song just for you:

https://youtu.be/I33u_EHLI3w

Turn up the speakers!

Here's to your new life!

Best wishes, Mike
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline hummingbird57

  • Member
  • Posts: 39
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #3 on: August 24, 2016, 08:31:31 am »
FT - yay!!!!!!!
Genotype 1a
contracted 1975/ dx 2003
treatment naive
Harvoni tx - started 7/3/16
Treatment completed - 9/24/16
EOT - 10/6/2016 - HCV Undetected!!!!!!!

Offline HazelAustralia

  • Member
  • Posts: 178
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #4 on: August 24, 2016, 11:41:46 am »
40 years is a long time FT. How wonderful that you're getting a new lease on life. It's really incredible, isn't it? Great news.
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #5 on: August 24, 2016, 11:52:57 am »
Thank you, and esp. to Mike for the great music clip! I haven't heard that song in ages and did some happy dancin' with arms held high! I actually listened to Queen's "We are the Champions" on the way home Monday from my doctor appt.

I don't think this news has totally sunk in yet, as I am sure was the case for others who have had this cloud over their head for a long time and then - poof, it's finally gone. I fully realize I'm not completely out of the woods yet, that will come with the next lab work, but I am being positive and confident it is TIME TO MOVE ON.

All keep the faith! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Determined

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  • Posts: 44
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #6 on: August 24, 2016, 12:02:41 pm »
Hey FT! We made it!  Why we almost danced over the finish line together and on the same treatment.  Thanks for the companionship. 

I, too, feel great and am doing everything I used to.  I think I flushed the riba pretty quickly, though I was so down at the end of treatment that I needed a touch of ADs to turn the tide. Enough of the despair!

I hope you have some marker or celebration planned.  Funny, but it takes time to believe it's over.

Sincere Congratulations!
Determined + Future Thinker = SVR12  WE WON!

Offline FutureThinker

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  • Posts: 711
  • Onward and upward!
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #7 on: August 24, 2016, 12:12:00 pm »
Thanks Determined!  Yes, we decided to postpone our summer vacation this year until this milestone date was reached, so we are now talking about  a getaway in the next month or so.  It's still very surreal! All the best to you and stay determined!! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline morab

  • Member
  • Posts: 232
  • Lives in the woods
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #8 on: August 24, 2016, 03:12:40 pm »
FT
Congratulations !!!! I am coming up right behind you and have no fear! I am so happy to hear your great news!
Morab
3/2016 G 1a
Alt 84
Ast 62
Fibrosis score lab 0.66
quantitation 894,670
4/23/16 day 6, naive Harvoni 12 week treatment
5/27/16 week 4 lab results UNDETECTED AST 23 ALT17

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #9 on: August 24, 2016, 04:17:12 pm »
I know we'll be doing the happy dance for you too, soon!!  FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline andrew j

  • Member
  • Posts: 477
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #10 on: August 24, 2016, 06:46:05 pm »
I don't post that often, but I often read your posts.
I'm a forty-year veteran like you, so my 'experience' is maybe similar to yours, in some ways.

A-n-y-w-a-y:
Congratulations!!
I'm really happy for you!
 
Best regards,
Andrew J.

Offline FutureThinker

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  • Onward and upward!
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #11 on: August 24, 2016, 07:34:41 pm »
Thanks, Andrew j!  So where are you in your treatment? How are you feeling? Seems to me you should be done and waiting for the 12 wk EOT test? FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline andrew j

  • Member
  • Posts: 477
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #12 on: August 24, 2016, 10:35:16 pm »
Yes, FT.

My 12 wk. post-EOT blood test comes up at the end of next week.
I know my timing is similar to yours, to Brie's, and to a couple
of others who post regularly.

x.




Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #13 on: August 24, 2016, 11:24:16 pm »
Well, we are holding a seat for you here in the "SVR 12 Club"!   Are you a bit anxious at this point? I tried very hard not to get wigged out about it, but the last week of waiting was rough. Keep the faith and please keep us posted! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline andrew j

  • Member
  • Posts: 477
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #14 on: August 25, 2016, 01:07:10 am »
Nerves: not too bad.

The specialist said that if I relapsed, I would know (being as familiar as I am / was
with what the virus feels like).
I continue to feel better (even though I still have some tiredness etc. issues),
so ...

I will keep you posted, for sure.



Offline I fightis thetitis

  • Member
  • Posts: 129
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #15 on: August 25, 2016, 01:37:17 am »
FT!
Welcome to the class of 2016 SRV 12!
Our membership is growing!

Best always!!
M59  56@start of TX. date infected:1976
diagnosed 1997 - asymtomatic
Genotype 1a
AST 111 -ALT 124 - AFP -89
Viral Load 1900000 - Log 6.28
Fibro Test F4 ActiTest A3
Harvoni 24 wks - start date 11/24/15

6 Week Labs VL Undetected!
104 weeks EOT Undetected.

8/25/17 Fibrosure score 80 = F4
11/10/17 Fibroscan 7.5 mean 1.6 m/s = F2
8/2018 Ultra sound normal.

Offline Lynn K

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  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #16 on: August 25, 2016, 02:44:39 am »
Alright fantastic news!!!!!

Congrats FT wishing you a bright, happy future and a long life!

Lynn
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Philadelphia

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  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #17 on: August 25, 2016, 08:14:42 am »
Now you can not only think about the future, you can enjoy it! Congratulations
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #18 on: August 25, 2016, 11:59:51 am »
Thanks to all! It is finally beginning to sink in this morning. Starting to look more forward w/ a sense of lightness, vs. heaviness ...... it is such a wonderful feeling and I wish it for all who continue to fight this beast.

...." and we'll keep on fighting till the end". It's in sight for so many this year!

FT, Class of 2016 (!)
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline brie41

  • Member
  • Posts: 191
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #19 on: August 27, 2016, 09:02:57 am »
Hi Future Thinker,

  I posted a note to you under my post, but want to say again that I couldn't be happier for you!  Your new name might be Future Looking Brighter Everyday!!  Just a thought, lol! 

Morab and AndrewJ,

  I will be thinking good thoughts for you and can't wait to hear how you make out!!  Hoping for the best for both of you!  Brie
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #20 on: August 27, 2016, 11:54:50 am »
Brie, WE DID IT!!  I like your suggestion of changing my name, but I think I'll just keep this one, as I want everyone to be able to genuinely consider their futures with hope and health, once cured!

I remain concerned at the continued high cost of these life-saving drugs and the lack of access for the millions around the world who need them. That's a part of the future I'd really like to see improve, and sooner rather than later. The generic option has been a big help for many, but the cost just should not be so out-of-reach for so many.

Eradication of this disease needs to be front and center.

Any suggestions on how we can influence the future of this cure?  All thoughts are welcome ----- Our futures are bright, FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline brie41

  • Member
  • Posts: 191
Re: SVR 12 = HAPPY DANCIN' TIME!!!!
« Reply #21 on: August 28, 2016, 09:11:51 am »
Hi FT,

  We did make it!!!  I agree!  I remember how lost I felt before my insurance company decided to give the green light after many denials.  I had started the process to apply to support path over a year and a half ago and after having all the necessary blood work my Doctor called and said that support path stopped their program and to come in and see them in 6 months.  Just remember that sinking feeling that I would not be able to get these drugs unless I progressed.   But luckily my insurance company and support path decided to okay it as of January.  Well you know the rest!!  I would love for us to put our heads together and find ways to help whoever we can.  You have a good heart FT, need more people in the world like you!  Brie
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

 


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