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Author Topic: Donating Blood?  (Read 6066 times)

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Offline Baxter

  • Member
  • Posts: 87
Donating Blood?
« on: September 11, 2016, 03:46:08 am »
So with the new DAA treatments, and people being declared "cured," will there be any change in the rules regarding blood donations? I used to be a regular donor before I got sick, and I miss being able to do that. It would be nice to be able to do that again.

Anyone know?
Gen 1a
Inf. '85
Dx '98
'98 biopsy - Grade 2, Stage 2, VL 7 mil
'01 biopsy - Grade 1, Stage 1, VL 1.5 mil
'08 biopsy - Grade 1, Stage 1, VL 3.5 mil
'12 biopsy - Grade 1, Stage 1, VL 3.5 mil
'16 Fibrosure - Grade I, Stage 3, VL 6.4 mil and 4.8 mil
4/23/16 - ALT 89, AST 50, pltlts 120k. Started 12 wks Harvoni
4/31/16 - ALT 30, AST 21, pltlts 125k
4/14/16 - ALT 25, AST 16, pltlts 126k, VL 69
5/11/16 - ALT 28, AST 21, pltlts 140k,VL <15
6/7/16 -EOT, UNDETECTED!
9/7/16 - cured. Low Stage 2 fibrosis

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Donating Blood?
« Reply #1 on: September 11, 2016, 07:48:01 am »
Baxter, if my hepatologist has anything to do with it, the rules won't change. After I was cured, I asked him about donating blood. He said that even if my HCV antibodies become undetectable (which happens for a few people) and therefore I could get away with donating, he hoped I wouldn't because it's estimated that any blood donation has a 1 in a million chance of containing HCV, but mine would have a 1 in 150,000 chance because of my prior infection.

You're far from the only person on these forums to mention missing not being able to donate blood. If it interests you, you may be able to donate your body (when you no longer need it) to a medical school. I had signed the papers well before I found out I had HCV, so I asked the hepatologist about that, too, and he said their medical school would take my corpse even if I still had HCV because the formaldehyde takes care of the risk.

Apologies if the previous paragraph strikes anyone reading this as ghoulish. Anatomical donation has become the tradition in my family; it's wonderful to hear how helpful medical students find it to explore a real body (nobody's organs look exactly like the pictures in their textbooks, the bones in the ear are so tiny, etc.). Today's medical students are encouraged to think about what life must have been like for the person whose body shows signs of various ailments, so they may become more empathetic doctors as a result.

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Donating Blood?
« Reply #2 on: September 11, 2016, 10:48:41 pm »
Really it comes down to costs and control for the blood banks. Our blood will still test positive so if they were to allow they would have to sequester our donation after it tests positive for antibodies and then have the more expensive HCV RNA test done and ensuring our donation is not accidentally sent out for use while waiting for the results to return.

Imagine what would happen if they accidently allowed a hep c virus infected donation out for infusion. So it just really is not practical for the blood banks to accept our donations.

Just to add we can do organ donations. For example say your liver or kidneys are still in good shape when you die. A patient who either has or had hep c and has liver or kidney failure would be allowed to receive your donated organs. I guess this would also apply to corneas etc.

So even though we can't donate blood we can still save lives
« Last Edit: September 11, 2016, 10:52:35 pm by Lynn K »
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

 


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