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Poll

Do you take any supplements during your HCV treatment?

Yes
3 (37.5%)
No
5 (62.5%)
Only post treatment
0 (0%)

Total Members Voted: 8

Author Topic: Supplements during treatment!?  (Read 8180 times)

0 Members and 1 Guest are viewing this topic.

Offline hummingbird

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  • If you wanna do it, do it Now!
Supplements during treatment!?
« on: September 23, 2016, 12:06:40 am »
What supplements do you take during your hcv treatment?

I take Milk thistle, Alpha lipoic acid and B12 vitamins.
« Last Edit: September 23, 2016, 02:51:10 am by hummingbird »
1996: Contracted
2008: Diagnosed genotype 1a
Refused Interferon treatment and biopsy
13/9/16: ALT 5,7 - AST 3,4 - TPK 89
VL HCV-RNA 6,22 log.
Fibroscan 21.3 kPa F4
Ferritin 1389
22/9/16: Tx start Harvoni (24w) (refused ribavirin)
6/10/16: ALT 1,9 - AST 1,1
VL HCV-RNA 2,15 log.
19/10/16: VL HCV-RNA plus 1,18 log.
16/11/16: VL HCV RNA plus < 1,8 log.
18/07/17: VL HCV RNA plus < 1,8 log. ALT 1,4, AST 0,96
Fibroscan 17,1 kPa (pre. 21,3 kPa)
08/02/19: Fibroscan 11,4 kPa !!!!
ALL bloodtests NORMAL!!!

Offline gnatcatcher

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Re: Supplements during treatment!?
« Reply #1 on: September 23, 2016, 03:45:55 am »
Vitamin D3.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Lynn K

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Re: Supplements during treatment!?
« Reply #2 on: September 30, 2016, 03:01:50 am »
I took only my prescribed diuretic Spironolactone.

Personally I would avoid any unnecessary anything while on treatment
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline jakas

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Re: Supplements during treatment!?
« Reply #3 on: September 30, 2016, 07:33:17 am »
I took just vitamin b12 on treatment. Stopped the milk thistle and dandelion tabs
M/55 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and finally SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 May 2017

Offline sulata

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Re: Supplements during treatment!?
« Reply #4 on: September 30, 2016, 07:37:30 am »
I am vegan and take B12, D3, D-Mannose, and vitamin K (because my PA said not to take Calcium). All approved by my PA.

Offline waylander

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  • Posts: 19
Re: Supplements during treatment!?
« Reply #5 on: October 01, 2016, 05:22:20 pm »
I personally avoided all supplements during treatment.
These are new medicines and not all interactions are documented yet.
Meds are powerful enough on their own to do the trick.
Just keep a healthy diet and take lots of water during tx, thats about it.
Genotype 1b and 4 diagnosed 2014
Biopsy 2014: F0/A1
2015: Failed Pegi/Riba tx after 17 weeks (non responder)
Fibroscan 2016: E: 6.8kPA, CAP 220
Pre TX VL Jan 2016: 500.000

Started gen.Harvoni (Ledifos) 27.Jan.2016
19. April 2016 - EOT - UNDETECTED
29. August 2016 - SVR 17 - UNDETECTED
ALT 15, AST 12, GGT 6, ALP 39

Offline andrew j

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Re: Supplements during treatment!?
« Reply #6 on: October 05, 2016, 07:24:56 pm »
I agree.

That's what I did.


Offline Tlk60

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Re: Supplements during treatment!?
« Reply #7 on: October 12, 2016, 04:03:00 pm »
I begin 8 weeks of Harvoni as soon as the mail order pharmacy gets it in the mail.  I take on a daily basis, a multivitamin for women over 50, two fish oil pills, B12 and Crestor.  I see that Crestor may interact badly with Harvoni.  Anyone else on Crestor before treatment? I am wondering if I should stop taking it now as I will probably start Harvoni in the next 6-7 days.  Waiting on a call back from my doctor...ugh..going on second day now.

Offline andrew j

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Re: Supplements during treatment!?
« Reply #8 on: October 12, 2016, 06:46:48 pm »
I'm sure your doctor will be back to you soon.

Best wishes,
Andrew J.
« Last Edit: October 12, 2016, 09:45:01 pm by andrew j »

Offline Lynn K

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Re: Supplements during treatment!?
« Reply #9 on: October 12, 2016, 08:24:21 pm »
Found this on WebMD

http://www.webmd.com/drugs/2/drug-167109/harvoni-oral/details/list-interaction-details/dmid-2513/dmtitle-ledipasvir-rosuvastatin/intrtype-drug

HARVONI
Interactions
Rosuvastatin/Ledipasvir
This information is generalized and not intended as specific medical advice. Consult your healthcare professional before taking or discontinuing any drug or commencing any course of treatment.

Medical warning:

Serious. These medicines may interact and cause very harmful effects. Contact your healthcare professional (e.g. doctor or pharmacist) for more information.

How the interaction occurs:

Ledipasvir may increase the amount of rosuvastatin you absorb into your body.

What might happen:

The amount of rosuvastatin in your blood may increase and cause harmful effects.

What you should do about this interaction:

Make sure to let your healthcare professionals (e.g. doctor or pharmacist) know that you are taking these medicines together. Let your doctor know if you have any unexplained muscle pain, tenderness, weakness, or discoloration of your urine. Your doctor may want to change your cholesterol medicine.Your healthcare professionals may already be aware of this interaction and may be monitoring you for it. Do not start, stop, or change the dosage of any medicine before checking with them first.
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline andrew j

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  • Posts: 476
Re: Supplements during treatment!?
« Reply #10 on: October 12, 2016, 09:31:52 pm »
Dammit.
I must be more careful.

Lynn - Do you know how I can remove that post?

Offline Lynn K

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Re: Supplements during treatment!?
« Reply #11 on: October 12, 2016, 09:42:00 pm »
No worries Andrew in general the  less is better is a great idea but it does get trickier with prescription meds.

Per our warning on the top of the page:

Privacy Warning:  We do not allow the deletion of anything you post in these forums, so think before you post.

We will delete things that violate our TOS or an accidental duplicate post. But otherwise the post stands.
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline andrew j

  • Member
  • Posts: 476
Re: Supplements during treatment!?
« Reply #12 on: October 12, 2016, 09:46:35 pm »
I've modified (again!) ...


Offline Lynn K

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Re: Supplements during treatment!?
« Reply #13 on: October 12, 2016, 09:53:38 pm »
lol ok andrew ;)

Tlk60

You could also try the Harvoni help line they have nurses available to answer questions

http://www.mysupportpath.com/

Providers and patients can call 1-855-7-MYPATH (1-855-769-7284) for assistance

But as my earlier post said if you doctor knows you are taking Crestor "Your healthcare professionals may already be aware of this interaction and may be monitoring you for it."

So your best option likely still is to find out what your doctor says

Good luck
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Tlk60

  • Member
  • Posts: 37
Re: Supplements during treatment!?
« Reply #14 on: October 13, 2016, 08:51:18 am »
Thanks again Lynn K....I talked to my doctor's medical assistant and she said my doctor will likely have me contact my primary care to get an rx for another cholesterol medication or have me stop it completely for the duration of treatment (8 weeks). BUT...she said she wanted to check with the doctor first...still waiting for that answer soooooo....I have decided to stop the medication on my own...last dose was Tuesday...I have changed my eating habits and am getting plenty of exercise.  Personally I feel it is best not taking anything while on Harvoni...I want Harvoni to do it's job without any interruptions. :)  Before Crestor my cholesterol levels were just barely over normal limits anyway....I may have done the wrong thing but did it anyway.  hahahaha

Offline FutureThinker

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  • Posts: 711
  • Onward and upward!
Re: Supplements during treatment!?
« Reply #15 on: October 13, 2016, 12:17:22 pm »
Here's my 2 cents on supplements during treatment:  My doctor said in no uncertain terms "NO SUPPLEMENTS".  FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Lynn K

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Re: Supplements during treatment!?
« Reply #16 on: October 13, 2016, 01:37:46 pm »
Hi

While I also agree with FT about no supplements we are talking about a prescribed medicine and WebMD did say not to stop medicine without discussing with your doctor. Your doctors office that is treating you did say to contact the doctor who prescribed Crestor for an alternate cholesterol lowering medication. I believe you should discuss your options for treating your cholesterol while taking Harvoni.

Just my 2 cents
« Last Edit: October 13, 2016, 01:39:36 pm by Lynn K »
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Tlk60

  • Member
  • Posts: 37
Re: Supplements during treatment!?
« Reply #17 on: October 13, 2016, 08:09:50 pm »
I went to an urgent care today for sinus infection and asked the doctor there her thoughts on stopping the Crestor. She gave me the half life and assured me Crestor had a warning attached to it for patients on Harvoni. Finally got the call late today from my doctor's MA. Doctor said to Stop Crestor.  No other meds prescribed. She said I was on a low dose anyway and levels weren't that high so I should be good without it for the next 2 months. Still no Harvoni in the mail yet so it is a waiting game still. Excited to get on the Harvoni train and get rid of the C!!!!

Offline andrew j

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  • Posts: 476
Re: Supplements during treatment!?
« Reply #18 on: October 13, 2016, 08:32:29 pm »
Phew!

... and  - Good News Tlk60!

Offline Lynn K

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Re: Supplements during treatment!?
« Reply #19 on: October 13, 2016, 09:05:52 pm »
Glad you got all your answers about Crestor.

Now on to the meds ready to slay your dragon!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Scoutdoy

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  • Posts: 452
Re: Supplements during treatment!?
« Reply #20 on: October 15, 2016, 02:31:40 am »
TLK ...I stopped all supplements.   One thing I considered was that a lot of doctors and nurses don't really know what does or does not interact with Harvoni. There are so many unknowns out there when it comes to drug interactions...why take the chance. Get rid of the virus, and then resume your supplements. Good luck


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Tlk60

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  • Posts: 37
Re: Supplements during treatment!?
« Reply #21 on: October 17, 2016, 03:51:12 pm »
Thanks every one....So I guess I will stop all supplements.  I was taking a multivitamin, B12 and fish oil....No one told me to take these but since my sisters were taking them I jumped on the band wagon...hahahahaha

Won't hurt my feelings to only take one pill a day!   8)

I agree that I don't want to take the chance of something getting in the way of the Harvoni....I only get 8 weeks of treatment so I really don't want to chance anything.  I have been told that 8 weeks is plenty since my viral load is below the required limit for the 12 weeks so yipee!!!  One pill a day and hopefully no Hep C after 8 weeks!!!


Offline andrew j

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Re: Supplements during treatment!?
« Reply #22 on: October 19, 2016, 01:47:39 am »
Sounds good, Tlk - and

Best of luck with your treatment.


Offline Tlk60

  • Member
  • Posts: 37
Re: Supplements during treatment!?
« Reply #23 on: October 19, 2016, 06:20:08 pm »
Thanks Andrew J....start my treatment tomorrow morning at 6 a.m.  Can't wait!!!!!

 


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