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Author Topic: Husband and I started Harvoni today!!!  (Read 9256 times)

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Offline Grateful Gmom

  • Member
  • Posts: 27
Husband and I started Harvoni today!!!
« on: October 15, 2016, 04:37:53 pm »
We are in separate states this weekend so we FaceTimed this morning while taking our first tablet!! After 45 years of marriage this is hopefully just another hurdle to jump together. We toasted with our orange juice and said "cheers to the first day of the rest of our lives" Corny, right??!!!
It's  been a roller coaster over the past few weeks getting approval and  this forum has been very helpful, just wanted to login and say hello and thanks to those brave folks out here sharing their stories.

Ps-that was a pretty expensive breakfast this morning, LOL
Blood Transfusion 1986
Treatment naive
Gen 1a
F2/3
3.5 million
Harvoni ordered for 12 wks, approved for 8

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
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Re: Husband and I started Harvoni today!!!
« Reply #1 on: October 17, 2016, 03:53:52 am »
Nice to have someone to directly share the journey with good luck to you both!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Grateful Gmom

  • Member
  • Posts: 27
Re: Husband and I started Harvoni today!!!
« Reply #2 on: October 17, 2016, 10:13:31 am »
Thank you Lynn
We didn't even know he was infected until I told our pcp to order bloodwork. We also thought since it took well over a month for my approval, I'd start first. His was approved in days!!!
Blood Transfusion 1986
Treatment naive
Gen 1a
F2/3
3.5 million
Harvoni ordered for 12 wks, approved for 8

Offline Grateful Gmom

  • Member
  • Posts: 27
Re: Husband and I started Harvoni today!!!
« Reply #3 on: November 16, 2016, 03:24:52 pm »
GREAT NEWS!!!!!!! We both did labs Monday after completing the first month of treatment and........drum roll please
NOT DETECTED ON EITHER!!!!!
My viral load starting was was about 3.5 million, his was 8.9 million
Ever so grateful, we have a ways to go, but this is absolutely incredible. While feeling elated (through my aching side effects) I feel disappointed that some people have to go through so much to get treatment, or none at all
But today I celebrate!!!
Blood Transfusion 1986
Treatment naive
Gen 1a
F2/3
3.5 million
Harvoni ordered for 12 wks, approved for 8

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Husband and I started Harvoni today!!!
« Reply #4 on: November 16, 2016, 04:34:16 pm »
Congrats to you both! Yup Harvoni is some amazing stuff
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Mugwump

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  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: Husband and I started Harvoni today!!!
« Reply #5 on: November 29, 2016, 07:21:31 pm »
The day I had my first undetected pcr test is one that the flood of emotions imprints on the soul and psyche or spirit or whatever the heck it is we are. I share your joy.

Congrats on getting through the most important first step in slaying the dragon for good! And thanks for sharing the news.

Eric
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline Grateful Gmom

  • Member
  • Posts: 27
Re: Husband and I started Harvoni today!!!
« Reply #6 on: December 13, 2016, 01:20:01 pm »
8 weeks done and just waiting for my lab results to come in!!! Hubs still has a month to go. It really did go by fast
Blood Transfusion 1986
Treatment naive
Gen 1a
F2/3
3.5 million
Harvoni ordered for 12 wks, approved for 8

Offline Grateful Gmom

  • Member
  • Posts: 27
Re: Husband and I started Harvoni today!!!
« Reply #7 on: December 13, 2016, 08:54:52 pm »
Another one bites the dust!!!!
NON DETECTED!!!
Blood Transfusion 1986
Treatment naive
Gen 1a
F2/3
3.5 million
Harvoni ordered for 12 wks, approved for 8

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Husband and I started Harvoni today!!!
« Reply #8 on: December 13, 2016, 09:14:07 pm »
Congrats was this the 12 week post treatment test?
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Grateful Gmom

  • Member
  • Posts: 27
Re: Husband and I started Harvoni today!!!
« Reply #9 on: December 14, 2016, 09:34:14 am »
Hi Lynn, just 8 week treatment was approved for me, hubs still has another month. It's all still sinking in
Blood Transfusion 1986
Treatment naive
Gen 1a
F2/3
3.5 million
Harvoni ordered for 12 wks, approved for 8

Offline Grateful Gmom

  • Member
  • Posts: 27
Re: Husband and I started Harvoni today!!!
« Reply #10 on: December 14, 2016, 09:37:24 am »
Oops Lynn, replied too quick. This was my 8 week treatment test, will get the 3 month post in March
Blood Transfusion 1986
Treatment naive
Gen 1a
F2/3
3.5 million
Harvoni ordered for 12 wks, approved for 8

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Husband and I started Harvoni today!!!
« Reply #11 on: December 14, 2016, 10:35:23 am »
Ok then on your way to SVR 12 in spring a lovely time of year to know you are cured!

Edited: note I have to quit posting using my phone and without my glasses lol
« Last Edit: December 16, 2016, 02:55:55 am by Lynn K »
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline LightBeingAtLast

  • Member
  • Posts: 31
Re: Husband and I started Harvoni today!!!
« Reply #12 on: December 16, 2016, 02:31:38 am »
Just wanted to share that I am finished with my 12 week treatment with Harvoni and just got my labs back.  Labs are all low normal and my VL is NON DETECTED!!  I did not expect to be so emotional when I received the non detected status, but it was pretty intense immotionally.  I had not been aware that I was holding all of that in.  Felt good to get it out and now be hepC free.  So blessed and thankful for this treatment that is so easy to take with so few side effects for most people.  I am still in disbelief...shock and awe rocking my world.  No more HepC.. CURED!  Thank you all for the support and information you've shared with me.  It helps so much being able to bounce things off people who are going through the same thing as you.  Lynn K, thanks.

My recommendation during treatment is to drink water, and then drink some more.  Just carry a water bottle around with you everywhere.  It really helped the headaches I had, made them go away. Now I wait for the next 12 week test to confirm all those little virus are still out of my system.  Hooray!  Love and light to all of you, hang in there, you are going to be cured to!  Namaste
64 yo female
Dx Oct 20, 2000
Type 1b
VL 32 mil
Liver biopsy 1979 nonspecific reactive hepatitis
Liver biopsy 2001 stage 1 of 4
Liver biopsy 2007 stage 2
Fibrosure 2015  stage 2
2016 August liver scan stage 4
9/3/16  began Harvoni. Treatment naive.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Husband and I started Harvoni today!!!
« Reply #13 on: December 16, 2016, 02:58:19 am »
Hey congrats and welcome to the other side!

FREEDOM!!!!!!!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Grateful Gmom

  • Member
  • Posts: 27
Re: Husband and I started Harvoni today!!!
« Reply #14 on: December 16, 2016, 08:48:14 am »
Happy RE-NEW year to you!!!
Blood Transfusion 1986
Treatment naive
Gen 1a
F2/3
3.5 million
Harvoni ordered for 12 wks, approved for 8

Offline elcidms

  • Member
  • Posts: 4
Re: Husband and I started Harvoni today!!!
« Reply #15 on: December 24, 2016, 09:55:35 pm »
Congrats on your results!! I finished Harvoni about 20 months ago, was undetectable at 12 weeks,  and just receive results that the virus is still undetectable.

35 years via blood transfusion 1980.  Interferon and Riboviron 48 weeks also peg and Riboviron 48 weeks...relapsed both times.  Harvoni was the cure and the regimen was much easier.

I wish you and your husband continued great results...truly is a miracle drug!!

 ;)

 


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