Welcome, Guest. Please login or register.
July 21, 2019, 09:37:26 am

Login with username, password and session length


Members
Stats
  • Total Posts: 54228
  • Total Topics: 4583
  • Online Today: 64
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 48
Total: 48

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: New to forum and on Havroni  (Read 3510 times)

0 Members and 1 Guest are viewing this topic.

Offline jackie024

  • Member
  • Posts: 3
New to forum and on Havroni
« on: December 05, 2016, 12:10:19 pm »
Hello, I am Jackie.  I donated blood and found out I had Hep. C.  What a shock and scare.  Have been givin blood samples getting tests and just finished my first week of 12 taking Harvoni.  I feel kind of strange, everyone knows their numbers, and I have no clue to what mine are.  Nor do I think I would even know the meaning.  I will ask for them and hope someone will be able to help me to understand their meaning.  Either way, one week down , eleven more to go.  I have not a one side effect.  I am weird, I am feeling better than I did two weeks ago.  Only one complaint.  Those pills taste horrible.  :(  not quick to swallow first one.  LOL  I am glad I finally have a place to yell, I HAVE HEP C. and not fear of people running away.  :)  Thank you for having me in your forum group.  --- on the path to healing  Jackie

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: New to forum and on Havroni
« Reply #1 on: December 05, 2016, 01:31:37 pm »
Welcome, Jackie -- make yourself at home. What a well-written post -- you have just summarized the HCV experience! Every single thing you expressed rings true for at least a few dozen people on these forums.

Yes, definitely get all lab, etc., results. If your doctor doesn't explain things clearly, we can usually translate the medicalese.

Glad you are among those who actually feel better on treatment. That's how I felt, too. When you wrote, "Those pills taste horrible," I realized I'd forgotten how big they were!

Wishing you well!

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Luna7

  • Member
  • Posts: 183
Re: New to forum and on Havroni
« Reply #2 on: December 05, 2016, 05:34:01 pm »
lol Gnatty...I forgot how big those pills were too! I gagged.
And jackie the taste is worse than bad.

You said "I am glad I finally have a place to yell, I HAVE HEP C. and not fear of people running away."

So true. I have yet to officially come out about the disease. But one day I will.

Between F2 & F3
Alt & Ast nearly 100
Viral load over 8 million
Gt 3a

Treated 12 weeks with Sovaldi & Daklinza, start date mid-April 2016
Undetected at 4 weeks into treatment
Alt & Ast  normal
Treatment completed July 14
Most likely will be undetected at 12 weeks (mid October 2016) as symptoms are gone

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,263
  • Get tested, get treated, get cured, fight Hep c!
Re: New to forum and on Havroni
« Reply #3 on: December 07, 2016, 03:44:13 am »
My doctor uses a web site where I can access my test results called My Chart does your doctor have that or something similar?

Whenever you get a look at your results and have questions we will do our best to try to help you understand them.

The one you really want to see is the test called HCV RNA by PCR which is the test for the hep c virus.

You want that one to see will say "Not Detected" at 12 weeks after you stop taking the medicine. That result means you are cured.

Good luck to you :)
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

 


© 2019 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.