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Author Topic: Started the Viekira Pak with RIBA on monday  (Read 7855 times)

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Offline Lish166146

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  • Posts: 9
Started the Viekira Pak with RIBA on monday
« on: December 14, 2016, 12:01:14 pm »
Well I started the Vpak with the wonderful Ribavirin. So far so good except I'm already not liking food too much.  I had some weird rash on my shin last night that left as quickly as it showed up.  Although my palliative care nurse (pharmaceutical nurse) was all for me changing my duty status (I am a road police officer) my actual Physician Assistant for my DR questioned why I would want too change my duty status.  I work 12 hour shifts and work in a busy town.  Am I overreacting?  I can't deny that I am terrified of this medication and I'm not sure if I am making a bigger deal of it than it really is but on the other hand, if it's not as bad as my PA thinks, why do so many people fight for harvoni?  I'm flailing for clarity  :-\
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Offline andrew j

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Re: Started the Viekira Pak with RIBA on monday
« Reply #1 on: December 14, 2016, 06:41:29 pm »
You are concerned with safety, first and foremost -
your own - and the safety of others.

That's a GOOD thing!

You're not overreacting!

A.
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Offline andrew j

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  • Posts: 477
Re: Started the Viekira Pak with RIBA on monday
« Reply #2 on: December 14, 2016, 08:49:46 pm »
Many people handle Riba just fine.

There are quite a few here with experience of it.
Some of them may have some tips for you.

If it really starts getting out of hand - talk to your Dr.
Sometimes they can dispense with it.





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Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Started the Viekira Pak with RIBA on monday
« Reply #3 on: December 15, 2016, 12:25:22 am »
You'll know if you can't handle it. You'll feel like crap. I preferred to work part time esp for the first few weeks but my liver was pretty bad and it hit me hard. Good luck -   We are here if you want to whine -  we've all done it.
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CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Lish166146

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  • Posts: 9
Re: Started the Viekira Pak with RIBA on monday
« Reply #4 on: December 15, 2016, 12:33:15 am »
Light duty!  Finally!  Even if I handle it fine, I honestly don't want to work full duty!  All is good now... time to relax and wait to see if I explode :D
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Offline Philadelphia

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  • It only looks like I know what I'm doing
Re: Started the Viekira Pak with RIBA on monday
« Reply #5 on: December 15, 2016, 11:05:34 am »
That's great news!
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CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline its time

  • Member
  • Posts: 102
Re: Started the Viekira Pak with RIBA on monday
« Reply #6 on: December 30, 2016, 12:22:54 am »
take each day one day at a time and drink plenty of water :) and rest when your body tells you to... advice that was givin to me and seem to work some... I was very nervous regarding the sides when I first started but everyone here put things into perspective .. great support system here...
I went for my 12 week post bloodwork Christmas eve  and now anxiously waiting for my dr to call with results...

wishing you easy sides if any
keep on posting  and each day is one day closer to end of treatment...
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4.16.16  VL 1.7 million  AST 62   ALT 80  RBC  4.84
HBG  15.4
GENO TYPE 1A
7.9.16   Viekira + Riba 12 WKS (EOT 9.30.16)
7.23.16  2 wk lab
     VL  20    AST  20   ALT  16   RBC 4.05   HBG 12.6
8.6.16  4 WK LAB
     VL UNDETECTED  AST 14   ALT 14   RBC 3.98
HBG 12.4
9.3.16   8 wk lab
     VL UNDETECTED  AST 14   ALT 10    RBC 3.74
HBG  11.9
10.8.16  12 WK EOT
    VL  UNDETECTED  AST 16   ALT  12   RBC  3.76
HBG  12.0
END DECEMBER GO FOR 12 WK BLDWK
1/5 2017 HEP C FREE.. CURED :)

Offline Lish166146

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  • Posts: 9
Re: Started the Viekira Pak with RIBA on monday
« Reply #7 on: December 30, 2016, 09:34:42 am »
Well I am going on my third week and it's been interesting.  My hands look like I am suffering from syphilis and itch like crazy.  Got myself the ol Riba rash.  I literally fell out when I didn't take my meds within two hours of what I had taken it the day before.  I overslept after working a midnight... stayed up till night time and went to bed - next day - I thought I was hospital bound only to find out there are withdrawals from this stuff for some people. I am the some I guess.  I have spurts of energy... happy as a clam and the next minute- I want to lock my family in a panic room because I get overly irritated over NOTHING!  I shake a whole lot as if I have fever chills but ... I think my saving grace is the 3 liters of water I drink a day.  Headaches are managed with Motrin and I only take it when they get unbearable. I had a short bought of bone pain in my knees and shins but survived.  My eyes are on the prize.  I'm gonna get through this and 2017 WILL be my hep c free year!  I go for viral blood work on the 19 of Jan so I'm interested to see if my virus is detected... and I know not to panic if it is... I have till march 6 to beat the crap out of this virus!
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Offline andrew j

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  • Posts: 477
Re: Started the Viekira Pak with RIBA on monday
« Reply #8 on: December 30, 2016, 06:06:10 pm »
Hang in there, Lish!

(... and remember - if the side-effects get too bad -  Riba can be dispensed with in some instances.
... I know that'll mean nothing to a man like you, but still ...)





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