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Author Topic: liver transplant patient that took harvoni  (Read 5551 times)

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Offline iowafarm

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  • Posts: 6
liver transplant patient that took harvoni
« on: February 03, 2017, 02:32:21 pm »
hi, can you please tell me how you did with harvoni being a liver transplant ? I really don't know if I should start it because I don't have cirrosis of the liver, have a low viral load, but I do have stage 3 kidney disease. my doc wants me on 24 weeks with no ribavirin. Insurance will only do 12 weeks. so, he has no option but to ask me to take 12 weeks with ribavirin. I do not want to take that because of my kidneys. so, have any of you done treatment with just 12 weeks harvoni, no ribavirin and are post liver transplant?  I really would like to hear all of your stories if you had a liver transplant and where treated with harvoni.  thanks!

Offline Lynn K

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  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: liver transplant patient that took harvoni
« Reply #1 on: February 04, 2017, 12:40:42 am »
I don't think we have anyone here who had a transplant. I know on another forum a man named HectorSF who had a transplant after developing HCC. After his transplant he treated with Harvoni and was cured of hep c. But as far as I know he did not have kidney problems.

If you Google his name you should find many of his posts unfortunately he passed away last summer but he left a legacy of many wise answers. But I do believe your doctors likely are experts and they are best to answer your questions and concerns.

 
« Last Edit: February 04, 2017, 12:42:45 am by Lynn K »
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline andrew j

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  • Posts: 477
Re: liver transplant patient that took harvoni
« Reply #2 on: February 04, 2017, 04:03:53 am »
Two of the bloggers here have had transplants and have been treated: Karen Hoyt, and Matt Starr.
Both have blogs here, and elsewhere.

Maybe you could check them out?


Offline iowafarm

  • Member
  • Posts: 6
Re: liver transplant patient that took harvoni
« Reply #3 on: February 04, 2017, 01:40:19 pm »
o.k thanks!

Offline iowafarm

  • Member
  • Posts: 6
Re: liver transplant patient that took harvoni
« Reply #4 on: February 04, 2017, 01:48:43 pm »
thank you, Lynn

 


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