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Author Topic: 27 months later - SVR12  (Read 7948 times)

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Offline Pete

  • Member
  • Posts: 110
27 months later - SVR12
« on: March 16, 2017, 12:02:22 am »
Hello to all -

I likely had the virus for 45 years.

It's been 27 months since I checked myself into the ER with acute abdominal pain  resulting from, what was considered at the time, as a simple liver cyst.

It's been 12 months since my liver resection and ablation treatment to remove a pair of tumors.  Pathology report confirmed stage 2 HCC

Along the way I failed 12 weeks of harvoni, was rejected for an Abbvie trail due to tumors, and after 3 appeals finally started 24 weeks of Viekira / Riba last July. 

Finally, today I received results of my 12 week post tx labs and I am undetected for  the HepC virus. My doctor never gave up, always reassuring me that we'd end up here one day.  She often spoke as if we were in this together.  I believed in her and never lost hope. My liver cirrhosis is well compensated for now, and I have no sign of cancer at last check. All things considered, I'm feelin' pretty well.

I noticed many recent posts of SVR results.  Congrats to all of us who have successfully made this journey.  For those just starting, be strong, take care of yourself and most importantly remain positive.  I truly believe it can make a difference.

Thanks to all who share their stories and guidance here.  In particular, thanks to the moderators who stay here long after they are cured, as to help support the rest of us. 

Regards,
Pete

 


Offline Mugwump

  • Member
  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: 27 months later - SVR12
« Reply #1 on: March 16, 2017, 01:40:24 am »
WOOOHOOO!!!
You have gone through the wringer and it is fantastic to see you have made it through to see SVR

All the very best
Eric
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: 27 months later - SVR12
« Reply #2 on: March 16, 2017, 02:42:18 am »
Wow Pete!

Congrats to you.

You have been on a heck of a long and difficult journey.

Wishing you further improving health going forwards
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline I fightis thetitis

  • Member
  • Posts: 129
Re: 27 months later - SVR12
« Reply #3 on: March 16, 2017, 05:12:31 am »
Awesome Pete!
You are an inspiration!  Congradts and all good things from here.

Best always!!!
M59  56@start of TX. date infected:1976
diagnosed 1997 - asymtomatic
Genotype 1a
AST 111 -ALT 124 - AFP -89
Viral Load 1900000 - Log 6.28
Fibro Test F4 ActiTest A3
Harvoni 24 wks - start date 11/24/15

6 Week Labs VL Undetected!
104 weeks EOT Undetected.

8/25/17 Fibrosure score 80 = F4
11/10/17 Fibroscan 7.5 mean 1.6 m/s = F2
8/2018 Ultra sound normal.

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: 27 months later - SVR12
« Reply #4 on: March 17, 2017, 05:07:24 pm »
Pete, with a journey completed like yours, I'd say this definitely calls for HAPPY DANCIN' TIME!!! What wonderful news!! So glad you persevered  and now you have a great new life ahead of you. Thanks for sharing and all the best, FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Pete

  • Member
  • Posts: 110
Re: 27 months later - SVR12
« Reply #5 on: March 17, 2017, 11:40:19 pm »
It'll take a couple of days to let this sink in. I never really thought this would happen. Many of us will still face challenges regarding liver health after completing our treatment.  So I won't be disappearing anytime soon.  I'm hoping I can be of help from time to time, or at least add valued content here and there. 

Thanks everyone!

Pete

 


Offline HazelAustralia

  • Member
  • Posts: 178
Re: 27 months later - SVR12
« Reply #6 on: April 11, 2017, 02:24:08 am »
Wow! Great news and welcome to a new world!
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Pete

  • Member
  • Posts: 110
Re: 27 months later - SVR12
« Reply #7 on: April 12, 2017, 10:39:55 pm »
A congrats all the way from Australia!.  Now that's something, thanks Hazel! 
« Last Edit: April 12, 2017, 11:54:25 pm by Pete »

 


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