Are we extra sensitive to the sun while on treatment?

[Jorah]

Hello There,

I was reading that a few people on treatment that took a walk for an hour and where red and almost sunburned latter.
I know that some antibiotics do this, will Epclusa and other treatment pharms do this?

Thank you

[Lynn K]

Sun sensitivity is listed as a side effect for Olysio maybe the posts you read were associated with that med?

[Jorah]

Sun sensitivity is listed as a side effect for Olysio maybe the posts you read were associated with that med?

One was Harvoni and the other Epclusa...today I was going to go for a bike ride and I didn't have any sunscreen so by the time I came back from the pharmacy ..I was too lazy   
Maybe they're so new they don't know about it or maybe the drug had nothing to do with the ladies that got red....

[Lynn K]

It was listed as a side for Olysio they knew about it from the clinical trials. I took Sovaldi and Olysio and when I was in the sun I felt like a stinging sensation

[gnatcatcher]

FWIW, I do a lot of nature photography, which I continued to do while on Harvoni. I didn't use sunscreen and didn't have any unusual reaction to the sun. -Gnatty

[Jorah]

FWIW, I do a lot of nature photography, which I continued to do while on Harvoni. I didn't use sunscreen and didn't have any unusual reaction to the sun. -Gnatty

Thanks Gnatty..Lynn

[KimInTheForest]

Hi Jorah. I didn't notice any sun reaction during my 12 weeks of Harvoni+riba, and I was out in the sun quite a bit. Good luck! Are you on treatment now? Or starting soon?

kim

[Jorah]

Hey Kim !!!!! 

I'm half way thru Epclusa, I was reading that a few got burned within 20 minutes with Harvoni...I figured  maybe the same can happen with Epclusa...I got hold of my nurse and she says she didn't hear about it but that veikira pack could def. do that. Maybe the people I talked to, were on something else too....How are you feeling?

[KimInTheForest]

Hey Kim !!!!! 

I'm half way thru Epclusa, I was reading that a few got burned within 20 minutes with Harvoni...I figured  maybe the same can happen with Epclusa...I got hold of my nurse and she says she didn't hear about it but that veikira pack could def. do that. Maybe the people I talked to, were on something else too....How are you feeling?

That's so cool that you're halfway through Epclusa, Jorah! I'm doing well in some ways. Thanks for asking. Very glad to be rid of Hep C! (I started my treatment 2 years ago, May 2015.) Definitely improved mental clarity. And, when the new health issue that was triggered by my treatment is not beleaguering me, I feel great physically with lots of energy.

Stay Happy & Occupy Epic Joy!

kim

[Olga]

Hello,
I started 10 weeks ago with Epclusa and I have skin reaction with the sun few days ago , I have pruritus and only on the exposed skin. this is  uncommon I think but happen for me ! Interesting if happen with others members .
Anyway, my control after 4 weeks was ; virus undetectable <15 !!!! And I have 2 more weeks ...
Olga

Génotype 3 a
FIbroscan F3

[Philadelphia]

I thought Riba caused sunburn to worsen too, but it never happened to me.

Of course, this is the moment to nag people about using sunscreen when outside - slip on a shirt, slop on sunscreen and slap on a hat! I speak of course from Australian experience - the most sunburnt country in the world (so sunburnt even Uluru is red) and also the country with the highest rate of melanomas anywhere.

[Jorah]

Looks like its happening with some people and some don't. I read a lot about itching too..

Hello,
I started 10 weeks ago with Epclusa and I have skin reaction with the sun few days ago , I have pruritus and only on the exposed skin. this is  uncommon I think but happen for me ! Interesting if happen with others members .
Anyway, my control after 4 weeks was ; virus undetectable <15 !!!! And I have 2 more weeks ...
Olga

Génotype 3 a
FIbroscan F3

[Jorah]

I had to go look up what Uluru is....    You guys should invent some sort of shower stall where you wash and then get sprayed with sunscreen automatically....dried and then go get dressed.

I thought Riba caused sunburn to worsen too, but it never happened to me.

Of course, this is the moment to nag people about using sunscreen when outside - slip on a shirt, slop on sunscreen and slap on a hat! I speak of course from Australian experience - the most sunburnt country in the world (so sunburnt even Uluru is red) and also the country with the highest rate of melanomas anywhere.

[Philadelphia]

I had to go look up what Uluru is....    You guys should invent some sort of shower stall where you wash and then get sprayed with sunscreen automatically....dried and then go get dressed.

It's a big red rock. In the middle of the country.

You know, that is a good idea about the sunscreen! At some beaches they have people set up with sunscreen air spray guns - like they use for painting cars and stuff).

Ah, Australia, It's not just the crocodiles, snakes, spiders and sharks that will kill you. The sun has a red-hot go, too.

[Jorah]

Yes..I knew it as Ayers rock    
...Spray guns great idea...

It's a big red rock. In the middle of the country.

You know, that is a good idea about the sunscreen! At some beaches they have people set up with sunscreen air spray guns - like they use for painting cars and stuff).

Ah, Australia, It's not just the crocodiles, snakes, spiders and sharks that will kill you. The sun has a red-hot go, too.

[Philadelphia]

Ayers Rock was renamed with its traditional Indigenous name about 30 years ago out of respect for the Anangu people on whose land it stands. Likewise The Olgas were renamed Kata-Tjuta.

And there endeth the history lesson and the completely off topic ramble about Australian place names.

[gnatcatcher]

Hello,
I started 10 weeks ago with Epclusa and I have skin reaction with the sun few days ago , I have pruritus and only on the exposed skin. this is  uncommon I think but happen for me ! Interesting if happen with others members .
Anyway, my control after 4 weeks was ; virus undetectable <15 !!!! And I have 2 more weeks ...
Olga

Génotype 3 a
FIbroscan F3

Olga, welcome and congratulations on being undetected! My sympathy that you have pruritus -- itching is so frustrating! I hope it goes away quickly and can be prevented in the future by sun protection.

Olga, did you know that Australia has a group of large, domed rock formations that used to have your name? I didn't -- until Philly just told us.

Best wishes with the rest of your treatment.

---

Philly, the reasons I don't use sunscreen are that 1) nature photography is done near dawn and dusk, not at the times of peak sun, 2) my climate gets much less sun than yours, and 3) my body seems not to retain vitamin D very well from supplements. Even my doctor likes that I let the sun make some of it. One of our respected health periodicals recommends that we northerners get some unprotected sun because, whereas our southerners have a high rate of melanoma and other skin cancers, they have a much lower rate of all the other cancers than vitamin-D-deficient northerners. If I lived where you do, I'd use sunscreen or protective clothing nearly all the time I was outdoors.

Gnatty