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Author Topic: Are we extra sensitive to the sun while on treatment?  (Read 11117 times)

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Offline Jorah

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  • Posts: 113
Are we extra sensitive to the sun while on treatment?
« on: May 28, 2017, 01:27:22 pm »
Hello There,

I was reading that a few people on treatment that took a walk for an hour and where red and almost sunburned latter.
I know that some antibiotics do this, will Epclusa and other treatment pharms do this?

Thank you
« Last Edit: May 28, 2017, 01:29:18 pm by Jorah »

Offline Lynn K

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Re: Are we extra sensitive to the sun while on treatment?
« Reply #1 on: May 28, 2017, 04:01:12 pm »
Sun sensitivity is listed as a side effect for Olysio maybe the posts you read were associated with that med?
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Jorah

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  • Posts: 113
Re: Are we extra sensitive to the sun while on treatment?
« Reply #2 on: May 28, 2017, 04:06:31 pm »
Sun sensitivity is listed as a side effect for Olysio maybe the posts you read were associated with that med?

One was Harvoni and the other Epclusa...today I was going to go for a bike ride and I didn't have any sunscreen so by the time I came back from the pharmacy ..I was too lazy   ;D
Maybe they're so new they don't know about it or maybe the drug had nothing to do with the ladies that got red....
« Last Edit: May 28, 2017, 04:08:10 pm by Jorah »

Offline Lynn K

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Re: Are we extra sensitive to the sun while on treatment?
« Reply #3 on: May 28, 2017, 04:13:18 pm »
It was listed as a side for Olysio they knew about it from the clinical trials. I took Sovaldi and Olysio and when I was in the sun I felt like a stinging sensation
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline gnatcatcher

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Re: Are we extra sensitive to the sun while on treatment?
« Reply #4 on: May 28, 2017, 05:13:56 pm »
FWIW, I do a lot of nature photography, which I continued to do while on Harvoni. I didn't use sunscreen and didn't have any unusual reaction to the sun. -Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Jorah

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  • Posts: 113
Re: Are we extra sensitive to the sun while on treatment?
« Reply #5 on: May 29, 2017, 11:52:06 am »
FWIW, I do a lot of nature photography, which I continued to do while on Harvoni. I didn't use sunscreen and didn't have any unusual reaction to the sun. -Gnatty

Thanks Gnatty..Lynn

Offline KimInTheForest

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Re: Are we extra sensitive to the sun while on treatment?
« Reply #6 on: June 01, 2017, 01:54:12 pm »
Hi Jorah. I didn't notice any sun reaction during my 12 weeks of Harvoni+riba, and I was out in the sun quite a bit. Good luck! Are you on treatment now? Or starting soon?

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Jorah

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Re: Are we extra sensitive to the sun while on treatment?
« Reply #7 on: June 01, 2017, 02:08:37 pm »
Hey Kim !!!!!  :)

I'm half way thru Epclusa, I was reading that a few got burned within 20 minutes with Harvoni...I figured  maybe the same can happen with Epclusa...I got hold of my nurse and she says she didn't hear about it but that veikira pack could def. do that. Maybe the people I talked to, were on something else too....How are you feeling?

Offline KimInTheForest

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  • Believe in yourself
Re: Are we extra sensitive to the sun while on treatment?
« Reply #8 on: June 01, 2017, 03:09:50 pm »
Hey Kim !!!!!  :)

I'm half way thru Epclusa, I was reading that a few got burned within 20 minutes with Harvoni...I figured  maybe the same can happen with Epclusa...I got hold of my nurse and she says she didn't hear about it but that veikira pack could def. do that. Maybe the people I talked to, were on something else too....How are you feeling?

That's so cool that you're halfway through Epclusa, Jorah! I'm doing well in some ways. Thanks for asking. :) Very glad to be rid of Hep C! (I started my treatment 2 years ago, May 2015.) Definitely improved mental clarity. And, when the new health issue that was triggered by my treatment is not beleaguering me, I feel great physically with lots of energy.

Stay Happy & Occupy Epic Joy! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Olga

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Re: Are we extra sensitive to the sun while on treatment?
« Reply #9 on: June 03, 2017, 05:33:27 pm »
Hello,
I started 10 weeks ago with Epclusa and I have skin reaction with the sun few days ago , I have pruritus and only on the exposed skin. this is  uncommon I think but happen for me ! Interesting if happen with others members .
Anyway, my control after 4 weeks was ; virus undetectable <15 !!!! And I have 2 more weeks ...
Olga

Génotype 3 a
FIbroscan F3



Offline Philadelphia

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Re: Are we extra sensitive to the sun while on treatment?
« Reply #10 on: June 03, 2017, 06:24:02 pm »
I thought Riba caused sunburn to worsen too, but it never happened to me.

Of course, this is the moment to nag people about using sunscreen when outside - slip on a shirt, slop on sunscreen and slap on a hat! I speak of course from Australian experience - the most sunburnt country in the world (so sunburnt even Uluru is red) and also the country with the highest rate of melanomas anywhere.
:)
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Jorah

  • Member
  • Posts: 113
Re: Are we extra sensitive to the sun while on treatment?
« Reply #11 on: June 03, 2017, 07:10:17 pm »
Looks like its happening with some people and some don't. I read a lot about itching too..

Hello,
I started 10 weeks ago with Epclusa and I have skin reaction with the sun few days ago , I have pruritus and only on the exposed skin. this is  uncommon I think but happen for me ! Interesting if happen with others members .
Anyway, my control after 4 weeks was ; virus undetectable <15 !!!! And I have 2 more weeks ...
Olga

Génotype 3 a
FIbroscan F3

Offline Jorah

  • Member
  • Posts: 113
Re: Are we extra sensitive to the sun while on treatment?
« Reply #12 on: June 03, 2017, 07:16:08 pm »
I had to go look up what Uluru is.... :o   You guys should invent some sort of shower stall where you wash and then get sprayed with sunscreen automatically....dried and then go get dressed.

I thought Riba caused sunburn to worsen too, but it never happened to me.

Of course, this is the moment to nag people about using sunscreen when outside - slip on a shirt, slop on sunscreen and slap on a hat! I speak of course from Australian experience - the most sunburnt country in the world (so sunburnt even Uluru is red) and also the country with the highest rate of melanomas anywhere.
:)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Are we extra sensitive to the sun while on treatment?
« Reply #13 on: June 03, 2017, 07:34:38 pm »
I had to go look up what Uluru is.... :o   You guys should invent some sort of shower stall where you wash and then get sprayed with sunscreen automatically....dried and then go get dressed.

It's a big red rock. In the middle of the country.

You know, that is a good idea about the sunscreen! At some beaches they have people set up with sunscreen air spray guns - like they use for painting cars and stuff).

Ah, Australia, It's not just the crocodiles, snakes, spiders and sharks that will kill you. The sun has a red-hot go, too.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Jorah

  • Member
  • Posts: 113
Re: Are we extra sensitive to the sun while on treatment?
« Reply #14 on: June 03, 2017, 07:40:21 pm »
Yes..I knew it as Ayers rock   ;D 
...Spray guns great idea...

It's a big red rock. In the middle of the country.

You know, that is a good idea about the sunscreen! At some beaches they have people set up with sunscreen air spray guns - like they use for painting cars and stuff).

Ah, Australia, It's not just the crocodiles, snakes, spiders and sharks that will kill you. The sun has a red-hot go, too.

Offline Philadelphia

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Re: Are we extra sensitive to the sun while on treatment?
« Reply #15 on: June 03, 2017, 07:49:39 pm »
Ayers Rock was renamed with its traditional Indigenous name about 30 years ago out of respect for the Anangu people on whose land it stands. Likewise The Olgas were renamed Kata-Tjuta.

And there endeth the history lesson and the completely off topic ramble about Australian place names.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Are we extra sensitive to the sun while on treatment?
« Reply #16 on: June 03, 2017, 08:49:28 pm »
Hello,
I started 10 weeks ago with Epclusa and I have skin reaction with the sun few days ago , I have pruritus and only on the exposed skin. this is  uncommon I think but happen for me ! Interesting if happen with others members .
Anyway, my control after 4 weeks was ; virus undetectable <15 !!!! And I have 2 more weeks ...
Olga

Génotype 3 a
FIbroscan F3

Olga, welcome and congratulations on being undetected! My sympathy that you have pruritus -- itching is so frustrating! I hope it goes away quickly and can be prevented in the future by sun protection.

Olga, did you know that Australia has a group of large, domed rock formations that used to have your name? I didn't -- until Philly just told us.

Best wishes with the rest of your treatment.

---

Philly, the reasons I don't use sunscreen are that 1) nature photography is done near dawn and dusk, not at the times of peak sun, 2) my climate gets much less sun than yours, and 3) my body seems not to retain vitamin D very well from supplements. Even my doctor likes that I let the sun make some of it. One of our respected health periodicals recommends that we northerners get some unprotected sun because, whereas our southerners have a high rate of melanoma and other skin cancers, they have a much lower rate of all the other cancers than vitamin-D-deficient northerners. If I lived where you do, I'd use sunscreen or protective clothing nearly all the time I was outdoors.

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

 


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